Rolling To Recovery - A Colon Cancer Survivor Story

I want to thank everyone who has signed into the guestbook over the past 5 years! I couldn't be more thrilled that it has become a place for survivors to post their stories, newly diagnosed patients to find hope, friends and family to ask questions, and so much more. Most importantly, the guestbook has become a place for people to connect and share their stories, and for that reason we have decided to turn it into a message board! Please feel free to read, share your thoughts, your stories and connect with others!

Thank you so much for making this community.

Click here to post a message to the new and improved message board.

Click on the year to read comments: 2005, 2004, 2003, 2002, 2001, 2000.

From: Brenda Durant
Email: Durant_B@msn.com
Date: Wed, August 31, 2005
Time: 00:47:07 AM (EST)

Comments

I don't want to frighten anyone; but, it is good to be aware of side affects. I read an article "Liver Toxicity Masquerading As Recurrent Colon Cancer". The article siad that Oxaliplatin caused a toxic condition that made lesions appear in the liver. Doctors assumed cancer, yet after otopsy found no cancer, only toxicity. Another article said a trial showed 76% treated with Oxaliplatin were found to have liver toxicity. I am very concerned. I have heard of people saying the treatment stopped working, they got worst and were even hospitalized. I now wonder about the drug. Another report that I read said the drug was another fast to market and had very small benefits over the older treatment, but did have much worst side affects. If I had had no liver lesions before Oxaliplatin, then got them, I would ask the doctor to make sure it was not as described in the article.

From: Angie Cordi
Email:
Date: Tue, August 30, 2005
Time: 09:13:02 PM (EST)

Comments

Sorry if my comments are very short but accidently i pushed the button on the computer, I just want to say be strong and have faith,and never give up fighting.Life is wounderful specially when is the second time around today I cherish every moment I look forward for a long life with my daughter and family. ALWAYS THINK A BEAUTIFUL LIFE IS BE STRONG AND HAPPY TO WOUNDERFUL CONCEPT STRONG AND HAPPY

From: Angie Cordi
Email:
Date: Tue, August 30, 2005
Time: 09:01:04 PM (EST)

Comments

I am a Stage colon cancer survivor just recent finish chemo,I had a very though ride

From: Andrea
Email:
Date: Mon, August 29, 2005
Time: 11:35:43 PM (EST)

Comments

I am a Stage IV colon cancer survivor. I am on my third oncologist and treatment center. I can not stress enough to educate yourself as much as you can about the disease. At some time or another you are going to have to be your own advocate in making sure you are getting the absolute best treatment. Just because someone tells you a certain Dr is good, make assumptions only after you've met with them and had a chance to start a treatment plan. Some Drs. will treat the cancer more aggressively than other Drs. Some Drs have so many patients they never look at anything beyond the standard treatments. Don't let statistics discourage either. EVERYONE is different and responds different. There are several options available now to colon cancer patients. Just as important as the medicine side of getting well is keeping your spirit well, stress levels down, and staying positive. It takes an adjustment period when cancer comes in your life. It has taken me a year to adjust but I am still kicking and screaming. I won't go out without a fight.
God Bless you and your family,
Andrea

From: cassi lighty
Email: c_lighty12@comcast.net
Date: Mon, August 29, 2005
Time: 09:57:25 PM (EST)

Comments

hello-
i lost my father seven years ago and now my mother has been going through so much pain. before i begin, these stories have touched my heart and god bless you all. my mother is 51 and she has been getting test done on her liver, the first test showed that she had cancer and the second said her liver was fine. i don't know what to think about all that. she is getting a colonoscpy on sept 8th to see if she has colon cancer. can you begin to explain the effects? i am scared for her life. she is my only parent. she as had dark black looking stool for a long time and doctors said she was fine. she is swollen in the stomach area and feels twisted. alot of pain in her stomach, i could go on and on about her syptoms. i think that there is more than that involved but i saw this website and i see what you all have been through and experienced and i was hopeing for some advice on colon cancer so i can help others as you are now. thank you all so much for your time and god bless you all and my heart goes out to you.....cassi

From: Deborah
Email: Dallexus@aol.com
Date: Mon, August 29, 2005
Time: 04:03:18 PM (EST)

Comments

My husband was diagnosed with Stage III colon cancer, had a bowel resection at the end of June and has not regained his appetite since. He has tried Magace, Marinol and steroids. He has lost 46 lbs. and cannot lose anymore!! Can someone please give me some advice? Also, he has been on 5-FU, camptosar and Avastin and today we found out that the cancer has reocurred at the sight of his resection. Isn't it unusual to come back this quickly? (2 months)
I am at the end of my rope. Any advice wouold be appreciated

From: Rob
Email: leenrob@msn.com
Date: Mon, August 29, 2005
Time: 03:01:47 PM (EST)

Comments

This is for Blake Behringer, who posted an encouraging message on August 18th. But, I'm also interested in hearing from anyone else who can relate. I placed a post in June that chronicled much of our story.

Mr. Behringer,

I just read the post you put on the Rolling to Recovery website guestbook. It was very inspiring. My wife, Lee, is battling stage IV colon cancer. I would like to ask about your chemotherapy regimen. You listed several drugs all together. Were you on all of them at once? Or, were you on some for a while, and then others?

Lee has been on 5FU, Leucovorin and Olaliplaten in the past. However, the cancer metastasized while on that particular cocktail. She is now on 5FU, Leucovorin, Camptosar and Avastin. We have a scan scheduled for September 20th. We're hoping and praying for shrinkage of the lesions in her liver.

Lee is 41. We have 4 children ages 12, 11, 6 and 4.

I'd appreciate knowing more about your journey.

Sincerely,

Rob Kirkpatrick

From: Dottie Lyons
Email: DotELyons@aol.com
Date: Thu, August 25, 2005
Time: 11:52:29 PM (EST)

Comments

Hi Molly,
Maybe I've been under a rock, but I just heard about you and your colossal colon project. I wish I had heard 3 years ago... but My story is good! I was diagnosed with StageIII colon cancer at 47. With surgery and chemo for 24 treatments I am, as they say,"Healthy as a horse"! Keep up the great message! Thank you, for making kids and grown-ups talk about and learn about Colon cancer!!
Now if we didn't have to have BROWN ribbons.....

Dottie

From: Maryam
Email: msattar1@yahoo.com
Date: Thu, August 25, 2005
Time: 03:52:19 PM (EST)

Comments

Hi, my sister told me about this site. I was diagnosed with Stage II colon cancer last November at age 36 and still here, going strong. I am so glad to hear that I am not alone. My doctors kept telling me i was an 'unusual case'. Anyway I am nearing the one year anniversary mark and am interested in any way I can help,volunteer, etc. in the New York area. Keep up the good work.

From: Peggy
Email: pud@mchsi.com
Date: Wed, August 24, 2005
Time: 03:05:20 PM (EST)

Comments

Hi Bill,
I was a Stage IIIa and went through surgery to remove about 7 inches of Colon then 6 months of Chemo. I had very few side effects, thinning of hair, not much taste after the 6th treatment, numbness of tips of fingers and toes. Colon Cancer is a VERY curable cancer Bill. 85% is a very good number I think. I believe they gave me 90% survival rate with the surgery and complete 6 month Chemo. Write my email if I can help you anymore. Would be glad to share any of my experiences with you.

Peg

From: bill
Email:
Date: Wed, August 24, 2005
Time: 01:52:47 PM (EST)

Comments

Hi Peggy,
My father was not able to complete his Chemo. What is your stage.
My father had a T2 tumor in 1 lymph node. The doctor told him that he as a 15% chance of it coming back even with not having all the chemo. He had a month and a half of chemo and all the radiation treatments. I am trying to move on but i get concerned. I guess 85% chance of survival is pretty good.

From: Peggy
Email: pud@mchsi.com
Date: Wed, August 24, 2005
Time: 11:19:19 AM (EST)

Comments

Hi everyone! I am now halfway through my 4th week off Chemo Therapy and my energy seems to be coming back, I am cooking and cleaning again so feel more like myself. I still have some numbness in my fingers and toes and no appetite yet. I seem to be able to eat and taste more foods but no "full or empty" feeling yet. Can anyone tell me how long it will be before I get the "appetite" back and being full after eating or the hungry feeling? I guess I am just wanting things to be normal RIGHT NOW!!! Smiles...someone just let me know what happened to them in these areas please. I know it is different for each person, but just want some idea. Thanks!!

Peg :-)

From: Trish
Email: yakkerk@yahoo.ca
Date: Mon, August 22, 2005
Time: 09:28:40 AM (EST)

Comments

Molly I just wanted to say your story is a true inspiration to us all..I wanted to mention that.. but I was just so upset finding out my dads news last week I can't sleep, all I think of is that and how I may loose my father.. I haven't told my kids anyting yet .. my daughter is so close to her papa it will be so hard on her as for us all.. once again good luck ..good life and my god bless you... Trish

From: Trish
Email: yakkerk@yahoo.ca
Date: Mon, August 22, 2005
Time: 09:16:16 AM (EST)

Comments

My father was told on Tuesday Aug 16th..2005 that he has blockage in his colon.. they said it was not cancer but I am abit confussed here. to back track abit on his medical history.. ten years ago he had a cardia arrect so they implanted a difibrillator for his heart .. its just like the paddles to restart a heart... on and off he has had good and bad days.. now his problem now.. last november he was in the hospital for what they said was Diverticulitis.. infection of the intestines.. so he was put on iv to help clear that up... but since then he has been sick very often.. tired ,very bad stomach pain,never hungrey complaining of fullness but he hasn't ate.. sick to his stomach, blood in his stool.. the list goes on... but what I can't understand is his doctor said it isn't cancer.. but with my dad being so weak his doctor said he would never withstand any surgery.. And if it was cancer of the colon which I think it is.. he can't have chemo or radiation because of his difibrillator implanted.. so I am loss here.. what can be done for him.. sheesh.. is he to just sit back and let nature take its course .. my mom is a basket case right now.. crying all the time.. His doctor told him to go and enjoy life that there is nothing that really can be done.. is it cancer or not.. don't know.. but I sure would like to find out myself.. and so does my family... what to do.. we were told he will only get worse.... Trish

From: Andrea
Email:
Date: Fri, August 19, 2005
Time: 04:59:31 PM (EST)

Comments

Jo,
I had my colon resected July 2004 at the age of 31. The first few days after surgery weren't too bad because I was heavily medicated. However, when I had to start weaning myself off of the drugs in order to go home it was unpleasant. I had anxiety over all the tubes coming out of my body. I was very weak for a couple of months. The most important thing is to get up and moving in order to regain your strength. I completely lost my appetite also. Your Dr can prescribe something to increase your appetite. I have yet to have my liver resected so I can't help you there. I did have both ovaries and my gallbladder removed the same time as the colon resection. I wish you the best of luck.
LiveStrong,
Andrea

From: Jo
Email: jams67@rmbb.net
Date: Fri, August 19, 2005
Time: 03:56:59 PM (EST)

Comments

I, like many on this website that I have read, had no symtoms. Work out at the gym and really don't eat that badly, smoke, drink very much,etc. Age 60. A simple colonoscopy screening found a small cancerous polyp in the transverse colon. An MRI/CT and PET scan showed cancer on the right side of the liver also. No lymph nodes involved. Stage IV. I am going to have surgery next week to resection the colon and remove the right lobe of my liver with chemo after and would like to know about how long it takes to recuperate and what the steps are. I don't expect miracles, but no one seems to address what the baby steps are for after surgery. Will they get me up at the hospital on day 3, 4, ect. and what kind of help will I need at home for the first 1, 2, 3 weeks? I hate going into the unknown. Thanks for your help.

From: Adam
Email: nymfan01@aol.com
Date: Thu, August 18, 2005
Time: 05:26:34 PM (EST)

Comments

Hi Molly. My Name is Adam from Long Island NY. I am 35 year old male. Just yesterday, I was diagnosed with COlon Cancer. My dr. advised me that this a treatible, fixable thing. At first I felt like a Deer caught in headlights. It is early in stage I. He did not make a mention of stages, so would guess that it early. I had a sonogram last month and my liver was completely clear of any signs of cancer. He said to me that I have a lot of things in my favor. No family history, I am young, I have a virgin abdomen, I am a little overweight, but not obese. He said I seem to have strong will in my favor. He does not forsee any reason for this to have spread anywhere.
this weekend, I ma going for a CAT scan. today is 8/18/05. I had my colonoscopy on 8/15, consult with surgeon on 8/17 and surgery is 8/29/05. I am scared but I have full confidence in my doctor and strngth in myself to come through this. I have a very good support system both at work and at home. Molly. from some of the comments listed here on this website, is really an uplifting,inspiration lifter.

I look forward to hearing back from you very soon.

-Adam.

Feel free to email directly if you would like to discuss anything further. take care of yourself. and God is with you and me !! :)

From: BLAKE BEHRINGER
Email: POWDERCOAT05@AOL.COM
Date: Thu, August 18, 2005
Time: 03:08:55 PM (EST)

Comments

I WAS DIAGNOSED OCT.2004 WITH COLON CANCER AND IT HAD SPREAD TO MY LIVER W/17 LIASIONS STAGE 4. MT ONCOLOGIST IS DR. KAREL DICKIE AT THE ARLINGTON CANCER CENTER IN ARLINGTON TEXAS. HE IS ONE OF THE MOST BRILLIANT MEN ON THE EARTH. MY CHEM CONSISTED OF 5FU, LECOVORIN, COMPOSTAR, CPT 11, XELODA, OXALIPLATEN, AVASTIN AND ERBITUX. IN THREE ROUNDS OF CHEMO I GAINED A 90% REDUCTION IN THE AMOUNT OF CANCER IN MY LIVER. I MAINTAINED THIS COURSE OF THERAPY FOR THREE MORE MONTHS. ON JULY 19 TH i WENT MEMORIAL SLOAN KETTERING AND HAD DR. YUMAN FONG REMOVE 2/3RDS OF MY LIVER THE CANCEROUS SIDE OF COURSE. I AM NOW 4 WEEKS OUT OF SURGERY AND DOING GREAT REAL SORE OF CORSE, BUT I AM CANCER FREE. I PLAN ON 18 MONTHS OF PREVENTIVE CHEMO JUST MAKE SURE.

From: Andrea
Email: andrea_rocco1973@yahoo.com
Date: Wed, August 17, 2005
Time: 10:12:04 PM (EST)

Comments

Correction: I was diagnosed July 14th, 2004 with Stage IV colon cancer.

From: Andrea
Email: andrea_rocco1973@yahoo.com
Date: Wed, August 17, 2005
Time: 09:40:41 PM (EST)

Comments

Hello Everyone. A while back I posted a message on this website and have been able to connect with other people facing similar challenges as I am. I try to read new postings when I can and hope to eventually create my own web blog. For those of you who don't know me, I am a Stage IV colon cancer Survivor. I was diagnosed July 14th, 2005 shortly after relocating to Hawaii for the Air Force. Since then I have been medically retired and continue to battle this disease. I am sending out a weekly update to keep family and friends posted. If you are a cancer survivor, friend, or caregiver and would like me to add you to my list please e-mail me. If you have specific questions I will answer your e-mail as soon as possible. Here is a summary of my most recent update:
Today I went in for chemotherapy, etc. I've decided to send updates to everyone at one time since I can't remember whom I've told what. My platelets were in the 60 thousand range which is way below the required 100,000 they need to be in order to do chemo. I found a new Dr about a month ago. I am very happy with him and the staff. He is treating the cancer much more aggressively than the previous Dr. He let me make the decision today as to whether or not go ahead with the treatment. I said, "Go For It!". I have made a goal with my Dr to get the tumors small enough in my liver to where they can remove them. My Dr. feels that my platelets are probably low due to my enlarged spleen which is due to my diseased liver and chemo... Blah, blah, blah... Steve (husband) has been giving me daily shots to increase my white blood cell count. For those of you, that are curious I am receiving the following chemo therapies: 5-Flouracil, Leucovorin, and Camptosar. I am also receving a fairly new angiogenesis drug called Avastin. Most recently the new Dr has added a monoclonal antibody drug called Erbitux. This is also a fairly new drug. I have a whole list of side effects from the meds and am taking everything from Immodium A-D (sorry if this is too much information) to Nexium (started today for chemo induced heartburn/acid indigestion). I apologize if you happen to call or e-mail and never get a response. I am trying very hard to rest and win this battle. Please forward this if you'd like. I "blind courtesy copy" everyone for your privacy. I'm off to la la land for a few days.
As Lance Armstrong says, "LIVESTRONG"...
Andrea :0)

From: Patty
Email:
Date: Wed, August 17, 2005
Time: 09:38:30 PM (EST)

Comments

I'm just looking for info

From: Holly
Email: Jhrochell@aol.com
Date: Wed, August 17, 2005
Time: 02:00:16 AM (EST)

Comments

Molly, you INSPIRE me! I am a Stage IV Colon Cancer SURVIVOR without evidence of metastatic disease. I am grateful every minute!

Just Believe...

Holly

From: brittany
Email: bffeeyore@aol.com
Date: Mon, August 15, 2005
Time: 08:27:00 PM (EST)

Comments

hey i have a friend who had a cousin who died of cancer just about 2 months shes crushed well im sorry i cant talk more but i have to go please e-mail me back thank u!

From: Gina
Email: judge442@bellsouth.net
Date: Sun, August 14, 2005
Time: 10:04:54 PM (EST)

Comments

Dear Molly,
I just read your story and am in awe of you. Richard Simmons once said "I had rather be known for overcoming the tragedies in my life than pitied for having them." I try to live by that rule and you clearly have. My daughter who is 22 was diagnosed with irritable bowel syndrome 3 years ago. She continued to have nausea and just had a colonoscopy and the light down the throat also to rule out any other problems. The gastroenterologist said everything was fine but he removed a polyp. It was an adenoma polyp. This is a precancerous polyp. It was 1cm. Now she will have another colonoscopy in 1 year to ensure that no more grow and remove them if they do. I never in a million years thought she would have a precancerous polyp. I even discouraged her from having these tests because I thought it was her nervousness causing her nausea. I thank God that she did not listen to me. They said this polyp did not cause her nausea but that she just has a very sensitive stomach. I also am going to be tested because they said that this type of polyp tends to run in the family. It may be me that she got this from. I have no family history of polyps. I am 42. I am now very enlightened on how common colon cancer is. I thought it was just a disease of the older, but clearly cancer doesn't care who it chooses. Thank you for your wonderful website. You are an inspiration to everyone.

From: Tyler Garr
Email: tiggerleigh833@yahoo.com
Date: Wed, August 10, 2005
Time: 00:23:52 PM (EST)

Comments

I was watching Life and Style and I saw Erika's story and I was amazed that she came through so strong. Cancer has affected my life in numerous ways, including my own diagnosis, and I wanted to say that I think its amazing what ya'll are doing. I am voulenteer counselor at a camp for children with cancer called Camp Fiesta, and i am dedicating my life to making sure there is always somewhere for those kids to go, so as a fellow...I dont know what you would call it...caring person? I wanted to say that what ya'll are doing is great.I have a tattoo of a cancer ribbon on my wrist, dedicated to all the people I know who have and have not come through this disease, and part of that ribbon goes out to ya'll as well.

From: Kersten
Email: kerstenburns@hotmail.com
Date: Wed, August 10, 2005
Time: 10:27:38 AM (EST)

Comments

www.aaronsadventure.com

Aaron was just about to turn 17 when he was diagnosed with stage 4 colon cancer. Now at 18 he is still fighting the fight with great faith that he will be healed. He is one amazing young man.

From: Steve R Lopez
Email: Dangomax@quixnet.net
Date: Wed, August 10, 2005
Time: 10:07:56 AM (EST)

Comments

Dear Friends
I would like to up date you on my wife Nancy's condition. She is now on her 2nd type of chemo. CPT-11 and erbitux. The fol fox 5 treatment only allows for 12 rounds and it had stopped working at about the 11th treatment. The lowest her CAE count got on the fol fox 5 was about 78 and then it started to climb again to over 100. That was good as it started at over 315. With the CPT-11 it is now down to 24 the lowest it has ever been. She rolled throught the fol fox as if it where nothing however the CPT-11 makes her sick for about 1 day sometimes two or three. She must be careful what she eats as that makes can make her more sick. After the CPT-11 treatment she only eats apple sause, bake potato, tost, or white rice for about 1 day. This seams to help and only drinks water or a little tea. I hope her story is a positive one for all you just finding out that you may have cancer. We have been fighting this for almost 1 year and will fight it until we win. I want to say thank you to all of you that have been praying for her after all it is Gods will not ours. Pray is the key and he will lead you in the direction you need to go all, we have to do is listen. Nancy is also taking supplements as Caroline Vanderbilt has said it is what we are doing to our bodies that is causing all these problems. Nancy is on a diet based on her blood type and sees a neutritionist who is a 14 year cancer survivor her-self. We where lead to her by a mutual friend and as it turned out a few common friends. We feel God lead us there as well. She is a wonderful woman who believes in God and that he put everthing we need for our bodies on earth so they could heal them-selves. She believes in helping your body heal it-self through diet and supplements, to help your immune system funtion like it should. If anyone would like to know more about what Nancy is doing or how she is feeling please feel free to E-mail me. I will get back to you as soon as I can. I travel often and it may take a while but I will try to return mail as soon as I can. Thank you all again for your prayers and Thank you Molly for the site. God Bless and take care.
Steve Lopez

From: Caroline Vanderbilt
Email:
Date: Tue, August 09, 2005
Time: 07:01:18 PM (EST)

Comments

I need to correct the spelling of Patrick Quillin, PhD.RD. sorry, I misspelled his name.

From: Caroline Vanderbilt
Email: gabrielmicha@aol.com
Date: Tue, August 09, 2005
Time: 06:58:06 PM (EST)

Comments

Did you all know that Diet and lifestyle are the causes of most of the deaths and disabilities that people suffer in the US today. this is according to Dr. John A. McDougall. By admission of the American Medical Association and the World Health Organization, the US is in the worst epidemic of chronic and degenerative disease that mankind has ever known! Out of 100 industrialized nations in the World, the US is rated #42 in Life Expectance and 82nd in the effective Prevention of disease! According to Patrick Wuillin,PhD., RD, "New estimates say that 90% of all cancer is environmentally caused and hence Preventable! Environmental factors include foods, pollutants, too much sunlight, tobacco, etc. Of these environmental factors, nutrition (diet) is probably the most important."

Based on this knowledge, I am investigating the field of Detoxifiying my body, that is, learning how to get the toxins and pollutants out and absolutely good nutrition in.

According to 380 respected Physicians from all over the world in the Alternative Medicine Definitive Guide there are several methods of Detoxification available. These include fasting, specific diets, colon hydrotherapy, vitamin therapy, chelation therapy and hyperthermia. The two basic fasts are 1. Juice fasting and 2. water fasting....of these two the Juicefasting.org/detoxification.htm states that Juice fasting is the King of Detoxification methods because it nurishes the body, especially with live enzymes which jump start a sluggish immune system and provides nourishment for sustaining the fast. If you can get the proper guidence, perhaps from a Dr. like Evarts Loomis, co-founderof the American Holistic Medical Association and founder of Meadowlark, America's first, but not only, live-in health and growth retreat where they teach you how to Detox your body and how to properly nourish your body, it may be possible to not only prevent Cancer from ever getting a start in your body but to stop it once it has started.

