Rolling To Recovery, A story of a 23 year old colon cancer survivor Molly Mc Master, who is now raising awareness for the disease among young people.  
2004 Guest Book


Click on the year to read comments: 2005, 2004, 2003, 2002, 2001, 2000.

From: Amanda Whitworth
Email: amandalwhitworth@hotmail.com
Date: Thursday, December 30, 2004
Time: 10:34:53 AM -0500

Comments

Hello! It is so nice to have come across this website. My older brother was diagnosed with Colon Cancer at age 26 and is now fully recovered. I am waiting for my test result due to the finding of a large polup in my large intestine on Mon. 27th. I will find out on Tues, Jan 4th. Through all this the chances of it being a genetic mutation called HNPCC is pretty high so we will just have to see on Tues. I am looking to get involved in awareness opportunities so if anyone has any ideas please email me!

From: Amy Dunham
Email: dunamy34@pct.edu
Date: Wednesday, December 29, 2004
Time: 11:55:11 AM -0500

Comments

I think this is such a wonderful idea! All the girls in the colonder are so beautiful. My fiance (25) was diagnosed with stage III colon cancer in March 2004, he is on his way to recovery and just finished the first part of his ostomy reversal. Its so refreshing to know there are other young survivors. I just ordered him a colonder, so he can see how others are making it everyday, and to look at the hot chicks of course!!!! Keep on passing the love and prayers. Thank You to all who made this site possible.

From: Steve R Lopez
Email: dangomax@quixnet.net
Date: Monday, December 27, 2004
Time: 11:54:17 PM -0500

Comments

I love your web page and what your doing for colon cancer awareness. My wife was diganosed with colon cancer on 14 Nov. 04. She had a blockage with in two days. She had only felt sick during the month of Oct. but nothiing more than a low grade fever. She used the bathroom at 1000am ever day. No symtoms. She does not drink or smoke. Was doing weight watchers diet and exercising. By the 16th of Nov she was in the hospital in pain. A softball size tumor was removed from her colon along with 1/3 of her large and 1 foot of her small intesten on the 18th of Nov. The cancer has spread to her liver and at this point she is not operable. On the last PET scan it looks as if it is now spreding to her lung. She is Stage IV. She starts Chemo tommorro with the F5U and Oxiplatine + other drugs. Just enough time to recover from the surgery. We have changed her/our diet with the help of Terry Hall a Herbal Nutritionist and 14 year cancer survior. Terry has been great. My wife is scared as am I. I belive the doctors plan is to kill the cancer with the drugs to get her to a point were she is operable again. We have always been Christains and I look to that even more now than ever. He (The Lord) has been there for me in the past and I have survied a war. It is my hope that others will see your site and read these stories. I hope after they read them more people go get checked so they will not be in the position my wife and I are facing. I also hope to make some friends who are or have gone throught what we are faceing. Please feel free to E-mail me. I would love to hear from others to see what treatment or treatments worked for them. We need more positive stories and to support one another. Thanks Steve R Lopez

From: Holly
Email: jhrochell@aol.com
Date: Monday, December 27, 2004
Time: 11:08:58 PM -0500

Comments

I am so proud of you Molly. My name is Holly and I was diagnosed with stage IV Colon Cancer on 9/20/03. I am currently disease free and grateful every minute.

You are an inspiration!

From: Mary Botz
Email: jmbotz@hotmail.com
Date: Monday, December 27, 2004
Time: 10:58:18 PM -0500

Comments

Hey Molly~

My dad, Cy, just had his latest set of scans and he was supposed to go in for his chat with the doc. today, but had to cancel due to prior obligations. Just before Christmas, the doc. called and requested another PET scan. Now I am terrified that they got the other results and are concerned about something. He did have to have a PET scan last time, too, as there was a spot on the left lung that turned out to be nothing. So, I don't know if the PET scan is being ordered to be cautious or if we are going to be slapped across the face with a reoccurance. My question is, what types of scans to most people do normally...just the ct scan or do most people have the PET scan every three months, too? I hate this feeling of thinking it may be back. He feels great and looks great, but I don't know that that means anything at all. Let me know what you think...ANYONE!!!

From: sandy
Email: swayrn@aol.com
Date: Monday, December 27, 2004
Time: 02:36:03 PM -0500

Comments

WHAT A GREAT WEB SITE. MY DAD HAS BEEN BATTELING COLON\RECTAL CANCER SINCE LAST JULY 2003. WE ARE NOW DOING CHEMO AGAIN AND POTENTIALLY ANOTHER SURG. VERY STRESSFUL. YOU ARE TRUELY AN INSPIRATION. KEEP UP THE GREAT WORK. STAY HEALTHY. SANDY ER NURSE.

From: shirley thompson
Email: winner5882@comcast.net
Date: Saturday, December 25, 2004
Time: 01:23:33 AM -0500

Comments

i lost 9 units of blood. i never saw any loss of blood. i was so anemic i had to have a blood transfusion. now they have spotted a tumor in my small intestions. i will be operated on jan. 3. do you know of anyone with the same illness?

From: faith and hope
Email: graciela.nino@lackland.af.mil
Date: Wednesday, December 22, 2004
Time: 09:47:54 AM -0500

Comments

My sister who is 41, was diagnosed with Colon Cancer stage 4 Aug 04. She started her treatment last week of September. Treatment has been up and down. Some weeks are great others are not. Her treatment had to be terminated this week (she became dehydrated) so she is on fluids. Her chemo was decreased by 200 mg. Any words of incouragement, making her feel better, both physical and emotional...I am amazed when I walk in the treatment room to see so many patients doing well. (full of energy)why is she different.

From: Samantha Peters
Email: newrochellegrl6@aol.com
Date: Tuesday, December 21, 2004
Time: 01:41:10 PM -0500

Comments

Molly, you and my father have talked aften and i have even e-mailed you personally. Right now he needs a lot of support. It must be said that he is the strongest man I have ever known. He is the bravest man on this earth and he is worring me with his words of giving up. This is a man who has cut off the tip of his finger and kept working. This is a man who would stand up to anything and wind up one the other side of the hill. He is the most gentle man as well. He takes care of my brother when no one esle will. He wants to make sure all the time that we will be ok without him. That is one promise I cannot make to him. 1. will not be ok without him because he is not going anywhere. 2. If I could take his place in this winding line of cancer, I would just need a pen. I want him to live long enough to know that "his" story is amazing and that I for one love the person he is without all the extra stories that he thinks he has to tell to make himself sound more interesting. He is so smart and so imaginative and he doesn't see that. I have a lot of things planned for us and I will accpet no cancelations!!! I would like to write something to be posted on "Rolling to recovery" to honor my father's life and his ever lasting fight. Stuart Owen Ampel will not be knocked out in any rounds!!! Pound for pound dad, your'e the champ.

