Rolling To Recovery - A Colon Cancer Survivor Story

I want to thank everyone who has signed into the guestbook over the past 5 years! I couldn't be more thrilled that it has become a place for survivors to post their stories, newly diagnosed patients to find hope, friends and family to ask questions, and so much more. Most importantly, the guestbook has become a place for people to connect and share their stories, and for that reason we have decided to turn it into a message board! Please feel free to read, share your thoughts, your stories and connect with others!

Thank you so much for making this community.

Click here to post a message to the new and improved message board.

Click on the year to read comments: 2005, 2004, 2003, 2002, 2001, 2000.

From: Brenda Durant
Email: Durant_B@msn.com
Date: Wed, August 31, 2005
Time: 00:47:07 AM (EST)

Comments

I don't want to frighten anyone; but, it is good to be aware of side affects. I read an article "Liver Toxicity Masquerading As Recurrent Colon Cancer". The article siad that Oxaliplatin caused a toxic condition that made lesions appear in the liver. Doctors assumed cancer, yet after otopsy found no cancer, only toxicity. Another article said a trial showed 76% treated with Oxaliplatin were found to have liver toxicity. I am very concerned. I have heard of people saying the treatment stopped working, they got worst and were even hospitalized. I now wonder about the drug. Another report that I read said the drug was another fast to market and had very small benefits over the older treatment, but did have much worst side affects. If I had had no liver lesions before Oxaliplatin, then got them, I would ask the doctor to make sure it was not as described in the article.

From: Angie Cordi
Email:
Date: Tue, August 30, 2005
Time: 09:13:02 PM (EST)

Comments

Sorry if my comments are very short but accidently i pushed the button on the computer, I just want to say be strong and have faith,and never give up fighting.Life is wounderful specially when is the second time around today I cherish every moment I look forward for a long life with my daughter and family. ALWAYS THINK A BEAUTIFUL LIFE IS BE STRONG AND HAPPY TO WOUNDERFUL CONCEPT STRONG AND HAPPY

From: Angie Cordi
Email:
Date: Tue, August 30, 2005
Time: 09:01:04 PM (EST)

Comments

I am a Stage colon cancer survivor just recent finish chemo,I had a very though ride

From: Andrea
Email:
Date: Mon, August 29, 2005
Time: 11:35:43 PM (EST)

Comments

I am a Stage IV colon cancer survivor. I am on my third oncologist and treatment center. I can not stress enough to educate yourself as much as you can about the disease. At some time or another you are going to have to be your own advocate in making sure you are getting the absolute best treatment. Just because someone tells you a certain Dr is good, make assumptions only after you've met with them and had a chance to start a treatment plan. Some Drs. will treat the cancer more aggressively than other Drs. Some Drs have so many patients they never look at anything beyond the standard treatments. Don't let statistics discourage either. EVERYONE is different and responds different. There are several options available now to colon cancer patients. Just as important as the medicine side of getting well is keeping your spirit well, stress levels down, and staying positive. It takes an adjustment period when cancer comes in your life. It has taken me a year to adjust but I am still kicking and screaming. I won't go out without a fight.
God Bless you and your family,
Andrea

From: cassi lighty
Email: c_lighty12@comcast.net
Date: Mon, August 29, 2005
Time: 09:57:25 PM (EST)

Comments

hello-
i lost my father seven years ago and now my mother has been going through so much pain. before i begin, these stories have touched my heart and god bless you all. my mother is 51 and she has been getting test done on her liver, the first test showed that she had cancer and the second said her liver was fine. i don't know what to think about all that. she is getting a colonoscpy on sept 8th to see if she has colon cancer. can you begin to explain the effects? i am scared for her life. she is my only parent. she as had dark black looking stool for a long time and doctors said she was fine. she is swollen in the stomach area and feels twisted. alot of pain in her stomach, i could go on and on about her syptoms. i think that there is more than that involved but i saw this website and i see what you all have been through and experienced and i was hopeing for some advice on colon cancer so i can help others as you are now. thank you all so much for your time and god bless you all and my heart goes out to you.....cassi

From: Deborah
Email: Dallexus@aol.com
Date: Mon, August 29, 2005
Time: 04:03:18 PM (EST)

Comments

My husband was diagnosed with Stage III colon cancer, had a bowel resection at the end of June and has not regained his appetite since. He has tried Magace, Marinol and steroids. He has lost 46 lbs. and cannot lose anymore!! Can someone please give me some advice? Also, he has been on 5-FU, camptosar and Avastin and today we found out that the cancer has reocurred at the sight of his resection. Isn't it unusual to come back this quickly? (2 months)
I am at the end of my rope. Any advice wouold be appreciated

From: Rob
Email: leenrob@msn.com
Date: Mon, August 29, 2005
Time: 03:01:47 PM (EST)

Comments

This is for Blake Behringer, who posted an encouraging message on August 18th. But, I'm also interested in hearing from anyone else who can relate. I placed a post in June that chronicled much of our story.

Mr. Behringer,

I just read the post you put on the Rolling to Recovery website guestbook. It was very inspiring. My wife, Lee, is battling stage IV colon cancer. I would like to ask about your chemotherapy regimen. You listed several drugs all together. Were you on all of them at once? Or, were you on some for a while, and then others?

Lee has been on 5FU, Leucovorin and Olaliplaten in the past. However, the cancer metastasized while on that particular cocktail. She is now on 5FU, Leucovorin, Camptosar and Avastin. We have a scan scheduled for September 20th. We're hoping and praying for shrinkage of the lesions in her liver.

Lee is 41. We have 4 children ages 12, 11, 6 and 4.

I'd appreciate knowing more about your journey.

Sincerely,

Rob Kirkpatrick

From: Dottie Lyons
Email: DotELyons@aol.com
Date: Thu, August 25, 2005
Time: 11:52:29 PM (EST)

Comments

Hi Molly,
Maybe I've been under a rock, but I just heard about you and your colossal colon project. I wish I had heard 3 years ago... but My story is good! I was diagnosed with StageIII colon cancer at 47. With surgery and chemo for 24 treatments I am, as they say,"Healthy as a horse"! Keep up the great message! Thank you, for making kids and grown-ups talk about and learn about Colon cancer!!
Now if we didn't have to have BROWN ribbons.....

Dottie

From: Maryam
Email: msattar1@yahoo.com
Date: Thu, August 25, 2005
Time: 03:52:19 PM (EST)

Comments

Hi, my sister told me about this site. I was diagnosed with Stage II colon cancer last November at age 36 and still here, going strong. I am so glad to hear that I am not alone. My doctors kept telling me i was an 'unusual case'. Anyway I am nearing the one year anniversary mark and am interested in any way I can help,volunteer, etc. in the New York area. Keep up the good work.

From: Peggy
Email: pud@mchsi.com
Date: Wed, August 24, 2005
Time: 03:05:20 PM (EST)

Comments

Hi Bill,
I was a Stage IIIa and went through surgery to remove about 7 inches of Colon then 6 months of Chemo. I had very few side effects, thinning of hair, not much taste after the 6th treatment, numbness of tips of fingers and toes. Colon Cancer is a VERY curable cancer Bill. 85% is a very good number I think. I believe they gave me 90% survival rate with the surgery and complete 6 month Chemo. Write my email if I can help you anymore. Would be glad to share any of my experiences with you.

Peg

From: bill
Email:
Date: Wed, August 24, 2005
Time: 01:52:47 PM (EST)

Comments

Hi Peggy,
My father was not able to complete his Chemo. What is your stage.
My father had a T2 tumor in 1 lymph node. The doctor told him that he as a 15% chance of it coming back even with not having all the chemo. He had a month and a half of chemo and all the radiation treatments. I am trying to move on but i get concerned. I guess 85% chance of survival is pretty good.

From: Peggy
Email: pud@mchsi.com
Date: Wed, August 24, 2005
Time: 11:19:19 AM (EST)

Comments

Hi everyone! I am now halfway through my 4th week off Chemo Therapy and my energy seems to be coming back, I am cooking and cleaning again so feel more like myself. I still have some numbness in my fingers and toes and no appetite yet. I seem to be able to eat and taste more foods but no "full or empty" feeling yet. Can anyone tell me how long it will be before I get the "appetite" back and being full after eating or the hungry feeling? I guess I am just wanting things to be normal RIGHT NOW!!! Smiles...someone just let me know what happened to them in these areas please. I know it is different for each person, but just want some idea. Thanks!!

Peg :-)

From: Trish
Email: yakkerk@yahoo.ca
Date: Mon, August 22, 2005
Time: 09:28:40 AM (EST)

Comments

Molly I just wanted to say your story is a true inspiration to us all..I wanted to mention that.. but I was just so upset finding out my dads news last week I can't sleep, all I think of is that and how I may loose my father.. I haven't told my kids anyting yet .. my daughter is so close to her papa it will be so hard on her as for us all.. once again good luck ..good life and my god bless you... Trish

From: Trish
Email: yakkerk@yahoo.ca
Date: Mon, August 22, 2005
Time: 09:16:16 AM (EST)

Comments

My father was told on Tuesday Aug 16th..2005 that he has blockage in his colon.. they said it was not cancer but I am abit confussed here. to back track abit on his medical history.. ten years ago he had a cardia arrect so they implanted a difibrillator for his heart .. its just like the paddles to restart a heart... on and off he has had good and bad days.. now his problem now.. last november he was in the hospital for what they said was Diverticulitis.. infection of the intestines.. so he was put on iv to help clear that up... but since then he has been sick very often.. tired ,very bad stomach pain,never hungrey complaining of fullness but he hasn't ate.. sick to his stomach, blood in his stool.. the list goes on... but what I can't understand is his doctor said it isn't cancer.. but with my dad being so weak his doctor said he would never withstand any surgery.. And if it was cancer of the colon which I think it is.. he can't have chemo or radiation because of his difibrillator implanted.. so I am loss here.. what can be done for him.. sheesh.. is he to just sit back and let nature take its course .. my mom is a basket case right now.. crying all the time.. His doctor told him to go and enjoy life that there is nothing that really can be done.. is it cancer or not.. don't know.. but I sure would like to find out myself.. and so does my family... what to do.. we were told he will only get worse.... Trish

From: Andrea
Email:
Date: Fri, August 19, 2005
Time: 04:59:31 PM (EST)

Comments

Jo,
I had my colon resected July 2004 at the age of 31. The first few days after surgery weren't too bad because I was heavily medicated. However, when I had to start weaning myself off of the drugs in order to go home it was unpleasant. I had anxiety over all the tubes coming out of my body. I was very weak for a couple of months. The most important thing is to get up and moving in order to regain your strength. I completely lost my appetite also. Your Dr can prescribe something to increase your appetite. I have yet to have my liver resected so I can't help you there. I did have both ovaries and my gallbladder removed the same time as the colon resection. I wish you the best of luck.
LiveStrong,
Andrea

From: Jo
Email: jams67@rmbb.net
Date: Fri, August 19, 2005
Time: 03:56:59 PM (EST)

Comments

I, like many on this website that I have read, had no symtoms. Work out at the gym and really don't eat that badly, smoke, drink very much,etc. Age 60. A simple colonoscopy screening found a small cancerous polyp in the transverse colon. An MRI/CT and PET scan showed cancer on the right side of the liver also. No lymph nodes involved. Stage IV. I am going to have surgery next week to resection the colon and remove the right lobe of my liver with chemo after and would like to know about how long it takes to recuperate and what the steps are. I don't expect miracles, but no one seems to address what the baby steps are for after surgery. Will they get me up at the hospital on day 3, 4, ect. and what kind of help will I need at home for the first 1, 2, 3 weeks? I hate going into the unknown. Thanks for your help.