I wish I had know about the role of diet and colas, and colonics and detoxifing my body and all the other Natural means of taking care of myself and my body before I was diagnosed with Renal Cell Carcinoma followed by Breast Cancer. Perhaps then, I could have avoided all the suffering I have been though.

I must tell you tho, that today, because of new and improved diets and no colas, and colonics and detoxifying my body...I am well and happy and no one could ever tell by looking at me today that I ever went through such horrible times.....

I wish you all the best on your journey to health and try to remember that sometimes a devestating illness is simply your body trying to tell you that what you have been putting into it is making it sick and what you have not been eliminating is making you sicker. It is a wakeup call to change your diet and your life=style. My wish for you is that you understand and make the changes necessary to save your life. Before it is too late......

From: Caroline Vanderbilt
Email: gabrielmicha@aol.com
Date: Tue, August 09, 2005
Time: 03:08:01 PM (EST)

Comments

I am a two time Cancer Survivor...I survivied Renal Cell Carcinoma (cancer of the kidney) and breast cancer. I used a combination of surgery and alternative therapy called Colon Hydrotherapy....I suggest that a lot of colon cancers are caused by improper elimination of feces from the colon...please do yourselves a favor and check out Colon Hydrotherapy on the Net....God Bless all....

From: Peggy
Email: pud@mchsi.com
Date: Tue, August 09, 2005
Time: 09:04:37 AM (EST)

Comments

Claudia I am sorry about your sister but have hope and faith. There are many Stage IV cases who are living full and healthy lives.

Another update on myself here. Chemo done and had the Cat Scan yesterday and all tests were Negative!!! PTL They will take my port out next Tues. and I think I can finally start to LIVE again!!! Thank you all for your thoughts and prayers. I couldn't have done this without God and my faith. HE was in complete control and I praise him for all this!!!

Peg

From: Megan Wethington
Email: meg8630@hotmail.com
Date: Sat, August 06, 2005
Time: 11:19:15 PM (EST)

Comments

Hi Molly, Great job with all you have done! I was diagnosed with stage III colon cancer the day before my 25th birthday. I'm 26 now and a 1 year survivor of this disease that turned my world completely upside down! I have 3 more chemo treatments to go. I've completed 9 of 12 treatments and 6 weeks of radiation. Due to complications with chemo it's been a very long road to recovery but I've kept a positive attitude and can now see the end in sight! I had a follow up colonoscopy that was clear and 3 pet/ct scans since 8 inches of my colon was removed that have all been clear. I have a 5 year old son that has helped keep me motivated as well as supportive friends and family.Thanks again for your inspiring story, it's comforting to know that there are other young women out there that are doing well after this disease comes into their lives uninvited. Looking ahead! Megan

From: CLAUDIA
Email: CLAUDIAPIMENTEL29@HOTMIL.COM
Date: Fri, August 05, 2005
Time: 05:07:01 PM (EST)

Comments

HI MOLLY

MY SISTER IN LAW WAS JUST DIAGNOSED 1 MONTH AGO WITH RECURRENT COLON CANCER HAT HAS SPREAD TP LUNGS AND LIVER.

I HAVE BEEN TRYING TO BE THERE FOR HER, IT HAS BEEN VERY HARD TO COPE WITH THIS SITUATION,. THAT LAST THING THE ONCOLOGIST SAID IS THAT SHE IS IN STAGE 4. SHE IS GOING TO GET CHEMO AND RADIATION. I AM VERY SCARED HER PAIN IS GETTING VERY HARD. RIGHT NOW SHE IS IN THE HOSPITAL TO ALIVIATE THE PAIN, CAN YOU HELP .. WHEN CANCER IS AT STAGE 4.
DOES THAT MEAN THATS THE END. I SO SCARED THAT SHE IS CLOSE TO DEATH. PLEASE HELP IO LOVE HER SO DEARY, IT HURTS TO SEE HER THAT WAY. BUT I CANT SEE HER LIVING US THAT LOVE HER SO MUCH

HELP

From: andrea
Email: andrealev@optonline.net
Date: Fri, August 05, 2005
Time: 10:29:10 AM (EST)

Comments

dear molly, my sister sharon is off xeloda. it didnt work and is now on erbitux. we hope this will shrink the lesions on her lungs so they can remove them surgically. the scans also showed spots on her abdomen. is there realistically any hope? please e mail me i would love to know if there are any survivors that have the same thing as sharon. thanks for everything. andrea

From: steve
Email: steve@caramail.com
Date: Fri, August 05, 2005
Time: 06:33:46 AM (EST)

Comments

i love this site!

From: Peggy
Email: pud@mchsi.com
Date: Wed, August 03, 2005
Time: 08:37:51 AM (EST)

Comments

Just an update here. This is my last day on Chemo and the fanny pack will be removed for the last time today at 3:30!!! PTL I go in for the Cat Scan on Monday at 8:30. The doctor was very uplifting. He said since I had nothing showup on the Cat Scan before the Chemo, that it is very unlikly there will be anything there this time. Just praying there won't be anything. If not, they will remove the Port and I will be free again!! The doctor told me he didn't expect me in here for anymore Chemo which is so positive!! I just can't think that he would say anything like that if he weren't pretty sure of things. He said I did extremely well with the Chemo. Thank you all for your support and prayers. You know I am praying for all of you as well and will continue to!! This was the greatest site I have ever found and has helped me so much!! Thank you Molly. I will write you back personally Molly in reply to your emails to me after this week of my last "tired". Hang in there Caroline, we will be praying and thinking of her and you often. Have a POSITIVE outlook and thinking girl. Things can turn around at any time. Thanks everyone again!!

Peg Always smilin!!!!

From: Caroline
Email: cen22824@yahoo.com
Date: Tue, August 02, 2005
Time: 08:20:02 PM (EST)

Comments

Just to update info on my sister Cathy. She started her 3rd round of chemo in the beginning of May. She only had 2 doses of chemo and she was hospitalized. At first her doctor said she was just dehydrated. Finally they did an x-ray and saw something in her small intestines that didn't look right so they did exploratory surgery. She had 13 inches of intestine that had died and ruptured. They removed it and she was sent home. About 4 days later she had chest pains and her husband called 911 because they thought she was having a heart attack. They did another x-ray, saw something again. Did another surgery and found that she had a blockage in her small intestines. They have removed the blockage but she is still extremely ill. Her doctor thinks that all this is due to the radiation that she had in September but she thinks it happened because of the chemo. She has lost 20 lbs since May. She just can't seem to eat anything. Today she was vomiting and had diarreah. I don't know how much longer she can last like this. It is really hard on the whole family. She is raising my younger sister that died of colon cancer children. It's really hard on them because they've already lost one mom to this. Please pray for her recovery.

From: Annmarie Dieterich
Email: anniedieterich@optonline.net
Date: Sun, July 31, 2005
Time: 03:20:22 PM (EST)

Comments

I was so glad to hear of your club My otherwise healthy 37 year old beautiful sister was recently diagnosed (6-16-05) with advanced colon cancer She is the most health consious person I know. Gym 3-4x a week never smoked, drank or ate unhealthly. A member of our family recently gave her a colondar for her birthday I was so impressed. Keep up the good work and if you do a 06 colondar you would want to consider her for a model. Good luck to you my family will pray for all the girls in the colondar.. Annie

From: Sandra
Email: bautista41@hotmail.com
Date: Wed, July 27, 2005
Time: 09:02:20 PM (EST)

Comments

My brother, who was 49 years old, just passed away July 1 with liver mets from colon cancer. He was diagnosed March 2003 and he had 12-15 inches of the colon removed; however, it had spread to his liver with two tumors that were 5 cm each. He tried different kinds of chemo over the past two years and finally the chemo quit working and the the cancer spread more over his liver.

Strangely, my dad was diagnosed with inoperable lung cancer about 1 year after my brother's diagnosis and he passed away last Sept. My brother spoke at my father's funeral, knowing that his very life was perhaps going to end.

I just wanted to let you know that my brother and my father's bout with cancer has changed my life forever. They taught me how to live and how to die. Never give up, but please live in reality.

More work needs to be need with diagnosing colon cancer - age 50 for the screening should be done earlier, perhaps at age 40 years. We did not know of any colon cancer in our family. It shocked us. Dad's cancer came from many years of smoking. Watching my dad lose his weight and be very sick was so painful for me. He was a great dad - he did quit when he got diagnosed. I was so proud of him.

It is never too late to quit smoking. If you have a desire, ask your Higher Power to help you. That is how I quit several years ago and it didn't cost me a penny.

I also want you to know that I am glad that you shared your story - very encouraging. Although my brother is gone, his death will not be in vain. I join you in making others aware of this disease.

Thank you so much for allowing me to share with you my personal experience with the loss of my beloved brother and my most wonderful father.

Sandra Helton
bautista41@hotmail.com

From: andrea
Email: andrealev@optonline.net
Date: Wed, July 27, 2005
Time: 01:40:50 PM (EST)

Comments

dear molly, thank you for emailing my letter to others. my sister was on xeloda to try to shrink the tumors on her lungs so they can surgically remove them. the pet and cat scans showed they didnt shrink and showed new lesions in the abdomen. she is going to take erbitux plus cpt11 now. needless to say we are so devastated . please tell me if there are any survivors with this. i read everything on the internet and it doesnt sound too good now for prognosis. this drug extends a life for maybe 2 months and they call this progress? thank you for listening. andrea

From:
Email:
Date: Wed, July 27, 2005
Time: 00:12:10 AM (EST)

Comments

Wow you are my inspiration. Thank you for this site I look foward to diong more too! I had a polyp removed at 28 and my Dad soon after got, colon cancer which we just found out it is in the liver but I will fight the fight and keep my Daddy around I have hope!

From: Terri L.
Email: TCL1252@aol.com
Date: Wed, July 27, 2005
Time: 00:10:32 AM (EST)

Comments

Hi Molly!!! I just love this website. I was diagnosed with CC February 2004. It was in my cecum, falopian tubes, ovaries, and uterus. We got everything out, but I had to endure chemo (5Fu and LV) for 7 months.I am a teacher and taught full time during chemo.I wasn't easy. Now,I am doing great!!! Thank you God for my friends, family, Molly, and this website.I am now volunteering at the cancer hospital helping patients.I want to give back.I pray for all of you who must go through this incredible diagnosis of cancer along with your families and friends. Be positive and believe!!! Surround yourselves with positive people and energy.Molly, you are truly positive energy for all of us.Thank you!!! Continued good health to you.

From: Antoinette
Email:
Date: Tue, July 26, 2005
Time: 05:20:59 PM (EST)

Comments

I think that you have been thur alot and i no how you feel because my dada had cancer of the jaw bone three years. So just keep your head up and never give up.

From: Ann
Email: alewis@coletaylor.com (or) amwlewis@aol.com
Date: Thu, July 21, 2005
Time: 10:16:31 PM (EST)

Comments

Hi Mollie, and everyone who has entered their comments on this board. My father died of colon cancer in his early 40's, and my sisted died of colon cancer at the age of 28. I'm 34, and I've had 6 colonoscopies, all which I've had polyps, and the more recent one had abnormal cells. My GI specialist told me that I would have to have a colonoscopy every year for the rest of my life. I've even asked him about having my colon removed, which he doesn't agree with. All I think about is cancer, because I am high risk. I think especially about my children, which are 11 and 10. I want to be around for them. They will begin testing at the ages of 18 to be on the safe side. I just need to some support and prayers. Thanks for listening Mollie, and if anyone has experienced anything like this, please e-mail me.

Thanks,

Ann

From: Donna Russell
Email: tiasmaw@yahoo.com
Date: Sun, July 17, 2005
Time: 01:51:06 PM (EST)

Comments

Chris DeVasier is my son and he is a cancer surviver. You made it possible for him to go to New York in June of this year for the Colondar. He had a wonderful time, and we can't wait for the calander to come out!
He has really gone through a rough time but he has always had such a sweet spirit about everything. At times he has kind of burried his head in the sand for a while, but I think that is just his way of coping. He is really having trouble with his blood count. His iron is very low and he is taking IV iron several times a month. His red blood count is just down to almost nothing. The Doctors think maybe his incision is still bleeding so they are thinking they will go in and carterize this area. Have you ever heard of anyone that has taken so long to heal? It has been almost 2 years since the surgery. Thank you again for letting Chris be in the Calander.

From: Robert
Email: senis2815@netzero.com
Date: Sun, July 17, 2005
Time: 10:53:26 AM (EST)

Comments

Hi Moly and everyone visiting this very suppoprtive web-page.

I see a lot of courageous people visiting here. I hate jumping stright to my problems but today particularly I can relate myself to everyone that has been or is surviving colon cancer.

I am 27 y.o. male who is living healthy life. I weight lift and don't use any substances. My family is very healthy people. About a year ago I felt enormous pain in my rectum while lifting weigths. I ignored it because no bleading occured. Today I have the same issue but the entire body hurts I have lost 30 pounds in short period of time and only today I was not able to push out stools. A little success but it was covered with blood. I have pain in my groints and back of the knees, lymphnode areas are hard and there is a slight pain too. Extreme fatigue and low blood pressure. Tomorow is the day that I will find out what is really going on (colonoscopy) . I am very affraid and angered because I have seen 9 different doctors for the past six months mentioning my rectal pain and none of them send me to the specialist. I am angry that time is waisted and although I might sound a little scinical but have a strong feeling that prognosis is going to be not pleasant. I am not paranoyed or anything but it would be nice if there is anyone had similar problems or symptoms. Please share your experience and reasons for every decision you've made for treatments.

If would like to update this message after July 18 and if you can suggest any health board websites that I could relate and ask questions more in depth please write my an email.

Moly an excelent web page, what a great inspiration. Thank you to everyone reading this message. I have never did cancer walk or never donated money to hospitals, because I was too submerged in my problems. This web page has opened my mind and I can see how important and helpfull it is to be part of humanity' strugles. We are all different in everyway possible but we are similar in one - we are all here to live.

From: Robert
Email: senis2815@netzero.com
Date: Sun, July 17, 2005
Time: 10:53:18 AM (EST)

Comments

From:
Email: cugaz2003@yahoo.com
Date: Sat, July 16, 2005
Time: 03:10:50 PM (EST)

Comments

Well i finally got checked and what i was expecting is happening. Im 20 years old and im having my whole colon removed next month.Im based in germany and im flyin to San Diego next month to see a specialist. I hope this doesn;t end my military career but if i get discharge o well. I was told they would reclass me and put me in a nondepolyable slot if they do that they might as well discharge me im not goin to be workin behind a desk im too long for that and that isn't me i love to get dirty and have fun doin it not answering phones or signin papers.

From: Barbara Howell
Email: Barbara.Jackson@us.army.mil
Date: Fri, July 15, 2005
Time: 00:04:00 PM (EST)

Comments

I Molly,
My name is Barbara Howell, I am 36yrs old and was dignosis with colon cancer stage IV in June 2005. I am a soldier in the United States Army, I am married with three children. Your story was so amazing. When the doctors gave me my news it was surprising, but God had already told me that I was heal. I haven't giving up and never will. In the name of Jesus I am healed. I just wanted to let you know that I think your story is so amazing considering you was only twenty three. I think this websit is awesome because you get to talk to people who have or that is going through the same thing. Please pray for me and my family and I will do the same for you.

GOD BLESS
Barbara

From: John Norton
Email: Jnorton22002@yahoo.com
Date: Thu, July 14, 2005
Time: 09:11:09 PM (EST)

Comments

Hi Molly,
You are right, cancer is truly an ugly word. In 2003 I was found to have melanoma, malignant kind. My life stopped right there. Took a long time to recover from the shock. But, with the help of friends from church, my dearest daughter Janon, I have slowly come back to life. It has been almost 2 years now, 2 operations later,and nothing new yet. I can't afford more ct scans as our insurance has stopped due to my wife leaving her job. We, as cancer patients will always be worried. It becomes a way of life. The good news is that if we have faith in Him and Jesus, we learn that our time is only up to Our God. we can take comfort in knowing that when it is our time, we will go to Him. Not before or after our time. We will pass when He wants us. All cancer patients, surviors and fighters need to know this. God bless you Molly. I know He allowed your cancer to be a survior to help others who have fear. To all of you who fear the word cancer, just get a check up if you think you need one. It won't go away just by denying it. God blesses us in ways far beyond our mortal brains can imagine. God heals and saves and blesses us all the time. Do the good fight and He will be there for you Thanks for hearing me John Norton

From:
Email:
Date: Thu, July 14, 2005
Time: 06:14:00 PM (EST)

Comments

This is for the 18 year old male who signed in on May 21st - you HAVE to talk to your parents. The trouble you're having could be any number of things, but the longer you let it go, the worse it's going to be. Please, please, please talk to your parents, go to a doctor and talk to him or her about a colonoscopy.

From: Retha
Email: rrooker@chappellsmith.com
Date: Wed, July 13, 2005
Time: 09:28:25 AM (EST)

Comments

I would just like to express the year i had in 2004... back in dec of 2003 i was just having some pains in lower belly, nothing serious lasted about a few seconds and would go away, the doctors ran test on me and kept thinking it was female items, but i visited with a female specialist and she advised to have my colon check.... I am so glad that I stayed presistant with my doctor...it took over 3 months to find my cancer. I was only 40, I seen a gastro spectialist who did my colonscopy and boom.. there is was I had a large tumor and several polyps, it was stage II Colon Cancer.. it was like my world was crashing in..... I had a two year grandson who I just adored spent all time with him i could...i had my right side of colon removed in March and in April I started Chemo treatments and June 2004 came, I was put back in the hospital for Muiltiple Blood clots in both lungs, due to the cancer they say..i was there for 6 days, during my stay there in Baptist in Nashville, I get a call from my daughter on June 13th that Lagan (my two year grandson) had died during the night.... I was just devastated...I still have a very hard time dealing with everything... My daughter has two more children Kylan (will be 2 this month) and Jayden is 3 months old... she found out a couple days after lagan died she was pregnant.... I have started this year out better, things are looking up been getting great check ups, but as far as life in it self.. I am married been married for 15 years, but my husband trys his best to help me,but there is times I just want to be alone, there is things I want to do, that i never did before... I just cant get him to understand..... I like hanging out with my girlfriends, doing stuff with them, going to a bar (who i know the owner) listening to bands with my girlfriends and he gets upset about that..my husband likes sitting at home never doing nothing.. I am not doing anything wrong.... i just want to live life to the fullest... after being told that I had cancer, my life has changed, i've changed.... please give me some advise.... I dont know what to do! i love him dearly, but he has been making me get mad at him.. help

From: andrea
Email: andrealev@optonline.net
Date: Sun, July 10, 2005
Time: 02:31:41 PM (EST)

Comments

dear molly, my sister has stage iv colon cancer. has had surgery to remove cancer from liver. has had 6 months of chemo. after being off chemo 3 months the cancer returned to both lungs. she is on xeloda now. terrible side effects from this drug. i hope they operate and get the cancer off both lungs. 3 mets on one lung and 2 mets on the other. i am scared to death for her. she is fighting this horror. what is the prognosis for recurrent colon cancer that has come back after being off chemo for just 3 months?

From: hollie
Email: hobo_01_1@hotmail.com
Date: Sat, July 09, 2005
Time: 11:34:38 PM (EST)

Comments

hey molly, i cant say i know what u mean about cancer because i am only 16 and havent had it before. but just a few months back my mum was diagnosed with breast cancer and had to get her right breast completly removed, having to see my mum go through that was soo hard exspecially at my age, she would cry everynight and say she wanted to die and she isnt a women no more, and that literally broke my heart, if i ever ended up with cancer i will always think back and remember your story and how it touch me and make me remember that its not the end dont give up until u have tried and succeded.
thanks molly

your truely
hollie xoxox

From: Judy
Email: bokbok21@MSN.COM
Date: Sat, July 09, 2005
Time: 08:17:14 AM (EST)

Comments

Dear Molly,
God bless you and your efforts to raise colon cancer awareness. I have been operated on hemmoroids in the past. I have been passing blood and back in April developed a painful wound inside the lower colon. I went to the colon cancer specialist that performed my hemmroid surgery and he did a lower scope exam. My colon was in spasm and he could hardly get the scope into my anus, because of the painful discomfort. He prescribed a special blend of medication to relieve the spasm and cortisone cream. He did not reccommend a colonoscopy (he had performed one two years early). He recommend sugery to cut the mussel to relieve the spasm and scrape the wound area which was a fisher, some that it would heal. I felt uncomfortable with cutting the mussel, fear that I may lose control of my bowels. I went to another specialist and he performed a colonoscopy. He did several biopsies (I am still waiting results), he feels confident that there is no cancer. He suspects bowel disease like croan's, he said there are hemmoroids that are large enough the they are casuing an obstrution in my bowel and a 2.5 centimeter poylup that because of the area it is in he could not remove it during the colonospy or take a biopsy of it. It is hanging out of my anus. He is treating me with cholestrol medication (found to prevent cancer up to 54% according to web dr., although this specialist told me it is to regulate my bowel habits.) Two doctors two different opinions. I know I need to have the polyup removed. One doctor said a polyup the other said a fisher. I need to find a great colon surgeon, or colon cancer specialist my colonoscopy results and get this treated. Do you have any recommedation of a specialist in Florida?
Thank you.
J

From: Rick
Email: earthunit47@yahoo.com
Date: Sat, July 09, 2005
Time: 04:18:11 AM (EST)

Comments

folfox is some toxic garabage.. there has to be something better out there.. Most of this crap like 5fu was invented in 1955 this is the best they could do in 50 years!!! I have stage III b colon cancer and I am not happy about my options, already had the operation was not that bad. but chemo is a major raft.

From: Peggy Dykstra
Email: pudstra@mchsi.com
Date: Wed, July 06, 2005
Time: 09:41:57 AM (EST)

Comments

Hi Jeannette
She needs to ask her doctor for Nausea pills if she hasn't already gotten them. The FolFox5 doesn't usually effect people like this so maybe it will go away in a bit I hope! I will be thinking and praying for her Jeannette. It has to be hard living that far away from your sister. This is a great place for information and support Jeannette so check it often!

In my thoughts....Peg

From: Jeannette
Email: jh180@le.ac.uk
Date: Mon, July 04, 2005
Time: 00:21:02 PM (EST)

Comments

My sister Vicky has just been diagnosed with colorectal cancer, which has also met. into her liver. She has had one chemo treatment so far which made her very sick but in spite of that, she manages to maintain a positive attitude and continues to support the family.She lives in Canada and I live in England so it is hard to offer help other than moral support. I want to get as much information as I can about her cancer so I can understand what she's going through. Your website was excellent and I feel much more positive now I've read all the survivor stories. Does anybody have any tips for having VFD's (vomit free days), which seems to be a huge problem for her. She was throwing up continually for 2 days after the chemo. Thanks for the great site.