From: Terry Miller
Email: tlmiller@ravenna.portage.k12.oh.us
Date: Monday, December 20, 2004
Time: 01:57:24 PM -0500

Comments

Hi Molly, I just wanted to take this opportunity to wish everyone a Happy Holiday Season. Also, for those of us who need to have our colonscopies, to schedule it in an timely manner in accordance with our doctors' prescribed timelines. Mine is set for February 3, 2005. So, when you sit down for your dinner on the 2nd, think of me as I enjoy my meal of phoso-soda and seven up. Seriously, we all know that this can be our most important date of the year and our lifetime. Best wishes and good health to all!

Terry

From: J. Wagner
Email:
Date: Wednesday, December 08, 2004
Time: 08:49:03 PM -0500

Comments

Hi Molly,

The Chicago Tribune had a story today about your colonder! I zeroed in on it as I was recently treated for rectal cancer. There is absolutely no history of it in my family, and it came out of the blue when it was discovered during a colonoscopy. I wouldn't have had this test for another few years had it not been for my separate diagnosis of lymphocytic colitis. As a result, I had the tumor removed by a surgeon specializing in a transanal procedure in the very early stages. No incision in the abdomen!

I think it's great you are broadening awareness of this type of cancer. Keep up the good work!

From: kassim
Email: imranjee2@yahoo.com
Date: Monday, December 06, 2004
Time: 03:32:46 AM -0500

Comments

dear sir, iwas operated colon cancer adenoma cancel diagnose on 2nd june 2003 stent put at rectum last 20 months stent is present. Sir,it is long time is is dengrous or not and how many time period to stay sten in rectum please advise me.please reply me at email..imranjee2@yahoo.com lotof thanks.please reply me... kassim

From: Kim
Email: relay05@cox.net
Date: Thursday, December 02, 2004
Time: 12:47:06 AM -0500

Comments

Hi Molly, Heard of your "colondar" after our Relay For Life Youth Group attended a summit in Colorado this year in which a speaker mentioned your cause. I commend you on your strength, courage and humor in ensuring colon cancer becomes a household discussion. I lost my sister to colon cancer in 2002 at the age of 44. If we only had known about the symptoms then..... Thank you Molly, I wish you much success and continued health, you are a true inspiration and a true angel. Kim (Wendy's 'lil sis)

From: Barbara Collington
Email: TeacherBar@aol.com
Date: Thursday, November 25, 2004
Time: 11:07:46 AM -0500

Comments

I was diagnosed with colon cancer in February of last year. I am not as young as you young ladies. I was devastated to find out when I was sent for the first time that I had polyps. I had a biopsy that showed they were canceous. I have had chemotherapy. I am proud you all of you for helping spread the message.

From: LISA LOY
Email: lisa.loy@bydeluxe .com
Date: Tuesday, November 23, 2004
Time: 12:51:56 PM -0500

Comments

you are an inspiration to me. i was just diagnosed in june 2004 with stage 3 cancer.now i am going through chemo and i know its rough.i can say what you went through i am going through withit,friends and family it makes it so easier to fight and when you said you prioritize your life . there needs to be more info on nutrition and symptoms. i know from talking to other survivors sugar and alcohol feeds the cancer. please send me how you beat this terrible disease

From: Jocelyn Whytewood
Email: johnwhytewood@eastlink.ca
Date: Friday, November 19, 2004
Time: 12:15:32 PM -0500

Comments

My brother-in-law is getting a colostomy on tues. His won't be reversed. What will he be allowed to eat ? Thank-you for your time :)

From: URSULA
Email: udnatusch@aol.com
Date: Monday, November 15, 2004
Time: 04:21:37 PM -0500

Comments

Hi Molly! I am so glad that I found your site. I wouldn't mind being considered for the 2006 Colondar. I was diagnosed with rectal cancer a week before Christmas in 2003 at the age of 33. What a shock! After 2 months of chemo and radiation to shrink the tumor, I had surgery to have it removed. I had a temporary ileostomy for 5 months while my colon healed and I had another 4 months of chemo. I am happy to report that the ileostomy was reversed on September 23, 2004, and I am beginning to feel human again.

I would love to get involved with your organization in any capacity I can. I am all for earlier screening. It needs to be done.

I look forward to hearing from you. Keep up your great work. I hope I can be a part of it in some capacity.

Be Well, Ursula 34 from Connecticut

From: Barbara Sweet
Email: bsweet@adirondackchamber.org
Date: Monday, November 15, 2004
Time: 01:33:33 PM -0500

Comments

Hi Molly: I'm thrilled to hear that you'll be speaking at the luncheon on January 11, 2005, at the Queesnsbury Hotel. We have you scheduled to speak at 11:30 a.m. I am the staff person for the Network for Enterprising Women, and the members of this group are really pleased that you'll be part of the program. There will also be a healthy lifestyles program, as well as a talk by Benita Zahn. I look forward to meeting you. I'll be in touch as we get closer to the date. If you have any questins in the meantime please call me at 798-1761. Thank you! Barbara Sweet

From: Terry Carreia
Email: Jenttgg@hotmail.com
Date: Wednesday, November 10, 2004
Time: 07:04:38 PM -0500

Comments

Hi I had stage 3 colon cancer and the doctors told me either have surgery and receive a stoma for the rest of my life. One say I had a year to live, so with the help of the lord I wrote a book about what happen to me. What all man should know on authorhouse.com . I and cancer free without a operation and the doctor all think I'm a miracle.

From: Fredie
Email: SALERNOF@NJ.RR.COM
Date: Wednesday, November 10, 2004
Time: 02:11:53 PM -0500

Comments

Hi. I just discovered you're website and it has made me feel better to know that there are others out there in my age group (30 years old) that have survived colon cancer. This past summer I was diagnosed with colon cancer just before it had spread. I am currently receiving chemo treatments and am feeling ok thank god. I would like to get to talk to others in my age range that have gone through this experience. If anyone out there reads this please feel free to e-mail me. Thanks

From: helen bernard
Email: helon@midtel.net
Date: Wednesday, November 10, 2004
Time: 08:42:55 AM -0500

Comments

MOLLY I SAW YOUR STORY ON CHANNEL 13 LAST NIGHT I HAD A POLYP REMOVED THAT WAS ON MY RECTUM THE DOC ALSO HAD TO REMOVE PART OF MY RECTUM I WAS LUCKY SINCE HE TOLD ME IT WAS PRE CANCER I HAD TO HAVE A BAG FOR 2 MONTHS & I ALSO GOT A INFECTION WHICH HE SAID WAS COMMON I WAS VERY DEPRESSED SINCE HE TOLD ME BEFORE THE OPERATION I WOULD BE AS I WAS BEFORE WHEN I CRIED TO HIM HE GOT UPSET WITH ME & TOLD ME RECTAL CANCER WAS NOT SOMETHING I WOULD LIKE TO SEE SO I THINK WHAT COULD HAVE BEEN & IM THANKFUL BUT MY PROBLEM IS I CAN'T HAVE A NORMAL BOWEL MOVEMENT IT COMES OUT THE SIZE OF A PENCIL HE TOLD ME HE COULD TRY TO FIX IT WHICH MEANS ANOTHER OPERATION & I SAID NO WAY I AM AFRAID I WILL HAVE MORE PROBLEMS NOW I HAVE TO TAKE EXLAX SO I CAN GO & THEN I BETTER BE NEAR A BATHROOM BECAUSE WHEN I GET A CRAMP I CANT HOLD IT IN THANKS FOR LHEARING MY STORY I COULD GO ON & ON BUT I BETTER END OW I AM GOING TO BUY YOUR COLONDER I THINK IT S GREAT WHAT YOU DID THANKS THANKS AND GOD BLESS HELEN BERNARD MIDDLEBURGH NY

From: Bob Coli, MD
Email: rcoli@lifespan.org
Date: Tuesday, November 09, 2004
Time: 01:09:44 PM -0500

Comments

Molly, Congratulations on achieving and exceeding the 5-year milestone since your curative colon resection.