From: Adam
Email: nymfan01@aol.com
Date: Thu, August 18, 2005
Time: 05:26:34 PM (EST)

Comments

Hi Molly. My Name is Adam from Long Island NY. I am 35 year old male. Just yesterday, I was diagnosed with COlon Cancer. My dr. advised me that this a treatible, fixable thing. At first I felt like a Deer caught in headlights. It is early in stage I. He did not make a mention of stages, so would guess that it early. I had a sonogram last month and my liver was completely clear of any signs of cancer. He said to me that I have a lot of things in my favor. No family history, I am young, I have a virgin abdomen, I am a little overweight, but not obese. He said I seem to have strong will in my favor. He does not forsee any reason for this to have spread anywhere.
this weekend, I ma going for a CAT scan. today is 8/18/05. I had my colonoscopy on 8/15, consult with surgeon on 8/17 and surgery is 8/29/05. I am scared but I have full confidence in my doctor and strngth in myself to come through this. I have a very good support system both at work and at home. Molly. from some of the comments listed here on this website, is really an uplifting,inspiration lifter.

I look forward to hearing back from you very soon.

-Adam.

Feel free to email directly if you would like to discuss anything further. take care of yourself. and God is with you and me !! :)

From: BLAKE BEHRINGER
Email: POWDERCOAT05@AOL.COM
Date: Thu, August 18, 2005
Time: 03:08:55 PM (EST)

Comments

I WAS DIAGNOSED OCT.2004 WITH COLON CANCER AND IT HAD SPREAD TO MY LIVER W/17 LIASIONS STAGE 4. MT ONCOLOGIST IS DR. KAREL DICKIE AT THE ARLINGTON CANCER CENTER IN ARLINGTON TEXAS. HE IS ONE OF THE MOST BRILLIANT MEN ON THE EARTH. MY CHEM CONSISTED OF 5FU, LECOVORIN, COMPOSTAR, CPT 11, XELODA, OXALIPLATEN, AVASTIN AND ERBITUX. IN THREE ROUNDS OF CHEMO I GAINED A 90% REDUCTION IN THE AMOUNT OF CANCER IN MY LIVER. I MAINTAINED THIS COURSE OF THERAPY FOR THREE MORE MONTHS. ON JULY 19 TH i WENT MEMORIAL SLOAN KETTERING AND HAD DR. YUMAN FONG REMOVE 2/3RDS OF MY LIVER THE CANCEROUS SIDE OF COURSE. I AM NOW 4 WEEKS OUT OF SURGERY AND DOING GREAT REAL SORE OF CORSE, BUT I AM CANCER FREE. I PLAN ON 18 MONTHS OF PREVENTIVE CHEMO JUST MAKE SURE.

From: Andrea
Email: andrea_rocco1973@yahoo.com
Date: Wed, August 17, 2005
Time: 10:12:04 PM (EST)

Comments

Correction: I was diagnosed July 14th, 2004 with Stage IV colon cancer.

From: Andrea
Email: andrea_rocco1973@yahoo.com
Date: Wed, August 17, 2005
Time: 09:40:41 PM (EST)

Comments

Hello Everyone. A while back I posted a message on this website and have been able to connect with other people facing similar challenges as I am. I try to read new postings when I can and hope to eventually create my own web blog. For those of you who don't know me, I am a Stage IV colon cancer Survivor. I was diagnosed July 14th, 2005 shortly after relocating to Hawaii for the Air Force. Since then I have been medically retired and continue to battle this disease. I am sending out a weekly update to keep family and friends posted. If you are a cancer survivor, friend, or caregiver and would like me to add you to my list please e-mail me. If you have specific questions I will answer your e-mail as soon as possible. Here is a summary of my most recent update:
Today I went in for chemotherapy, etc. I've decided to send updates to everyone at one time since I can't remember whom I've told what. My platelets were in the 60 thousand range which is way below the required 100,000 they need to be in order to do chemo. I found a new Dr about a month ago. I am very happy with him and the staff. He is treating the cancer much more aggressively than the previous Dr. He let me make the decision today as to whether or not go ahead with the treatment. I said, "Go For It!". I have made a goal with my Dr to get the tumors small enough in my liver to where they can remove them. My Dr. feels that my platelets are probably low due to my enlarged spleen which is due to my diseased liver and chemo... Blah, blah, blah... Steve (husband) has been giving me daily shots to increase my white blood cell count. For those of you, that are curious I am receiving the following chemo therapies: 5-Flouracil, Leucovorin, and Camptosar. I am also receving a fairly new angiogenesis drug called Avastin. Most recently the new Dr has added a monoclonal antibody drug called Erbitux. This is also a fairly new drug. I have a whole list of side effects from the meds and am taking everything from Immodium A-D (sorry if this is too much information) to Nexium (started today for chemo induced heartburn/acid indigestion). I apologize if you happen to call or e-mail and never get a response. I am trying very hard to rest and win this battle. Please forward this if you'd like. I "blind courtesy copy" everyone for your privacy. I'm off to la la land for a few days.
As Lance Armstrong says, "LIVESTRONG"...
Andrea :0)

From: Patty
Email:
Date: Wed, August 17, 2005
Time: 09:38:30 PM (EST)

Comments

I'm just looking for info

From: Holly
Email: Jhrochell@aol.com
Date: Wed, August 17, 2005
Time: 02:00:16 AM (EST)

Comments

Molly, you INSPIRE me! I am a Stage IV Colon Cancer SURVIVOR without evidence of metastatic disease. I am grateful every minute!

Just Believe...

Holly

From: brittany
Email: bffeeyore@aol.com
Date: Mon, August 15, 2005
Time: 08:27:00 PM (EST)

Comments

hey i have a friend who had a cousin who died of cancer just about 2 months shes crushed well im sorry i cant talk more but i have to go please e-mail me back thank u!

From: Gina
Email: judge442@bellsouth.net
Date: Sun, August 14, 2005
Time: 10:04:54 PM (EST)

Comments

Dear Molly,
I just read your story and am in awe of you. Richard Simmons once said "I had rather be known for overcoming the tragedies in my life than pitied for having them." I try to live by that rule and you clearly have. My daughter who is 22 was diagnosed with irritable bowel syndrome 3 years ago. She continued to have nausea and just had a colonoscopy and the light down the throat also to rule out any other problems. The gastroenterologist said everything was fine but he removed a polyp. It was an adenoma polyp. This is a precancerous polyp. It was 1cm. Now she will have another colonoscopy in 1 year to ensure that no more grow and remove them if they do. I never in a million years thought she would have a precancerous polyp. I even discouraged her from having these tests because I thought it was her nervousness causing her nausea. I thank God that she did not listen to me. They said this polyp did not cause her nausea but that she just has a very sensitive stomach. I also am going to be tested because they said that this type of polyp tends to run in the family. It may be me that she got this from. I have no family history of polyps. I am 42. I am now very enlightened on how common colon cancer is. I thought it was just a disease of the older, but clearly cancer doesn't care who it chooses. Thank you for your wonderful website. You are an inspiration to everyone.

From: Tyler Garr
Email: tiggerleigh833@yahoo.com
Date: Wed, August 10, 2005
Time: 00:23:52 PM (EST)

Comments

I was watching Life and Style and I saw Erika's story and I was amazed that she came through so strong. Cancer has affected my life in numerous ways, including my own diagnosis, and I wanted to say that I think its amazing what ya'll are doing. I am voulenteer counselor at a camp for children with cancer called Camp Fiesta, and i am dedicating my life to making sure there is always somewhere for those kids to go, so as a fellow...I dont know what you would call it...caring person? I wanted to say that what ya'll are doing is great.I have a tattoo of a cancer ribbon on my wrist, dedicated to all the people I know who have and have not come through this disease, and part of that ribbon goes out to ya'll as well.

From: Kersten
Email: kerstenburns@hotmail.com
Date: Wed, August 10, 2005
Time: 10:27:38 AM (EST)

Comments

www.aaronsadventure.com

Aaron was just about to turn 17 when he was diagnosed with stage 4 colon cancer. Now at 18 he is still fighting the fight with great faith that he will be healed. He is one amazing young man.

From: Steve R Lopez
Email: Dangomax@quixnet.net
Date: Wed, August 10, 2005
Time: 10:07:56 AM (EST)

Comments

Dear Friends
I would like to up date you on my wife Nancy's condition. She is now on her 2nd type of chemo. CPT-11 and erbitux. The fol fox 5 treatment only allows for 12 rounds and it had stopped working at about the 11th treatment. The lowest her CAE count got on the fol fox 5 was about 78 and then it started to climb again to over 100. That was good as it started at over 315. With the CPT-11 it is now down to 24 the lowest it has ever been. She rolled throught the fol fox as if it where nothing however the CPT-11 makes her sick for about 1 day sometimes two or three. She must be careful what she eats as that makes can make her more sick. After the CPT-11 treatment she only eats apple sause, bake potato, tost, or white rice for about 1 day. This seams to help and only drinks water or a little tea. I hope her story is a positive one for all you just finding out that you may have cancer. We have been fighting this for almost 1 year and will fight it until we win. I want to say thank you to all of you that have been praying for her after all it is Gods will not ours. Pray is the key and he will lead you in the direction you need to go all, we have to do is listen. Nancy is also taking supplements as Caroline Vanderbilt has said it is what we are doing to our bodies that is causing all these problems. Nancy is on a diet based on her blood type and sees a neutritionist who is a 14 year cancer survivor her-self. We where lead to her by a mutual friend and as it turned out a few common friends. We feel God lead us there as well. She is a wonderful woman who believes in God and that he put everthing we need for our bodies on earth so they could heal them-selves. She believes in helping your body heal it-self through diet and supplements, to help your immune system funtion like it should. If anyone would like to know more about what Nancy is doing or how she is feeling please feel free to E-mail me. I will get back to you as soon as I can. I travel often and it may take a while but I will try to return mail as soon as I can. Thank you all again for your prayers and Thank you Molly for the site. God Bless and take care.
Steve Lopez

From: Caroline Vanderbilt
Email:
Date: Tue, August 09, 2005
Time: 07:01:18 PM (EST)

Comments

I need to correct the spelling of Patrick Quillin, PhD.RD. sorry, I misspelled his name.

From: Caroline Vanderbilt
Email: gabrielmicha@aol.com
Date: Tue, August 09, 2005
Time: 06:58:06 PM (EST)

Comments

Did you all know that Diet and lifestyle are the causes of most of the deaths and disabilities that people suffer in the US today. this is according to Dr. John A. McDougall. By admission of the American Medical Association and the World Health Organization, the US is in the worst epidemic of chronic and degenerative disease that mankind has ever known! Out of 100 industrialized nations in the World, the US is rated #42 in Life Expectance and 82nd in the effective Prevention of disease! According to Patrick Wuillin,PhD., RD, "New estimates say that 90% of all cancer is environmentally caused and hence Preventable! Environmental factors include foods, pollutants, too much sunlight, tobacco, etc. Of these environmental factors, nutrition (diet) is probably the most important."