From: Katie Spoerl
Email: spoerlygrl15@yahoo.com
Date: Sat, July 02, 2005
Time: 09:11:30 PM (EST)

Comments

Heyy Molly!!
Nice 2 see u again!!! I was thinking that maybe i should do something else for colon cancer awarness an all but idk what to do and if high school students will be interested you know what i mean>?? But i think that i really should help out more and all just because people in my family do have colon cancer an all and i just want people to be more interested on learning about it and helping the cause you know what i mean?? well write me back if u get any ideas for me hehe!!
Katie Spoerl

From: Carol Connell
Email: cconn1037@aol.com
Date: Sat, July 02, 2005
Time: 10:43:39 AM (EST)

Comments

Hello everyone, I just wanted to update all of you with stage IV
CC and hopefully give you a little encouragement.It has been over
a year since I started my battle. I had over 2 feet of my Colon
removed last summer followed by 6 months of Chemo every 14 days.
I have 4 tumors in my Liver and 2 in my right Lung and A CEA of 3.1.
I have had a break from Chemo since March 4th and was just given
2 more months off. I not only feel great but I actually have hair again and still work full time. The support of my husband and a
wonderful daughter keeps me believing that I can win this battle.
Good luck to all of you, good things can and do happen!

From: Peggy Dykstra
Email: pudstra@mchsi.com
Date: Tue, June 28, 2005
Time: 08:49:20 AM (EST)

Comments

Just wanted to leave a note about my taste problem. A friend from work suggested a mouth rinse called Byotene. I have been using it since last Thursday and the yeast infection that was covering my tongue is almost gone!!! I have been able to taste almost everything now so will continue to use it several times a day. Hope this will help others here who have the same problem. I will be able to cope with the last three treatments I have left now much easier.

From: lynette
Email: fcb@cafes.net
Date: Mon, June 27, 2005
Time: 02:15:01 AM (EST)

Comments

Hi Molly, My husband who is 53 just had his colon surgery 1 week ago Friday June 17,05. They removed a foot and a half of his colon and about the same of his small intestine, plus his appendix. He is stage IV, with 4 lymph nodes positive, cancer in the stomach flap and cancer in the pelvic area.
I was looking for information of others who have had their colon cancer spread to these areas instead of the liver, but have not been able to find any. My husband is very optimistic and the surgeon we had did not tell him he was a stage IV, as statistics he is just one person and each person should be considered as one person he said, and not as a statistic. So he told me to worry about that part. We go to see the oncologist tomorrow (today actually)as it is after midnight and I guess he will tell him then.
I am very proud to have found your website and to see stage IV survivors posting here. This has meant so much to me.
Thank you
Lynette

From: Peggy Dykstra (Marshalltown, Iowa)
Email: pudstra@mchsi.com
Date: Fri, June 24, 2005
Time: 03:11:32 PM (EST)

Comments

Hi Molly!!

I just found your website and have been reading all the letters. It has been an inspiration to me. I was diagnosed with Colon Cancer in Dec. of 2004. I had the Colonoscopy and surgery 2 days later to remove about 7 inches of my Colon. They found nothing in my blood and nothing in other organs with the Catscan. They found 2 of the 12 lymph nodes had cancer into the tissue, so I am a Stage3. I started my Chemo 3 weeks after surgery and only have 3 left to go!! My doctors never said anything about what my chances were, but from what I have read, I think my chances are very good since nothing was found in other organs or my blood. I had a bacterial infection after my 2nd Chemo treatment, but they got that under control with anti-biotics and have been just fine since. I have been very lucky with side effects. I am normally just really tired about the 5th day but I have been working full-time through it all. I have had trouble with tasting certain things and am hoping that all ends shortly after the treatments. It is so good to see a site like this where we can share our experiences and get strength and hope from others. I agree with you that Colon Cancer has a high success rate especially if you catch it soon enough. My doctors are amazed at how well I am doing so I hope that means they think I will be ok!! Smiles I see you will be in Davenport Iowa in July. I hope to get over to see you!! Thank you again for the site, it is such a help. Let me know if you have any ideas about this no taste thing. I have been rinsing with saltwater and that seems to be helping a bit.

God Bless you and keep up the good work!!

From: donna golbach
Email: donnagolbach@rossmed.edu.dm
Date: Thu, June 23, 2005
Time: 05:17:16 PM (EST)

Comments

Hi Molly,
I found your website when researching 5 yr. survival rates for Stage 4 colorectal cancer. I refuse to believe the 5% figure!!!
Anyway, I was dianosed with Stage 4 rectal cancer 14 months ago...I had some lung nodules, but no liver mets. After researching the best treatment, I ended up at Cedars-Sinai in Los Angeles. Wonderful Dr. and treatment center! I'm now cancer-free, but the mental toll is still there. I worry about recurrance and check-ups. I am positive and I think that was a huge part of my recovery. I just pray God gives me the strength to stay positive and remain cancer-free.
By the way, I am a 55 yr. old medical student!!! It was something I always wanted to pursue and am happy I did. The only drawback is reading the cancer material in detail!
The inspiration I got from reading everyone's comments and support, is immeasurable! Blessings to everyone,
Donna

From: Christie E Parker
Email: ceparker@srhs.com
Date: Thu, June 23, 2005
Time: 00:35:41 PM (EST)

Comments

I applaud your efforts and congratulate you on your successes. I was a single mom, age 27, when I was diagnosed with stage IIB colon cancer. I had no family history, was a cancer research nurse, and, though I was with classic symptoms, I had to convince my doctor that I needed testing. He felt that my oncology background contributed to my "unfounded" concerns for what he felt was mere constipation and the need for more fiber. "An apple a day keeps the doctor away" he said as he smiled reassuringly. He agreed to do the colonoscopy but set it up for six weeks later, and was shocked when he found a tumor that was almost completely obstructing. After surgery and chemo (on a clinical trial), I have been cancer-free for almost 5 years. I am married with three sons- one just seven weeks old. I also now am a nurse practitioner in palliative care, and some of my patients have advanced colon cacer. I am currently seeing a 35 year old male with a terminal colon cancer.

From: Love
Email: artetre@yahoo.com
Date: Sun, June 19, 2005
Time: 06:40:17 AM (EST)

Comments

Hi Molly,
My husband is 58.Can you email me some stage 3~5 colon cancer survivors stories about that age?
What is the key things to do and being to survive?
What to think or do when you fear,worry,lack of faith?
What kind of nutrition to help for healing?
Thanks a lot!
Please help us!
Bless all with strenth and faith to live with joy.
Love.

From: Rhonda
Email: jrboxers2@yahoo.com
Date: Fri, June 17, 2005
Time: 03:30:23 PM (EST)

Comments

Hi Molly,
I just finished reading your story. I encourage and support your efforts of colon cancer awareness. Good luck and God bless, Rhonda Call

From:
Email: dmcknight@sterling.net
Date: Fri, June 17, 2005
Time: 01:34:29 PM (EST)

Comments

iam looking up 28 days after march 1st had surgrey my self bladder surgery they streched my bladder i give GOD PRAISE FOR THE HEALINGS AND IN MOLLYS LIFE GOD DID AT ALL

From: anyta morris
Email: alm878@aol.com
Date: Wed, June 15, 2005
Time: 07:54:11 PM (EST)

Comments

Cancer has affected my life in many ways. I stumbled upon this site while doing research and just want to offer my prayers and support. I have read the postings and strongly believe in healing. Tonight i will be praying in earnest for the recovery and grace for all of you and everyone affected by this evil. Peace and prayer to all. God Bless You.

From: Fred Ortiz
Email: Fred.Ortiz@state.nm.us
Date: Wed, June 15, 2005
Time: 10:17:58 AM (EST)

Comments

May 2004, I went through surgery and 20% of my colon was removed due cancer. I also went through 11 chemo therapy sessions. I feel cancer fre today. Life is so wonderful and the people that I met during this ordeal were great. From my beatiful female surgeon to my super oncologist and medical staff. It's too bad you have to get sick to meet these fantastic people. I live in Santa fe New Mexico on a 2 acre track with 2 horses, 2 cats and a German shepard dog, all female. The reason I mentioned the pets was because when I got sick, I was worried for their care. So it's important that I hang around a little longer, life and its surroundings are a once in a lifetime experience and we should be so lucky to enjoy as much of life experiences that we can. I love my life and enjoy everyone/family I meet and have experiences with.. Yesterday is gone and today is towworrows yesterday, so we should enjoy and live for today..

From: Hope Thorough Grace
Email: hopethroughgrace@aol.com
Date: Fri, June 10, 2005
Time: 00:49:39 PM (EST)

Comments

Hi Molly

I am a six year survivor of Stage III colon cancer; retired, past the age of 65.

I read your story with high interest and found similarities. After 4 days in Hospital with all sorts of tests to determine the source of my pain, the GI doc told me they found nothing and would send me home the following day. I had to ask for the colonoscopy; cancer was found and I had an extended right hemicolectomy.

Out of my cancer journey, I founded a non-profit organization that focuses on cancer prevention education, screening for early detection and survivorship support.

Education is provided to anyone who wants to learn about colon, lung, breast and prostate cancer. We've served over 500 families most of whom are poor African Americans and Hispanics.

Screening is approached with a pilot project for persons who are unisured, underinsured and medically underserved; namely the working poor. We have a small grant ($25,000) from a foundation that will allow us provide financial assistance to help cover the cost of screening for colon cancer.

I have two requests. 1. We are in need of financial help so that more people who can't afford health insurance can get screened for colon cancer. We need grant/foundation support. Any advice you may have is welcomed.

2. Our fourth annual symposium is scheduled November 5, 2005. This is an all-day community-wide event with an emphasis on colon cancer prevention, conquering obesity and promoting more physical activity. Plenary sessions and breakout sessions are provided by physicians and other professionals. We want to bring the collossal colon to Houston for this event. What do we need to do? Can your organization sponsor or underwrite this exhibit? Can you help us?

P. S. Our annual budget has been less than $25,000. I can send you additional details should you require it.

From: Galloping Grandma
Email: rsj@mgl.ca
Date: Wed, June 08, 2005
Time: 08:25:34 PM (EST)

Comments

I googled my way to this site, and am so glad it was here. Molly you are an inspiration! April 30/05 I was in emerg, with horrendous abdominal pain, and to my surprise after an overnight stay - it was constipation! But that's not the end of the story. I was then booked "asap" for sigmoid and barium Xray June 8/05. About 12 hours ago, lying on my side, my south end exposed to two doctors and a nurse they cancelled the barium xray, called down a surgeon, snipped a bit for biopsy, the results will be in about next Tuesday. NOT what I wanted to hear since I had been reading and learning about colon cancer stuff during the "asap" waiting. Now I am sitting by myself, listening to the thunder roll in the distance, confident I will survive regardless of the result. The surgeon smiled and said only "You young lady, (I'm 71) will be having an operation, but don't worry there won't be a bag." The next few days will seem like a year while I wait. So I went looking and found solace here at Rolling For Recovery. Thank you for this site. Good luck to all who are battling and those already who have won.

From:
Email: kimbrme2004@yahoo.com
Date: Wed, June 08, 2005
Time: 08:22:12 PM (EST)

Comments

Dear Molly:

I am in deseparate need of financial assistance. I am 48 years old and it seems as if the bottom of my world has crumbled and disintegrated. I was diagnosed with breast cancer. I had a lumpsectomy. Meanwhile my creditors have gone berserk. I am not saying I do not need to pay them but how I dont have the resources now and they will not wait can someone please come to the rescue of my family, sister, son and ten year old daughter. She needs me most of all. I can see it in her eyes that she knows things are rough for us all. I would appreciate a great hook up with a great job. No one owes me anything and this is the first time I have ever begged for assistance. But please or please is their someone out there willing to help a good mother in her struggle to regain her family life back with dignity. I would be most grateful. If there is a celebrity that can find it in their heart to help me and my family I would be forever grateful. I know my story may not be the most heart wrenching to the average reader. But not only has my breast been altered so has my emotional and financial state. Once again please help and I will publicly speak to people to let them be aware of the travesty that Breast Cancer has on Single as well as any woman. It is not anything nice by any means. But I am blessed to even be able to write this to someone and hopefully someone will care to help us.

Mother in Deseparate Need Chicago Thanks

P.S. This is really my first time confronting my emotions about my breast cancer and really saying the things I feel.

From: joe steiioff
Email: asteioff@aol.com
Date: Wed, June 08, 2005
Time: 04:50:56 PM (EST)

Comments

I am going thru chemo treatment now, 8th treatment of twelve. Treatment is every other week. One day in hospital with oxyplatin, and 46 hours at home with floura v5?. It makes me very tired, taste in mouth terrible plus nothing has a taste these as just some of the side effects. My question is when will this all go away after treatment? Any help appreciated thanks.

From: Markelle
Email: 215home@cableone.net
Date: Wed, June 08, 2005
Time: 00:56:34 PM (EST)

Comments

Hi, I'm Markelle. I am 36 and have Stage IV colon cancer. I never had any symptoms and have no family history. I am otherwise healthy and fit. My OB found a tumor on my ovary during an emergency C-section in March. I had surgery May 5th to remove most of my descending colon, all reproductive organs, my gallbladder and my appendix. I start chemo next week. I consider my baby a miracle not only because we tried for 11 years to conceive, but because she brought my cancer to light. Thank you so much to the Stage IV survivors who have written here about their experience and the hope they impart.

From: Tori
Email: talesoftori@aol.com
Date: Sat, June 04, 2005
Time: 01:48:14 AM (EST)

Comments

Dear Andrea,
Please get a colonoscopy. My husband has stage iv colon cancer. He was misdiagnosed for 2 years. He kept going to the docotr with fatigue, malaise, fever, and blood in his stool. He was given a sigmoidoscopy, fecal tests, and blood tests. The ONLY definitive way to rule out colon cancer is a colonoscopy, not a sigmoidoscopy. If your HMO won't pay, I would consider going out of pocket. The procedure is about $1000.

From: Andrea
Email: lyndru@hotmail.com
Date: Fri, June 03, 2005
Time: 05:00:06 PM (EST)

Comments

I am 28 years old, married with two children under 3 years old. I have always been a healthy person, no major illness that I can remember. I don't have colorectal cancer that I know of, but I have been having symptoms similar to those of many here for about a year now - upper right abdominal pains late in my pregnancy a year ago that were never explained; depression, fatigue, general malaise with a bout of rectal bleeding (bright red with dark, jelly-like clots) a few months ago; and most recently (within the past month) another two-day stint of bright red rectal bleeding, frequent bowel movements, extreme fatigue, abdominal and lower back cramping, nausea and lack of appetite, and pains quite similar to those I experienced during my pregnancy last year. In addition, the right side of my abdomen seems to be slightly larger, or somewhat raised, compared to my left side. My husband felt this without me telling him first that I also felt it.

I've seen doctors within my HMO probably 20 times in the past 6 months trying to figure out what's wrong with me, because I KNOW something's wrong with me. They've given me antibiotics, Bentyl for one doc's diagnosis of IBS, and a whole host of other things. After seeing my primary care doctor this week I finally feel that things are on the right track. She ordered a number of stool tests (which no one had before), blood tests and a CT scan. I hope I find out soon what's wrong.

I've done a lot of research in the past month and have stumbled upon some very useful websites. This one is outstanding, and incredibly inspirational! Rob and Lee's post prompted me to post this, along with a couple of websites that I think are helpful to those who've survived colorectal cancer, who are currently fighting, or who are having symptoms indicative of it. One is the Association of Cancer Online Resources, www.acor.org. Another is a Colon and Rectal Cancer message board provided by HealthBoards, www.healthboards.com/boards/forumdisplay.php?f=24. These are great resources and have been very useful to me in researching my symptoms.

Andrea

From: Rob
Email: leenrob@msn.com
Date: Fri, June 03, 2005
Time: 10:51:43 AM (EST)

Comments

I forgot to mention yesterday that Lee is only 41 years old. We have four children ages 12, 10, 6 and 4.

Please pray with us that Lee would be healed.

Rob

From:
Email:
Date: Thu, June 02, 2005
Time: 02:29:14 PM (EST)

Comments

Hi my name is Shelia and my husband was diagnosed with stage 2 colon cancer in Feb.2004.That was the worst day in my life.We've been married 27 years and have 2 sons one was 25 the other 14.Twenty-Seven years didn't same so long now.After the shock of everything started to sink in we started talking about what our next move would be.First came visits to many differnt Doctors,something we were not use to.My husband has always been healthy never been sick the whole time we've been married.He went though 6 months of chemo and wearing a chemo pump for 48 hours every other week.T

From: Rob
Email: leenrob@msn.com
Date: Thu, June 02, 2005
Time: 11:32:24 AM (EST)

Comments

This site has been a breath of fresh air to me. In January of this year I got an urgent call from Lee, my wife. She suddenly felt as though she was going to have diarrhea and was shocked to learn that she was passing a lot of blood. We went to the hospital, stayed up through the night as she tried to drink what seemed like gallons of Go-Lytely, had a colonoscopy that next morning and discovered a golf-ball-sized tumor in her right colon. Providentially, there was a surgeon available that afternoon to do a resection of Lee's colon.

We got the news a couple days later that the tumor was cancerous and that one of the twelve lymph nodes that were removed showed signs of cancer. The next week we met with our oncologist to learn that Lee had stage III colon cancer.

The ball was put quickly in motion to begin chemotherapy with Oxaliplatin, Leucovorin and another drug that I can't remember. We were to go in bi-weekly for 6 months with the hope that we'd then be able to put this all behind us.

Last week, however, we recieved distressing news. Lee had been having discomfort and pain in her right flank. A CAT scan revealed that the cancer had been spreading and had metastasized in several places in her liver. Can I just say that it would have been easier to have been kicked in the face?

We went for a biopsy of the liver mets and an MRI to rule out mets in the brain as a source of the headaches Lee's been having. Yesterday we learned that the MRI was clear--thank God. But the liver mets were, indeed, more colon cancer. Why did it continue to spread--and so quickly?

We had a CAT scan in January just before Lee was released from the hospital that only showed two small statistically insignificant blips. Her CEA counts were at ZERO, and probably still are.

Our oncologist switched Lee over to Avastin and Irinotecan last week. The plan, now, is for Lee to have another CAT scan after four treatments with these drugs. Our hope and prayers are for remission.

Have any of you heard of cancer spreading during chemotherapy? What about Stage IV colon cancer with no CEA?

We haven't lost hope. The doctor was, and has been, hopeful all along. In fact, every time I try to find out what the latest and greatest is for treatment of colon cancer he already knows about it!

We have a fantastic group of friends at our church. We know that there's an army of prayer warriors asking God to heal Lee. But, we're looking for others who would be willing to correspond with us who may have some first-hand experiences with the kinds of disappointments we've recently had.

Rob and Lee

From: Charlotte B - Gonzales, LA
Email:
Date: Wed, June 01, 2005
Time: 09:01:59 PM (EST)

Comments

I was diagnosed with Colon Cancer-Stage IV in Feb, 2000 at 34 yrs of age. I ate healthy, did not drink or smoke and in good shape. I had been going to my regular doctor for a pain in my stomach and we really thought that I was was upset & just depressed since losing my father just in AUG '99. So I was prescribed some stomach meds. But the night before my father passed, I was on a Florida vacation and had passed the only real sign of colon cancer: red, red blood in my stool. Still I was unalarmed. The only alarm I got was receiving a call in the wee hrs of the morning that my dad, 57-yrs old, passed in his sleep of a massive heart attack. My dad's death was the hardest thing that I had to deal with in life and still I get choked up, because I miss him terribly.

But it was in FEB '00 on a FRI a.m. when I couldn't get out of bed. I just laid in bed in a fetal position with the most excruciating stomach/ back pains. My husband made a doctor appt, but was told that I would be seen by a new doctor since mine had just retired the day before my appointment for good. It was when I walked into the new doctor's office & he noticed that I was sick right off. My skin coloring was sickly and my abdomen so swollen and the pain seemed to radiate around to my lower back. He told me that he wanted to rule out cancer so he scheduled me to have a barium enema done on Monday. It was then that I just felt so numb and began to shake uncontrollably and just began to scream & cry. I could not believe that I might have cancer but he told me that it was in deed something and that I couldn't wait. He had me go & see the surgeon just down the hall from his office after his visit to explain to me what I was going to be against if in fact it turned out to be cancer. It was like I had been punched in the stomach and the life was being sucked out of me. I was talked to about Chemotherapy and this is really when my world came crashing down. I knew when you hear CHEMO that it's only for CANCER and that it can be rough and there are truly no guarantees as to whether it will work or not.

On Monday, it was during the barium procedure that I discovered that I had a blockage due to a tumor and this was the cause of it. I had to be scheduled for a colonoscopy the next day and it was in fact, Colon Cancer stage IV. I was scheduled for surgery on Wednesday to remove the tumor, infected lymphnodes and a colon resection. My family was told that I had a 50% chance, that it wasn't good. Well it was then when I came out of recovery and could hear my family in the hospital room talking as if I couldn't hear them. I then called for my mom when I began to wake up and as she tells me, I said to her "momma, I'm really sick." It was then that I told her not to worry about me that I will be okay. I tried to be strong for her and my family so that they would be spared of my pain. It was then that I decided to fight this with all my might. I had to take 50 chemo treatments and it was rough. I was unable to return to work because I had no strength or endurance to hardly get up. There were days that I really wanted to close my eyes and never wake up. But I did it for me, telling myself that it is the one thing that counts if I live or die. I had to live for my mom at least. I could not put the thought out of my head, the pain that my mom would have if I left her after just losing my dad. This is what it took for me to fight.

To this day, I continue to keep my FAITH in GOD and have the HIGHEST of SPIRITS. You get lemons in life, just make lemonade. My words of advice is to enjoy every moment of each day of your life. Never, never give up. I have just celebrated my 5th year of cancer-free. So I hope that my story will inspire or touch someone so that they will never give up! Sincerely, Charlotte in Gonzales, LA

From: Tammy
Email: mama_looch@msn.com
Date: Tue, May 31, 2005
Time: 10:33:35 AM (EST)

Comments

Hi Molly, I was so thrilled when I found this site! I was diagnosed in March 2004 with anal cancer (stage II), after chemo, an acute abdomen,a total system crash and 2nd degree rad burns I am still here.Looking forward to a long and healthy life! Again I say Cool site!

From: Tori
Email: talesoftori@aol.com
Date: Tue, May 31, 2005
Time: 00:23:08 AM (EST)

Comments

Hi my name is Tori. I have been married for 6 months. 4 1/2 months after getting married, my husband was diagnosed with stage iv colon cancer with mets in the liver and the lymph nodes of his neck. We have seen 3 oncologist, none of whom believe that they can cure my husband, but we went with the most update and positive one. He is otherwise in excellent health and has never been sick before. He is only 53.
He had surgery 2 weeks ago where they removed a baseball sized tumor from his descending colon and some lymph nodes.
For months now he has fevers and night sweats at night. Do any other colon cancer patients have fevers, night sweats and back pain?