I missed your tour stop in Boston, but in view of the importance of the family history in CRC prevention I thought you might want to help publicize the availability of the free software that facilitates accurate collecting and sharing of the family history at: http://www.hhs.gov/familyhistory .

If only every American could be convinced to use this free tool and share the data with their doctor before age 50!

Best regards,

Bob Coli, MD 401-738-5012 (private voice)

From: Tracy
Email: tgilbert444@cs.com
Date: Monday, November 08, 2004
Time: 09:19:46 PM -0500

Comments

Just played in your tournament, and it was awesome. When I saw your name on your jersey I was surprised you were playing. (I thought it was a benefit for someone who was still ill) You are a real inspiration and a great Hockey player. Hope to be back next year to play against you again. Tracy #19 Susan B's.

From: David Randall
Email: info@myhockeyskills.com
Date: Monday, November 08, 2004
Time: 10:10:45 AM -0500

Comments

Hi Molly, I was excited to see your tournament in Clifton Park, NY. Raising awareness is key so that people might seek info to prevent cancer. Please visit knowthecause.com and review the books and resources. After studying hundreds of natural ways to prevent colon cancer other cancers and other types of disease. It is a genuine eye opener for those who love to see others win the battle or win it themselves. All the best to you and those you may help.

Sincerely, David Randall

From: erica spazioso
Email: espazios@nycap.rr.com
Date: Sunday, November 07, 2004
Time: 02:16:32 PM -0500

Comments

Molly, I lost my mother to this disease in March of 2004. before her diagnosis I was completely ignorant to this diesase. I thought it was an old person's disease. She was dx after a complete blockage and Er surgery just like you. Prior to that she had many of the sympthoms, all chlaked up to stress and it " just being her body". She would go days without a bowel movement, have severe abdominal pains, boughts of vomiting etc. In hindsight, I should have known. She had 5.5 ft of her colon removed and went through chemo. She was cancer free for 6 months nad then recurrence. As you well know, that is the worse senario. She lost her battle after 3.5 years. At 30 I had my first colonoscopy, determined to make sure this would not be a family disease. There was no history prior to my mom and I am an only child. I am very interested in helping you in any way that I ccan. Spreading the word, educating people and dispelling myths about this disease would be the ideal way of honoring my mothers memory. She died at age 58. Far too young, without doing all that she wanted to do etc. I don't want this to happen to anyone else. I am local. I live in Cohoes. I work for a majot local insurance company, so sadly I know that there is still much to be done. I also do part time radio work and I am engaged to a major local afternoon drive talk show host. I think I could bring a lot to your cause and I would love to help. Erica

From: Holli
Email: rholli@hotmail.com
Date: Saturday, November 06, 2004
Time: 08:39:37 PM -0500

Comments

Hello. I am a 28 years old. I live in Upstate NY. I was diagnosed recently with cancer. It was in my appendix. When they tested it, they found it was necessary for me to have addition surgery to remove part of my small and large intestines. I went through both surgeries within 5 weeks. I have three incisions and four puncture holes. I was just released today from my third trip to the hospital where I spent a week due to infection and a hemotoma. I write with desperate need of help to understand what I can eat without throwing up and feeling so sick. If you have any suggestions to help survive the recovery process it would be of great interest to me as there are times I lose faith that I will ever feel normal again.

Thank you, Holli

From:
Email: ram2khadka@aol.com
Date: Friday, November 05, 2004
Time: 04:38:24 AM -0500

Comments

Dear Molly and all

My wife have colon cancer iv and she is at Nepal.I spend all of my money for her chemo.I donot have any money left for her future chemotherapy.Please anybody any organization can help me for her treatment,fundrise please help me.I am here at Raleigh,North Carolina 919-859-7109

From: Jalani
Email: ididnadoit@aol.com
Date: Friday, November 05, 2004
Time: 12:38:22 AM -0500

Comments

I too have been diagnosed with colon cancer. I think it's at stage 3 so far; nowhere else has been detected. my entire right colon was removed 4 weeks ago. I just had a pt scan and a ct scan done 3 days ago and I don't know what I will do if it's stage 4 now. I'm only 31. I'm ready to settle down, get a wife and have kids. And now all of my dream must stop ??????????

This isn't fair... What I thought was food poisoning was really a six inch tumor in my large intestine....

From: Jessica Schultz
Email: Jessica.Schultz@cancer.org
Date: Tuesday, November 02, 2004
Time: 04:32:31 PM -0500

Comments

Hello. Your story is amazing and inspirational. What strength it must take to go from a cancer diagnosis at such a young age and be at the place you are now. The education you provide about colon cancer is so valuable and will lead to many lives being saved through awareness and early detection.

I work for the American Cancer Society and I am also a representative on the Douglas County Colon Cancer Task Force. We are bringing the Colossal Colon to Omaha, NE in February of 2005 and I just wanted to thank you personally for allowing us to hold such a unique and educational event in our community.

From: Anne Brady Moore
Email: amoore@radford.edu
Date: Thursday, October 28, 2004
Time: 02:10:41 PM -0400

Comments

Molly- I got my Colondar and love it! Wanted to let you know you did an awesome job with it! Hope all is well! Love, Anne Brady

From: Gregory Davis
Email: gdavis@apple.com
Date: Wednesday, October 27, 2004
Time: 02:13:40 AM -0400

Comments

I've just spent the last hour browsing the site. Hanna has never told me what inspired her. I found it sad and I'm also glad that I can help in a very minor way. (I work for Apple Computer and I've been helping Hanna out with her Powerbook.)

Anyway I traced the link back to the site after she e-mailed me about getting her some CD's for a "backup" computer that she needed. I've found the site very informative and I'm thinking about seeing my Doctor about some ongoing rectal bleeding (hopefully just an anal fisher) My Mom has them too. But I've been known to have stomach cramps after eating jalapenos or drinking a soft drink early in the morning. I've always just thought the cramping was brought on by caffeine creating peristaltic motion in the bowl and well the peppers? What can you say about eating lot of peppers.