Based on this knowledge, I am investigating the field of Detoxifiying my body, that is, learning how to get the toxins and pollutants out and absolutely good nutrition in.

According to 380 respected Physicians from all over the world in the Alternative Medicine Definitive Guide there are several methods of Detoxification available. These include fasting, specific diets, colon hydrotherapy, vitamin therapy, chelation therapy and hyperthermia. The two basic fasts are 1. Juice fasting and 2. water fasting....of these two the Juicefasting.org/detoxification.htm states that Juice fasting is the King of Detoxification methods because it nurishes the body, especially with live enzymes which jump start a sluggish immune system and provides nourishment for sustaining the fast. If you can get the proper guidence, perhaps from a Dr. like Evarts Loomis, co-founderof the American Holistic Medical Association and founder of Meadowlark, America's first, but not only, live-in health and growth retreat where they teach you how to Detox your body and how to properly nourish your body, it may be possible to not only prevent Cancer from ever getting a start in your body but to stop it once it has started.

I wish I had know about the role of diet and colas, and colonics and detoxifing my body and all the other Natural means of taking care of myself and my body before I was diagnosed with Renal Cell Carcinoma followed by Breast Cancer. Perhaps then, I could have avoided all the suffering I have been though.

I must tell you tho, that today, because of new and improved diets and no colas, and colonics and detoxifying my body...I am well and happy and no one could ever tell by looking at me today that I ever went through such horrible times.....

I wish you all the best on your journey to health and try to remember that sometimes a devestating illness is simply your body trying to tell you that what you have been putting into it is making it sick and what you have not been eliminating is making you sicker. It is a wakeup call to change your diet and your life=style. My wish for you is that you understand and make the changes necessary to save your life. Before it is too late......

From: Caroline Vanderbilt
Email: gabrielmicha@aol.com
Date: Tue, August 09, 2005
Time: 03:08:01 PM (EST)

Comments

I am a two time Cancer Survivor...I survivied Renal Cell Carcinoma (cancer of the kidney) and breast cancer. I used a combination of surgery and alternative therapy called Colon Hydrotherapy....I suggest that a lot of colon cancers are caused by improper elimination of feces from the colon...please do yourselves a favor and check out Colon Hydrotherapy on the Net....God Bless all....

From: Peggy
Email: pud@mchsi.com
Date: Tue, August 09, 2005
Time: 09:04:37 AM (EST)

Comments

Claudia I am sorry about your sister but have hope and faith. There are many Stage IV cases who are living full and healthy lives.

Another update on myself here. Chemo done and had the Cat Scan yesterday and all tests were Negative!!! PTL They will take my port out next Tues. and I think I can finally start to LIVE again!!! Thank you all for your thoughts and prayers. I couldn't have done this without God and my faith. HE was in complete control and I praise him for all this!!!

Peg

From: Megan Wethington
Email: meg8630@hotmail.com
Date: Sat, August 06, 2005
Time: 11:19:15 PM (EST)

Comments

Hi Molly, Great job with all you have done! I was diagnosed with stage III colon cancer the day before my 25th birthday. I'm 26 now and a 1 year survivor of this disease that turned my world completely upside down! I have 3 more chemo treatments to go. I've completed 9 of 12 treatments and 6 weeks of radiation. Due to complications with chemo it's been a very long road to recovery but I've kept a positive attitude and can now see the end in sight! I had a follow up colonoscopy that was clear and 3 pet/ct scans since 8 inches of my colon was removed that have all been clear. I have a 5 year old son that has helped keep me motivated as well as supportive friends and family.Thanks again for your inspiring story, it's comforting to know that there are other young women out there that are doing well after this disease comes into their lives uninvited. Looking ahead! Megan

From: CLAUDIA
Email: CLAUDIAPIMENTEL29@HOTMIL.COM
Date: Fri, August 05, 2005
Time: 05:07:01 PM (EST)

Comments

HI MOLLY

MY SISTER IN LAW WAS JUST DIAGNOSED 1 MONTH AGO WITH RECURRENT COLON CANCER HAT HAS SPREAD TP LUNGS AND LIVER.

I HAVE BEEN TRYING TO BE THERE FOR HER, IT HAS BEEN VERY HARD TO COPE WITH THIS SITUATION,. THAT LAST THING THE ONCOLOGIST SAID IS THAT SHE IS IN STAGE 4. SHE IS GOING TO GET CHEMO AND RADIATION. I AM VERY SCARED HER PAIN IS GETTING VERY HARD. RIGHT NOW SHE IS IN THE HOSPITAL TO ALIVIATE THE PAIN, CAN YOU HELP .. WHEN CANCER IS AT STAGE 4.
DOES THAT MEAN THATS THE END. I SO SCARED THAT SHE IS CLOSE TO DEATH. PLEASE HELP IO LOVE HER SO DEARY, IT HURTS TO SEE HER THAT WAY. BUT I CANT SEE HER LIVING US THAT LOVE HER SO MUCH

HELP

From: andrea
Email: andrealev@optonline.net
Date: Fri, August 05, 2005
Time: 10:29:10 AM (EST)

Comments

dear molly, my sister sharon is off xeloda. it didnt work and is now on erbitux. we hope this will shrink the lesions on her lungs so they can remove them surgically. the scans also showed spots on her abdomen. is there realistically any hope? please e mail me i would love to know if there are any survivors that have the same thing as sharon. thanks for everything. andrea

From: steve
Email: steve@caramail.com
Date: Fri, August 05, 2005
Time: 06:33:46 AM (EST)

Comments

i love this site!

From: Peggy
Email: pud@mchsi.com
Date: Wed, August 03, 2005
Time: 08:37:51 AM (EST)

Comments

Just an update here. This is my last day on Chemo and the fanny pack will be removed for the last time today at 3:30!!! PTL I go in for the Cat Scan on Monday at 8:30. The doctor was very uplifting. He said since I had nothing showup on the Cat Scan before the Chemo, that it is very unlikly there will be anything there this time. Just praying there won't be anything. If not, they will remove the Port and I will be free again!! The doctor told me he didn't expect me in here for anymore Chemo which is so positive!! I just can't think that he would say anything like that if he weren't pretty sure of things. He said I did extremely well with the Chemo. Thank you all for your support and prayers. You know I am praying for all of you as well and will continue to!! This was the greatest site I have ever found and has helped me so much!! Thank you Molly. I will write you back personally Molly in reply to your emails to me after this week of my last "tired". Hang in there Caroline, we will be praying and thinking of her and you often. Have a POSITIVE outlook and thinking girl. Things can turn around at any time. Thanks everyone again!!

Peg Always smilin!!!!

From: Caroline
Email: cen22824@yahoo.com
Date: Tue, August 02, 2005
Time: 08:20:02 PM (EST)

Comments

Just to update info on my sister Cathy. She started her 3rd round of chemo in the beginning of May. She only had 2 doses of chemo and she was hospitalized. At first her doctor said she was just dehydrated. Finally they did an x-ray and saw something in her small intestines that didn't look right so they did exploratory surgery. She had 13 inches of intestine that had died and ruptured. They removed it and she was sent home. About 4 days later she had chest pains and her husband called 911 because they thought she was having a heart attack. They did another x-ray, saw something again. Did another surgery and found that she had a blockage in her small intestines. They have removed the blockage but she is still extremely ill. Her doctor thinks that all this is due to the radiation that she had in September but she thinks it happened because of the chemo. She has lost 20 lbs since May. She just can't seem to eat anything. Today she was vomiting and had diarreah. I don't know how much longer she can last like this. It is really hard on the whole family. She is raising my younger sister that died of colon cancer children. It's really hard on them because they've already lost one mom to this. Please pray for her recovery.

From: Annmarie Dieterich
Email: anniedieterich@optonline.net
Date: Sun, July 31, 2005
Time: 03:20:22 PM (EST)

Comments

I was so glad to hear of your club My otherwise healthy 37 year old beautiful sister was recently diagnosed (6-16-05) with advanced colon cancer She is the most health consious person I know. Gym 3-4x a week never smoked, drank or ate unhealthly. A member of our family recently gave her a colondar for her birthday I was so impressed. Keep up the good work and if you do a 06 colondar you would want to consider her for a model. Good luck to you my family will pray for all the girls in the colondar.. Annie

From: Sandra
Email: bautista41@hotmail.com
Date: Wed, July 27, 2005
Time: 09:02:20 PM (EST)

Comments

My brother, who was 49 years old, just passed away July 1 with liver mets from colon cancer. He was diagnosed March 2003 and he had 12-15 inches of the colon removed; however, it had spread to his liver with two tumors that were 5 cm each. He tried different kinds of chemo over the past two years and finally the chemo quit working and the the cancer spread more over his liver.

Strangely, my dad was diagnosed with inoperable lung cancer about 1 year after my brother's diagnosis and he passed away last Sept. My brother spoke at my father's funeral, knowing that his very life was perhaps going to end.

I just wanted to let you know that my brother and my father's bout with cancer has changed my life forever. They taught me how to live and how to die. Never give up, but please live in reality.

More work needs to be need with diagnosing colon cancer - age 50 for the screening should be done earlier, perhaps at age 40 years. We did not know of any colon cancer in our family. It shocked us. Dad's cancer came from many years of smoking. Watching my dad lose his weight and be very sick was so painful for me. He was a great dad - he did quit when he got diagnosed. I was so proud of him.

It is never too late to quit smoking. If you have a desire, ask your Higher Power to help you. That is how I quit several years ago and it didn't cost me a penny.

I also want you to know that I am glad that you shared your story - very encouraging. Although my brother is gone, his death will not be in vain. I join you in making others aware of this disease.

Thank you so much for allowing me to share with you my personal experience with the loss of my beloved brother and my most wonderful father.

Sandra Helton
bautista41@hotmail.com

From: andrea
Email: andrealev@optonline.net
Date: Wed, July 27, 2005
Time: 01:40:50 PM (EST)

Comments

dear molly, thank you for emailing my letter to others. my sister was on xeloda to try to shrink the tumors on her lungs so they can surgically remove them. the pet and cat scans showed they didnt shrink and showed new lesions in the abdomen. she is going to take erbitux plus cpt11 now. needless to say we are so devastated . please tell me if there are any survivors with this. i read everything on the internet and it doesnt sound too good now for prognosis. this drug extends a life for maybe 2 months and they call this progress? thank you for listening. andrea

From:
Email:
Date: Wed, July 27, 2005
Time: 00:12:10 AM (EST)

Comments

Wow you are my inspiration. Thank you for this site I look foward to diong more too! I had a polyp removed at 28 and my Dad soon after got, colon cancer which we just found out it is in the liver but I will fight the fight and keep my Daddy around I have hope!