From: Cathy
Email: KhattyC@aol.com
Date: Mon, May 30, 2005
Time: 01:11:43 PM (EST)

Comments

Dear Molly,
My husband found out he had colon cancer ( the tumor is the size of two walnuts) on May 13, 05 on a Friday from his first colonscopy(his age is 50) . On the next day May 14, that night he had a heart attack with damage to his heart. We almost lost him that night. After getting out of the hospital the doctors are going to give him radiation and Chemotherpy starting next week before he has surgery to remove the tumor. The doctors are stating that if he had not had the heart attack they would have done the surgery first. But because of the heart attack he will be given the treatments first to shink the tumor. First we were told he had colon cancer now they say it is rectal cancer because it is low enough to be able to have the radiation. He will be wear a chemothery pump 24/7 and go once a week to refill the pump. The good new is the CT scan show no spread to the liver or other organs and the CEA blood test (tumor marker) is at normal range. We have been told this is good news. The Cancer doctor thinks the cancer has not spread due to the two test results. Is this true this is a good sigh? Our family had lost his sister, father, two aunts and one uncle in just a year. My husband is the only person my mother-in-law has left. She is living with us now due to the lost of her husband. My husband is keeping a positive outlook on what is ahead of him. He feels God made him had the heart attack before the surgery so he wouldn't die on the table. He really feel that God has more for him to due in his life. I have been told that we really will not know the stage of the tumor until it is taking out. Please pray for him and others that are fighting this battle. If anyone can help us deal with this please e-mail me. Or if you just need someone to talk with I will be here for you. I am so glad I founded your web site.
Thank you, from Panama City Bch Fla.
Cathy

From:
Email: cugaz2003@yahoo.com
Date: Sun, May 29, 2005
Time: 05:47:07 PM (EST)

Comments

im a 20 year old maled in the service and my younger brother and pretty much every male in my family have colon cancer my lil bro who is 17 just got treated this past april. i have not yet been checked out in fear of getting kicked out of the service even tho my health should be more important. my little brother had his small intestdenst takin out leaving just his large ones. this is hereidty in our family what should i do? would this be a medical discharge thats the only reasons im not getting tested

From: BETSY
Email: rohdee001@hawaii.rr.com
Date: Sun, May 29, 2005
Time: 00:41:14 AM (EST)

Comments

ALOHA, MY NAME IS BETSY AND I AM A STAGE 4 COLON CANCER SURVIVOR. I WAS DIAGNOSED WITH COLON/RECTAL CANCER IN JULY OF 99. I WENT THRU CHEMO AND RADIATION AFTER HAVING SURGERY TO REMOVE THE GOLFBALL SIZE TUMOR IN MY DESCENDING COLON. IN MARCH OF 2002 A SPOT WAS FOUND ON MY RIGHT LUNG. I HAD MAJOR THORASIC SURGERY AND HAD THAT REMOVED ONLY TO HAVE 2 MORE NODULES SHOW UP. I STAYED ON ORAL CHEMO FOR OVER 2 YEARS. THE TUMORS STARTED TO GROW. I WENT FOR A SECOND OPINION AND OPTED FOR ANOTHER THORASIC SURGERY WHICH WAS MAY 5TH OF 2004. I REMAIN DISEASE FREE! THERE IS HOPE! I AM VERY GRATEFUL. ALOHA, BETSY

From: Janet
Email: janetbonner@sbcglobal.net
Date: Fri, May 27, 2005
Time: 09:39:44 AM (EST)

Comments

Molly
First - I love your website. I myself have developed a crazy way to spreading awareness of colon cancer. My brother died at the age of 48 from colon cancer. His words "my death will save your life" has come true with his 5 other siblings having colonoscopyâ€™s performed every three years. I nominated my brother the "Colon Cancer Afterlife Spokesperson" and through his website bring a wired approach to spreading the word. It is working and I know of younger than 50 people discussing colon cancer with their doctors. www.whereintheworldisgregkelley.com (Greg's Afterlife Page)

From: Maria Johnson
Email: mfsjohnson@msn.com
Date: Fri, May 27, 2005
Time: 00:56:54 AM (EST)

Comments

I am happy to say that I do not have colon cancer-yet and hoping to keep it that way. I was diagnosed with ulcertive colitis when I was 24 (I turn 40 this year)and have been managing it with meds ever since. I have had several flares and one was very scary since I was pregnant with my first baby at the time. After a short hospital stay we treated the pregnancy high risk but she came out just fine and I wan't that worse for wear. I just had a 5 year checkup colonoscopy and told my GI you won't find a thing I have been symptom free since the pregnancy. Low and behold he found a low grade flare and unable to determine how long it has been there. We discussed strategy and decided to up the med's (Asacol) till next year's colonoscopy and if doesn't clear up go to the next step in meds. He doesn't like any symptoms because it can easily turn into cancer. I no longer get the luxury of every 5 year colonoscopy, I feel it will have to be an annual thing from now on. As a mother of 2 toddlers I don't have the time to be sick so I am sticking to my meds and keep symptom free forever. Your story came to me through a free Health Magazine in our newspaper and wanted to let you know your story is inspiring and I am glad we are all talking about our bums....

From: Eileen
Email: eileen8@tampabay.rr.com
Date: Thu, May 26, 2005
Time: 11:09:04 PM (EST)

Comments

I am 45 years old. since the pregnancy of my second child in 1988, i have had random rectal bleeding...more spotting, associated with itching of hemmorhoids. Well, for the past three weeks I haved had constant rectal bleeding. I wear a panty liner every day and when I go to the restroom, there is anywhere from a tablespoon of blood to a quarter cup, with or WITHOUT a bowel moment. I'm tired all the time but no weight loss, if anything I've gained a few (5'9" at 150lbs) I guess i am wondering is it common to have that kind of bleeding from hemoorhoids? What else could it be, beside the obvious colon cancer. I am starting to freak myself out a littel. i have colonoscopy scheduled in two weeks; Any advice for others. Similar situations? How did they turn out.

Thanks
Eileen in Florida

From: Julie Dimmick
Email: jdimmick@comcast.net
Date: Thu, May 26, 2005
Time: 09:38:08 PM (EST)

Comments

Molly,

Your story is very inspiring to me. In December (actually just before New Year's weekend) I was diagnosed with what turned out to be stage 2 colon cancer. I am currently on my 3rd chemo treatment.

Julie Dimmick
Tucson, AZ

From: Dineen (neener)
Email: Dineen_W@bellsouth.net
Date: Wed, May 25, 2005
Time: 02:56:35 PM (EST)

Comments

I am soooooo proud of you! My heart is overflowing with tears of joy. Watching you grow from a strong willed, strong spirited young girl (M & M) to a grown woman who has and continues to make a difference, just leaves me in awe. WOW! When I "grow up"--I want to be like YOU!

I realized a long time ago what the greatest use for my life was--to spend it on something that will outlast it. To see you living the highest achievement and purpose that life offers...leaves me inspired to be a better person. What an inspiration! What amazing accomplishments! I love you Molly! Dineen

From: essie ware
Email: ware@mc.duke.edu
Date: Tue, May 24, 2005
Time: 05:08:09 PM (EST)

Comments

Hi,my name is essie and I just want to share with you that, I have to go into the hospital because they found a blockage in my large intestine. I had an colonoscopy that is how they found it. I had bleed real bad one day from my rectum. I am so angry because I kept telling the doctor that something was wrong. can someone tell me their symtoms. I pray that it is not to late for me. I am 46 years old. I have to have surgery on the 5/30/5. that is when they will find out if I have cancer or not.This is my first time of having something like this happen to me. I would appreciate your comments right away.

From: Ruby B. Varcacia
Email: rvarcacia@varcacia.com
Date: Tue, May 24, 2005
Time: 01:15:56 PM (EST)

Comments

Molly, heartfelt congratulation on your webpage. I just wish to post my response to Jennifer.
Hi Jennifer, I just read your posting in the internet about your husband having stage IV colon cancer and I just wanted to let you know that I have been going thru your same situation and know exactly how you feel.

In July 2002, my now 64-year-old husband, was diagnosed with stage IV colon cancer. The first doctor who saw him at Mayo Clinic just took a look at his CT scan and said "this is hopeless". At that time he had two colon tumors and about 5-7 liver metastases which turned out to be near 15 at surgery. I will keep the story short and let you know that he has gone through most of the chemotherapies available, even had a pump implanted in his liver to deliver direct chemo which caused him biliary duct strictures which in turn caused septicemia with four different bacteria, and an outside bag had to be placed to drain his bile. He has had three mayor surgeries in attempts to remove his liver metastases. He even had a respiratory arrest following his first surgery. And at one point the doctors said he had only 6-9 months left at which time I said: Only God knows when.

It was on my birthday that I received the bad news, I have spent a wedding anniversary outside an operating room waiting for my husband, Christmas and New Year holding a whole bunch of "spaguetti tubings" coming from my husband's body, Mother's Day rushing him to Mayo Clinic on board a plane. By all means it has not been easy.

On the other hand, there is HOPE always. In November 2004 my husband was started on Erbitux and Irinotecan, in January 2005 the liver mets had reduced, and last April, the doctors were not able to see any. This does not mean he is cancer-free yet but on the way. The outside bag to drain his bile, which the doctors said would be in place permanently, was removed months ago. He is fully active, works full time at his company, likes to go fishing. Jennifer, your husband is much much younger so keep your hopes high.

Good attitude, positive thinking, good nutrition and TONS OF PRAYERS are working for us. There are things that you can do on your own to help, like Spring Forest Qigong, you can find more about this at www.springforestqigong.com (we bought the video course and practice it). I do not know what religion if any you profess, but I am catholic and I can assess to the effectiveness of the rosary in my worse times.

Jennifer, I send you and your husband, our love, prayers and a big warm hug all the way from Panama (yes, from the Panama Canal...!!)

Ruby Varcacia

From: Wendy
Email:
Date: Tue, May 24, 2005
Time: 11:25:14 AM (EST)

Comments

I was diagnosed at 37 -- now 39 and in full remission, knock wood. Your site is great, reminds me I am not alone! I'm still working on a good response to the many doctors (including the anesthesiologist while i was being wheeled in for surgery) who say, "You're too young to have colon cancer." Somehow I take this as a compliment, and say thanks!

I've lost 20 lbs since my surgery (foot of colon removed plus nodes) & have had to radically change my eating habits, a very irritable colon, but cancer-free, and I'm enjoying dressing age-inappropriately. I wish more doctors would warn people that after surgery your digestion does NOT go back to "normal."

Thanks again & god bless.

From: Rachael
Email: Pamperedchef_rachael@yahoo.com
Date: Tue, May 24, 2005
Time: 08:45:53 AM (EST)

Comments

Hello I am 21 I have had my first child. And ever since I have had hemroids I have been through 3 sugerys in the past year to try and clear them up. But some keep comeing back. Also bleeding to. Have you ever herd such a thing? Plus my weight has been way lees then what it shoulc be. Could it be cancer?
Thanks So Much
Also since I have know lots with cancerv and such I am trying to rasie money this month by selling Pampered Chef Pink Products 1 dollar from every product goes to the American Cancer society for Breast Cancer.
Also in July I am selling Cancer Baskets 2 from every basket go to the Sociaty.
Check out the web sites
www.longaberger.com
www.pamperedchef.com

From: Edris
Email: Edieirwin@aol.com
Date: Sun, May 22, 2005
Time: 03:41:30 PM (EST)

Comments

I saw the tv show years ago and have never forgotten it. I hope that you are still doing well. My father died the day after his 46th birthday. His life style habits were vey different from mine; plus, I am a woman. I thought those differences would be important, I have been told they are not. I was past the age of 50 when I had my first colonoscopy. I do not have cancer but I do have gastro problems that have resulted in about a foot of intestine plus lymph nodes being removed.

I have participated in Relay for Life for many years and hope to continue to enrich public awareness. God bless you for your imagination so many years ago that lead to the creation of the Collosal Colon. Edieirwin@aol.com

From: Jennifer
Email: jennifershuang@yahoo.com
Date: Sun, May 22, 2005
Time: 01:58:59 AM (EST)

Comments

I love the Colondar! Great idea! I was told two months ago (the day after my second son was born, six days after an emergency appendectomy) that I have Stage II colon cancer. After a second surgery two weeks ago, I was bumped to Stage IV. Two lymph nodes and my omendum had cancer cells. I had no symptoms, except anemia on and off for years. Now I start chemo June 8th. I would much rather be nursing my son than nursing my incisions. Thank you for helping to educate people about this disease. Everyone needs to know that it is not just older men that get it.

From:
Email:
Date: Sat, May 21, 2005
Time: 07:12:42 PM (EST)

Comments

I am an 18 year old male...quite recently i started pondering on the weird problems i am facing since like a year..which hav become more common now.
Being a science student i had studied about colon cancer..and this made me search about the symptoms of the disease on the internet..i found i hav each and every symptom of this colon cancer....but i just cant believe tht i m a victim of this dreadful disease in such a yound age...i dont know what to do..i dont wanna tell this to my family...i just cant do it...sumtimes i feel i shud ignore it all and w8 for the time and sumtimes i think its important to inform my family....i m so confused and shattered plzzz reply me here in the guestbook ..because i dont wanna reveal my identity incase anyone frm my family happens to read this post...
Help.

From: Gisela Rangel
Email: Alex4serena@comcast.net
Date: Fri, May 20, 2005
Time: 01:26:18 PM (EST)

Comments

Hi Molly!
I am 30 years old and have had a left hemicolectomy. I had a colonoscopy in october of 04, and the found a large tumor in left descending colon. Only thing to do was a resection. Had surgery November 04, 9 inches of colon removed and 10 lymph nodes. Pathology reports pre-cancer tumor with clear margins. I felt better gastro-wise until recently, change in bowel habits not like before, more constipation now no diarrhea and narrow stools. I;m scared its only been 6 months since my surgery. What could be going on? I have a colonoscopy scheduled for July. My doctors dont think its something to be too concerned about but I still worry alot.

From: Sister Cyndi
Email: loucyndi@comcast.net
Date: Thu, May 19, 2005
Time: 10:47:50 PM (EST)

Comments

My little sister is in her thirtys and just gave birth to a beautiful baby girl, Madison. She also has three beautiful boys. She has been having diarrea ever since she gave birth to Madison months ago. Now she may have God knows what. She is getting all these tests. Which ones tell you for certain, the colonoscapy? What a bout things like cellfood, Cellsalts, herbs and oils and greens...ionized water? What can she do in the meantime to give her a jump on fighting whatever it is? We have to do something...now.

From: AJR
Email:
Date: Thu, May 19, 2005
Time: 08:20:05 PM (EST)

Comments

My grandfather was diagnosed with colon cancer in 1965. He was treated at MD Anderson Hospital and is now going strong at nearly 92 years of age.

From: john
Email: lueras805@aol.com
Date: Mon, May 16, 2005
Time: 08:32:34 PM (EST)

Comments

Caroline what was your younger sisters symptoms when she got diagnosed in october of 99 did she pass away due to the disease or the treatment?

From: Caroline
Email: cen22824@yahoo.com
Date: Mon, May 16, 2005
Time: 08:17:07 PM (EST)

Comments

I just want to emphasize how important colonoscopies are. If there is a history of colon cancer in your family you should be tested early than fifty. I lost my younger sister to colon cancer in November 1999. She was dignosed with cancer in October of 1999. She was only 37. My older sister was dignosed with colorectal cancer in Aptil of 2003. She had stage 4 cancer. She had a reoccurance in April 2004. She went through chemo again and radiation every day for six weeks. She had a pet scan in April 2005 and it's back. Hopefully she'll beat the statistics. She goes tomorrow to find out what her options are this time.

From: john
Email: lueras805@aol.com
Date: Mon, May 16, 2005
Time: 06:58:05 PM (EST)

Comments

Does cancer make one age I have been dealing with this problem for over a year already and like many others have said i cant get drs to take me seriousit seems like when i look at pistures from just a year ago that i have aged wrinkles in eye area skin not as smooth as it used to be but when i see drs they just see me as a young guy thats concerned the waiting is driving me crazy. Once some one has stage 4 or advanced cc and it is not treated what other symptoms occur i still have not had alot of pain like others have written but to me it seems as if i have become cachetic , im 203 lbs and am 6ft 2 inches tall my normal weight before was 225-235, another question my poop is dark i asume its drom blood but when they have checked my cbc they say it is in normal range calcium also normal and cea was 1.7 i guess that is normal? But then i have read cea is not a screening tool i am so confused with so much info out there can you please help.

From: John
Email: lueras805@aol.com
Date: Mon, May 16, 2005
Time: 01:17:05 AM (EST)

Comments

Hi I am very concerned I am almost certain I have advanced cc the thing is i am 31 and the docs think im exagerating symptoms iv lost about 30 lbs in the last 4 months and my poop is dark i did a fobt and there were 3 pos i just got new ins and gave them this info so i have a consultation for a colonostopy in 2 weeks and they scheduledd a cat scan in 2 weeks also. what im wonderin is if im cachectic alredy and if i am is there still hope or is it now just a quality of life issue any comments ? thx

From: Alise
Email: phoebealise@yahoo.com
Date: Wed, May 11, 2005
Time: 09:57:21 PM (EST)

Comments

What I want to know is how did all these young people find out they had Colon CA? Were they having symptoms and then convinced their MD's to do further tests? What sort of symptoms were these you people having? I did not find any comments on what symptoms they had or if they had any before diagnosis. It's hard to convince doctors sometimes to do things you want. For a twenty-something with a history of IBS symptoms since childhood would you recommend getting a colonoscopy? What other tests? I see a ND and these symptoms have been associated with food, esp. dairy, sensativities? Any ideas? I feel like I should know this stuff because I am a nurse, but I don't care for patients with Colon CA on a regular basis. I will search your web sites further. Your stories are amazing. What a great thing you are doing for the world. Thank you & God bless!

From: Alise
Email: phoebealise@yahoo.com
Date: Wed, May 11, 2005
Time: 09:13:42 PM (EST)

Comments

I am fascinated by this project. I read about it just now in a free heatlh magazine from my local health food store. I am a Registered Nurse with five years ER experience and often see either the very beginning or final stages of disease in my patients. I had no idea that Colorectal CA affected so many people, and especially people who are so young. All of the symptoms sound like me and I am going to see my doctor about it. Thanks so much for this information.

From: GH
Email:
Date: Wed, May 11, 2005
Time: 06:09:46 PM (EST)

Comments

I am 72..do not use the internet etc that often...just yesterday told that i had a large malignant tumor at the hepatic flexure etc...been exceptionally healthy all my life...happen to come across this site in my search re: this cancer, and was awed by the endless number of people dealing with or having a loved one dealing with colon cancer. i find it informative and i am not alone nor is my family in this time of illnesses that are so devastating...Thank you Molly....GH

From: Katia
Email: kcastil@hotmail.com
Date: Wed, May 11, 2005
Time: 01:08:34 PM (EST)

Comments

Hi,
My mother is 59 years old and was diagnosed with colon cancer a little less than a month ago.... I was doing a lot of research on the internet, when I came accross your story. It's nice to read about what you have been doing to make people aware. My mother and I never knew much about colon cancer and she had never had a colonoscopy before, if she would of had one done years ago, we would of caught it before it turned into cancer. She had anemia thats how we found out. Please continue the good work. God Bless U.

From: steve
Email: s.goddard60@ntlworld.com
Date: Mon, May 09, 2005
Time: 07:35:38 AM (EST)

Comments

i am 47 years old with no family history. Was diagnosed with colorectal cancer december27th2004 had several scans and hasnt spread
to anyother organs. had surgery 24feb 2005 took 6 hours to remove and resect 26 lyph nodes removed 4 were involved have tempory iliostomy .and thats the pits bloody hate it
reversel on 14 july 05 started chemo 4 weeks ago you wont beleve
this its made me feel fantastic no side efects ive put 3stone on in
6 weeks . got loads more to say but needlots of room keep your chins up and think posative we will beat it,love you all xxxxxxxxxx

From: Amy Gallagher
Email: argallagher@bellsouth.net
Date: Sun, May 08, 2005
Time: 07:24:24 PM (EST)

Comments

My husband has had a spastic colon for approximately 40 years. During the past few years, he has had frequent colonscopes and had many areas removed. They have not proved to be cancerous. His gastroenterologist has told him for two years that he has a pre-cancerous condition of the colon and needs to have about 75% of his colon removed. Last week, he was told the same thing when he went back for a scope. Is cutting out the colon for a pre-cancerous condition something that is generally done? Should he get a second opinion? Thank you for your advice. Amy Gallagher

From: Jo-Anne
Email: joey7455@hotmail.com
Date: Fri, May 06, 2005
Time: 02:13:14 PM (EST)

Comments

I am 58 yrs old and no history of colon cancer in my family. I found out I have an inflammed colon, after having a colonoscopy, and had 2 tissues sent for testing, i will have to wait 3 weeks for the results. I was diagnoised with IBS (irritable bowel syndrome) 5 years ago .
The colonoscopy wasn't so bad, but the waiting is terrible.

I have put my faith in my God that all will be well.

Great site thanks for sharing your story, I did not know that so many young people were affected. But then Cancer does not discriminate.

From: Jennifer Blaire
Email: JCaddyQwen@hotmail.com
Date: Fri, May 06, 2005
Time: 01:12:35 PM (EST)

Comments

I am 21 years old and I was diagnosed with colon cancer on March 28, 2005. I got surgery to remover the tumor, and the doctor's want me to get chemotherapy and radiation. I don't think I should do it, I had no mets, but 2 lymphnodes showed microscopic tumors. What did you do, and how did your body react to treatment? I thought I was the only young female ever to have this problem and was glad to hear others have had been through it and are okay. I saw the colonder, and you all looked like me, it made me smile. I would like to be part of the next one.

From:
Email:
Date: Thu, May 05, 2005
Time: 07:44:31 PM (EST)

Comments

my sister found out in early january she had colen cancer. On Feb. 24th she died. When they in to remove the cancer ,her stomache , liver and bones already had cancer. she thought the bleeding was hemorroids, she had a kidney transplant in 1982 the medicine to keep it from rejecting kept the body from fighting cancer too.
i pray god is with all of you. it really hurts to lose someone.

From: Anthony Menicola
Email: amenicola@verizon.net
Date: Mon, May 02, 2005
Time: 04:30:21 PM (EST)

Comments

Great to hear of such a success story against cancer. I wish you nothing but the healthiest and happiest life.

Good luck and GOD BLESS!

From: Jennifer
Email: keata319@aol.com
Date: Fri, April 29, 2005
Time: 07:46:10 PM (EST)

Comments

My husband was diagnosed in February 2005 with Stage IV colon cancer. It came to be such a shock because he is only 26 years old and was in perfect health (or so we thought). He had a lower colon resection to remove the tumor. Out of 16 lymph nodes tested, 6 were cancerous and two small nodules appeared on his liver during a CT scan. He is now going through chemo to see what will happen to the masses on his liver. I have so many feelings inside right now: fear, sadness, hatred, and anger. Everything I read and hear is all negative and depressing. We have only been married 2 years and our whole lives are supposed to be ahead of us. Now my life revolves around chemo treatments, medications, and making sure my husband is happy. Please help me with any suggestions, guidance, or words of encouragement to hlep us get through this very difficult time.

Thanks,
Jennifer

From: Dave
Email: djsmith1@aol.com
Date: Fri, April 29, 2005
Time: 04:08:18 PM (EST)

Comments

Thanks for all of your information and service to everyone connected to surviving colon cancer. Last summer my son Ben, 21 yrs old, and a senior in college called on a thursday with a stomach ache. Three days later there was an emergency surgery due to a perforated colon. He had no weight loss, appetite loss, blood ect. The perforation caused peritenitis and after 18 inches of colon removed along with the tumor, 11 lymph nodes tested positive and needle biopsies confirmed a tumor in the liver. Stage IV colon cancer. Chemo followed with Floflox for 12 sessions. He did well and has been in "chemical remission" for 2 months. We go next week to reverse the colostomy and hopefully remove a liver lobe. Stories like the ones on your site help to get by day to day. You can not control the wind but you can turn your rudder and trim your sails and get through the storm.
Thanks again for all of your efforts.