Still probably should get it checked out to be on the safe side.

If I hadn't read all the models stories from the colondar I'd probably just go on doing what I've always been doing. Nothing!

Thanks for the information!

From: cindy janssens
Email: cindyj@mts.net
Date: Tuesday, October 26, 2004
Time: 11:01:17 PM -0400

Comments

My heart goes out to all the families involved in this cancer. Here is my story and question I need insight into: my Mom who is 65 and healthy (we thought) has just been diagnosed with adenocarcinoma of her rectum or coloretal cancer. Her tumor is very low, 2-4 cm from the end, and fairly big as it is blocking off part of the passage. We have been told she will be in to have surgery in 2-3 weeks which is not very long to wait. Thank heavens. However he may want to do it laparoscopically if possible. We had a CT scan today which will help stage the growth and see if it has spread. This will also help the surgeon decide how to operate. Has anyone else had surgery this way and how has it worked. On doing some reading I understand it may not be recommended as they may not be able to get it all this way. It sounds easier than a large incision but we're not sure. Thanks for you help. Our prayers are with you all.

From: Steve
Email: steveborgford1@comcast.net
Date: Sunday, October 24, 2004
Time: 03:44:41 PM -0400

Comments

Hi my Mom recently just had a colonoscopy and it was found that she had a large polyp. They also found spots on the bone. I am absolutely paniced beyond belief that somehow this is stage IV colon cancer. I just don't see how because she has been in very, very good health plus she is a kidney/pancreas transplant patient who is given all sorts of tests monthly. My question is do late stage colon cancer present symptoms or is it usually symptomless? Thanks,

Steve

From: Dani
Email: mermaidinpink83@yahoo.com
Date: Saturday, October 23, 2004
Time: 11:37:48 AM -0400

Comments

Its been a month now since I lossed my dad to colorectal cancer. Even though time passes...it doesn't seem to get any easier. I am twenty one years old and I am a Senior at a local University in San Antonio, TX. I came across your story as I was surfing the net and I found your story to be the one that i've been looking for. See, since last year I have been trying to get something started at my school to educate students and faculty about Colorectal Cancer. I have this "need" to make people aware. When I tried to contact school officials...well the campus activity office...and others..I was told that the reason Colon Cancer isn't made into a huge thing is because it rarely affects people my age. Of course I was enraged but being that my dad wasn't getting any better at the time I had to put my battle on hold. But, now Im ready. Im doing my research ...Im getting free material..and I want to be ready for the month of March. I want to present your story and others like the women in the calendar. I want my school to be aware. I know Cancer doesn't discriminate and others need to know that too. Please let me know if you have any tips..comments or....words of wisdom!!!

From: Mary Cirincione
Email: maryc03@aol.com
Date: Friday, October 22, 2004
Time: 10:51:07 AM -0400

Comments

Molly- I'm a friend of Joe Nudi's, who I understand you know from coaching AYHA MiniMites in Glens Falls. Recently, I was working in Reston, VA when a coworker showed me your Colandar and told me about their friend's daughter Erika who is Ms. Nov. I was amazed by your Colondar and the work you've done. "Hat's off to you". It is a small-small world as we learn every day how our lives intermingle with so many people. Some time ago, I was having some health problems and had a colonoscopy and other tests done, which all came back fine. It was never determined what the problems were caused from, but I do watch my diet and try to pay attention to my body's messages. I am 52 yrs old and Joe and I knew each other from Grade School & High School. We started dating at our 30th Class Reunion. I have 4 grown children and 8 grandchildren and communicate openly to them about health issues with a belief that we need to be open and help educated each other. I'm sure you're very proud of the work you do and you should be. Keep up the great work and you have our support! Mary Cirincione & Joe Nudi

From: Brian Smack
Email: titleistsmack@comcast.net
Date: Thursday, October 21, 2004
Time: 03:12:04 PM -0400

Comments

Hey, Molly

Just talked to my mom and she was telling me what you've been up to up there. I think that is so awsome. I would love to hear about your hockey team. Also I've been skating again and am loving it. Also by the way I live in Annapolis, Maryland now.

Hope to hear from you,

Brian Smack

From: denis
Email: blacktop72@iwon.com
Date: Sunday, October 17, 2004
Time: 08:39:18 PM -0400

Comments

molly, just because you or others have scars does not make you less attractive after seeing the paper, poststar 10/17 i find that you are attractive and beautyful, i hope to someday meet you and wish you luck, you are always welcome at my shop, blackvelvet paving!! i will pass on the word!!

From:
Email: writeforpills@tripod.com
Date: Sunday, October 17, 2004
Time: 02:26:27 PM -0400

Comments

Like what you've done to the place. It's always cool to keep poppin in from time to time and see what new and unusual stuff you got a goin. See ya! Mike

From: Amy Hargrove Goldsbury
Email: goldsbury@netzero.net
Date: Saturday, October 16, 2004
Time: 11:26:15 PM -0400

Comments

Hi Molly! I was diagnosed with stage 3 colon cancer at the age of 29 (Dec. '03) just 18 months after giving birth to my son, Ty. I had surgery and six months of intense chemotherapy. I was done in June and feeling great now. I have been amazed at the outpouring of love and support I have recieved and now that I am feeling well would like to give back!

I was given the Colondar by a friend and think it is great. I will be ordering more for my surgeon and others :) I have been looking for some way to get involved with the fight against colon cancer and love your wacky ideas. I am out in California--any ideas of ways for me to get involved? thanks for all you do and for your great website! Amy

From: Carol Connell
Email:
Date: Saturday, October 16, 2004
Time: 11:50:52 AM -0400

Comments

It has been 8 days since my first treatment, CPT-11, Leucovorin and 5-FU. Next month they will add Avastin. I felt great for 2 days and then the side effects kicked in, mostly nausea and weakness. I bought Betty Crocker's Living With Cancer cook book. For those of you that have not seen it, it is great! The book is color coded for foods to eat for nausea, fatigue, taste, mouth sores, constipation, diarrhea and much more. I think planning ahead and sharing will help all of us get through this. I was told that I will probably lose my hair, not important to me but I am sure it would be devasting to a younger person. I am lucky that my daughter has a beauty salon and has helped me wigs and turbans. Check with your insurance company, mine will pay for 2. A good web site is www.chemosavvy.com is a great place to see wigs, hats and other head dress. Also check to see if anyone has get togethers for make up sessions that make you look and feel better. I will share what new things I find and hope that everyone else will too. Today is a good day, I thank God for that.