From: Terri L.
Email: TCL1252@aol.com
Date: Wed, July 27, 2005
Time: 00:10:32 AM (EST)

Comments

Hi Molly!!! I just love this website. I was diagnosed with CC February 2004. It was in my cecum, falopian tubes, ovaries, and uterus. We got everything out, but I had to endure chemo (5Fu and LV) for 7 months.I am a teacher and taught full time during chemo.I wasn't easy. Now,I am doing great!!! Thank you God for my friends, family, Molly, and this website.I am now volunteering at the cancer hospital helping patients.I want to give back.I pray for all of you who must go through this incredible diagnosis of cancer along with your families and friends. Be positive and believe!!! Surround yourselves with positive people and energy.Molly, you are truly positive energy for all of us.Thank you!!! Continued good health to you.

From: Antoinette
Email:
Date: Tue, July 26, 2005
Time: 05:20:59 PM (EST)

Comments

I think that you have been thur alot and i no how you feel because my dada had cancer of the jaw bone three years. So just keep your head up and never give up.

From: Ann
Email: alewis@coletaylor.com (or) amwlewis@aol.com
Date: Thu, July 21, 2005
Time: 10:16:31 PM (EST)

Comments

Hi Mollie, and everyone who has entered their comments on this board. My father died of colon cancer in his early 40's, and my sisted died of colon cancer at the age of 28. I'm 34, and I've had 6 colonoscopies, all which I've had polyps, and the more recent one had abnormal cells. My GI specialist told me that I would have to have a colonoscopy every year for the rest of my life. I've even asked him about having my colon removed, which he doesn't agree with. All I think about is cancer, because I am high risk. I think especially about my children, which are 11 and 10. I want to be around for them. They will begin testing at the ages of 18 to be on the safe side. I just need to some support and prayers. Thanks for listening Mollie, and if anyone has experienced anything like this, please e-mail me.

Thanks,

Ann

From: Donna Russell
Email: tiasmaw@yahoo.com
Date: Sun, July 17, 2005
Time: 01:51:06 PM (EST)

Comments

Chris DeVasier is my son and he is a cancer surviver. You made it possible for him to go to New York in June of this year for the Colondar. He had a wonderful time, and we can't wait for the calander to come out!
He has really gone through a rough time but he has always had such a sweet spirit about everything. At times he has kind of burried his head in the sand for a while, but I think that is just his way of coping. He is really having trouble with his blood count. His iron is very low and he is taking IV iron several times a month. His red blood count is just down to almost nothing. The Doctors think maybe his incision is still bleeding so they are thinking they will go in and carterize this area. Have you ever heard of anyone that has taken so long to heal? It has been almost 2 years since the surgery. Thank you again for letting Chris be in the Calander.

From: Robert
Email: senis2815@netzero.com
Date: Sun, July 17, 2005
Time: 10:53:26 AM (EST)

Comments

Hi Moly and everyone visiting this very suppoprtive web-page.

I see a lot of courageous people visiting here. I hate jumping stright to my problems but today particularly I can relate myself to everyone that has been or is surviving colon cancer.

I am 27 y.o. male who is living healthy life. I weight lift and don't use any substances. My family is very healthy people. About a year ago I felt enormous pain in my rectum while lifting weigths. I ignored it because no bleading occured. Today I have the same issue but the entire body hurts I have lost 30 pounds in short period of time and only today I was not able to push out stools. A little success but it was covered with blood. I have pain in my groints and back of the knees, lymphnode areas are hard and there is a slight pain too. Extreme fatigue and low blood pressure. Tomorow is the day that I will find out what is really going on (colonoscopy) . I am very affraid and angered because I have seen 9 different doctors for the past six months mentioning my rectal pain and none of them send me to the specialist. I am angry that time is waisted and although I might sound a little scinical but have a strong feeling that prognosis is going to be not pleasant. I am not paranoyed or anything but it would be nice if there is anyone had similar problems or symptoms. Please share your experience and reasons for every decision you've made for treatments.

If would like to update this message after July 18 and if you can suggest any health board websites that I could relate and ask questions more in depth please write my an email.

Moly an excelent web page, what a great inspiration. Thank you to everyone reading this message. I have never did cancer walk or never donated money to hospitals, because I was too submerged in my problems. This web page has opened my mind and I can see how important and helpfull it is to be part of humanity' strugles. We are all different in everyway possible but we are similar in one - we are all here to live.

From: Robert
Email: senis2815@netzero.com
Date: Sun, July 17, 2005
Time: 10:53:18 AM (EST)

Comments

From:
Email: cugaz2003@yahoo.com
Date: Sat, July 16, 2005
Time: 03:10:50 PM (EST)

Comments

Well i finally got checked and what i was expecting is happening. Im 20 years old and im having my whole colon removed next month.Im based in germany and im flyin to San Diego next month to see a specialist. I hope this doesn;t end my military career but if i get discharge o well. I was told they would reclass me and put me in a nondepolyable slot if they do that they might as well discharge me im not goin to be workin behind a desk im too long for that and that isn't me i love to get dirty and have fun doin it not answering phones or signin papers.

From: Barbara Howell
Email: Barbara.Jackson@us.army.mil
Date: Fri, July 15, 2005
Time: 00:04:00 PM (EST)

Comments

I Molly,
My name is Barbara Howell, I am 36yrs old and was dignosis with colon cancer stage IV in June 2005. I am a soldier in the United States Army, I am married with three children. Your story was so amazing. When the doctors gave me my news it was surprising, but God had already told me that I was heal. I haven't giving up and never will. In the name of Jesus I am healed. I just wanted to let you know that I think your story is so amazing considering you was only twenty three. I think this websit is awesome because you get to talk to people who have or that is going through the same thing. Please pray for me and my family and I will do the same for you.

GOD BLESS
Barbara

From: John Norton
Email: Jnorton22002@yahoo.com
Date: Thu, July 14, 2005
Time: 09:11:09 PM (EST)

Comments

Hi Molly,
You are right, cancer is truly an ugly word. In 2003 I was found to have melanoma, malignant kind. My life stopped right there. Took a long time to recover from the shock. But, with the help of friends from church, my dearest daughter Janon, I have slowly come back to life. It has been almost 2 years now, 2 operations later,and nothing new yet. I can't afford more ct scans as our insurance has stopped due to my wife leaving her job. We, as cancer patients will always be worried. It becomes a way of life. The good news is that if we have faith in Him and Jesus, we learn that our time is only up to Our God. we can take comfort in knowing that when it is our time, we will go to Him. Not before or after our time. We will pass when He wants us. All cancer patients, surviors and fighters need to know this. God bless you Molly. I know He allowed your cancer to be a survior to help others who have fear. To all of you who fear the word cancer, just get a check up if you think you need one. It won't go away just by denying it. God blesses us in ways far beyond our mortal brains can imagine. God heals and saves and blesses us all the time. Do the good fight and He will be there for you Thanks for hearing me John Norton

From:
Email:
Date: Thu, July 14, 2005
Time: 06:14:00 PM (EST)

Comments

This is for the 18 year old male who signed in on May 21st - you HAVE to talk to your parents. The trouble you're having could be any number of things, but the longer you let it go, the worse it's going to be. Please, please, please talk to your parents, go to a doctor and talk to him or her about a colonoscopy.

From: Retha
Email: rrooker@chappellsmith.com
Date: Wed, July 13, 2005
Time: 09:28:25 AM (EST)

Comments

I would just like to express the year i had in 2004... back in dec of 2003 i was just having some pains in lower belly, nothing serious lasted about a few seconds and would go away, the doctors ran test on me and kept thinking it was female items, but i visited with a female specialist and she advised to have my colon check.... I am so glad that I stayed presistant with my doctor...it took over 3 months to find my cancer. I was only 40, I seen a gastro spectialist who did my colonscopy and boom.. there is was I had a large tumor and several polyps, it was stage II Colon Cancer.. it was like my world was crashing in..... I had a two year grandson who I just adored spent all time with him i could...i had my right side of colon removed in March and in April I started Chemo treatments and June 2004 came, I was put back in the hospital for Muiltiple Blood clots in both lungs, due to the cancer they say..i was there for 6 days, during my stay there in Baptist in Nashville, I get a call from my daughter on June 13th that Lagan (my two year grandson) had died during the night.... I was just devastated...I still have a very hard time dealing with everything... My daughter has two more children Kylan (will be 2 this month) and Jayden is 3 months old... she found out a couple days after lagan died she was pregnant.... I have started this year out better, things are looking up been getting great check ups, but as far as life in it self.. I am married been married for 15 years, but my husband trys his best to help me,but there is times I just want to be alone, there is things I want to do, that i never did before... I just cant get him to understand..... I like hanging out with my girlfriends, doing stuff with them, going to a bar (who i know the owner) listening to bands with my girlfriends and he gets upset about that..my husband likes sitting at home never doing nothing.. I am not doing anything wrong.... i just want to live life to the fullest... after being told that I had cancer, my life has changed, i've changed.... please give me some advise.... I dont know what to do! i love him dearly, but he has been making me get mad at him.. help

From: andrea
Email: andrealev@optonline.net
Date: Sun, July 10, 2005
Time: 02:31:41 PM (EST)

Comments

dear molly, my sister has stage iv colon cancer. has had surgery to remove cancer from liver. has had 6 months of chemo. after being off chemo 3 months the cancer returned to both lungs. she is on xeloda now. terrible side effects from this drug. i hope they operate and get the cancer off both lungs. 3 mets on one lung and 2 mets on the other. i am scared to death for her. she is fighting this horror. what is the prognosis for recurrent colon cancer that has come back after being off chemo for just 3 months?

From: hollie
Email: hobo_01_1@hotmail.com
Date: Sat, July 09, 2005
Time: 11:34:38 PM (EST)

Comments

hey molly, i cant say i know what u mean about cancer because i am only 16 and havent had it before. but just a few months back my mum was diagnosed with breast cancer and had to get her right breast completly removed, having to see my mum go through that was soo hard exspecially at my age, she would cry everynight and say she wanted to die and she isnt a women no more, and that literally broke my heart, if i ever ended up with cancer i will always think back and remember your story and how it touch me and make me remember that its not the end dont give up until u have tried and succeded.
thanks molly

your truely
hollie xoxox

From: Judy
Email: bokbok21@MSN.COM
Date: Sat, July 09, 2005
Time: 08:17:14 AM (EST)

Comments

Dear Molly,
God bless you and your efforts to raise colon cancer awareness. I have been operated on hemmoroids in the past. I have been passing blood and back in April developed a painful wound inside the lower colon. I went to the colon cancer specialist that performed my hemmroid surgery and he did a lower scope exam. My colon was in spasm and he could hardly get the scope into my anus, because of the painful discomfort. He prescribed a special blend of medication to relieve the spasm and cortisone cream. He did not reccommend a colonoscopy (he had performed one two years early). He recommend sugery to cut the mussel to relieve the spasm and scrape the wound area which was a fisher, some that it would heal. I felt uncomfortable with cutting the mussel, fear that I may lose control of my bowels. I went to another specialist and he performed a colonoscopy. He did several biopsies (I am still waiting results), he feels confident that there is no cancer. He suspects bowel disease like croan's, he said there are hemmoroids that are large enough the they are casuing an obstrution in my bowel and a 2.5 centimeter poylup that because of the area it is in he could not remove it during the colonospy or take a biopsy of it. It is hanging out of my anus. He is treating me with cholestrol medication (found to prevent cancer up to 54% according to web dr., although this specialist told me it is to regulate my bowel habits.) Two doctors two different opinions. I know I need to have the polyup removed. One doctor said a polyup the other said a fisher. I need to find a great colon surgeon, or colon cancer specialist my colonoscopy results and get this treated. Do you have any recommedation of a specialist in Florida?
Thank you.
J

From: Rick
Email: earthunit47@yahoo.com
Date: Sat, July 09, 2005
Time: 04:18:11 AM (EST)

Comments

folfox is some toxic garabage.. there has to be something better out there.. Most of this crap like 5fu was invented in 1955 this is the best they could do in 50 years!!! I have stage III b colon cancer and I am not happy about my options, already had the operation was not that bad. but chemo is a major raft.