From: Mary Ann
Email: Melkyrn@aol.com
Date: Wed, April 27, 2005
Time: 03:21:43 PM (EST)

Comments

This web site is just wonderful Iwas diagnosed in 2003 with no family history at all . Iwas 45 yrs. old the mother of 3 and married to a wonderful guy. It all came as such a shock . But through 3 surgeries , chemo and radiation I have made it. To read all these stories is such an inspiration to me!!! Keep up the incredibly good work .

From: Kristin Lineberry
Email: lineberry828@earthlink.net
Date: Tue, April 26, 2005
Time: 04:25:10 PM (EST)

Comments

I can certainly sympathize with all those that have a loved one with colon cancer. My mom was diagnosed in March 2004 with stage 4 colon cancer that had spread to her liver. She was 53. It was the most devastating time of my life. Her doctors originally told us she had 18-22 months to live and about a 3-5% chance of survival. She went through a six month chemo regimen with FOLFOX and also was admitted into a clinical trial. Eight weeks into chemo a scan on her liver came out clear. She had surgery after chemo, in December 2004, to remove the colon tumor. She is an incredibly positive person and she fought her cancer with every once of strength she had. As of now, she is considered cancer free by her oncologist and continues to have scans every three months. When she was first diagnosed, I looked everywhere for stories of stage 4 surviviors. I hope her story helps some of you. I would be happy to answer any more questions if anyone wishes to email or just wants to talk to someone who has been through a similar situation. God Bless you all...

From: B. Wyatt
Email: bwyatt168@earthlink.net
Date: Tue, April 26, 2005
Time: 01:57:59 PM (EST)

Comments

I have just heard of and seen the Colossal Colon for the first time. I feel it is a great way to promote testing and educate people on dieases of the colon.

I want to say it is nice to know that ther are other "young" people ho what been thru the shock of the diagnosis and the treatments. In fact the statement was made to my by one of the nurses who was
volunteering..."you are young to have been diagosed with colon cancer".

I was 35 (in 2003) when I was diagosed with Stage III colon cancer with 7 of 11 lymph nodes effected. Like so many others I have read or been told about, 'I was to young to have colon cancer'. I was determined, since my Aunt was a colon cancer survivor to be tested.

I think my doctor(who is close to my age) was shocked and please that I was so determined to be tested, as I knew something was wrong...more then just a problem with constipation or hemroids.

I had my resection surgery and have finished my chemo, and now am looking forward to a long and hopefully health life.

I would just wish that more people would realize that age doesn't matter with cancer, it can happen to anyone, at any age. And that testing shouldn't have age limitations.

From: Teresa Chott
Email: tchott@charter.net
Date: Sun, April 24, 2005
Time: 06:32:18 PM (EST)

Comments

Hi!

I just found your website. I am 63 and was operated on for colon cancer the first week of March. Tomorrow I will be having my second chemo treatment. The doctors are infusing something called Eloxatin and 2 other things into me every two wweeks. Everything seems okay and I now after only 2 weeks have more energy than I have had in years. What I want to know is--will the chemo (maybe) pull me down with each treatment , while it is killing the cancer cells? I cant seem to find people who know a lot = = including the nurses - EVERYONE is different. And this treatment seems new????? It can be found on the internet. But I am looking for a person near my age and going through (maybe) the same treatment. Can you help?

Terry

From: Harry Pierie
Email: Pieriep01@msn.com
Date: Sun, April 24, 2005
Time: 04:30:49 PM (EST)

Comments

I was operated on a week ago for colon cancer. I'm 78. They found cancer in one of ten lymph nodes. I'm curious as to your treatment, length of time you were on chemo and if you were ill from the chemo. Also how long was the recovery from the operation itself. My tumor had almost blocked my colon and my operation was complicated by a previous operation which had left me with many adhesions. Thank you, Harry

From: Jennifer Miracle
Email: mirac1jl@cmich.edu
Date: Sat, April 23, 2005
Time: 00:49:50 PM (EST)

Comments

A friend referred me to this website after sharing one of the Colorectal Cancer wristbands with me. I think that what you're doing is fantastic! We lost my father to colon cancer at the age of 38. He went through a lot of the same experiences that I've read about here, including ruling out cancer because he was "too young." About a year and a half ago, I began having symptons that alarmed me. Pretty much every thing that I ate not only went right through me, but was very painful in the process. As a daughter of a colon cancer victim, I saw my doctor right away who referred me to a gastroenterologist for my first colonoscopy at the age of 27. Thankfully the results came back as normal and since then most of those symptons have subsided, but you can bet that I will be getting an annual check up. Thank you again for all that you're doing with this site.

Sincerely,
Jen Miracle

From: Trish
Email: patriciamcarthur@sbcglobal.net
Date: Sat, April 23, 2005
Time: 01:11:31 AM (EST)

Comments

Hi Molly I just have a question about my mom. I'm not real sure what I Want to know' but I do know she is very miserable. she has been battling this colan cancer for almost 3 yrs.she had her whole colon out.They din't know if she was gonna make it through surgery, she only weighed 78lbs. but she made put on weight and appeared to be progressing pretty good. Then it showed up in her lungs and liver. she's been going up and down ever since. Now there's nothing else they can do for her. Hospice comes every other day. I'm just confused on there literature that hospice gave to us to read. I know thier not god and everyone is different. But my mom was in the final stages,she didn't eat for about 12 days,her body was shutting down. Now all of a sudden 2 months later she doing everything backwards.But she has alot of pain. They keep upping the morphine and all the other pain stuff. My mom is only 57 and I am 41. A nd she really don't want to die but she hurts so and still gets up and does things even though it hurts so much. sometmes she sleeps 20hrs a day. I'm sorry this is so long but I guess my question is what is she waitig for? I don't want my mom to die by far. ButBut why is she bouncing back and forth like this? Hospice is even raising thier eyebrows.

From: Richard Conklin
Email: bigrichdickie@hotmail.com
Date: Fri, April 22, 2005
Time: 08:58:12 PM (EST)

Comments

I am 34 years old, I just got home 7 hours ago from the local hospital in( Kingston NY ) where I had A large cancer mass removed from my colon. They say it was the size of a lemon, but growing up into the young man that I am , I know that "Size Doesnt Matter"

I am so scared but I am strong.

I just want to give you a hug cause we all know how good they feel.

I would like to say that I knew about yourself & your friends befor I was diagnosed with the cancer, but I am a very ignorant person & seen no reason for a 34 year old to start looking up cancer on the computer. You have a wonderfull smile, Keep up the good work.

I feel better just typing to you

From: Gurung, Sumal Kumar
Email: sumalgurung@hotmail.com
Date: Fri, April 22, 2005
Time: 10:01:00 AM (EST)

Comments

Can duedonal cancer be cured it it has reached in second stage of lymphoma

From: julie garner
Email: juliegarner@smn.net
Date: Thu, April 21, 2005
Time: 10:19:05 PM (EST)

Comments

hello molly, i love you so much, you are my inspiration, i too was diagnosed 9-03, im only 46, had surgery followed by radiation and chemo-therapy. 4-29-05 was my last day of chemo. and i was being reffered to new therapeutics program by my oncology. cancer are now made it to the liver and spots on lung,. why im i being reffered there? i will have my pet scan end of May. cancer marker are pos. im very scared, i do have great support from my wonderful husband so loving and kind, and my 4 children my youngest 17, i love my children so much, i want to take care grandchildren. i dont have any yet. I want to be w/my husband side when my youngest son goes off to college. I know i said i have great support from family and friends, but there's time i feel all alone, and its unbearable to feel alone, im depressed most times, i try to keep myself busy w/meeting friends for lunch or something, . Thank you for your great wedsite molly, and goodluck to us all and god bless us all. hugs and kisses, julie,

From: cat
Email: paris_model@hotmail.co.uk
Date: Tue, April 19, 2005
Time: 11:41:12 PM (EST)

Comments

hi molly congrats for yr recovery wish u all the best, im in remission neally 2yrs from ovarian cancer had 2 major surgerys got it all out, problem is started to suffer very bad abdominal pain the past 9mths hot sweats nausea running bk n two to the bathroom have to go for check up have camera look inside, so worried incase i have ma cancer bk please reply yo me thanksx

From: Jean
Email: jszika@yahoo.com
Date: Tue, April 19, 2005
Time: 07:26:02 AM (EST)

Comments

Hi Molly, I just had surgery 2 wks. ago for Stage 2 colon Ca. No lymph involvement, yet they suggest doing chemo. They say the best way is to have a pump put in for "Foltox"(oxaliplatin,Levcouorin,5Fu)or I can take pills, or IV. Not sure which way to go.Leaning towards the pump or the pills. Can you give me some insight. Also, side effects. The Dr. said I would not have hair loss, I'm only 51, and my hair is long so, of course this is a concern. Thanks Jean

From:
Email: jillianz@eden.rutgers.edu
Date: Mon, April 18, 2005
Time: 08:56:14 PM (EST)

Comments

Hi Molly,
I am glad to hear that I'm not alone. I am 22 years old and was diagnosed with colon cancer last week. I'm doing okay, just glad to hear that your doing well too.

From: Sherry
Email: scolburn2005@charter.net
Date: Thu, April 14, 2005
Time: 11:32:25 PM (EST)

Comments

Hello Molly

I was diagnoised with stage IV colon cancer July 12,2003. June 10,2003 I was on the beach in Cancun keeping a distant eye on my youngest daughter on her senior trip after high school graduation. My three best friends( who also have senior daughters) and I went down and had the absolute best time, I felt great. I had been losing weight for about a year 4 or 5 pounds a month, but wasn't worried ,I figured it was because I was stressed out about my mom who has alzheimers and my daughter and I moved in to take care of her. I had a colonoscopy in 2000 because of some bowel problems . it came back no polops. I woke up July 12th at 3:00 am in such pain I couldn't breath through it. I called my older daughter (she is 35) and told her I needed to go to the hospital I thought I was having a heart attack. I went in and they did xrays anf a cat scan and found a mass in my liver and some spots on my lungs. On monday they did a biopsey and the pathologist said it wasn't the originating source. Tuesday when they checked my colon and found a tumor about to perferate the intestine wall. I had surgery on Thursday July17th they got all of the tumor and about 10 inches of intestines. the surgery went well ,but there was still a 9 centameter mass in my liver, spots on my lungs, and several spots on my outer stomach lining. My doctor entered my hospital room on Friday to say it was Stage IV cancer. My two daughters and one of my sisters were there and we all four said "ok so now we fight this thing." My doctor was speechless for maybe a minute then said "ok we fight." I have been fighting ever since. I'm now on my third chemo recipe. The first was 5FU and CPT11 it took me 3 months to get off the couch and I went from 156lbs to 128lbs but the chemo was working, lung spots gone, stomach spots gone, liver mass reducing . I have people all over the world praying for me, my brother-in-law travels and all his associates ask about me every time he talks to them and they pray. I have two of the most wonderful daughters in the world. Oh, and in March before I was diagnosed in July, I was laid off from a job I had for 14 years and hadn't gotten insurance yet. I had sold my house in April to pay off all my bills since I was living with my mom. I gave back my car that wasn't paid for and so I had no assets, which meant I qualified for medacaid but they said I had to pursue any income such as social security disability. So my oldest daughter who is so very organized and quiet relentless got all the forms in order and having my power of attorney went down turned in all the appropriate forms and I was accepted the very first time. Unfortuneatly they did not tell me then I would make to much to qualify for medacaid. So they canceled and then I had to figure out how to pay for the medicines to keep me alive until they find a cure. I have so many things going for me the good Lord above, a great Doctor, his wonderful nurse who contacted the drug companies and got them to donate my chemo medicines, my Dr. cuts all his other fees in half and the hospitals have charitiy programs because I have a dependent and don't make much money, and the whole world praying for me, plus my mom has always held gods right ear and sometimes she can't remember my name but if I ask her to pray for me it might take her a few minutes to remember how but then she does and I feel better. My first recipe of chemo worked for 10 months which my Dr. said was a really long time, then I switched to 5FU pills that work differently than the liquid and oxiplatten for 8 monthes I was more sick than not but the mass shrunk a liilte more , then I had an allergic reaction spent a few days in the hospital and came home to take a three month break from chemo. I started my third recipe March 1,2005 Erbitux and CPT11 qne month in and so far I am doing great health wise but I lost down to 116lbs and I eat all the time. 3 months off chemo the mass in my liver increased quite a bit and some lung spots are back, I had about an hour pity party on the way home in the car, walked in the house and repeated my Dr.'s words " Sherry we have beaten it back before and we will do so again." Some days I'm so tired I think what the hell am I doing , the my 20 year old walks in and says she has finaly decided to graduate college in 2 more years with a BA in Science and be a dental heigenist, and my 35 year old calls to say my 16 year old grandson started drivers ed that day and my 4 year old grandson made his first soccor goal, and I think what the hell I have all the time in the world for whoever to find that cure and so I take more pills and sometimes vomit for a solid week or have diarrhea almost all the time but for one afternoon all is right with my world. So after this short story I say to everyone it is so worth anything you have to do to be here tomorrow.

From: Belinda
Email: reiniott@tpg.com.au
Date: Wed, April 13, 2005
Time: 05:37:59 PM (EST)

Comments

Hi Molly, Your website is fantastic it is great to know that we are not the only ones affected by an "old persons" disease as the chemo nurses keep reminding us. My husband who had just turned 34 was diagnosed with duodenal ( small colon) cancer (early November2004) 4weeks after our first child Mia Grace, was born. He had a 10 hour operation called a whipples Resection 2 weeks later. They removed a third of his pancreas , entire duodenum, gall bladder and 16 lymph nodes 4 were cancerous ( STage3)
He is now just over halfway through his 6 month chemo treatment 5fu leucovorin and irinotecan (CPT11) fortnightly. the oncologist has said that his tumour was microsatellite unstable and that they believe it to be HNPCC hereditry syndrome. There is no family history of cancer known in his family.I was wondering whether you have heard or any of your guests that have written comments have heard whether they had an 'unstable tmour' we have been told that these are easier to treat for colorectal cancer. They have also told us that small colon cancer is really rare and they do not know whether the treatment they are giving him will work because of the rarity of this type of cancer. It would be great to hear from anyone of your guests or that you may have come across that has small colon(bowel) cancer we would love to hear from them. Good luck and best wishes Belinda Reini and Mia Grace

From: Steve Lopez
Email: dangomax@quixnet.net
Date: Wed, April 13, 2005
Time: 10:08:06 AM (EST)

Comments

Hello everyone, This is the second time I have posted a letter on this great web site. I have made a few friends. My wife Nancy (just turned 38)is Stage IV. It spread to her liver and a few other small spots her and there in her body. We were told by our first surgeon who did the colon re-section after Nancy went throught her first 5 treatments of Fol Fox 5 chemo that "Nancy is not a cadidate for surgery nor do I think she ever will be. If the chemo was going to work it would have by now. We can not talk about cure at this time only controling the cancer and containing it" So we went to Vanderbilt University for a second. He said the same thing only in a better way. At Vanderbilt the doctor was more positve and said he would be glad to look at her again latter. He also said that he rounded Nancy's case at Vanderbilt with seveal other doctors from other departments. We spoke to a liver surgery specialist. They all said that she should keep doing the treatment of Fol Fox 5 until there is a reason to change. We came home not so happy but tried to stay positive. We spoke to our chemo doctor yesterday. He was positive and said he was happy with Nancy's progress. Her CAE or CEA count was down from over 300 when she first started to 89. He said "that can only be a good thing" Now if we could just get a CT scan to confirm what he is seeing. We have keep our faith, and I pray often. We have tried to stay as positive as we can and because of this site we have made friends that are willing to help with information. Information is important but more so a positive friend who encourages you to never give up. This site is a blessing. All who read it and need it I would encourage you all to E-mail others and share information. Help each other if not with information with a positive attitude and support. Please feel free to E-mail me and I will get back to you time permitting. God bless, Keep the faith, live life, Each day is a blessing from God.

From: Clark Jamison
Email: clark.jamison@snapon.com
Date: Tue, April 12, 2005
Time: 07:27:53 PM (EST)

Comments

My wife age 53 was diagnosed with stage 4 colon cancer in March 2004. She went through neo-adjuvant treatment with folfox and a clinical trial with ptk787/zk222584. We don't know if she got the trial drug. She has been in complete remission since June 04. Had surgery in Dec. 04 and ultra sound on the liver was clear and the primary tumor was also clear. I am sending this to give hope to the recently diagnosed.
She's an 8th grade teacher with 8 grandchildren who won't give up, against her doctors wishes she taught school all through chemo. Prayer, attitude, a wonderful oncologist and a great support group really help. Positive stories really helped us I hope her's helps others.

From: Tami
Email: tlrn@earthlink.net
Date: Tue, April 12, 2005
Time: 02:13:35 PM (EST)

Comments

I am a GI nurse and I went to yourwebsite to buy a calendar (sorry- a colondar) after I saw the article in Endonurse magazine.) Your website is wonderful and very inspirational but the comments from your guestbook have moved me to tears. I am so proud to be able to help fight colon cancer and spread the word. I had the unfortunate experience of diagnosing rectal cancer on a 13 year old boy- there was no family history- and it was too late for him. Please persist- all of you - cancer free or not. We can fight this.

From: Bill
Email: bill_mckeown@hotmail.com
Date: Tue, April 12, 2005
Time: 02:10:32 PM (EST)

Comments

My father was diagnosed with Stage 3 (A) colon cancer. It was a T2 affecting 1 lymph node near the sight of the tumor. I am scared to death of what could happen to him. From what I hear Stage 3A is much better the 2 B colon cancer. His oncologist said that he has no high risk factors. Could you please give me insight to what you think.
I appreciate it.

From: Softball Mom
Email: ekress@neo.rr.com
Date: Mon, April 11, 2005
Time: 06:53:47 PM (EST)

Comments

I have recently been diagnosed with colon cancer-Stage 2. The regimen my oncologist has prescribed is oxaliplatin, 5Fluorouiacil, and leucorocin. She says that this may cause diahrea. Was chemo really that bad? What can I do to make it through the chemo?

From: mark
Email: mrksand66@yahoo.com
Date: Mon, April 11, 2005
Time: 04:27:06 PM (EST)

Comments

I just sent a comment, but my e-mail address was incomplete. It is mrksand66@yahoo.com

From: mark
Email: mrksand66
Date: Mon, April 11, 2005
Time: 04:25:33 PM (EST)

Comments

A friend of mine was just diagnosed as having stage 4 colon cancer. He is the type who will be reading up and absorbing all knowledge about his condition, Tx options, etc., but I would still like to help from a morale perspective. Can you direct me to some stories of individuals who have survived for extended periods after such a diagnosis? Are there many instances (stories) of individuals completetly beating the disease after having it diagnosed in such a late stage.
Thanks.

From: Carrie
Email: suarezc129@comcast.net
Date: Mon, April 11, 2005
Time: 02:34:43 PM (EST)

Comments

I am 40 years old. On February 21st 2005, I had an emergency appendectomy. The pathology reported that I had a tumor within the appendix that was colon originating and was an adnocarcinoma. I then had a right hemicoloctomy on March 15th and 25 lymph nodes were also removed. One node has the same cells as the adnocarcinoma but my colon was clean and I have had a colonoscopy. So far I have been told that I will need follow up chemotherapy called folfox 4 by my brother in law who is an oncologest and solicited several opinions from his collegues. I am going to the oncologest that I probably will use for the treatment on April 21st. I am curious if anyone on this sight had thier colon cancer found in the same way mine was found and has anyone used folfox 4? Any comments at all are appreciated. Thank you.

From: Brenda
Email: bvalet2@hotmail.com
Date: Sun, April 10, 2005
Time: 05:32:38 PM (EST)

Comments

My maternal grandmother died at age 35 from colon cancer. I am 46 years old and I have had problems with rectal bleeding from time to time and was told it was from hemmorhoids. My last doctor did a stool test for occult blood and found nothing. He did not think there was any reason to do any further testing. I got new insurance and had to change doctors because he did not participate with my new insurance. My new doctor upon learning of my family history of cc and my history of bleeding said I should have a colonoscopy to rule out cancer. They found a small polyp and one the size of a plum. The larger one came back positive for cancer. I go tomorrow to dicuss my options...so far the surgeon has said it was a small 3mm area of cancer inside of the polyp but the stalk was clear and removal of the polyp (which they did during the scope) is all I probably need to have done. My question is how do they know this cancer didn't come from some place else and that it hasn't gotten into the lining of my colon? Has anyone else had this experience?

From: Jenny
Email: jl410bery@sbcglobal.net
Date: Sat, April 09, 2005
Time: 04:03:09 PM (EST)

Comments

Since Dec. 29 2004 I've had severe pains dealing with my colon. On the sameday my husband lost his job. I have gotten worse. I have passed out when I have a bowl movement. I haven't eaten meat since it started. I see blood in my stools. I cry with the fear of going to the bathroom. I have lost a lot of weight. I've started keeping a journal because I don't want my family to hear me complain. I kind of feel alone in this world that everyone finds so grose. We are getting insurance in about 20 days. I am counting down! I do have colon cancer in my family. I'll be 35 in May and a Mother of 2.

From: kisa hughes
Email: kisa_hughes@yahoo.com
Date: Thu, April 07, 2005
Time: 11:06:28 PM (EST)

Comments

I was diagnosed with colon cancer @ 31. Had surgery to remove the large tumors in my lower abdominal area Feb. 3. Glad to be Alive.
God had Blessed me with so much support.

From: Kerry
Email: mkerry@sbcglobal.net
Date: Wed, April 06, 2005
Time: 09:23:33 AM (EST)

Comments

What a great organization you have created! As a colon cancer survivor (stage 3) I salute you and all your efforts to spread the word about colon cancer awareness. We cannot do too much to help people become aware that this disease is treatable, beatable and preventable.

Thanks Molly! I want to be first in line to order the 2006 calendar and first in line to help in this fight to prevent others from getting this awful disease.

From: Cindy
Email: pointrock@aol.com
Date: Tue, April 05, 2005
Time: 10:09:29 PM (EST)

Comments

Hi Molly,
I'm so happy I have found this site. I had thought I was the only "young" person to have this experience. It all started about 2 & 1/2 years ago when I was 35. I was feeling very ill for weeks (weak, stomach problems, diarreah, etc). I wasn't able to function and dragged myself to my primary doctor one day begging to get in to see him. His girls in the office sent me away & said I had to make an appointment so I drove myself to the hospital. After many tests I was sent home saying that they didn't know what it was. Maybe I just had a "bug"!

I returned for a follow up with my primary doctor who did a rectal exam & said I had hemoroids and that I was too young for colon cancer (I even asked that question)After looking at a rash I had he said I had shingles as well (the reason for my weakness and other symptoms). After the treatment for shingles I felt like a new person for a couple days.