From: Bonnie
Email: palmer@cfl.rr.com
Date: Thursday, October 14, 2004
Time: 03:43:02 PM -0400

Comments

Hi, I was told that I have the irritable bowel syndrome. I was put on Zelnorm. It seemed to be working fine, but I Had to cut the pill in half, for I have an irritation in my stomach, and the full pill, caused me stomach problems. I have been begging my doctor to give me a colonoscopy, but he kept saying that I just had one in 00. so one day, when I went to the bathroom, the water in the bowl was red, I immiediately called the doctor, and they skeduled a colonscopy. before they put me out, the doctor came in, and said to me, that we probably won't find anything, so this will just be, a routine test. when I awoke, and the doctor came to me, and asked what have I been doing the last 4 yrs. He told me, he found 16 polyups, and removed them. My health ins is not the greatest, so sometimes I feel like they don't want to bother with people, with not so great health ins. The nurse called, and said they were benine. Said they would do another one in 5 yrs. I'm soon to turn 50. I seen somewhere you should have one every 2 yrs, once you reach 50. On my follow up visit, I'm gonna tell the doctor, what I think of him. Any suggestions? thanks, Palmer.

From: Amy Flesher Katz
Email: amybkatz@comcast.net
Date: Wednesday, October 13, 2004
Time: 12:07:31 PM -0400

Comments

Molly, It's been years since I saw you play ice hockey when you were in school in Colorado and so much has changed. But one thing remains the same. I am so proud of you for everything you have accomplished. I think of you and your family often.

Love, Amy

From: Terry Miller
Email: tlmiller@ravenna.portage.k12.oh.us
Date: Tuesday, October 12, 2004
Time: 07:47:49 PM -0400

Comments

I strongly recommend the 2005 Colondar to everyone. The physical beauty of all of these women is only matched by their bravery and perserverance as they each faced "beast". Each woman wears a scar that serves as a constant reminder to all that cancer can strike at any time and at any age. I, too, have the scar although I must say it's on a much less attractive and older package". Molly, my only regret about the Colondar is that February only has 28 days. Congratulations to each of you. You are all beautiful!

From: Charlotte Allen
Email: callen@hendrickhealth.org
Date: Friday, October 08, 2004
Time: 03:20:37 PM -0400

Comments

I am an ET nurse in Abilene, TX and ran across the Colossal Colon. I think it looks like an excellent teaching tool. I am going to see if our cancer educator would be interested in bringing it to Abilene. Would that be a possiblility?

From: adele
Email:
Date: Wednesday, October 06, 2004
Time: 03:24:09 PM -0400

Comments

hi, i have just turned 17 years old and have recently had a right hemicolectomy when i was 16, (2 months ago). i had cancer when i was 13 and it spread around the area after the first operation. im clear now though after the treatment i recieved. i find it so helpful reading and listening to other people's stories and it helps me to think how lucky i am that i recieved the right treatment and that there are so many more people like me. thank you molly for your story, i hope that more people read your story and be inspired to keep fighting! never give up!

From: Maria Timiraos
Email: coloradocubana@aol.com
Date: Friday, October 01, 2004
Time: 11:59:01 AM -0400

Comments

Hi Colon girl,

My name is Maria Timiraos and I am about 1 year out from surgery and treatment for a stage 2 T3 tumor found just below my sigmoid colon. The tumor was actually in my rectum.

I am interested in what you are up to and would like to hear from you. I was 44 when the cancer was discovered. I turned 45 three weeks before my surgery. I am now 46. I am grateful to have had symptoms which led me to receive a colonoscopy at the tender age of 44. Had I not had some suspicious rectal bleeding, I may not have had the procedure until the recommended age of 50. By then I would surely have had stage 4 cancer and probably be dead or dying now. I believe the average person has no idea about the common occurance of colo-rectal cancer in young people and that education is vital to help persons under 50 understand that this is not a disease of middle aged or older persons by any means.

Drop me a line...

Sincerely,

Maria Timiraos

P.S. I would be interested in being a calendar girl for 2006...

From: Gene
Email: ebeard@dhs.gov
Date: Thursday, September 30, 2004
Time: 12:28:43 PM -0400

Comments

Hello, I'm scared,devastated, and dealing with life head on. I going through a seperation, my mom was diagnosed with stage four of colon cancer. I have put all attention on MOM and hoping my wife will be supportative with our efforts. I have two beautiful girls and miss them terribly. I feel I am at ropes end sometimes, but how I manage to stay focused I do not know. I have turned everything over to the Lord as I know that I do not control anytthing. Please pray for me as I feel at this time its all I have for my family and Mother

Love to you all, Gene

From: James Taylor
Email: opie225@fidnet.com
Date: Sunday, September 26, 2004
Time: 09:33:12 PM -0400

Comments

My wife was diagnosed with stage 4 colon cancer with metastasis to her lungs. That was in Oct. of 2002. She is doing great today! She really wants to meet you. Hopefully we will make it to Rolla Mo. on Oct. 23, 2004. You and your website are a great encouragement. Thank you for bringing this to should great national attention. James Taylor

From: Sue Davis
Email: scdavis@nycap.rr.com
Date: Sunday, September 26, 2004
Time: 01:35:44 PM -0400

Comments

Hey Molly, How've you been? I think the calendar sounds like a great idea. I ordered mine. Can't wait to see you in it in Feb. Hope all's going well with you. Will you be doing Mon. nights with the Foxes? Sue

From: Shelli
Email: shelliperez@earthlink. net
Date: Saturday, September 25, 2004
Time: 11:22:01 AM -0400

Comments

My step dad Ron just has a colonoscopy Thursday and has a large stigmoid cancerous mass. He also has Diverticulosis to the extreme. He has had pain in his side for about a year. His grandmother died of colon cancer. We found out that the cancer is in many of his lymph nodes. I'm not sure what to expect from here. I do know that he is feeding out of tubes and that he will start chemo right away. It appears to pretty grim at this point.

What should I expect? The doctor even told us that it looks very bad. Ron had so many infected nodes he could not remove them all.

From: Bobbie
Email: roberta.marsh@att.net
Date: Saturday, September 25, 2004
Time: 03:33:19 AM -0400

Comments

September 25, 2004. I am 54 years old and recovering from surgery, Aug. 11, 2004. I was diagnosed with colon cancer after a colonoscopy/endoscopy on July 26, 2004. I have had a severe pain in my side since Dec. 2003. The pain would come and go with no apparent reason. Every time the pain would flare up, I would go to the doctor, had several CT scans, nothing was appearing. He said he thought maybe it was a hernia. My friends and family kept telling me that I looked so tired all of the time and when my coworkers said that I looked bad, I really started to worry. It wasn't until I started to run a temp. that something really came to reality. I had a grapefruit size tumor in my colon and had attached to my small intestine and my stomach. So with part of colon removed, 3 ft. of my intestines, part of my stomach removed, plus my ovaries, I am feeling better and trying to keep a very positive attitude. I have always been a picture of health and never, ever expected anything like this. But, it can happen to anyone. I start chemo within the next 2 weeks. I don't know what to expect. I just know that when I read different things on the internet, it doesn't make me feel real happy. I am greatful for the diagnosis and have confidence in my medical team.