From: Peggy Dykstra
Email: pudstra@mchsi.com
Date: Wed, July 06, 2005
Time: 09:41:57 AM (EST)

Comments

Hi Jeannette
She needs to ask her doctor for Nausea pills if she hasn't already gotten them. The FolFox5 doesn't usually effect people like this so maybe it will go away in a bit I hope! I will be thinking and praying for her Jeannette. It has to be hard living that far away from your sister. This is a great place for information and support Jeannette so check it often!

In my thoughts....Peg

From: Jeannette
Email: jh180@le.ac.uk
Date: Mon, July 04, 2005
Time: 00:21:02 PM (EST)

Comments

My sister Vicky has just been diagnosed with colorectal cancer, which has also met. into her liver. She has had one chemo treatment so far which made her very sick but in spite of that, she manages to maintain a positive attitude and continues to support the family.She lives in Canada and I live in England so it is hard to offer help other than moral support. I want to get as much information as I can about her cancer so I can understand what she's going through. Your website was excellent and I feel much more positive now I've read all the survivor stories. Does anybody have any tips for having VFD's (vomit free days), which seems to be a huge problem for her. She was throwing up continually for 2 days after the chemo. Thanks for the great site.

From: Katie Spoerl
Email: spoerlygrl15@yahoo.com
Date: Sat, July 02, 2005
Time: 09:11:30 PM (EST)

Comments

Heyy Molly!!
Nice 2 see u again!!! I was thinking that maybe i should do something else for colon cancer awarness an all but idk what to do and if high school students will be interested you know what i mean>?? But i think that i really should help out more and all just because people in my family do have colon cancer an all and i just want people to be more interested on learning about it and helping the cause you know what i mean?? well write me back if u get any ideas for me hehe!!
Katie Spoerl

From: Carol Connell
Email: cconn1037@aol.com
Date: Sat, July 02, 2005
Time: 10:43:39 AM (EST)

Comments

Hello everyone, I just wanted to update all of you with stage IV
CC and hopefully give you a little encouragement.It has been over
a year since I started my battle. I had over 2 feet of my Colon
removed last summer followed by 6 months of Chemo every 14 days.
I have 4 tumors in my Liver and 2 in my right Lung and A CEA of 3.1.
I have had a break from Chemo since March 4th and was just given
2 more months off. I not only feel great but I actually have hair again and still work full time. The support of my husband and a
wonderful daughter keeps me believing that I can win this battle.
Good luck to all of you, good things can and do happen!

From: Peggy Dykstra
Email: pudstra@mchsi.com
Date: Tue, June 28, 2005
Time: 08:49:20 AM (EST)

Comments

Just wanted to leave a note about my taste problem. A friend from work suggested a mouth rinse called Byotene. I have been using it since last Thursday and the yeast infection that was covering my tongue is almost gone!!! I have been able to taste almost everything now so will continue to use it several times a day. Hope this will help others here who have the same problem. I will be able to cope with the last three treatments I have left now much easier.

From: lynette
Email: fcb@cafes.net
Date: Mon, June 27, 2005
Time: 02:15:01 AM (EST)

Comments

Hi Molly, My husband who is 53 just had his colon surgery 1 week ago Friday June 17,05. They removed a foot and a half of his colon and about the same of his small intestine, plus his appendix. He is stage IV, with 4 lymph nodes positive, cancer in the stomach flap and cancer in the pelvic area.
I was looking for information of others who have had their colon cancer spread to these areas instead of the liver, but have not been able to find any. My husband is very optimistic and the surgeon we had did not tell him he was a stage IV, as statistics he is just one person and each person should be considered as one person he said, and not as a statistic. So he told me to worry about that part. We go to see the oncologist tomorrow (today actually)as it is after midnight and I guess he will tell him then.
I am very proud to have found your website and to see stage IV survivors posting here. This has meant so much to me.
Thank you
Lynette

From: Peggy Dykstra (Marshalltown, Iowa)
Email: pudstra@mchsi.com
Date: Fri, June 24, 2005
Time: 03:11:32 PM (EST)

Comments

Hi Molly!!

I just found your website and have been reading all the letters. It has been an inspiration to me. I was diagnosed with Colon Cancer in Dec. of 2004. I had the Colonoscopy and surgery 2 days later to remove about 7 inches of my Colon. They found nothing in my blood and nothing in other organs with the Catscan. They found 2 of the 12 lymph nodes had cancer into the tissue, so I am a Stage3. I started my Chemo 3 weeks after surgery and only have 3 left to go!! My doctors never said anything about what my chances were, but from what I have read, I think my chances are very good since nothing was found in other organs or my blood. I had a bacterial infection after my 2nd Chemo treatment, but they got that under control with anti-biotics and have been just fine since. I have been very lucky with side effects. I am normally just really tired about the 5th day but I have been working full-time through it all. I have had trouble with tasting certain things and am hoping that all ends shortly after the treatments. It is so good to see a site like this where we can share our experiences and get strength and hope from others. I agree with you that Colon Cancer has a high success rate especially if you catch it soon enough. My doctors are amazed at how well I am doing so I hope that means they think I will be ok!! Smiles I see you will be in Davenport Iowa in July. I hope to get over to see you!! Thank you again for the site, it is such a help. Let me know if you have any ideas about this no taste thing. I have been rinsing with saltwater and that seems to be helping a bit.

God Bless you and keep up the good work!!

From: donna golbach
Email: donnagolbach@rossmed.edu.dm
Date: Thu, June 23, 2005
Time: 05:17:16 PM (EST)

Comments

Hi Molly,
I found your website when researching 5 yr. survival rates for Stage 4 colorectal cancer. I refuse to believe the 5% figure!!!
Anyway, I was dianosed with Stage 4 rectal cancer 14 months ago...I had some lung nodules, but no liver mets. After researching the best treatment, I ended up at Cedars-Sinai in Los Angeles. Wonderful Dr. and treatment center! I'm now cancer-free, but the mental toll is still there. I worry about recurrance and check-ups. I am positive and I think that was a huge part of my recovery. I just pray God gives me the strength to stay positive and remain cancer-free.
By the way, I am a 55 yr. old medical student!!! It was something I always wanted to pursue and am happy I did. The only drawback is reading the cancer material in detail!
The inspiration I got from reading everyone's comments and support, is immeasurable! Blessings to everyone,
Donna

From: Christie E Parker
Email: ceparker@srhs.com
Date: Thu, June 23, 2005
Time: 00:35:41 PM (EST)

Comments

I applaud your efforts and congratulate you on your successes. I was a single mom, age 27, when I was diagnosed with stage IIB colon cancer. I had no family history, was a cancer research nurse, and, though I was with classic symptoms, I had to convince my doctor that I needed testing. He felt that my oncology background contributed to my "unfounded" concerns for what he felt was mere constipation and the need for more fiber. "An apple a day keeps the doctor away" he said as he smiled reassuringly. He agreed to do the colonoscopy but set it up for six weeks later, and was shocked when he found a tumor that was almost completely obstructing. After surgery and chemo (on a clinical trial), I have been cancer-free for almost 5 years. I am married with three sons- one just seven weeks old. I also now am a nurse practitioner in palliative care, and some of my patients have advanced colon cacer. I am currently seeing a 35 year old male with a terminal colon cancer.

From: Love
Email: artetre@yahoo.com
Date: Sun, June 19, 2005
Time: 06:40:17 AM (EST)

Comments

Hi Molly,
My husband is 58.Can you email me some stage 3~5 colon cancer survivors stories about that age?
What is the key things to do and being to survive?
What to think or do when you fear,worry,lack of faith?
What kind of nutrition to help for healing?
Thanks a lot!
Please help us!
Bless all with strenth and faith to live with joy.
Love.

From: Rhonda
Email: jrboxers2@yahoo.com
Date: Fri, June 17, 2005
Time: 03:30:23 PM (EST)

Comments

Hi Molly,
I just finished reading your story. I encourage and support your efforts of colon cancer awareness. Good luck and God bless, Rhonda Call

From:
Email: dmcknight@sterling.net
Date: Fri, June 17, 2005
Time: 01:34:29 PM (EST)

Comments

iam looking up 28 days after march 1st had surgrey my self bladder surgery they streched my bladder i give GOD PRAISE FOR THE HEALINGS AND IN MOLLYS LIFE GOD DID AT ALL

From: anyta morris
Email: alm878@aol.com
Date: Wed, June 15, 2005
Time: 07:54:11 PM (EST)

Comments

Cancer has affected my life in many ways. I stumbled upon this site while doing research and just want to offer my prayers and support. I have read the postings and strongly believe in healing. Tonight i will be praying in earnest for the recovery and grace for all of you and everyone affected by this evil. Peace and prayer to all. God Bless You.

From: Fred Ortiz
Email: Fred.Ortiz@state.nm.us
Date: Wed, June 15, 2005
Time: 10:17:58 AM (EST)

Comments

May 2004, I went through surgery and 20% of my colon was removed due cancer. I also went through 11 chemo therapy sessions. I feel cancer fre today. Life is so wonderful and the people that I met during this ordeal were great. From my beatiful female surgeon to my super oncologist and medical staff. It's too bad you have to get sick to meet these fantastic people. I live in Santa fe New Mexico on a 2 acre track with 2 horses, 2 cats and a German shepard dog, all female. The reason I mentioned the pets was because when I got sick, I was worried for their care. So it's important that I hang around a little longer, life and its surroundings are a once in a lifetime experience and we should be so lucky to enjoy as much of life experiences that we can. I love my life and enjoy everyone/family I meet and have experiences with.. Yesterday is gone and today is towworrows yesterday, so we should enjoy and live for today..

From: Hope Thorough Grace
Email: hopethroughgrace@aol.com
Date: Fri, June 10, 2005
Time: 00:49:39 PM (EST)

Comments

Hi Molly

I am a six year survivor of Stage III colon cancer; retired, past the age of 65.

I read your story with high interest and found similarities. After 4 days in Hospital with all sorts of tests to determine the source of my pain, the GI doc told me they found nothing and would send me home the following day. I had to ask for the colonoscopy; cancer was found and I had an extended right hemicolectomy.

Out of my cancer journey, I founded a non-profit organization that focuses on cancer prevention education, screening for early detection and survivorship support.