My stomach didn't seem to get better & my irregular bowel movements continued. I decided to switch doctors & found a wonderful doctor that took me serious. He said he was sending me for a colonoscopy,he said even if nothing else it would ease my mind. After the conoloscopy the GI doctor said I had IBS (irritable bowel syndrome)& he also removed a polyp but said not to worry it looked OK. Three days later I received a call from that doctor saying that my results came back & that the polyp was a pre-cancerous polyp. He said if I hadn't caught it, it WOULD HAVE TURNED INTO COLON CANCER!

It just goes to show you that you are your own best judge of your own body. I hate to think what would have happened if I hadn't been persistant and switched doctors. My pre-cancerous polyp had nothing to do with my symptoms (my IBS did) but it's amazing how things turn out. That IBS actually saved my life! I now have to have a colonoscopy every 2 years for the rest of my life or until I have 4 negative tests. Today I made my appointment for my next one (it's been 2 years). Please, trust your body & be insistant on what tests you need proformed. No one knows your body better than yourself. We are always our own best advocate!

From: Jerry Krenach
Email: jkrenach@nauticom.net
Date: Mon, April 04, 2005
Time: 04:59:56 PM (EST)

Comments

Hi Molly,
Thanks for sharing your experience and offering of encouragement.
Although we are decades apart in age, we have much in common. I'm 68, was diagnosed with rectal cancer in Sept 04.
Several days later, after a Cat scan, I was told that it had metastasized to my liver and lungs-- stage IV. My plans for retirement, after so many years of working, seemed the only to be a dream, never to become a reality. Before the diagnosis, my health was near perfect and would be today if I had used common sense, followed my wifes wishes and had a simple colonoscopy beginning at an earlier age. Because of the size of the tumor, surgery ws delayed while I was trreated with radition and chemo. In early January, the surgeon removed my rectum and created a "J pouch" and gave me an ileostomy which I found to be an inconvenience for a moment but then considered the alternative,
Tomorrow I will receive my 4th of 12 remaining chemo treatments. I'm feeling great ! The test thus far (Cat scans, etc) have shown shrinkage of the lesions in my lungs and liver and I am feeling eternally optimistic. The days of "You have cancer" seem to be in the distant past. I will win this challange!
With the absolute finest care from my wife and my family and of course the wonderful care of the medical staff at Allegheny General Hospital Cancer Center including the doctors, nurses, and the onocology department, I am forever grateful.
Keep the faith and best wishes to all.
Jerry

From: Tina Popilowski
Email: apopilowski@earthlink.net
Date: Fri, April 01, 2005
Time: 09:18:26 PM (EST)

Comments

Hi Molly,
I am a 51 year old colon and uterine cancer survivor.
I was diagnosed with colon cancer in 2000. After surgery and 6 months of chemo I was diagnosed with uterine cancer. (A mere 5 months later).Fortunately this was not a met but was a very aggressive,clear cell, cancer. I had a total hysterectomy,two radiation and six chemo treatments. I am now five years out from the colon and four years from the uterine.
I have three cousins who have had colon cancer also. All between the ages of 38 & 45.
Our family has tested positive for a hereditary gene mutation (HNPCC) which predisposes us to colon cancer and other cancers.
I am scheduled next week for my fourth colonoscopy since diagnosis and I am finding myself very anxious.Your story has given me hope and encouragement.I'm glad I came across your site.Thank you.
Stay well and God bless,
Tina (Connecticut)

From: Pauline O'Brien
Email: paulineo@jmw.co.uk
Date: Fri, April 01, 2005
Time: 07:55:48 AM (EST)

Comments

My husband aged 43 has just been diagnosed with bowel cancer, the only symptoms he had was a change in bowel habit and blood in his stools, our world has been devastated, I was diagnosed with breast cancer in 1999. We are to become grandparents in July this year, we are totally on the floor, we are waiting for a body scan to see if it has spread,the surgeon thinks not, the waiting and wondering is terrible.

From: Belinda Roberts
Email: bkrlpn85@yahoo.com
Date: Fri, April 01, 2005
Time: 01:36:54 AM (EST)

Comments

I am a 44 year old with colorectal cancer with metatisis to the live and lungs. I began this journey of chemo 13 months ago and am still unsure of the results of the future with this disease. Your story provides much needed encouragement. thanks and may GOD continue to bless. Belinda

From: CeLee Perkins
Email: celee10@hotmail.com
Date: Thu, March 31, 2005
Time: 02:00:46 AM (EST)

Comments

Hey Molly,
My name is CeLee Perkins. My family found out November 19, 2004 that my grandmother, Cecil Perkins, had end stage colon cancer that had already spread to her bladder and liver. My mother and I have lived with my grandmother since my parents divorced and I was quite close with her. It was a long battle, I admire you alot. She passed away February 9, 2005. I can not express my appreciation enough to you for you promoting the awareness.
Thank So Much,
CeLee Perkins

From: Jeffrey
Email: Hawkis5@msn.com
Date: Tue, March 29, 2005
Time: 07:23:27 PM (EST)

Comments

We just learned our neice (18 yrs) has CC and is going in for surgery. We are very concerned and would like to learn more about CC in young people - treatments, doctors, etc. She live in a small town in Iowa and her initial treatment was removal of her appendix - until they actually discovered the real issue. Please advise. Thank you for your assistance and God Bless!

From: Judy
Email: JABDAV90@HOTMAIL
Date: Tue, March 29, 2005
Time: 03:33:00 PM (EST)

Comments

Hi Molly,
I came upond your site after finding out that my husband of 47 has Colon Cancer.It was like getting hit with a brick. We all hope we never hear that word but when we do it is devistating.He has just come home after almost 3 wks recovering from the surgery.He also had no symtoms other than abdominal pains.we that was bad gas.I wish.He will not start Chemo till he is strong enough.We have lots of people praying and lots of support from family and friends.Thanks to you it gives me hope .Thank you Judy

From: COURTNEY
Email: PRETTYLILESKIMO@AOL.COM
Date: Sat, March 26, 2005
Time: 01:10:41 AM (EST)

Comments

THANK YOU SO MUCH FOR, WELL, BEING YOU! IT TAKES A SPECIAL PERSON TO GO THROUGH WHAT YOU'VE GONE THROUGH AND KEEP NOT ONLY A PROACTIVE, POSITIVE OUTLOOK BUT ALSO A SENSE OF HUMOR ABOUT THINGS!!

YOU ARE IN MY PRAYERS FOR CONTINUED HEALTH AND HAPPINESS, AS IS EVERYONE ELSE WHO'S RESPONDED HERE. KEEP UP THE GOOD WORK AND IF YOU NEED ANYONE HERE ON LONG ISLAND, N.Y. TO SPREAD THE WORD (FOR YOUR FUTURE EVENTS) EMAIL ME AND LET ME KNOW. I'D BE MORE THAN HAPPY TO HELP!
COURTNEY

From: pam baker
Email: pambak@duncanvilleisd.org
Date: Fri, March 25, 2005
Time: 08:17:50 AM (EST)

Comments

my husband 46 was just diagnosed with stage 4 colon cancer and that it has metastisized to his liver. no symptoms at all until the week of the belly ache. we went to the er and they said it was gastroenteritis. the next day we went to his m.d. and he sent us to meet the surgeon at methodist med. center in dallas. he had a cat scan and they found the blockage. today we see the oncologist. my husband has never been sick so this is such a shock for us all. as his wife i need to know the best ways to feed him. he's not a large fruit/veggie eater but likes some. any great ideas out there for nutritional support in fighting cancer? our faith is strong and we'll fight this but as he's the love of my life i want to do everything that i can to help him with the battle. dr's say he can have anything he wants. to you nutrition folks please send advice my way. we live in desoto, texas just 20 minutes from dallas so there should be many places that i can turn to. please, please send all advice you all have. take care to all who read this.
pam baker (by the way i'm taking fmla to be with my husband as i'm an elementary special ed teacher) so i'm sooooo open to do whatever it takes to help heal him. i have until august to learn all that i can. thanks again!!

From: MADELYN MILLER
Email: madymiller@hotmail.com
Date: Wed, March 23, 2005
Time: 04:47:36 PM (EST)

Comments

Great Job!!! I have worked for colon and rectal surgeons for many years.

We have been giving out the buddy braclets this month and we always wear our star pins to work.

I would like to plan better for next March for colon cancer awareness month on items to give our patients and posters. I wrote to several organizations this year regarding poster(to purchase) but did not have any responses. Do you know of anyone offering such items?

I have marked your website in my favorites. Take care and keep up the good work. Madelyn

From:
Email:
Date: Mon, March 21, 2005
Time: 04:46:13 PM (EST)

Comments

I just ran across your story. My brother the youngest of 6, was
diagnosed with colon cancer. He found out 12-17-04. He has a wife and
a 2 yr old son. Our mother died of colon cancer 10 yers ago. My brother's cancer went into his liver. So before they can work on the
colon, they have to take care of that. He's on round 5 chemo then he
has to go for the pecatscan. If things are good, then they can talk
surgery. I often wondered.Had my mom got tested back then, would she
still be around./?My brother's handeling it with alot of love from his
family, dignity, and courage. His wife has been a real trooper, through it all. He has his own web sight up.Keep up the good work. Ill
let my brother no about this. So he can see he is not alone thanks
sm.

From: Jean Alsup
Email: alsupjean@aol.com
Date: Sun, March 20, 2005
Time: 08:38:17 PM (EST)

Comments

Hi:
My Name is Jean Alsup. I live in Big Sandy TN. 38221
I went for a routine check up Nov. 21, I started having pain the night which was a Tues. Wed it was worse Thurday was Thanksgiving and I was expecting mt son his wife and her father. I was in so much pain I couldn't move. By Friday my daughter-in-law left for Nashville where she works at Vanderbilt Medical. I went with her. The Doctor there was a surgen, and I seen several Residents. After the catscan I found out The doctor had made a hole in my intestant and I had a very serious infection. I was at the Vanderbilt for 4 days and at that time I was feeling much better., There is so much too tell but to make the story short when I came home. the doctor at home called me and told me to get to a surgen Ihave colon cancer.
I went back to Dr. Diaz to do my surgery.
I haven,t Insurance. at this time. I had one chemo treatment and I go back tomorrow fot the next 46 hours. molly. Email I would liuke to talk when i feel better.

Thanks
Jean

From: Don
Email: dongummerson@hotmail.com
Date: Sun, March 20, 2005
Time: 10:36:38 AM (EST)

Comments

Hi Molly, thanks for your web site regarding colon cancer. I've suffered with diarrhea since 9 Dec 2004(just over 3 months to date). At first I didn't think it was much too bother about as I had just come back from Madrid visiting my best friend and her baby daughter and they both were suffering from a gastro bug. I helped her change nappies and so I thought I may have picked up the gastro bug. But when it didn't clear it did raise alarm bells. I saw my doctor in January and she did a stomach examination and I submitted two stool samples that revealed nothing. Around the same time I asked for a routine chest Xray - because I had smoked for 14 years and thought it would be a good idea - she didn't feel I needed one as my chest sounded clear. To my shock when the results came back that there was a small shadow on the left lower lung I began to worry. My doctor has since forwarded my chest Xray to the London Chest clinic and I'm seeing them on 13 April and she's also scheduled a colonoscopy for me in the near future - no date is set yet. I don't know if the two might be related; I'm not scared - I'd just like to know what's wrong with me. I live in London UK where the health care system isn't what it should be. I only pray that if they find something like cancer it's not too advanced by the time I am diagnosed. I'm travelling to Toronto to see my brother and his family just before my test in April as I just feel I need to see them. Thanks for your story and I hope you remain healthy and happy. As for me I feel well in general, apart from the bloating, gas and diarrhea. I'm 46 years of age.
Don

From: Judy
Email: jstrong43@cox.net
Date: Sat, March 19, 2005
Time: 09:53:39 PM (EST)

Comments

Hi Molly, I just happend on this site and was shocked at all the letters! I've been told that there are alot of colon cancer patients but sometimes we feel so alone. I was diagnosed with colon cancer last week. I had a few symptoms, but like everyone else make excuses. No one in my family had colon cancer, so why would I? After talking to my mother who had several polys removed years ago I decided to get a colonoscopy and they found cancer. I've had a ct scan, and now have to go for an sigmoidscope next week to determine where it is. I'm still in the dark so to speak as to what's next, but after reading all the letters, I'm optimistic. When I can, I want to help other people become aware and not be afraid to get tested. I noticed that the collsal colon hasn't been to the Arizona area. Maybe some day soon you'll come out here. Thank You again for getting the word out. Sincerely, Judy

From: Janey
Email: JANEYELKINS@JUNO.COM
Date: Sat, March 19, 2005
Time: 02:16:19 PM (EST)

Comments

Thank you for all the comments, information. I was diagnoised with colonrectal cancer in 2000, I had most of my Transverse Colon removed along with a 4cm tumor in rectal area. No radiation or Chemo. I am beginning my 5 year cancer free. If anyone out there has similiar cancer please e-mail me. I am very lucky.

Janey

From: Janet K.
Email: renogranny@sbcglobal.net
Date: Wed, March 16, 2005
Time: 05:57:21 PM (EST)

Comments

Dear Molly, Thank You for showing me that there is life after colon cancer. The ladies in your calender have inspired me regain control of my health and fitness after finishing treatment for stage 3 colon cancer this past December. The stories and pictures really helped me realize that people can recover and enjoy life again. I am a 33 year old female who was misdiagnosed for 12 weeks before i ended up in the emergency room and finally had a CAT scan. The most important lesson i learned was to listen to your body, it doesn't lie to you! Don't let anyone, even a doctor, tell you nothing is wrong or that it's all in your head! Beat Wishes to all!!

From: Janet K.
Email: renogranny@sbcglobal.net
Date: Wed, March 16, 2005
Time: 05:57:16 PM (EST)

Comments

From: Brian
Email: Briangffny@aol.com
Date: Wed, March 16, 2005
Time: 01:07:34 PM (EST)

Comments

I just finished reading your article in today's NY Daily News(March 16th,2005)and I just wanted to commend you on your mission to fight this disease. I was 42 when diagnosed as a Stage 2B Colon Cancer Survivor who is reaching a two-year anniversary in May. I just finished the 4 Mile Pfizer Colon Cancer Challenge in Central Park on March 13th and looking forward to getting back in shape. I am also very vocal about awareness and prevention to this "silent killer". Keep up the good work.

From: Mimi
Email: mberkau@yahoo.com
Date: Mon, March 14, 2005
Time: 07:33:56 PM (EST)

Comments

Hi Molly,
I have a friend who has colon cancer. Che has just begun chemo. I would love to help her but she is too sick to visit and says there is nothing I can do. any suggestions?

From: Sherri Sprinkle
Email: sherri.sprinkle@tap.com
Date: Mon, March 14, 2005
Time: 06:06:26 PM (EST)

Comments

It is always encouraging to hear that yet another person has made it through the trials of Cancer. Thanks to persons such as yourself many other people will be helped. Thank you for sharing your web site as well as your stiory!

From: Jason
Email: jmoon219@msn.com
Date: Mon, March 14, 2005
Time: 00:24:38 PM (EST)

Comments

Wow! What a remarkable story! I am two years older than your are and I am going full speed ahead fairly soon to get a colonoscopy. I know that the insurance company will pitch a hissy fit about me being only 31 and requesting an exam usually reserved for people 50 or older, but that's tough! I'm getting it done because if I have a polyp, I want it removed! Despite what the medical profession would have us believe, colon cancer DOES strike the young. The age to get a colonoscopy should be lowered to at least 35. I don't trust physicians anyway. They are liars. But, if young people who have had colon cancer and lived to tell about it will continue to get the word out that it's a monster that does NOT discriminate with age, awareness will be raised and lives will be saved. Keep up the great work.

Sincerely,
Jason

From: Elaine
Email: elaine@3-c.coop
Date: Mon, March 14, 2005
Time: 00:23:38 PM (EST)

Comments

Very inspiring story, Molly. I started my chemotherapy today having had a tumour (Stage II) removed from my higher rectum on 24th January. Still feeling pretty scared but stories like yours help to keep me going. Far more publicity/education is needed on the subject of colorectal cancer. If I'd been better informed I would have sought treatment earlier.

From: Don Lewis
Email: moonhelp@comcast.net
Date: Sun, March 13, 2005
Time: 05:48:06 PM (EST)

Comments

I enjoyed reading about your journey. I was diagnosed with a late stage 3 rectum cancer in 2001. I just reached my 3rd year anniversary of remission on March 12, 2005. People like you are an inspiration to us! This past August 2004, I completed my first sprint triathlon and looking forward to more at age 46.

Thanks for sharing your incredible story and your continued desire to promote awareness.

Keep up your passion!

Blessings for continued good health and happiness!

Don Lewis
Pittsburgh, PA

From:
Email:
Date: Sat, March 12, 2005
Time: 05:58:41 AM (EST)

Comments

Happy Belated Birthday!
Hope all is well with you.
--gravelchuk

From: Beverly Bennett
Email: bbennett1@earthlink.net
Date: Fri, March 11, 2005
Time: 07:34:53 PM (EST)

Comments

I came upon your website last-nite while searching for inspirational stories on the web. I am two weeks into recovery, after having a liver resection. I was feeling a little down and needed something to lift my spirits. When I saw the words colon cancer connected to the website, of course I was interested. I am so glad that I found this website, it was just what I needed. Although, I have had the best family support,church, and friends anyone could ever ask for, sometimes living in this world can feel so lonely at times. After reading your site and seeing all the things you have done to get the message out was so uplifting and made me realize that I am not alone. It has been my desire to help someone through what I have been through, but didn't know how to go about it. If there is anyway I can help anyone out there please let me know.
I was diagnosed with stage IV colon cancer December 26,2003 it had met. to my liver, I had two tumors on my liver one on each lobe. In Jan.2004 I had the colon surgery, they removed 12" of my colon and lymph nodes, I began chemo in Feb. every other week Tue.- Fri. till Nov. there was a lot of sickness that came with the chemo.Dec I had an ablasion surgery they could only remove one tumor, so then I was scheduled for the liver resection on Feb.24,2005, which is where I am now, the surgeon seemed pleased with the results. I will be seeing my onocologist on March 25.
I wish I had found this website months ago. Keep up the good work there is so many people out here that need a place like this to connect, to know they are not alone.

From: Jen
Email: jsquared55@yahoo.com
Date: Fri, March 11, 2005
Time: 06:12:54 PM (EST)

Comments

Molly,
I heard about your site from a Dave Barry daily calendar and had to check it out. My 28 yr old husband (of almost 2 years) just finished 24 rounds of chemo (5-FU & leukovorin) in December for colon cancer and the prognosis looks good. God Bless every one of the oncology nurses and the entire staff at St. John's in Detroit. He is scheduled for a follow up colonoscopy in a few weeks and will be returning to work almost exactly a year after being diagnosed.

The Colossal Colon is an excellent tool to spread awareness of this disease that is not just something that affects "older people" like I originally thought. Hopefully it will make its way to Southeastern Michigan sometime soon so I can see it in person.

Keep up the great work!

From: sarah martinek
Email: sarahmartinek@hotmail.com
Date: Fri, March 11, 2005
Time: 06:06:33 PM (EST)

Comments

Dear Molly, I want to find out how to locate a doctor who will listen to a young person. Both my maternal grandmother and mother have had colon cancer. My grandmother died, but my mother survived. I'm only 28 and have had two polyps removed, plus a number of other problems including intestinal bleeding. I have pretty sever abdominal pain and a lot of other colon problems. My doctors are unwilling to search farther than the colon even though my condition continues to decline. Do you know if it's possible to have cancer of the small intestine w/o having cancer of the large intestine? Why does colon cancer receive so much more publicity? Please contact me w/ your feedback. Thanks, Sarah

From: mindy godwin
Email: brucesrams99@msn.com
Date: Thursday, March 10, 2005
Time: 03:52:31 PM -0500

Comments

I think what you guys are doing is great! people are not aware that this could happen to younger people!

Mindy (Melinda) Godwin

From: Heather
Email: hrt99200221@yahoo.com
Date: Tuesday, March 08, 2005
Time: 02:59:01 PM -0500

Comments

Hi,

I came to this site to try and find out what is wrong with me. I have read the information provided and I have most of the symptoms. If it isn't to much trouble could you please email some more information. Like how long you had the symptoms befor you went to the doctor. I have been this way since July of 2004. Thank you Heather

From: Andrea Rocco
Email: andrea_rocco1973@yahoo.com
Date: Friday, March 04, 2005
Time: 05:48:51 PM -0500

Comments

Dear Molly, First I would like to commend you on raising awareness on colon cancer, especially in young people. I am 31 years old and was diagnosed with stage IV colon cancer in July. It completely turned my life upside down. I've been in the Air Force for 12 years and am now facing a medical retirement. My symptons like yours were dismissed because of my age. They even sent me on to a new assignment in Hawaii after seeing tumors in my liver through an ultra sound. I was told to get a CT scan when I got to my next duty station. I even told them about my own family history of colon cancer. My maternal grandmother and great grandmother both died from colon cancer in their 60s. If I can be of any assistance to you or your campaign to raise colon cancer awareness please contact me. Very Respectfully, Andrea Rocco

From: Lore K
Email: lkaalekahi@aol.com
Date: Friday, March 04, 2005
Time: 04:05:53 AM -0500

Comments

Hi Molly, I was just going through different websites in reference to colon cancer and this one was of interest to me. My husband has had colon cancer since 2000 at age 42. He had his rectum removed and a colostomy put in its place. He had radiation and chemo, (5 FU, leucovorin and CPT 11). He had 2 surgeries for blockage. He had about 1yr and 1/2 of no cancer, good health. Then in 12/2003, his doctor saw by a blood test that the cancer (CEA) count was climbing upward. She had him back on chemo right away. The new drug was oxaliplatin. This treatment lasted for a short 6 months because he was getting too sick. As of 12/2004, the cancer has spread to his lungs, bones, abdomen and on 2/2005 the brain. Now he is back on radiotherapy. The chemo drug that the doctor tried was Avastin. This was approved by the FDA early 2004. He has been on it for the past year or so. Now with the progressive spreading of the cancer she ordered radiation. She does not know what to do about the cancer in his bones, lung, abdomen and chest. Do you know of any other chemo drugs to help him? I know this prolongs his life. He is very healthy and strong. He is just tired of the side effects from the radiation and chemo. He does not have strength or any energy to do anything. Whatever he eats or drinks does not stay down. We have faith in our Lord and he will answer our prayers to remove this cancer from my husband's body. I thank you for allowing me to share this with you and all who reads your Guest Book. Aloha, Lore K.

From: Heather
Email: heather.hager@cancer.org
Date: Thursday, March 03, 2005
Time: 01:32:34 PM -0500

Comments

The Colossal Colon is in SLC! I just started working for the ACS and was involved in Relay For Life last year. Your web-site here and your work to build awareness is awesome! You are a true inspiration.

From: Holly
Email: JRochell@aol.com
Date: Tuesday, March 01, 2005
Time: 09:41:58 AM -0500

Comments

Happy March and National Colorectal Cancer Awareness and Prevention Month!

From: Marsha
Email: marshak@mwt.net
Date: Friday, February 25, 2005
Time: 05:11:54 PM -0500

Comments

Molly,

I found your website after reading about the Colossal Colon coming to Madison. I have read your entire website and sit here crying. I just want to say Thank YOU!!!!!!! Spreading the news about colon cancer testing is such an important cause. My father did not survive his battle with colon cancer and passed away 2 months ago. I am 35 and just had my first colonoscopy. It will not be my last. Every other year is what his oncologist has told my brother and myself. I also lost an aunt to colon cancer.