To anyone having this terrible disease, please have faith and stay as positive as possible, no matter how difficult it can be. I think that is part of the battle.

From: Theresa Southern
Email: tnecvol16@comcast.net
Date: Thursday, September 23, 2004
Time: 09:22:01 PM -0400

Comments

Molly, I found your website by mistake. I was searching the meaning of nutropenic and somehow found you. I have a 7th grade student, a little girl named Stephanie diagnosed with rhabdomyosarcoma. She is having a rough time of it right now. She has had 85 radiation treatments and has just begun 42 weeks of chemo. She has been a very ill little girl. She is in Children's Hospital in Little Rock, Arkansas. I thought maybe you could email her and give her some encouragement. Her website address is http:www2.caringbridge.org/ar/stephanie/index.htm.

I too faced a scare with colon cancer. My dad died in 2001 with colon cancer. In 2003 a colonoscopy revealed a polyp as large as a ping pong ball. I was fortunate. It was benign. Like you I encourage everyone I know to what for symptons and do something about it.

Thank you, Molly, for this website. Maybe I was meant to find it. Just tell Stephanie Mrs. Southern told you to get in touch

From: Maureen Bernstein
Email: brunchesnmore@hotmail.com
Date: Thursday, September 23, 2004
Time: 09:32:25 AM -0400

Comments

I have several relatives and friends who have now or have had colon cancer in the past. I think this is a wonderful thing you are doing , bringing awareness to more people! Keep up the great work! Maureen Bernstein

From: jacqueline renner
Email: jrenner@nycap.rr.com
Date: Tuesday, September 21, 2004
Time: 10:43:08 AM -0400

Comments

Molly....I just read your story here on the website and even though I knew who you were, remember when you skated cross-country and now know you personally, it still moved me to tears. Keep up the great work and keep spreading the word.

Fondly,

Jackie Renner

From: Chris
Email: cdurs@yahoo.com
Date: Monday, September 20, 2004
Time: 11:30:45 AM -0400

Comments

Hi Molly, my mom was just diagnosed w/ Colon cancer at age 57. We don't know the stage yet, but she is meeting with doctors at the University of Pennsylvania today. Just looking for support/prayers.

From: Ron
Email: gannet@cox.net
Date: Wednesday, September 15, 2004
Time: 08:55:38 PM -0400

Comments

Hi, Molly, I met you as one of the survivor volunteers at the opening day of the Tour in Washington D.C. and wrote to you a little while ago. I was searching for information for my daughter a student at Virginia Tech who is giving a speech class talk on colon cancer and looking for information to hand out. Though she seldom expresses her feelings directly, she organized a Relay For Life team while in 11th grade and wants this talk to be more than just a class assignment. Can you suggest as source for information about CRC and screening that she can provide to her class? I may suggest that she view your site and also mention the fact that CRC is not just a disease for those of us over the age of 50.

Keep up the important work you are doing.

From: Barbara
Email: coolfaith7@msn.com
Date: Wednesday, September 15, 2004
Time: 01:53:37 AM -0400

Comments

You are very brave. The awareness you bring to others is admirable. I am a stroke survior with Brocas aphasia and apraxia of speech, another little known or not talked about condition. My xhusband was just diaganosed with colon and liver cancer. He will start chemo on the 27th. There is hope I can see that by your testamony. God has something in store for all of us. You be educating folks about this type of cancer. God bless and please keep up the good work.

From: Mary Botz
Email: jmbotz@hotmail.com
Date: Monday, September 13, 2004
Time: 08:49:57 PM -0400

Comments

Hi everyone...

I am writing to see if anyone has heard of or tried something called Supergreens...it is a drink that is supposed to balance your pH levels and make you healthier. I have heard and read many testimonies of people who have had cancer that use this after or during chemo as a preventative thing, and I just wondered if anyone out there has information on it. My dad was diagnosed in March 2003 and has had clear scans since...It is hard to know that the chemo~the preventative part of his treatment is over. Just looking for thoughts..................... Thank you!

From: Carol Connell
Email: cconn1037@aol.com
Date: Sunday, September 12, 2004
Time: 09:08:15 AM -0400

Comments

I was diagnosed with stage 4 Colon Cancer in July 2004 that has spread to my Liver and Lung. I had a resection done on Aug 20th and had 2 feet of my Colon removed and will start Chemo Oct 6th. The first hint of a problem was 5 months ago when I started having pain in the upper abdomen.I thought for sure it was an Ulcer and my Doctor thought it was Gall Bladder problems. I can't even think of the words that would explain the horror I felt to hear I had stage 4 Colon Cancer. My prognosis is 18-20 months. I am 62, female and work full time.This site is a God sent, it has made me realize how many young people are going through this and how many have lost the battle. I have a great husband, a loving daughter and 2 grand daughters, after reading these stories I will be grateful for the time I have had and stop dwelling on the time I have left. Thanks, Carol

From: Paska
Email: shiptar@optonline.net
Date: Friday, September 10, 2004
Time: 09:27:22 AM -0400

Comments

Thank you for sharing your experience. I too am a survivor and I'm very fortunate that my doctors quickly responded and helped me detect my cancer early - stage 2. I'm going back to work in about 3 weeks and feel very blessed. I too feel people need to be more aware and as I get back to "normal", I want to help. When I was told I had cancer, I told my doctor I was way to young (46) for this and that I had been soo good with high fiber, oatmeal, exercise, never smoked and only a social drink on a limited basis. My goals since my surgery are changing and my viewes of what is important are evolving each day. Keep up the good work you are doing and if there is anything I can help with don't hesitate to send me an email. My family lives in delmar, ny and balston lake area.

From: Naomi
Email: NaomiB1967@aol.com
Date: Sunday, September 05, 2004
Time: 01:55:51 AM -0400

Comments

Dear Molly.

Just came across your site while doing some browsing. I too have colon cancer. I was diagnosed at the age of 35. I have Stage II, had surgery, 10 months of chemo which ended this spring. I am fairing really well. Feeling very positive. Glad to hear you're doing great. I was horrified about having colon cancer. One of the things that scared me the most was how young I was to have it. I'm seeing that age isnt really relevant in the chances of survivorship. I waited so long after noticing that I wasnt feeling great. How could I have guessed that it was cancer. I urge everyone to not be complacent with their health. My big regret.

I feel great though, very upbeat, feeling good about beating this and being very positive.

Stay well and many wonderful wishes!

Hugs! Naomi from Hoboken, NJ

From: Angela
Email: angela@OakHavenRealty.com
Date: Sunday, September 05, 2004
Time: 01:10:39 AM -0400

Comments

For anyone out there that may need to have a colectomy (abdominal surgery) to remove a large pre-cancerous polyp or cancer, I would like to share my experience. I remember that this was my first major abdominal surgery and I was terrified...couldn't sleep the night before. But I want you to know that it was not as bad as I thought it would be and I am so glad that I followed through and had the surgery.