Education is provided to anyone who wants to learn about colon, lung, breast and prostate cancer. We've served over 500 families most of whom are poor African Americans and Hispanics.

Screening is approached with a pilot project for persons who are unisured, underinsured and medically underserved; namely the working poor. We have a small grant ($25,000) from a foundation that will allow us provide financial assistance to help cover the cost of screening for colon cancer.

I have two requests. 1. We are in need of financial help so that more people who can't afford health insurance can get screened for colon cancer. We need grant/foundation support. Any advice you may have is welcomed.

2. Our fourth annual symposium is scheduled November 5, 2005. This is an all-day community-wide event with an emphasis on colon cancer prevention, conquering obesity and promoting more physical activity. Plenary sessions and breakout sessions are provided by physicians and other professionals. We want to bring the collossal colon to Houston for this event. What do we need to do? Can your organization sponsor or underwrite this exhibit? Can you help us?

P. S. Our annual budget has been less than $25,000. I can send you additional details should you require it.

From: Galloping Grandma
Email: rsj@mgl.ca
Date: Wed, June 08, 2005
Time: 08:25:34 PM (EST)

Comments

I googled my way to this site, and am so glad it was here. Molly you are an inspiration! April 30/05 I was in emerg, with horrendous abdominal pain, and to my surprise after an overnight stay - it was constipation! But that's not the end of the story. I was then booked "asap" for sigmoid and barium Xray June 8/05. About 12 hours ago, lying on my side, my south end exposed to two doctors and a nurse they cancelled the barium xray, called down a surgeon, snipped a bit for biopsy, the results will be in about next Tuesday. NOT what I wanted to hear since I had been reading and learning about colon cancer stuff during the "asap" waiting. Now I am sitting by myself, listening to the thunder roll in the distance, confident I will survive regardless of the result. The surgeon smiled and said only "You young lady, (I'm 71) will be having an operation, but don't worry there won't be a bag." The next few days will seem like a year while I wait. So I went looking and found solace here at Rolling For Recovery. Thank you for this site. Good luck to all who are battling and those already who have won.

From:
Email: kimbrme2004@yahoo.com
Date: Wed, June 08, 2005
Time: 08:22:12 PM (EST)

Comments

Dear Molly:

I am in deseparate need of financial assistance. I am 48 years old and it seems as if the bottom of my world has crumbled and disintegrated. I was diagnosed with breast cancer. I had a lumpsectomy. Meanwhile my creditors have gone berserk. I am not saying I do not need to pay them but how I dont have the resources now and they will not wait can someone please come to the rescue of my family, sister, son and ten year old daughter. She needs me most of all. I can see it in her eyes that she knows things are rough for us all. I would appreciate a great hook up with a great job. No one owes me anything and this is the first time I have ever begged for assistance. But please or please is their someone out there willing to help a good mother in her struggle to regain her family life back with dignity. I would be most grateful. If there is a celebrity that can find it in their heart to help me and my family I would be forever grateful. I know my story may not be the most heart wrenching to the average reader. But not only has my breast been altered so has my emotional and financial state. Once again please help and I will publicly speak to people to let them be aware of the travesty that Breast Cancer has on Single as well as any woman. It is not anything nice by any means. But I am blessed to even be able to write this to someone and hopefully someone will care to help us.

Mother in Deseparate Need Chicago Thanks

P.S. This is really my first time confronting my emotions about my breast cancer and really saying the things I feel.

From: joe steiioff
Email: asteioff@aol.com
Date: Wed, June 08, 2005
Time: 04:50:56 PM (EST)

Comments

I am going thru chemo treatment now, 8th treatment of twelve. Treatment is every other week. One day in hospital with oxyplatin, and 46 hours at home with floura v5?. It makes me very tired, taste in mouth terrible plus nothing has a taste these as just some of the side effects. My question is when will this all go away after treatment? Any help appreciated thanks.

From: Markelle
Email: 215home@cableone.net
Date: Wed, June 08, 2005
Time: 00:56:34 PM (EST)

Comments

Hi, I'm Markelle. I am 36 and have Stage IV colon cancer. I never had any symptoms and have no family history. I am otherwise healthy and fit. My OB found a tumor on my ovary during an emergency C-section in March. I had surgery May 5th to remove most of my descending colon, all reproductive organs, my gallbladder and my appendix. I start chemo next week. I consider my baby a miracle not only because we tried for 11 years to conceive, but because she brought my cancer to light. Thank you so much to the Stage IV survivors who have written here about their experience and the hope they impart.

From: Tori
Email: talesoftori@aol.com
Date: Sat, June 04, 2005
Time: 01:48:14 AM (EST)

Comments

Dear Andrea,
Please get a colonoscopy. My husband has stage iv colon cancer. He was misdiagnosed for 2 years. He kept going to the docotr with fatigue, malaise, fever, and blood in his stool. He was given a sigmoidoscopy, fecal tests, and blood tests. The ONLY definitive way to rule out colon cancer is a colonoscopy, not a sigmoidoscopy. If your HMO won't pay, I would consider going out of pocket. The procedure is about $1000.

From: Andrea
Email: lyndru@hotmail.com
Date: Fri, June 03, 2005
Time: 05:00:06 PM (EST)

Comments

I am 28 years old, married with two children under 3 years old. I have always been a healthy person, no major illness that I can remember. I don't have colorectal cancer that I know of, but I have been having symptoms similar to those of many here for about a year now - upper right abdominal pains late in my pregnancy a year ago that were never explained; depression, fatigue, general malaise with a bout of rectal bleeding (bright red with dark, jelly-like clots) a few months ago; and most recently (within the past month) another two-day stint of bright red rectal bleeding, frequent bowel movements, extreme fatigue, abdominal and lower back cramping, nausea and lack of appetite, and pains quite similar to those I experienced during my pregnancy last year. In addition, the right side of my abdomen seems to be slightly larger, or somewhat raised, compared to my left side. My husband felt this without me telling him first that I also felt it.

I've seen doctors within my HMO probably 20 times in the past 6 months trying to figure out what's wrong with me, because I KNOW something's wrong with me. They've given me antibiotics, Bentyl for one doc's diagnosis of IBS, and a whole host of other things. After seeing my primary care doctor this week I finally feel that things are on the right track. She ordered a number of stool tests (which no one had before), blood tests and a CT scan. I hope I find out soon what's wrong.

I've done a lot of research in the past month and have stumbled upon some very useful websites. This one is outstanding, and incredibly inspirational! Rob and Lee's post prompted me to post this, along with a couple of websites that I think are helpful to those who've survived colorectal cancer, who are currently fighting, or who are having symptoms indicative of it. One is the Association of Cancer Online Resources, www.acor.org. Another is a Colon and Rectal Cancer message board provided by HealthBoards, www.healthboards.com/boards/forumdisplay.php?f=24. These are great resources and have been very useful to me in researching my symptoms.

Andrea

From: Rob
Email: leenrob@msn.com
Date: Fri, June 03, 2005
Time: 10:51:43 AM (EST)

Comments

I forgot to mention yesterday that Lee is only 41 years old. We have four children ages 12, 10, 6 and 4.

Please pray with us that Lee would be healed.

Rob

From:
Email:
Date: Thu, June 02, 2005
Time: 02:29:14 PM (EST)

Comments

Hi my name is Shelia and my husband was diagnosed with stage 2 colon cancer in Feb.2004.That was the worst day in my life.We've been married 27 years and have 2 sons one was 25 the other 14.Twenty-Seven years didn't same so long now.After the shock of everything started to sink in we started talking about what our next move would be.First came visits to many differnt Doctors,something we were not use to.My husband has always been healthy never been sick the whole time we've been married.He went though 6 months of chemo and wearing a chemo pump for 48 hours every other week.T

From: Rob
Email: leenrob@msn.com
Date: Thu, June 02, 2005
Time: 11:32:24 AM (EST)

Comments

This site has been a breath of fresh air to me. In January of this year I got an urgent call from Lee, my wife. She suddenly felt as though she was going to have diarrhea and was shocked to learn that she was passing a lot of blood. We went to the hospital, stayed up through the night as she tried to drink what seemed like gallons of Go-Lytely, had a colonoscopy that next morning and discovered a golf-ball-sized tumor in her right colon. Providentially, there was a surgeon available that afternoon to do a resection of Lee's colon.

We got the news a couple days later that the tumor was cancerous and that one of the twelve lymph nodes that were removed showed signs of cancer. The next week we met with our oncologist to learn that Lee had stage III colon cancer.

The ball was put quickly in motion to begin chemotherapy with Oxaliplatin, Leucovorin and another drug that I can't remember. We were to go in bi-weekly for 6 months with the hope that we'd then be able to put this all behind us.

Last week, however, we recieved distressing news. Lee had been having discomfort and pain in her right flank. A CAT scan revealed that the cancer had been spreading and had metastasized in several places in her liver. Can I just say that it would have been easier to have been kicked in the face?

We went for a biopsy of the liver mets and an MRI to rule out mets in the brain as a source of the headaches Lee's been having. Yesterday we learned that the MRI was clear--thank God. But the liver mets were, indeed, more colon cancer. Why did it continue to spread--and so quickly?

We had a CAT scan in January just before Lee was released from the hospital that only showed two small statistically insignificant blips. Her CEA counts were at ZERO, and probably still are.

Our oncologist switched Lee over to Avastin and Irinotecan last week. The plan, now, is for Lee to have another CAT scan after four treatments with these drugs. Our hope and prayers are for remission.

Have any of you heard of cancer spreading during chemotherapy? What about Stage IV colon cancer with no CEA?

We haven't lost hope. The doctor was, and has been, hopeful all along. In fact, every time I try to find out what the latest and greatest is for treatment of colon cancer he already knows about it!

We have a fantastic group of friends at our church. We know that there's an army of prayer warriors asking God to heal Lee. But, we're looking for others who would be willing to correspond with us who may have some first-hand experiences with the kinds of disappointments we've recently had.

Rob and Lee

From: Charlotte B - Gonzales, LA
Email:
Date: Wed, June 01, 2005
Time: 09:01:59 PM (EST)

Comments

I was diagnosed with Colon Cancer-Stage IV in Feb, 2000 at 34 yrs of age. I ate healthy, did not drink or smoke and in good shape. I had been going to my regular doctor for a pain in my stomach and we really thought that I was was upset & just depressed since losing my father just in AUG '99. So I was prescribed some stomach meds. But the night before my father passed, I was on a Florida vacation and had passed the only real sign of colon cancer: red, red blood in my stool. Still I was unalarmed. The only alarm I got was receiving a call in the wee hrs of the morning that my dad, 57-yrs old, passed in his sleep of a massive heart attack. My dad's death was the hardest thing that I had to deal with in life and still I get choked up, because I miss him terribly.