You are an inspiration. KEEP UP THE GREAT WORK!!!!!!!!!!!!!!!!!!!

I can't wait to take my kids this weekend--through the Colossal Colon!!

From: AnnMarie Morse
Email: gleann@comcast.net
Date: Friday, February 25, 2005
Time: 10:50:29 AM -0500

Comments

Hello Molly

I just learned of your site and thanks for creating it. In December 2003,my daughter was just 7 days shy of her 21st birthday when she was diagnosed with stage 4 colon cancer. Like you she had emergency surgery for what we thought was for removal of a twisted ovary. She went through 12 rounds of 5FU, lucovorian, and oxilyplatin from Jan 0 Oct 2004. Unfortunately, within 4 weeks of finishing her tumor markers spiked. The cancer spread to her lungs as small nodules. She just had her 6th treatment out of 12. This time her regimen consists of 5FU. Locavorin and CPT 11 as well as Avastin. Her last CAT SCAN showed that there are no new nodules and the ones in her lungs are shrinking and/or drying up. During this time my daughter has been going to college full-time to maintain the health insurance. Because of her illness there is HB 37 before the Commerce Committee in the NH Legislature. This bill would allow college students who become ill or injured and need a medical leave of absence can remain on their parent's policy with out having to get coverage under the C.O.B.R.A. portion of the policy. She has taken a private matter and gone public with her story. Four newspapers in NH have covered the story and hopefully a law will be passed. The students at my school have raised $1,800 for the ACS through two fundraisers. We are hosting a Relay for Life Walk on May 6-7. She is a fighter and will continue to fight. She recently got engaged and plans to marry in August 2006.

From: DONNA
Email: RDLRNEAL@CHARTER.NET
Date: Wednesday, February 23, 2005
Time: 09:20:12 PM -0500

Comments

THEY AI AM CONSTANTLY READING UP ON COLORECTAL CANCER SINCE MY 24 YEAR OLD SON WAS DIAGNOSED WITH STAGE 3 WITH 3 NODES POSITIVE OUT OF 22 ON FEB.2,2004.HE HAS WENT THROUGH 8 MONTHS OF CHEMO.OF 5FU,LEV.AND OXILYPLATIN.HE HAD CT AND PET SCANS IN NOV. AND COLONOSCOPY IN DEC OF THIS YEAR AND THE DR SAID EVERYTHING LOOKED CLEAN.HE TOLERATED THE TREATMENTS WELL BUT I HOPE TO GOD HE NEVER HAS TO HAVE THEM AGAIN ,BEING A MOTHER YOU NEVER WANT TO SEE YOUR CHILD GO THROUGH SOMETHING LIKE THIS.HE IS MARRIED AND HAS 3 CHILDREN ,6,4 AND 2. AND A LOT OF SUPPORT AND READING YOUR STORY GIVES ME HOPE AND A GREAT OUTLOOK FOR HIS FUTURE.THAKS FOR SHARING YOUR STORY IT IS AN INSPIRATION AND I WISH YOU THE BEST OF LUCK. WE GO BACK IN MAY FOR MORE TESTING.HE ALSO HAD 6 INCHES OF HIS COLON REMOVED.

From: Charlotte Chester
Email: chubpug@yahoo.com
Date: Wednesday, February 23, 2005
Time: 06:50:20 AM -0500

Comments

Hi Molly!! I was surfing the web and ran acorss the Colossal Colon project. What a wonderful idea!! I was diagnosed with colon cancer in November 1998 at the age of 27. It was a reoccurance of a tumor that I was born with called sacreal coxigial terratoma. Basically a non cancerous tumor on my tailbone that was removed when I was a baby. I may not have had the same symptoms but I have been fighting the good fight for six years now. Many chemo treatments, radition treatments, and reoccurrence, but I am still here. I am happy every morning that my feet hit the floor. Thank you, for doing all that you do to bring awareness about this treatable disease. God Bless! Best regards, Charlotte Chester-survivor :)

From: Chris DeVasier
Email: cddevasier
Date: Tuesday, February 22, 2005
Time: 08:49:56 PM -0500

Comments

Molly, I am the good looking guy you met in Conway. I just wanted to let you know that I didn't know about your program until this weekend and applaud you on your strength and cause. If their is anything I can do to help in the future please let me know. Have fun in Georgia and keep on spreading the message of prevention.

Survivor, Chris DeVasier

From: Colleen Youngdahl
Email: cyoungda@wellesley.edu
Date: Monday, February 21, 2005
Time: 12:20:20 PM -0500

Comments

Hey Molly, I am one of Hannah's cousins and I get such an amazing feeling everytime I come to one of your sites whether it be colonclub, colossalcolon or rollingtorecovery. I attend Wellesley and my roommates and I have your calendar on our fridge. I have heard so much about you over the years from Martha and Hannah and hope to someday meet you. If you ever think I might be of help please let me know. I have some pretty good connections in the Boston area. Maybe we can show the colon at Wellesley sometime!

Have a wonderful Feb

Colleen

From: Bobbie
Email: reflections@coastalnet.com
Date: Saturday, February 19, 2005
Time: 08:09:08 AM -0500

Comments

My friend in her 60s was diagnosed yesterday with colon cancer. The surgery is March 1. I am searching for anything positive to encourage her. I have printed "Rolling to Recovery" for her. Thank you for your story and all your efforts. May God continue to bless you.

From: Tammy
Email: cancerjourney2004@yahoo.com
Date: Thursday, February 17, 2005
Time: 12:03:22 AM -0500

Comments

Molly, Thanks so much for sharing your story with us. My husband was diagnosed with colon cancer 1 year ago at age 55. He underwent a colectomy, and chemotherapy and is currently cancer free. I found your website shortly after he was diagnosed and it really helped me to read your story and your guest book. My family has established a website which chronicles our journey with colon cancer in 2004. If anyone would like to visit, the address is www.cancerjourney.com. Also, I would like to ask you a question if you could e-mail me at your convenience.

From: Marsha Kamp Rothenberg
Email: smrothenberg@aol.com
Date: Tuesday, February 15, 2005
Time: 10:58:36 PM -0500

Comments

One and a half years ago my sister passed away from colon cancer. She was diagnosed at stage III. She had insurance through an HMO and had a doctor that didn't know the latest research. Her HMO would not let her have the chemo combination or do proper testing that was routine protacol at the time .I feel her care in Atlanta was less then perfect.During her illness my father was also diagnosed with colon cancer.He had surgery in our home town of Syracuse and along with the rest of the family now has regular screenings.We have since learned by asking that many of our relatives have had polyps removed.My very large family and friends are active in promoting screening and awareness to save lives.I have put together an information session that is open to the public with a GI doc,an oncologist and a geneticist to take place 3/20/05.We will have a 5k walk to raise $$ for awarenss,screening,genetic testing and research to find a cure for this awful disease.The date of the 5k is 6/12/05.I promised my sister I would get everyone we know screened.The colossal colon sounds like a visual that could convince everybody to get the test.Please let me know what would be involved to bring it to Syracuse for an awareness event. I an open to any ideas to get the word out.I look forward to your comments.We all need all the support we can get.

From: Alfred
Email: chan_al@yahoo.com
Date: Tuesday, February 15, 2005
Time: 04:35:14 PM -0500

Comments

Hi Everyone,

Does anyone know anything about the alternative cancer therapy? If you have any experience in the past, please let me know the success rate or how reliable those treatment are. My father has stage IV colorectal cancer and I want to put him to alternative therapy instead of chemotherapy.

Any input will be greatly appreciated.

Alfred

From: Mom
Email:
Date: Monday, February 14, 2005
Time: 12:12:43 PM -0500

Comments

Dear Molly,

As you know, I check guest book entries often. So many of the messages bring tears to my eyes. I'm so proud of you and the work that you do.

Happy Valentines Day!!

Love,

Mom

From: Bob Kearns
Email: kearns@adelphia.net
Date: Sunday, February 13, 2005
Time: 08:52:28 PM -0500

Comments

I was diagnosed with colon cancer after emergency surgery when I was 39. I underwent radiation sandwiched during my chemotherapy. I have four daughters and a wonderful wife. My family and partners from business were also great to me in the fight to be cancer free. I have spent my recent months back at work and working with the Northeast Regional Cancer Institute in Pennsylvania. I became active in the CASUAL (Colon cancer Awareness Saves Unlimited Adult Lives) which runs a colon cancer awareness program in its second year as a dress down activity with educational components.

My interest is three fold: 1. I would like to join the Colon Club 2. I would like to look at bringing in the Colossal Colon 3. I would like to use a Colondar "Girl" as a guest speaker.

I am humble in seeing what your efforts have achieved. I look forward to speaking or hearing from you.

My contact information Bob Kearns, 1025 Park Street, Scranton, Pennsylvania 18509, h 570.342.5494 cell 570.840.6040

Warm regards.

From:
Email: sir74@hotmail.com
Date: Sunday, February 13, 2005
Time: 01:04:59 PM -0500

Comments

http://ambin.mail15.com/

From: JJ SMITH
Email: POKEYJ2222@AOL.COM
Date: Saturday, February 12, 2005
Time: 04:05:51 PM -0500

Comments

Hi! I accidently discovered this WONDERFUL web site today and I'm so amazed by the positive, uplifting attitudes everyone has and I'm thrilled to now be a part of this badly needed site. I'll try not to make this a novel. :-) I am 56 yrs old, live in Orlando and diagnosed Aug 12, 2004 with colon cancer. I had a large mass that was cancer. I had no symptoms at all, so had never had a colonoscopy before, even though that was pretty stupid of me because my father had colon cancer. During the colonoscopy, the dr disected the mass into 6 pieces and removed it, along with 9 polyps that were beneign. He only had .05 mm into healthy tissue, but still told me that he was "99% sure that he got it all," even though the smallest acceptable margin is 3 mm. I was given a PET scan, CT scan, CEA and 2 additional colonoscopies during the following 4 months....all tests were negative. All of my records were then "lost in the system" for several weeks. I was never told that I had RECTAL cancer until 2 months ago by another doctor. I started making appts with an Oncologist and the past 2 months have been a blur. My husband is more confused than I am, if that's possible. :-( I have NOT been staged and told that I cannot be unless I have the resection. I've been to 2 surgeons and 2 Oncologists now and they all are pushing me to have the surgery. I am so scared and confused. If ALL of the tests are negative, then why do I need this surgery? My original CEA tests was 6.0 ..... the second one (2 months later) had dropped to .06 and my last one 3 weeks ago had dropped to .02. I feel so whiny after reading the other posts here. Sorry, I really don't mean to be. I feel like I've been given a lot of bad information by the original dr and now I'm being told that he should NOT have removed the mass, but that should have been done immediately by a surgeon (which he is not) during a resection. I've put my life in God's hands and continuing to have more tests done. I'm scheduled for another PET next week. Thanks for listening. I'm going to go buy the calendar now. What a wonderful idea to do that! God bless you all. JJ Smith

From: Laurie Ann Kondylis
Email: pdklaw@adelphia.net
Date: Wednesday, February 09, 2005
Time: 03:29:35 PM -0500

Comments

Molly,

I was researching the Colossal Colon and found your site. Thank you for all your efforts. It inspiring reading your story and all the information that your website has provided. This topic needs so much more attention. That's why I found it important to get the word out in our community.

Thanks again. Keep up the good work.

Laurie

From: Mary Morris
Email: marydmorris@comcast.net
Date: Wednesday, February 09, 2005
Time: 12:36:16 PM -0500

Comments

Dear Molly, Thank you for the work you are doing. I am 35 years old and was diagnosed last September with Stage 4 colon cancer. I am in chemotherapy right now and am feeling pretty good. My surgeon at Vanderbilt University told me of your work. This is certainly a topic that deserves attention and I appreciate your leadership in educating young people. I will look forward to receiving my calendar!!

From: Nikki
Email: dovepoetess@charter.net
Date: Monday, February 07, 2005
Time: 06:01:41 PM -0500

Comments

Hi, Molly! I've gotten to your site by a search I'm doing for my husband. You see, he had 3 "episodes" of blood on/in his stool last week. He had me come into the room to see the last two times. It colored the entire bowl dark red. He saw the doctor and they decided to go ahead and schedule a colonoscopy for this week. The doctor said that even if he did find something with a digital rectal exam, he would have ordered a colonoscopy anyway to explore. So I'm trying to find out more information on what this could be, and praying it isn't cancer. Thanks for the site as I'm learning so much! Nikki

From: Alfred Chan
Email: chan_al@yahoo.com
Date: Monday, February 07, 2005
Time: 03:50:19 PM -0500

Comments

Hi Everyone,

I am glad that I found this website that gave me a lot of support regarding my father's cancer situation. He just recently went through a surgery of his rectal cancer, the doctor told us that the cancer had just spread to his liver. We are so worry here and he will get the chemoptherapy next week and see how it goes. I am worry that I will lose him and I hope someone can give me some support to go through this. He is at Stage IV to me believe and he is physically very strong and I hope he can share many more years of life with his grand kids with me and my family.

Thanks for any input.

Alfred

From:
Email: patrick69@hotmail.com
Date: Monday, February 07, 2005
Time: 03:32:21 AM -0500

Comments

Hi! Just wanted to update my email address...

From: Alona Ratinho
Email: alona.ratinho@aol.com
Date: Sunday, February 06, 2005
Time: 05:07:38 AM -0500

Comments

Hi Molly,

Thank you for having this informational colon cancer website. In Christmas of 2001, my mom was complaining of having severe abdominal pains and she found blood on her stools. In addition, she was also having constipation problems. She was seen by a doctor and made a diagnosis that she had ulcer. However, the symptoms continue to persist such as continuous bowel movement problems and abdominal pains for the past years. In the year 2003, she was finally given the colonoscopy test and the doctor made the diagnosis that she is at the terminal stage of colon cancer and it has metastatized to her liver. She had undergone about 3 surgeries to remove the cancer cells in 2003 and 2004 as well as undergoing chemotheraphy but they are not able to remove everything because of the severity. September of 2004 she had to be hospitalized because her kidneys shut down on her and the last chemotheraphy she undergone that week had a very bad reaction towards her that she did not want to eat or drink at all. She was bedridden from September through November of 2004. As of now, she looks and feels better. However, she missed her chemotheraphy for the past 5 months (September 2004 - January 2005). I went with her to see her Oncologist on February 4, 2005 and her oncologist was not very passionate at all because she wanted to undergo another catscan to see if her cancer has improved or not and he just made a comment that her cancer has gotten worst because she lost a lot of weight (40 pounds in a matter of 4 months) and she is experiencing major edema on her legs. Maybe you can give me a suggestion if she needs to change her oncologist because he is not giving her any hope at all but just giving her the message that she is at a dead end. My mom is only 58 and I still want her to see my 2 girls grow up and to be with her for many many more years. She is going to get another catscan again and I am a very optimistic person and I am hoping her cancer has subsided or yet even gone. I

Thank you for having this website because I feel better knowing that I am not alone in encountering this devastating disease. Please feel free to email me with any suggestions you may have (email address alona.ratinho@aol.com). Thank you bery much.

From: Olive Galley, Registered Nurse
Email: opgalleyrn@sbcglobal.net
Date: Sunday, February 06, 2005
Time: 12:43:25 AM -0500

Comments

I personally want to say "Molly, you are truly an inspiration." I've been a GI nurse for 3 years & had seen patients of different ages get affected by colon CA. I am 35 & I told myself that I will have a Colon Screening done at age 40. What if I already have something growing in my colon? I don't want to wait until age 50 to get screened. I have been emotionally affected by Colon CA when I used to work in a Hospital(GI Dept. I now work in an ambulatory GI Center)where we lost one of our O.R. nurses from colon CA at age 28. When I read your story I thought about her. I admire your courage & I thank you for creating the Colon Club. The colossal colon was in L.A. I believe last year. I planned on going, but for some reason couldn't make it. I just received my new "EndoNurse" magazine & there I learned all about this famous colossal colon. I hope to meet you one day. We have a wonderful GI Staff & group of doctors. We are in the L.A. area. I would love to hear from you & share your story with my co-workers. God Bless you & Hannah. So sad about Amanda's story. Amanda is my favorite name(it's my daughter's name). Last year the "Lifetime television for women" taped at our facility for the colon cancer awareness month. I believe it was aired in June of last year. Katie Couric was supposed to come to our Endoscopy Center also, but that didn't happen for some reason. She had popularized colon cancer screening as far as I'm concerned. You are absolutely right. It can affect any ages or any nationality. Keep up your good spirits & all your hard work. I thank you. Olive Galley, GI nurse

From: Jiller-Diller Stangel
Email: jm.stangel@hosp.wisc.edu
Date: Saturday, February 05, 2005
Time: 06:44:12 PM -0500

Comments

MOLLY!!!!!!!!!!!!!!!!! Oh-my-Gosh, you are coming to Madison, and we will not take no for an answer to you staying with us!!!!!!! I cannot believe you are still hauling that colossal thing around, and I finally get to see it. Finn will bring his hockey stick and give you a good whack in the skates like he does to his coaches. I swear, that cheap defense attitude is inbred...Mark really didn't teach him to do that. No, really. Molly! I am soooooooooooooooooooo excited that you are coming to Madison. Will you stay with us? Pico and Toli would love it, Mark and Finn too. We live on the West side of town, we just moved but we have a killer basement suite that you can stay in, and whoever else you are travelling with, and we will show you Madison, and feed you and catch up. I work at the University of WIsconsin Hospital, as a HUC on the peds 6+ and hem/onc unit. I have the 27th and the 28th OFF. I work during the week, T,W, R 1-7:30, and like I said I have the weekend of the 27th off, and I just cannot wait to see you. I just told my whole unit of nurses about you, and I will definitely be bringing all of my family, and as many friends as I can. Be in touch, I look forward to seeing you soon, Jill

From: Julia
Email:
Date: Thursday, February 03, 2005
Time: 07:54:58 PM -0500

Comments

Molly, Just looked more carefully at your home page and saw how to order the calendar. Thanks

From: Julia
Email: dejastrain@comcast.net
Date: Thursday, February 03, 2005
Time: 07:51:58 PM -0500

Comments

Thanks for your article in a recent Endo Nurse magazine!!! It motivated me to almost demand that all of our staff over the age of 50 get a colonoscopy in the near future. Since I am also the employee health nurse I felt I had addition ground. Today two of them made their appointments. We do about 50 colonoscopies at our outpatient facility every week in Pueblo CO. Yesterday we saw two colon cancers out of 8 cases we did. In the article in the magazine it said some thing about a calender that could be ordered. All of us in the endo suite would like to hang it on our wall for patients and staff to see. I didn't see how to do that on you site. Thanks for your story and keep up the great work and we in the field will try to do the same.

From: Jane Koelsch
Email: Rhkoelsch@comcast.net
Date: Thursday, February 03, 2005
Time: 07:03:59 PM -0500

Comments

Molly, Your story is so inspiring. I was diagnosed with Stage III Colorectal Cancer on 9/3/98. I had surgery as well as Chemo and Radiation. I was 55 at the time and had been scoped at 47 with no polyps. I have been scoped many times since and so far they have never found a polyp...only the cancerous one! Like you, I encourage all of my family and friends to get the colonoscopy! May God bless you for your dedication to this worthy cause.

From: Eleanor Every
Email: eleanorevery@charter.net
Date: Wednesday, February 02, 2005
Time: 09:48:35 PM -0500

Comments

I need to find information on what kind of food to make for someone who has had his gullblader removed. When I do the research they keep sending me to you. Hope you can help me. The person the food is for is 66 years old.

From: Maria serrano
Email: marias@ hispanichealth. com
Date: Wednesday, February 02, 2005
Time: 04:47:46 PM -0500

Comments

Hi, molly. i was diagnosed with colon cancer ,2/26/03. stage 3, I have surgery and chemo, for 7 month.I know is horrible but at the long run. it was very helpfull to me. now is going to be 2 years, and I am doing great. now I am working full time. eating good and healthy, and do plenty exercise. keep praying to god, and he will answerd your prayers. and you and the family give her all the support she needs. everything is going to be fine. god bless you and your mom.

From: Gene
Email: ebeard@dhs.gov
Date: Wednesday, February 02, 2005
Time: 12:00:23 PM -0500

Comments

Hello, I emailed everyone back on September 30, 2004. It has been and still continues to be a VERY ROCKY road. My Mom was diagnosed with colon cancer and the cancer has gone to her liver... she is at stage four. I emailed all of you and why or how I found you, only the Lord can answer that. I recieved a response, and I am certain the Lord sent me an Angel to help and comfort me. She is the most remarkable person I have every exchanged emails with or known in my life. She has brought me back from Rock Bottom. All Angels are remarkable, but this Angel has large wings and a true Heart of Gold. Her name is MARY, the Lord sent her to comfort me and bring me back from the bottom over my Moms illness. By her being a wonderful person she has allowed me to pass on strength to my siblings. My Mom goes today for her blood work and scans...we will know the rest of the story on Monday the 7th. PLEASE keep our Mother in your prayers...her name is Lillian or "BITS". Thank You, and thank you my Angel (MARY) Gene

From: Sherri Elward
Email: Sherri@Southsidesupply.com
Date: Tuesday, February 01, 2005
Time: 03:58:44 PM -0500

Comments

I just had colon surgery on January 18, 2005. I'm a very lucky person because my mass came back beneign. I had 2 1/2 feet of my colon taken out and am now recovering from surgery.

A friend of mine was flying back from a business trip and Molly McMaster over heard his conversation about his father having colon cancer. She then told them about herself and gave my friend the colondar calendar. He gave me the calendar and I was amased at the young ages of the girls on the calendar.

I ordered five calendars today and will be ordering many more as I feel it is so important to spread the word about the desease.

Sincerely, Sherri Elward

From: Israel
Email: josepacheco2@cs.com
Date: Tuesday, February 01, 2005
Time: 10:19:11 AM -0500

Comments

Hi everybody! I want to share a history: In 1995 I was told by my doctor that I had colon cancer. Can you imagine the feeling? Iam a inmigrant and I was livig alone because my family was in other country, and I didn't speak english, but I understood almost the doctor was saying. I remember it like it was yesterday, a gentleman overhear when the doctor was telling, and when I left the doctor's office, the gentleman said to me: Iam sorry, I hear what the doctor said to you, but dont worry! God is with you! do you want to pray with me? He was a priest! In my poor english I told him that I didn't speak english. When I was in the hospital I had another problem, nobody could speak spanish. Can you imagine? My family far away, no friends. It was very hard, but thanks to God I am alive, He gave me a second opportunity. Now I am working full time, with no limitations. Thank you for read this.

From: Terry Miller
Email: tlmiller@ravenna.portage.k12.oh.us
Date: Monday, January 31, 2005
Time: 03:19:43 PM -0500

Comments

Important Notice: February is here tomorrow.....Molly's up on the Colondar! Good health to all, Terry

From: ranse jenkins
Email: auniqueservice@bellsouth.net
Date: Sunday, January 30, 2005
Time: 12:11:41 PM -0500

Comments

i have been having problems with my colon or something! i am 43 yrs old.after reading your story i made a doctors apt feb 7th 2005.