Colon cancer seems to be one of the most treatable cancers. Don't be afraid to have the screenings or even surgery if it's necessary. It's really not as bad as you think. Do your homework and make sure you find a good doctor and good surgeon. Ask a lot of questions...write them down before you go to see your doctor. Any good doctor won't mind answering a few questions. Do what you need to do to stay healthy and alive. You won't regret it.

Also, I had a young lady tell me that she mixed her colonoscopy prep with Jello....chilled it and ate it with clear liquids. I'm not sure what type of prep she had...and don't do this without asking your doctor...but by all means ask your doctor if this is possible, because it sounds much easier than drinking a gallon of the awlful tasting stuff. Good luck and God bless to everyone!!

From: rhonda Williams
Email: rhonda@rhondawilliams.com
Date: Sunday, September 05, 2004
Time: 12:05:03 AM -0400

Comments

Hey Molly! It has been a long time since I've written you but I thought I'd tell you your efforts have made a big impact. I have become a volunteer lobbyist for the ACS of Arkansas who is trying to pass a Colon Cancer bill here in Arkansas. This next week I go to Washington with them. You have done a great job and continue to do so. Keep up the good work. :)

Your old friend from Little Rock AR

Rhonda Williams

From: vidya
Email: vidyabhilare@hotmail.com
Date: Wednesday, September 01, 2004
Time: 02:04:14 AM -0400

Comments

Hi

My bowels condition has changed for about 6 months? I had a Blood occult test but it has come negative. What do u suggest? why this has happened? what could be the reason? What I need to do?

From: Patricia Roberts
Email: proberts6445@comcast.net
Date: Wednesday, August 25, 2004
Time: 08:55:03 PM -0400

Comments

Just read your story and wanted to say "Way to go". I wish there was something I could do to help others going through colon cancer survival. I was diagnosed in April, this year with colon cancer on both sides of my colon, one being a 3rd stage tumur 5 cinemters,(which had spread only to one lymph node) and the other a cancerous polyp. I had surgery on May 10, 2004 at Piedmont Hospital here in Atlanta. They removed about a foot of my colon on each side and resectioned. I had 6 initial chemo tmts., FU-5 and leucorvorin which after the 6th treatment, I developed the nutropenic condition and was hospitalized for 8 days. I am now undergoing radiation treatment (25 of them) and have about three more weeks to g, and then back to some sort of chemo again, which will wrap up the treatments. One of my biggest concerns is what to eat???? I've read numerous accounts of what cancer patients should eat, but I have to be on a low-residue diet during all this, and believe me it isn't a healthy diet by any means. Most of the books I've read, deal with other types of cancer patients, so I guess they can eat whatever they want to. I was also told by my oncologist, NOT to mega dose on vitamins, that it interferes with the treatments. Everything else I've read recommends high fiber fresh fruit, veggies, etc., most of what I cannot eat. I just wondered if other colon cancer patients during treatment is having or had the same concerns about their diets. AFTER all my treatments are over, I do plan to follow the vegan diet, etc. Do you have any suggetions and if so they would be greatly appreciated. Best of wishes, and congrats on the awards!!! Keep up the good work and remember, God is always there for you, He has been for me, and it has given me so much peace.

From: Wow
Email:
Date: Monday, August 23, 2004
Time: 10:02:47 PM -0400

Comments

I am amazed at everyone's strength. WOW you are all amazing.

From: knew
Email: randknew@aol.com
Date: Sunday, August 22, 2004
Time: 10:51:45 PM -0400

Comments

my 43 yr. old female cousin just had surgery & has colon cancer. a large tumor was removed just 2 days ago & the Dr. says it has spread to her lungs, liver & ovaries. they plan chemo in a couple weeks but no one is saying if the chemo has any success for what sounds to me like stage 4 colon cancer. is there survivors of this cancer once it has spread? thanks.

From: Judy
Email:
Date: Wednesday, August 18, 2004
Time: 05:31:37 PM -0400

Comments

Hello Molly,I think it's so very important what you are doing. I had a Dr. after another type of surgery, ask me to please go have the Colonoscopy.I just did it. I had multiple polyps, I didn't know were there. I had surgery removing a third of my colon. If I had not had the test I could very well be on the road to a very bleak future. I had only a few symtoms but didn't realize a problem was there. The test is so simple, easy & quick it's a shame people won't go have it done. I would advise anyone to do it especially if you are fify or over.I was blessed & lucky I CAUGHT IT IN TIME!

From: RoseMary Sullivan
Email: rmsullivan33@hotmail.com
Date: Wednesday, August 18, 2004
Time: 04:15:43 PM -0400

Comments

Hey Molly, Just read in the Clarion Ledger / Jackson, MS that your exibit "Coco" will be there this week. I plan to come. I think what you are doing is a very good thing. I'm 37 years old and was dianosed with rectal cancer this past January. After surgery and removal of 18 inches of my lower intestines, I'm doing fine and I feel great. I believe that the Lord took my doctor's hands and guided him through the surgery but if I had not went for a checkup when I did.....then I probably would not be the survivor that I am today. Prayers are answered. Keep up the good work...

From: Beverly Lewis
Email: BevLewis01@aol.com
Date: Tuesday, August 17, 2004
Time: 06:02:05 AM -0400

Comments

Hi Molly, I'm writing because I have a friend who is 66 yrs of age. Later this morning he will be going to have a very large polyp removed from his colon, yesterday he had several small ones removed. From what I understand he will be taking oral medication to burn the three masses on his liver.I pray for his recovery. I'm so happy you have a success story. GOD BLESS you for giving us a place to unload and share. It is amazing how many people are going through this experience. Again I say thank you.

From: Cherie
Email: spandersons@paradise.net.nz
Date: Saturday, August 14, 2004
Time: 04:27:25 AM -0400

Comments

Hi Molly, I love your site & commend you for your courage over the years :) My daughter is 15 & a half years, we have been having tummy troubles with her for 4 years. First they told her she just had something viral, one month later they took her appendix out, then they left it un-explained for a year stating it was hormonal given her age, then I put my foot down and we got in to see a specialist (pediatric) who decided it would be allergy (stomach) and done tests for that, then couldnt really explain it, so we saw another specialist, who labelled it IBS, that was early this year. We have continued with our family dr too, who has recently found a lump in her tummy but reckons it was poop, so they cleaned her out, then after 2 weeks he could still find that tender spot, so we got sent to a gastro specialist, and he too stated he thinks she's got IBS, and put her on metamulcil and thats it go home!! She is still experiencing her tummy cramps, and some times she rolls around in pain, my family have a history of colon cancer (my g/father and his sisters) and one of my great aunts has that triculvits?? and so does her cousins, plus my aunt has had colon polyps and my sister has just had polyps in her gallbladder, should they be looking at my daughter more seriously??? Id appreciate your thoughts on this, I live in New Zealand if you have any recommendations. Thank You

From: Karen Charlesworth
Email: kcharl5037@netrax.net
Date: Friday, August 06, 2004
Time: 06:24:59 PM -0400

Comments

Hi Molly,

I just had another colonoscopy today. 13 years after my colectomy. I am now 50 years old and ran my first half-marathon, placed in several local races and am doing tremendous!