But it was in FEB '00 on a FRI a.m. when I couldn't get out of bed. I just laid in bed in a fetal position with the most excruciating stomach/ back pains. My husband made a doctor appt, but was told that I would be seen by a new doctor since mine had just retired the day before my appointment for good. It was when I walked into the new doctor's office & he noticed that I was sick right off. My skin coloring was sickly and my abdomen so swollen and the pain seemed to radiate around to my lower back. He told me that he wanted to rule out cancer so he scheduled me to have a barium enema done on Monday. It was then that I just felt so numb and began to shake uncontrollably and just began to scream & cry. I could not believe that I might have cancer but he told me that it was in deed something and that I couldn't wait. He had me go & see the surgeon just down the hall from his office after his visit to explain to me what I was going to be against if in fact it turned out to be cancer. It was like I had been punched in the stomach and the life was being sucked out of me. I was talked to about Chemotherapy and this is really when my world came crashing down. I knew when you hear CHEMO that it's only for CANCER and that it can be rough and there are truly no guarantees as to whether it will work or not.

On Monday, it was during the barium procedure that I discovered that I had a blockage due to a tumor and this was the cause of it. I had to be scheduled for a colonoscopy the next day and it was in fact, Colon Cancer stage IV. I was scheduled for surgery on Wednesday to remove the tumor, infected lymphnodes and a colon resection. My family was told that I had a 50% chance, that it wasn't good. Well it was then when I came out of recovery and could hear my family in the hospital room talking as if I couldn't hear them. I then called for my mom when I began to wake up and as she tells me, I said to her "momma, I'm really sick." It was then that I told her not to worry about me that I will be okay. I tried to be strong for her and my family so that they would be spared of my pain. It was then that I decided to fight this with all my might. I had to take 50 chemo treatments and it was rough. I was unable to return to work because I had no strength or endurance to hardly get up. There were days that I really wanted to close my eyes and never wake up. But I did it for me, telling myself that it is the one thing that counts if I live or die. I had to live for my mom at least. I could not put the thought out of my head, the pain that my mom would have if I left her after just losing my dad. This is what it took for me to fight.

To this day, I continue to keep my FAITH in GOD and have the HIGHEST of SPIRITS. You get lemons in life, just make lemonade. My words of advice is to enjoy every moment of each day of your life. Never, never give up. I have just celebrated my 5th year of cancer-free. So I hope that my story will inspire or touch someone so that they will never give up! Sincerely, Charlotte in Gonzales, LA

From: Tammy
Email: mama_looch@msn.com
Date: Tue, May 31, 2005
Time: 10:33:35 AM (EST)

Comments

Hi Molly, I was so thrilled when I found this site! I was diagnosed in March 2004 with anal cancer (stage II), after chemo, an acute abdomen,a total system crash and 2nd degree rad burns I am still here.Looking forward to a long and healthy life! Again I say Cool site!

From: Tori
Email: talesoftori@aol.com
Date: Tue, May 31, 2005
Time: 00:23:08 AM (EST)

Comments

Hi my name is Tori. I have been married for 6 months. 4 1/2 months after getting married, my husband was diagnosed with stage iv colon cancer with mets in the liver and the lymph nodes of his neck. We have seen 3 oncologist, none of whom believe that they can cure my husband, but we went with the most update and positive one. He is otherwise in excellent health and has never been sick before. He is only 53.
He had surgery 2 weeks ago where they removed a baseball sized tumor from his descending colon and some lymph nodes.
For months now he has fevers and night sweats at night. Do any other colon cancer patients have fevers, night sweats and back pain?

From: Cathy
Email: KhattyC@aol.com
Date: Mon, May 30, 2005
Time: 01:11:43 PM (EST)

Comments

Dear Molly,
My husband found out he had colon cancer ( the tumor is the size of two walnuts) on May 13, 05 on a Friday from his first colonscopy(his age is 50) . On the next day May 14, that night he had a heart attack with damage to his heart. We almost lost him that night. After getting out of the hospital the doctors are going to give him radiation and Chemotherpy starting next week before he has surgery to remove the tumor. The doctors are stating that if he had not had the heart attack they would have done the surgery first. But because of the heart attack he will be given the treatments first to shink the tumor. First we were told he had colon cancer now they say it is rectal cancer because it is low enough to be able to have the radiation. He will be wear a chemothery pump 24/7 and go once a week to refill the pump. The good new is the CT scan show no spread to the liver or other organs and the CEA blood test (tumor marker) is at normal range. We have been told this is good news. The Cancer doctor thinks the cancer has not spread due to the two test results. Is this true this is a good sigh? Our family had lost his sister, father, two aunts and one uncle in just a year. My husband is the only person my mother-in-law has left. She is living with us now due to the lost of her husband. My husband is keeping a positive outlook on what is ahead of him. He feels God made him had the heart attack before the surgery so he wouldn't die on the table. He really feel that God has more for him to due in his life. I have been told that we really will not know the stage of the tumor until it is taking out. Please pray for him and others that are fighting this battle. If anyone can help us deal with this please e-mail me. Or if you just need someone to talk with I will be here for you. I am so glad I founded your web site.
Thank you, from Panama City Bch Fla.
Cathy

From:
Email: cugaz2003@yahoo.com
Date: Sun, May 29, 2005
Time: 05:47:07 PM (EST)

Comments

im a 20 year old maled in the service and my younger brother and pretty much every male in my family have colon cancer my lil bro who is 17 just got treated this past april. i have not yet been checked out in fear of getting kicked out of the service even tho my health should be more important. my little brother had his small intestdenst takin out leaving just his large ones. this is hereidty in our family what should i do? would this be a medical discharge thats the only reasons im not getting tested

From: BETSY
Email: rohdee001@hawaii.rr.com
Date: Sun, May 29, 2005
Time: 00:41:14 AM (EST)

Comments

ALOHA, MY NAME IS BETSY AND I AM A STAGE 4 COLON CANCER SURVIVOR. I WAS DIAGNOSED WITH COLON/RECTAL CANCER IN JULY OF 99. I WENT THRU CHEMO AND RADIATION AFTER HAVING SURGERY TO REMOVE THE GOLFBALL SIZE TUMOR IN MY DESCENDING COLON. IN MARCH OF 2002 A SPOT WAS FOUND ON MY RIGHT LUNG. I HAD MAJOR THORASIC SURGERY AND HAD THAT REMOVED ONLY TO HAVE 2 MORE NODULES SHOW UP. I STAYED ON ORAL CHEMO FOR OVER 2 YEARS. THE TUMORS STARTED TO GROW. I WENT FOR A SECOND OPINION AND OPTED FOR ANOTHER THORASIC SURGERY WHICH WAS MAY 5TH OF 2004. I REMAIN DISEASE FREE! THERE IS HOPE! I AM VERY GRATEFUL. ALOHA, BETSY

From: Janet
Email: janetbonner@sbcglobal.net
Date: Fri, May 27, 2005
Time: 09:39:44 AM (EST)

Comments

Molly
First - I love your website. I myself have developed a crazy way to spreading awareness of colon cancer. My brother died at the age of 48 from colon cancer. His words "my death will save your life" has come true with his 5 other siblings having colonoscopyâ€™s performed every three years. I nominated my brother the "Colon Cancer Afterlife Spokesperson" and through his website bring a wired approach to spreading the word. It is working and I know of younger than 50 people discussing colon cancer with their doctors. www.whereintheworldisgregkelley.com (Greg's Afterlife Page)

From: Maria Johnson
Email: mfsjohnson@msn.com
Date: Fri, May 27, 2005
Time: 00:56:54 AM (EST)

Comments

I am happy to say that I do not have colon cancer-yet and hoping to keep it that way. I was diagnosed with ulcertive colitis when I was 24 (I turn 40 this year)and have been managing it with meds ever since. I have had several flares and one was very scary since I was pregnant with my first baby at the time. After a short hospital stay we treated the pregnancy high risk but she came out just fine and I wan't that worse for wear. I just had a 5 year checkup colonoscopy and told my GI you won't find a thing I have been symptom free since the pregnancy. Low and behold he found a low grade flare and unable to determine how long it has been there. We discussed strategy and decided to up the med's (Asacol) till next year's colonoscopy and if doesn't clear up go to the next step in meds. He doesn't like any symptoms because it can easily turn into cancer. I no longer get the luxury of every 5 year colonoscopy, I feel it will have to be an annual thing from now on. As a mother of 2 toddlers I don't have the time to be sick so I am sticking to my meds and keep symptom free forever. Your story came to me through a free Health Magazine in our newspaper and wanted to let you know your story is inspiring and I am glad we are all talking about our bums....

From: Eileen
Email: eileen8@tampabay.rr.com
Date: Thu, May 26, 2005
Time: 11:09:04 PM (EST)

Comments

I am 45 years old. since the pregnancy of my second child in 1988, i have had random rectal bleeding...more spotting, associated with itching of hemmorhoids. Well, for the past three weeks I haved had constant rectal bleeding. I wear a panty liner every day and when I go to the restroom, there is anywhere from a tablespoon of blood to a quarter cup, with or WITHOUT a bowel moment. I'm tired all the time but no weight loss, if anything I've gained a few (5'9" at 150lbs) I guess i am wondering is it common to have that kind of bleeding from hemoorhoids? What else could it be, beside the obvious colon cancer. I am starting to freak myself out a littel. i have colonoscopy scheduled in two weeks; Any advice for others. Similar situations? How did they turn out.

Thanks
Eileen in Florida

From: Julie Dimmick
Email: jdimmick@comcast.net
Date: Thu, May 26, 2005
Time: 09:38:08 PM (EST)

Comments

Molly,

Your story is very inspiring to me. In December (actually just before New Year's weekend) I was diagnosed with what turned out to be stage 2 colon cancer. I am currently on my 3rd chemo treatment.

Julie Dimmick
Tucson, AZ

From: Dineen (neener)
Email: Dineen_W@bellsouth.net
Date: Wed, May 25, 2005
Time: 02:56:35 PM (EST)

Comments

I am soooooo proud of you! My heart is overflowing with tears of joy. Watching you grow from a strong willed, strong spirited young girl (M & M) to a grown woman who has and continues to make a difference, just leaves me in awe. WOW! When I "grow up"--I want to be like YOU!

I realized a long time ago what the greatest use for my life was--to spend it on something that will outlast it. To see you living the highest achievement and purpose that life offers...leaves me inspired to be a better person. What an inspiration! What amazing accomplishments! I love you Molly! Dineen

From: essie ware
Email: ware@mc.duke.edu
Date: Tue, May 24, 2005
Time: 05:08:09 PM (EST)

Comments

Hi,my name is essie and I just want to share with you that, I have to go into the hospital because they found a blockage in my large intestine. I had an colonoscopy that is how they found it. I had bleed real bad one day from my rectum. I am so angry because I kept telling the doctor that something was wrong. can someone tell me their symtoms. I pray that it is not to late for me. I am 46 years old. I have to have surgery on the 5/30/5. that is when they will find out if I have cancer or not.This is my first time of having something like this happen to me. I would appreciate your comments right away.

From: Ruby B. Varcacia
Email: rvarcacia@varcacia.com
Date: Tue, May 24, 2005
Time: 01:15:56 PM (EST)

Comments

Molly, heartfelt congratulation on your webpage. I just wish to post my response to Jennifer.
Hi Jennifer, I just read your posting in the internet about your husband having stage IV colon cancer and I just wanted to let you know that I have been going thru your same situation and know exactly how you feel.