From: chaz gargano
Email: fdny23kid@yahoo.com
Date: Saturday, January 29, 2005
Time: 04:36:08 PM -0500

Comments

I just found out that my mom has colan cancer, and that she is going to start radiatin and kemo on valentines day. if there is someone out there that is willing to talk to me please do. i'm not aware of the changes she will go through or what i can do to help. she's only 54yrs.old. please someone help me deal with this blow

From: Teri
Email: tlh_88@yahoo.com
Date: Friday, January 28, 2005
Time: 09:45:50 PM -0500

Comments

DEAR MOLLY THANKS SO MUCH FOR THIS VERY HELPFUL WEB SITE. MY MOTHER WAS DIAGNOSED WITH STAGE 3 COLON CANCER WITH 1 OUT OF 8 NODES CANCEROUS. SINCE WE FOUND OUT THIS DEVISTATING NEWS IN OCT OF 2004, MY FAMILY IS STILL TRYING TO GET USED TO ALL THE HORRIBLE THINGS THAT GO WITH IT. YOU KNOW THE CHEMO, SEVERE NAUSEA, THINNING HAIR, AND THE FACT THAT THERE IS NOTHING WE CAN DO TO MAKE IT BETTER BUT GIVE HER MORAL SUPPORT. I HATE SEEING MY MOTHER SO WEAK AND TIRED BUT GOD BROUGHT US TO THIS PLACE IN OUR LIFE AND HE WILL GET US THROUGH IT. GOD BLESS EVERYONE GOING THROUGH THE SAME THING IN THERE LIFE.

From: Anne Brady Moore
Email: abmoore@exactsciences.com
Date: Thursday, January 27, 2005
Time: 11:16:42 PM -0500

Comments

Molly- Cant remember if I told you but im now employeed with exact sciences promoting Pre-Gen Plus as an option for those unable and or unwilling to undergo colo. So everyday Im spreading the word of the importance of screening which i know was my calling! if you come to the charlotte area let me know and ill help you with anything you need! please keep me posted on whats going on! everyone loves the colonder. Also if you need me to help you with next years let me know! Anne Brady Moore

From: Angie West
Email: awest8@rscc.cc.tn.us
Date: Thursday, January 27, 2005
Time: 01:57:05 PM -0500

Comments

Hi Molly! My name is Angie West and I am 23 years old. I read your story in the Oak Ridger briefly and then went to your website. Knoxville, TN is hosting your expo on colon cancer. I live only 20 minutes away. Anyways, I was writing to tell you that I too am a colon cancer survivor. Want to hear my story? Here goes.... I was 19 years old, in a community college, and 3 months pregnant. My boyfriend and I were very excited about the baby and couldn't wait until he was born. One hot evening in August I ran to the bathroom to find myself filling the toilet with blood. Immediately going to the ER scared for my child's life; the domino effect started. The ER doc set me an appointment up with a gastroenterologist and assured me that my baby was fine. The next appointment came and I was given a sigmoidoscopy that discovered a polyp the size of a peach. After careful consideration from my OB, the polyp was removed piece by piece and sent off for biopsy. That following Monday I started my normal routine and went off to work. About 3 hours into the day my mom calls me and sounds odd, like she was just told the worst news of her life. All she said to me was, that I should take the day off and that we needed to talk. Well, by that time I had figured everything out and new that I was in trouble. She came and got me. I will never forget that day and how hard that must have been on my mother to tell her pregnant 19 year old daughter that she has colon cancer. Weeks went by with consultations with oncologists,gastroenterologist, obstetricians, and surgeons. A decsion was finally made by ME. I opted to attempt surgery at 6 months pregnant. They were unsuccessful at removing part of the colon, so they stapled me back up and allowed me to finish my pregnancy. I delivered my son on Dec.22 2000. Surgery was then completed 3 weeks after he was born. I still at that point don't know the stage of my cancer. Hoping for good news after surgery, things just got worse. I was told that the cancer had spread into one of four lymph nodes. I was given a 75% chance and started chemo in Feb. 2001. I went through 8 months of chemo and now I am cancer free(Still in remission). I went back to school a couple years ago and will graduate from Radiology School in a few more months. I then want to go back to be a Radiation Therapist so I can work with cancer patients and share with them my story and add a glimmer of HOPE. Thanks again for your dedication to the awareness of colon cancer, especially in young people. I hope my story too gave you goose bumps like your story gave me. I would really enjoy hearing from you, but if not, keep up the good work and I wish you the best of luck on your road to recovery. You are a special person!!!

Sincerely, Angie West

From: Christina
Email: bicer@comcast.net
Date: Thursday, January 27, 2005
Time: 09:54:41 AM -0500

Comments

Dear Molly, I wrote to you nearly 2 years ago now about my 31 year old husband having stage iv colon cancer. I am writing again to let you know that 2 years later he is still doing very well. He has been working full time while having chemotherapy. He has been doing quite well and we hope he continues to. We have 2 young daughters, 5 and 3 years old. Since his diagnosis we have travelled to Europe and back a couple of times, we have bought our first home and we make plans for more trips in the summer. Of course it hasn't been easy, but 2 years ago they gave him a death sentence and here we are doing quite well. I am writing this to give hope to all of you who are getting diagnosed every day with stage iv. Let's hope that in a couple of years I will write again and tell you that my husband is still alive and well. Molly thanks for all that you have done for colon cancer awareness. I am planning to make tshirts reading: GOT COLONOSCOPY? Take care Christina

From: Nancy
Email: gh69nam@yahoo.com
Date: Wednesday, January 26, 2005
Time: 07:20:24 PM -0500

Comments

Hi,

My name is Nancy. I am 41 years old and I will be a colon cancer survivor, or at least it is my intent. I have a family history of the disease (my father passed away from it in 1996 at the age of 72). I began bleeding in early December and by December 14th, the tumor in my colon was removed. They could find no sign of spread, except in 2 out of the 13 lymph nodes they tested. I begin my chemotherapy treatments on 1/28/05 and have been told they will be twice monthly for 6 months. I have stage III colon cancer. I'm glad I found your website as I've felt so alone as a "younger" person being diagnosed. Everyone on my hospital floor was over 65 when I had my surgery.

I intend to beat this and move on. I hate the scars I have, but that's a small price to pay.

Thanks.

Nancy

From: Nancy
Email: gh69nam@yahoo.com
Date: Wednesday, January 26, 2005
Time: 07:19:39 PM -0500

Comments

Hi,

I intend to beat this and move on. I hate the scars I have, but that's a small price to pay.

Thanks.

Nancy

From: DANA BAMER
Email:
Date: Tuesday, January 25, 2005
Time: 05:15:46 PM -0500

Comments

AS AN ENDOSCOPY NURSE, I RECIEVED MY COPY OF ENDONURSE WITH THE ARTICLE ABOUT YOU.THE WORK YOU ARE DOING IS SO VERY IMPORTANT, YOUNG PEOPLE ARE FREQUENTLY TOLD "DON'T WORRY, IT'S NOTHING, YOU ARE TO YOUNG" THE IMPORTANCE OF PRACTIONERS FOLLOWING THROUGH ON COMPLAINTS SUCH AS YOURS IS UNTOLD. EDUCATION OF THE POPULATION TO INSIST ON FOLLOW UP FOR THOSE SEEMINGLY MINOR SYMPTOMS WILL SAVE UNTOLD LIVES. KEEP UP THE GOOD WORK AND KNOW, NOT ALL HEALTH CARE PROFFESSIONALS TAKE ANY OF THE SYMPTOMS THAT YOU COMPLAINED OF LIGHTLY.BLESS YOU.

From: Dan Paradis
Email: Paradis_daniel@emc.com
Date: Monday, January 24, 2005
Time: 02:03:54 PM -0500

Comments

Hi Molly, Linda Savage (Miss April on this year's Colondar) is a dancing aquaintance of mine. I haven't seen her in a few weeks and I don't have her phone number or email, but maybe you could forward the attachment below to her. This comes from one of the clubs where she dances and is from Jo Ellen: (thanks Dan)

www.longfellowclubs.com Saturday, January 29th: Cynthia Shanahan has organized a special WCS event in honor of those we all know whose lives have been affected by cancer: The "Dance with Heart" Fundraiser for Cancer Research will be held at Supershag in Waltham (this event was inspired, in part, by Spring Leonard, a beloved member of the WCS community who passed away last year after an unsuccessful fight with cancer). Jennifer Lyons will teach at 8:15 p.m., Missy Harvey will DJ until midnight. Complimentary buffet, beer & wine, raffle, dance demos, and more. Admission $12 (all proceeds go to American Cancer Society.) Cynthia has worked tirelessly for months to arrange donations of time and services...Come join her for a great party and worthy cause (and to help her celebrate her birthday too!!) More details and RSVP online at: http://www.evite.com/pages/invite/viewInvite.jsp?event=WCCZDYCKJWYMPCSQBZHA.

Please let me know if you forwarded this to her. Thanks again - Dan

From:
Email: ferrarisoon@yahoo.com
Date: Sunday, January 23, 2005
Time: 02:04:50 AM -0500

Comments

My cousin was diagnosed with colon cancer. He is my age, in his 30's. The irony is I am a physician and never saw a case of colon CA at his age. I diagnosed a guy with small intestinal cancer (very rare) in his late 30's. I did a google search on it and your site was the first that popped up. Just lookin for stats on colon CA in young people. Read your story. Best of luck to you!!!

From: Danny
Email: dlwright@usadatanet.net
Date: Saturday, January 22, 2005
Time: 02:36:00 PM -0500

Comments

Wow Molly a very nice web site.I'm also a Colorectal survivor since 2001.Saw you're colondar at the Hospital i Vol one day a week. Keep up the good work and keep on skating. Danny

From: Julia
Email: juxap@yahoo.com
Date: Thursday, January 20, 2005
Time: 04:25:28 AM -0500

Comments

hi everybody!!! this is an extremely good web-site oes a lot of encouragement and a boost to determination to live...my sister has been diagnosed with ulcerative colitis so i stumbled onto this web-site with a lot of questions in mined..can it become cancerous????i am so concerned anbody with any answers pls inform me..thanx in advance!!!!

From: Eileen
Email: e@optionline.net
Date: Wednesday, January 19, 2005
Time: 05:18:51 PM -0500

Comments

I am a 38 year woman StageIV colon cancer. I had not been feeling well for over 2 years. It is such a long story let's just say several Doctor appt with each and every Doctor dismissing me saying It was in my head and I was stressed out etc.. I landed in the hospital in February of 2004 and had to have a blood transfusion because I was anemic after that I started to take Iron and continued seeing several Doctors because I still did not feel well. I even had a cat-scan done in June which the radiologist and my Doctor read they said it was fine. They all said I just needed Iron. But I knew something was wrong I decided to get a colonoscopy done after doing some research on the web and finding this web site, by the time I got an appt etc it was know December. December 6th is the day that changed my life. They did the colonoscopy and found a large tumor Cancer. I decided to go to New York To Sloan Kettering. I was not messing around with any of these Doctors out here I wanted to go to the best. Well I had surgery done on January 5 to remove the tumor (8 inches!) and 6 ft of my intestence. There are 4 spots on my liver which they believe to be cancer tumors. I am going to start Chemo in a few weeks with the hopes of shrinking them then back for a liver resection at Sloan Kettering. The Doctors feel hopeful. This web site is helpful with a lot of couragous stories, but I am reaching out to see if there are any more people with Stage IV that spread to the liver that can e-mail me to let me know there progress. I am in a good state of mine and staying positive to beat this. I only wish it was even a Stage 3! Also to let you all know you need to be a pioneer in your own healthcare if only 1 Doctor had taken me seriously it might not have gotten this far. God Bless you all and I will keep you in my prayers.

From: Laura
Email: lpfletcher@comcast.net
Date: Monday, January 17, 2005
Time: 06:19:18 PM -0500

Comments

Thanks for this site. It's a huge comfort to me since I just had emergency surgery to remove a tumor in my colon. Thank God for a doctor who listened to my minor complaint of slight cramping at an annual checkup. I have stage 3 colon cancer at 28 years old. Chemo starts in three weeks and I am overwhelmed and terrified. This site makes me feel somewhat normal again...knowing I'm not the only one. My life has turned upside-down in just two short weeks.

From: Linda
Email: no2dog@sbcglobal.net
Date: Saturday, January 15, 2005
Time: 10:56:34 PM -0500

Comments

I just had a colonoscopy to see if all is alright in there. I am 59 years old with a family with colon cancer history. 10 polyps were removed and were not cancerous but were the kind that do turn. I am encouraging everyone to have it done. I have to do it again in three years but am so glad that I did have it checked as I have new peace of mind and may have prevented horrible things just by having a simple proceedure that I slept through with no pain. You site is much needed. I like the huge colon replica. It should go everywhere. Linda

From:
Email:
Date: Friday, January 14, 2005
Time: 06:05:40 PM -0500

Comments

I also saw you on the Huell Howser show on PBS here in Southern California. The Colossal Colon is a great idea, especially if you can educate children and adults on the dangers of the US hamburger, high fat diet. May I also add that I think to use this site to send in e-mail addresses for Russian mail order brides and porn is dispicable! What is wrong with these writers, anyway?? Best of luck to all those who are fighting colon cancer.

From:
Email: hj8ktgb3@mail.com
Date: Friday, January 14, 2005
Time: 01:16:00 PM -0500

Comments

I just want to say THANKS to all people in this community. You really help me.

From:
Email: n72@yandex.ru
Date: Friday, January 14, 2005
Time: 09:49:51 AM -0500

Comments

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From:
Email: generic_cialis@Gmail.com
Date: Friday, January 14, 2005
Time: 09:49:33 AM -0500

Comments

You've created a very good site, I found something really interesting

From:
Email: lotos@hotmail.com
Date: Friday, January 14, 2005
Time: 02:53:54 AM -0500

Comments

Thank you for this site! :)

From: Sara Zouras
Email:
Date: Thursday, January 13, 2005
Time: 04:08:44 PM -0500

Comments

Just wanted to let you know what a wonderful thing you have done. Sara Hatcher is someone I've known since I was born. Our parents were best of high school friends and our families have gotten together almost every summer since then. Even though we live in Maryland, and them in Tennessee, Sara is someone I have always felt close to. The news of her cancer had our whole family so upset. My Dad, Sara's Godfather, read the article in the paper about the Colossal Colon and sent her the article right away. I guess shortly after is when Sara got in contact with you all. Thanks to all your hard work and dedication, Sara got to make something positive out of something so negative. Keep up the fight..Great job to you all. Thanks again. Sara Zouras

From: Casandra Downey
Email: Casandra229@msn.com
Date: Wednesday, January 12, 2005
Time: 06:06:45 PM -0500

Comments

What a fabulous website!!! I stumbled upon it while doing research for an upcoming Healthly Lifestyles Series that our hospital is sponsoring. I am a RN working in our Endoscopy department. We are setting up a booth on colon cancer awareness. I ordered a copy of your Colondar to have at our booth.....ubt it has been so popular here in our department, that I will be ordering a brand new one (or more) for our booth since mine is well worn at this point. My heart goes out to each of you gals that posed for the colondar....you are an inspiration to many. Thank you for sharing your success stories and founding the Colon Club to help educate the public about colorectal cancer.

From: sally yandell
Email: sally123@cox-internet.com
Date: Wednesday, January 12, 2005
Time: 03:22:19 PM -0500

Comments

Hi, I am Sally Yandell. In October 2000, I was found to have stage 4, colon cancer. I am still alive today, doing great 4 yars and 4 months down the road. I took the standard treatment for 26 weeks which was at that time 5 FU. I had three operations because it has gone all through the pelvis. Today, I have stage 4, my cea is almost 40, and the latest pet scan showed it in the liver, lungs, chest wall, subclavain(ms) and lymph system. I am taking herbs, look great, haven't lost any weight, and feel fine. I believe that prayer is the reason I have lasted this long. God does things that medical people cannot do. Miracles do happen, I am one of them. I have been treated at Mayo Clinic, M.D.Anderson, UMAS, Little Rock, Arkansas and also in Dallas. As long as there is God, faith and belief, you can keep beating this horrible cancer. Don't ever give up.

From: Monica McIntyre
Email: Rotorqueen@earthlink.net
Date: Wednesday, January 12, 2005
Time: 02:28:04 PM -0500

Comments

I saw the Colossal Colon on Huell Howsers show lastnight and wished I could've seen it from the beginning of the show instead of the middle..What a great idea !! But from what imformation I got I know I want to see it when the exhibit comes to Los Angeles again in 2005.

From: Karen Banse
Email: karwil4sc@aol.com
Date: Wednesday, January 12, 2005
Time: 01:55:42 PM -0500

Comments

Hi Molly: We saw your story with Huell Howser last night and therefore learned of your website. "Molly's Story" sure sounds familiar to us as my husband was diagnosed with colorectal cancer in January, 2004, and we have been fighting it ever since with chemotherapy. I invite you to visit our website www.gowill.net to read "Our Story" and view the updates, guestbook signings, and photos we have posted. The GO WILL! button is really working!

Look forward to hearing from you.

From: Michelle Thompson
Email: smthompson2@comcast.net
Date: Wednesday, January 12, 2005
Time: 12:40:21 PM -0500

Comments

I love your site and the calendar is awesome! I am a 36 year old mother of 3 young children (set of 5 yr. twin boys and an amazing 11 yr. old boy) and as of this week, I am finished with 8 months worth of chemotherapy and radiation to treat Stage III rectal cancer. I was diagosed in April 2004. I'm anxious to start living "normal" again and am very interested in "spreading the word" on colorectal disease. I live in Colorado.

Thanks for your dedication. Michelle

From: Jane
Email: jane03801@yahoo.com
Date: Wednesday, January 12, 2005
Time: 09:15:38 AM -0500

Comments

Molly

My son, Michael(21)was about to start his senior year in collge when he was diagnosed with CC Aug 2004. He had surgery and is now in the middle of chemotherapy. We learned after he was diagnosed that his grandmother had CC at age 28. We assume that this is HNPCC. My young daughter(13) will also need to be tested. I am looking for other families with HNPCC, support, and medical information. We live in NH.

Thanks, Jane

From: Michelle
Email: michellec324@yahoo.com
Date: Wednesday, January 12, 2005
Time: 05:05:05 AM -0500

Comments

Hey Molly! :~)

I found your website through watching hugh howser and I just wanted to take the time to applaud you for having such an amazing idea and for what you are doing for colon cancer awareness (in a crazy & interesting fun way!!) It just touched me with how you are so driven in educating others and providing valuable information & stressing the importance of having their colons checked at an early age as possible which can lead to many lives saved through awareness and early detection. It's such a delight to have someone like you who truly have such a beautiful caring heart and uses it genuinely to connect and teach others about this highly preventable disease. You definitely inspired me to get my colons checked and I will also talk to my family to get theirs checked as well. Your uplifting story is inspiring and may you continue your wonderful mission! May the Lord continue to bless you and your family with great health & wonderful life. Take care. :-) May God Bless You!

Michelle

From: Al Takii
Email: altakii@aol.com
Date: Wednesday, January 12, 2005
Time: 04:13:11 AM -0500

Comments

Molly,

Saw your show with Hugh Howser in Los Angeles, CA. I am wondering where your exhibit is now and is it coming to the Southern California area in the near future.

Thanks, Al Takii

From: pete
Email: secret1128@msn.com
Date: Wednesday, January 12, 2005
Time: 04:03:56 AM -0500

Comments

hello there. my name is pete and i found about this site by watching on the road with huell howser. i noticed he visited you in los angeles. i live in oxnard just about 1 1/2 away. sorry i didnt make it.i found your site and the entire segment on tv was absolutely educational and funny as it seems i was actually eating doritos and i stopped because i felt why was i eating this food when i should get checked out. well im 31 yrs old and my insurance does cover it. i was screened and luckily i did not have any problems. i just wanted to thank you for touching me by all the info and i think you and your staff are doing a fantastic job on tour to educate people who should be aware, thank you was again. your fan and pal pete

From:
Email:
Date: Tuesday, January 11, 2005
Time: 09:57:18 PM -0500

Comments

I saw you with Hugh Howser tonight and decided to look up your web site address. Thank-you for being such an inspiration!

From: Julie_Marie
Email: briseboisj@hotmail.com
Date: Tuesday, January 11, 2005
Time: 02:47:20 PM -0500

Comments

My dad met with the oncologist this a.m. and my mom said the doctor told him that it's not that there is cancer anywhere that we are continuing the chemo it is that there may still be cell alive really to multiply. My das is colom cancer stage 3, 11 out of 19 lymph nodes involded (permanent colostomy, March 2004) What does the doctor mean when he says "there is not cancer" when 11 out of 19 lymph nodes are affected and his overall chance for cure was 20 -30%. I am just a little confused. If anyone ever got news like this or can clarify this a bit for me, it would be appreciated. Do you know of anyone that's cancer spread while they were doing chemo? (just curious).

Thanks so much for taking the time to respond. Julie Brisebois Ottawa, Canada

From: Marcia Walston
Email: ftamkw@yahoo.com
Date: Tuesday, January 11, 2005
Time: 12:35:40 PM -0500

Comments

I was diagnosed with GIST CD117+ in November. I was involved in a motorcycle accident in July and if it weren't for that accident I would not have known that I had cancer. God moves in mysterious ways. It sure has struck me that since learning of my disease that I can hear the word cancer 400 feet away (and believe me I have a hearing problem). I want to know as much as what I can find out about this disease. I have also found that my compassion for people in general has been heightened. Thanks for all your good work.

From: Lisa Fortin
Email: Lisa410@comcast.net
Date: Saturday, January 08, 2005
Time: 08:53:38 AM -0500

Comments

Hi- I thought I'd check out your site after seeing my surgeon yesterday. He showed me your calander. Fabulous!! I was diagnosed with stage three rectal cancer at 41. I'll be 45 in a month. You women all looked beautiful , and boy, do those scars look familiar!! I live in Nashua, NH, and if you know of any organizations in this area to volunteer to help patients get through treatment and just deal with diagnosis, I'd love to know . I did really well through chemo and radiation, and I'd love to lend support to anyone going through this. I'm a dental hygienist, and I tell all my adult patients what I went through, and the importance of screening. We all know that no one wants to talk about their colon!! Congratulations on the calander, it's wonderful.

From: Jim
Email: JimMendolera123@aol.com
Date: Sunday, January 02, 2005
Time: 07:19:58 PM -0500

Comments

These comments and ideas from your message givers are great...I had colon cancer removed in March with temporary ostomy...ostomy reversed in September...having trouble with regularity...anyone else having similar problems? Any ideas for helping with this? Can anyone help? I am doing well otherwise and have a very positive attitude...no chemo ... no radiation...

From: Mary Botz
Email: jmbotz@hotmail.com
Date: Saturday, January 01, 2005
Time: 06:59:36 PM -0500

Comments

Just an update...my dad's scans are CLEAR! His doctor ordered the Pet scan b/c they got a new machine which apparently combines the CT and the Pet together and wanted to use it as a baseline! This is great news, and I want to thank everyone who took the time to shoot me a note with their thoughts. The people I have met through this site are probably the most courageous people I have ever known! God bless!

Mary

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