In July 2002, my now 64-year-old husband, was diagnosed with stage IV colon cancer. The first doctor who saw him at Mayo Clinic just took a look at his CT scan and said "this is hopeless". At that time he had two colon tumors and about 5-7 liver metastases which turned out to be near 15 at surgery. I will keep the story short and let you know that he has gone through most of the chemotherapies available, even had a pump implanted in his liver to deliver direct chemo which caused him biliary duct strictures which in turn caused septicemia with four different bacteria, and an outside bag had to be placed to drain his bile. He has had three mayor surgeries in attempts to remove his liver metastases. He even had a respiratory arrest following his first surgery. And at one point the doctors said he had only 6-9 months left at which time I said: Only God knows when.

It was on my birthday that I received the bad news, I have spent a wedding anniversary outside an operating room waiting for my husband, Christmas and New Year holding a whole bunch of "spaguetti tubings" coming from my husband's body, Mother's Day rushing him to Mayo Clinic on board a plane. By all means it has not been easy.

On the other hand, there is HOPE always. In November 2004 my husband was started on Erbitux and Irinotecan, in January 2005 the liver mets had reduced, and last April, the doctors were not able to see any. This does not mean he is cancer-free yet but on the way. The outside bag to drain his bile, which the doctors said would be in place permanently, was removed months ago. He is fully active, works full time at his company, likes to go fishing. Jennifer, your husband is much much younger so keep your hopes high.

Good attitude, positive thinking, good nutrition and TONS OF PRAYERS are working for us. There are things that you can do on your own to help, like Spring Forest Qigong, you can find more about this at www.springforestqigong.com (we bought the video course and practice it). I do not know what religion if any you profess, but I am catholic and I can assess to the effectiveness of the rosary in my worse times.

Jennifer, I send you and your husband, our love, prayers and a big warm hug all the way from Panama (yes, from the Panama Canal...!!)

Ruby Varcacia

From: Wendy
Email:
Date: Tue, May 24, 2005
Time: 11:25:14 AM (EST)

Comments

I was diagnosed at 37 -- now 39 and in full remission, knock wood. Your site is great, reminds me I am not alone! I'm still working on a good response to the many doctors (including the anesthesiologist while i was being wheeled in for surgery) who say, "You're too young to have colon cancer." Somehow I take this as a compliment, and say thanks!

I've lost 20 lbs since my surgery (foot of colon removed plus nodes) & have had to radically change my eating habits, a very irritable colon, but cancer-free, and I'm enjoying dressing age-inappropriately. I wish more doctors would warn people that after surgery your digestion does NOT go back to "normal."

Thanks again & god bless.

From: Rachael
Email: Pamperedchef_rachael@yahoo.com
Date: Tue, May 24, 2005
Time: 08:45:53 AM (EST)

Comments

Hello I am 21 I have had my first child. And ever since I have had hemroids I have been through 3 sugerys in the past year to try and clear them up. But some keep comeing back. Also bleeding to. Have you ever herd such a thing? Plus my weight has been way lees then what it shoulc be. Could it be cancer?
Thanks So Much
Also since I have know lots with cancerv and such I am trying to rasie money this month by selling Pampered Chef Pink Products 1 dollar from every product goes to the American Cancer society for Breast Cancer.
Also in July I am selling Cancer Baskets 2 from every basket go to the Sociaty.
Check out the web sites
www.longaberger.com
www.pamperedchef.com

From: Edris
Email: Edieirwin@aol.com
Date: Sun, May 22, 2005
Time: 03:41:30 PM (EST)

Comments

I saw the tv show years ago and have never forgotten it. I hope that you are still doing well. My father died the day after his 46th birthday. His life style habits were vey different from mine; plus, I am a woman. I thought those differences would be important, I have been told they are not. I was past the age of 50 when I had my first colonoscopy. I do not have cancer but I do have gastro problems that have resulted in about a foot of intestine plus lymph nodes being removed.

I have participated in Relay for Life for many years and hope to continue to enrich public awareness. God bless you for your imagination so many years ago that lead to the creation of the Collosal Colon. Edieirwin@aol.com

From: Jennifer
Email: jennifershuang@yahoo.com
Date: Sun, May 22, 2005
Time: 01:58:59 AM (EST)

Comments

I love the Colondar! Great idea! I was told two months ago (the day after my second son was born, six days after an emergency appendectomy) that I have Stage II colon cancer. After a second surgery two weeks ago, I was bumped to Stage IV. Two lymph nodes and my omendum had cancer cells. I had no symptoms, except anemia on and off for years. Now I start chemo June 8th. I would much rather be nursing my son than nursing my incisions. Thank you for helping to educate people about this disease. Everyone needs to know that it is not just older men that get it.

From:
Email:
Date: Sat, May 21, 2005
Time: 07:12:42 PM (EST)

Comments

I am an 18 year old male...quite recently i started pondering on the weird problems i am facing since like a year..which hav become more common now.
Being a science student i had studied about colon cancer..and this made me search about the symptoms of the disease on the internet..i found i hav each and every symptom of this colon cancer....but i just cant believe tht i m a victim of this dreadful disease in such a yound age...i dont know what to do..i dont wanna tell this to my family...i just cant do it...sumtimes i feel i shud ignore it all and w8 for the time and sumtimes i think its important to inform my family....i m so confused and shattered plzzz reply me here in the guestbook ..because i dont wanna reveal my identity incase anyone frm my family happens to read this post...
Help.

From: Gisela Rangel
Email: Alex4serena@comcast.net
Date: Fri, May 20, 2005
Time: 01:26:18 PM (EST)

Comments

Hi Molly!
I am 30 years old and have had a left hemicolectomy. I had a colonoscopy in october of 04, and the found a large tumor in left descending colon. Only thing to do was a resection. Had surgery November 04, 9 inches of colon removed and 10 lymph nodes. Pathology reports pre-cancer tumor with clear margins. I felt better gastro-wise until recently, change in bowel habits not like before, more constipation now no diarrhea and narrow stools. I;m scared its only been 6 months since my surgery. What could be going on? I have a colonoscopy scheduled for July. My doctors dont think its something to be too concerned about but I still worry alot.

From: Sister Cyndi
Email: loucyndi@comcast.net
Date: Thu, May 19, 2005
Time: 10:47:50 PM (EST)

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My little sister is in her thirtys and just gave birth to a beautiful baby girl, Madison. She also has three beautiful boys. She has been having diarrea ever since she gave birth to Madison months ago. Now she may have God knows what. She is getting all these tests. Which ones tell you for certain, the colonoscapy? What a bout things like cellfood, Cellsalts, herbs and oils and greens...ionized water? What can she do in the meantime to give her a jump on fighting whatever it is? We have to do something...now.

From: AJR
Email:
Date: Thu, May 19, 2005
Time: 08:20:05 PM (EST)

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My grandfather was diagnosed with colon cancer in 1965. He was treated at MD Anderson Hospital and is now going strong at nearly 92 years of age.

From: john
Email: lueras805@aol.com
Date: Mon, May 16, 2005
Time: 08:32:34 PM (EST)

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Caroline what was your younger sisters symptoms when she got diagnosed in october of 99 did she pass away due to the disease or the treatment?

From: Caroline
Email: cen22824@yahoo.com
Date: Mon, May 16, 2005
Time: 08:17:07 PM (EST)

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I just want to emphasize how important colonoscopies are. If there is a history of colon cancer in your family you should be tested early than fifty. I lost my younger sister to colon cancer in November 1999. She was dignosed with cancer in October of 1999. She was only 37. My older sister was dignosed with colorectal cancer in Aptil of 2003. She had stage 4 cancer. She had a reoccurance in April 2004. She went through chemo again and radiation every day for six weeks. She had a pet scan in April 2005 and it's back. Hopefully she'll beat the statistics. She goes tomorrow to find out what her options are this time.

From: john
Email: lueras805@aol.com
Date: Mon, May 16, 2005
Time: 06:58:05 PM (EST)

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Does cancer make one age I have been dealing with this problem for over a year already and like many others have said i cant get drs to take me seriousit seems like when i look at pistures from just a year ago that i have aged wrinkles in eye area skin not as smooth as it used to be but when i see drs they just see me as a young guy thats concerned the waiting is driving me crazy. Once some one has stage 4 or advanced cc and it is not treated what other symptoms occur i still have not had alot of pain like others have written but to me it seems as if i have become cachetic , im 203 lbs and am 6ft 2 inches tall my normal weight before was 225-235, another question my poop is dark i asume its drom blood but when they have checked my cbc they say it is in normal range calcium also normal and cea was 1.7 i guess that is normal? But then i have read cea is not a screening tool i am so confused with so much info out there can you please help.

From: John
Email: lueras805@aol.com
Date: Mon, May 16, 2005
Time: 01:17:05 AM (EST)

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Hi I am very concerned I am almost certain I have advanced cc the thing is i am 31 and the docs think im exagerating symptoms iv lost about 30 lbs in the last 4 months and my poop is dark i did a fobt and there were 3 pos i just got new ins and gave them this info so i have a consultation for a colonostopy in 2 weeks and they scheduledd a cat scan in 2 weeks also. what im wonderin is if im cachectic alredy and if i am is there still hope or is it now just a quality of life issue any comments ? thx

From: Alise
Email: phoebealise@yahoo.com
Date: Wed, May 11, 2005
Time: 09:57:21 PM (EST)

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What I want to know is how did all these young people find out they had Colon CA? Were they having symptoms and then convinced their MD's to do further tests? What sort of symptoms were these you people having? I did not find any comments on what symptoms they had or if they had any before diagnosis. It's hard to convince doctors sometimes to do things you want. For a twenty-something with a history of IBS symptoms since childhood would you recommend getting a colonoscopy? What other tests? I see a ND and these symptoms have been associated with food, esp. dairy, sensativities? Any ideas? I feel like I should know this stuff because I am a nurse, but I don't care for patients with Colon CA on a regular basis. I will search your web sites further. Your stories are amazing. What a great thing you are doing for the world. Thank you & God bless!

From: Alise
Email: phoebealise@yahoo.com
Date: Wed, May 11, 2005
Time: 09:13:42 PM (EST)

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I am fascinated by this project. I read about it just now in a free heatlh magazine from my local health food store. I am a Registered Nurse with five years ER experience and often see either the very beginning or final stages of disease in my patients. I had no idea that Colorectal CA affected so many people, and especially people who are so young. All of the symptoms sound like me and I am going to see my doctor about it. Thanks so much for this information.

From: GH
Email:
Date: Wed, May 11, 2005
Time: 06:09:46 PM (EST)

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I am 72..do not use the internet etc that often...just yesterday told that i had a large malignant tumor at the hepatic flexure etc...been exceptionally healthy all my life...happen to come across this site in my search re: this cancer, and was awed by the endless number of people dealing with or having a loved one dealing with colon cancer. i find it informative and i am not alone nor is my family in this time of illnesses that are so devastating...Thank you Molly....GH

From: Katia
Email: kcastil@hotmail.com
Date: Wed, May 11, 2005
Time: 01:08:34 PM (EST)

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Hi,
My mother is 59 years old and was diagnosed with colon cancer a little less than a month ago.... I was doing a lot of research on the internet, when I came accross your story. It's nice to read about what you have been doing to make people aware. My mother a