Here's where I need your help! I have two daughters, 24 and 26 years old. Neither are listening to my pleas for them to get a colonoscopy as my surgeon recommended. It is heartbreaking, to say the least. My daughters were the ones who inspired me to be courageous enough to challenge the once a week for a year chemo after the colectomy (I had stage 3 of 4 colon cancer) and misdiagnosed for nearly a year with depression.

I know my daughters suffered terribly seeing their very active mother compromised by the chemo. I do know they are proud of my accomplishments and how far I have come in recovery. Next month, I will again do the half-marathon and serve as an Ambassador for the American Cancer Society's Celebration on the Hill relay for life event. As a side note.. I like to RUN the Relay For Life because being confined to the couch for a good while motivated me to tell myself that when I had the energy to run, I was going to do just that! I run hard at these events because it is my rebellion against a disease that would compromise my energy and my life.

I would like some advice on how to convince my daughters and my friends that I run with (who are in their 50's, some of them!) to get a colonoscopy. My surgeon suggested a colonoscopy party - I love the idea!! His name is Dr. Andrew Richards and anyone would love this guy..he's great! He said he would call my daughters and try to convince them however, I do know my youngest daughter Kerry, will be very resistant. Please let me know your thoughts on this..you have the creativity and motivation my daughters would respond to.

Thank you so very much! Karen Charlesworth

From:
Email:
Date: Monday, August 02, 2004
Time: 12:06:13 PM -0400

Comments

Molly, I enjoyed reading your amazing story. I know what it is like when time stops and the doctor tells you, "it's cancer." At 40 I had kidney cancer in 1993. I had my left kidney removed. I also lost my dear father when he was 56 yrs old to Colon Cancer. I had my first colonscopy in 2002. I now need another since I have been experiencing some signs of Colon cancer. My fanily doctor also felt something on examination like a polyp or lesion. I am so scared and I have to wait until 8-19-04 to get it done. So I had the need to reach out. Thanks for listening.

From: Al
Email:
Date: Saturday, July 31, 2004
Time: 10:50:58 AM -0400

Comments

Hi All:

I had a clean colonoscopy four years ago. Then, less than two years ago I had a stomach bleed and my Dr. did endoscopy (top side), He also went the other way, but, unfortunately, only sigmoidoscopy. Never found a polyp but he wasn't high enough.

Then, this year, after dragging out tests for two months (upper GI showed nothing, Colonoscopy incomplete because the cleanout hadn't worked), I went for a barium enema. It showed I was largely blocked in the ascending colon. Waiting now for another colonoscopy and bisopsy.

What I want to say is God made a Universe with an infinity of possiblities, so forget the statistics. A five year survivor had a 100% chance of survival regardless of what the statistics said at the start. Keep up your spirits and remember that "Things impossible for men are possible with God". So keep praying, and keep after the Drs. to make sure they're paying attention.

From: sandra
Email: alfred.verdoni@sympatico.ca
Date: Friday, July 23, 2004
Time: 11:52:28 AM -0400

Comments

I had forgot to mention that my uncle is now at stage 4 and i want to know all I could know about this. If any of you have something for me I would be very greatful

From: sandra
Email: alfrd.verdoni@sympatico.ca
Date: Friday, July 23, 2004
Time: 11:43:04 AM -0400

Comments

my uncle went in to the emergency with constapation problem and a couple hours later they tell him he has a mass in his colon and has to operated right away. after scan after scan they also tell him they see liasions on his liver and are 99% sure that the tumor and the liasions are cancerous.after 2 weeks of not eating they open him up to rmove the tumor and at the same time check his liver. after the operation the doc comes out and says the removal of the tumor was a sucess but the tumors are big and spread out. after a couple more days of testing they tell him that the cancer has now spread from the colon to the liver to his lymph nodes. the most agrivating thing about all this is that in the last year my uncle has been operated twice. once for the gullblader and most recently for hemroids. The week before he went in to the hospital with his constapatin problem he found that the are of the liver was aliitle painful and went to see the doctor for blood tests. The doc took bloods and said that the functioning of the liver was fine. before my uncle's operations a colonoscopy was done and the doc told him he had aliitle bit op polups but nothing to worry about.Yesterday my uncle went to see the chemo doctor and they told him they have try at least three different types of strong chemo ( meaning if the first one doesn't work or the second...) but it will never cure him. I believe that means it is just going to make him live alittle longer. My father and mother don't want to belive that but in the passed year 3 of my granparents died. The parents of my uncle (my dad's parents) and my mom's dad and my dad's mom death was a result of a doc's mistake and now my uncle's suffering until the day he dies is also the reult of a medical mistake. Who do we trust to take care of us?

From: Pat
Email: patpml@ameritech.net
Date: Thursday, July 22, 2004
Time: 10:54:51 AM -0400

Comments

Spent 5 days in the hospital through the Er with a severe bout of diverticulitis at the end of May with another bout just last week. I frequently have serious pain on my left front side not far from my navel and what seems a constant burning across my lower belly especially while sitting. Surgeons were surprised I didn't rupture during initial attack and have advised surgery after colonoscopy and reduction of inflamation. Gastroenterlogist tried a colonoscopy but was only able to get to the distal sigmoid due to severe looping this past Friday. What a bummer! I was totally prepped both physically and mentally even after hearing a woman scream and I mean scream like she was in a torture chamber. Doctor said for specific medical reasons he could not give her sedation--she was extremely heavy--must have been over 350#. My question to anyone is...I've scheduled the air/barrium for tomorrow, but I am on pain meds for my side--lost control of the pain on Monday and couldn't get itback--and anti-spasm meds because my bowels have a tendency to do their own thing. I look and feel like I'm pregnant at times and the babe is moving or I've a sci-fi creature within. The pain in under control and managable now but doctor has advised to wait a week if I wish. He says the tests may cause me allot of pain. I'm so tired of this constant pain and the unknowing. I want answers and so do they. We need to get in if that's what they are going to do. Please help. What do you suggest? I also have some additional issues I'm dealing with such as seizures & complicated migraines combined, CAD and the resulting CHF and just last month an allergic reaction to a prescribed neuro drug that resulted in Stevens Johnson Syndrome. My body was trying to reject my skin. I'm 54, female, self-employed, enjoy life. I keep my hair trimmed in a easy do style, make certain I take a daily shower and wear a little make-up. Mascara,blush,lipstick. Always clean and pressed clothes...maybe hand pressed but pressed. Having people tell you how good you look somehow makes you feel a little bit better. Even when I want to do nothing more than to kick them under the table!!

From: Amystery
Email: briseboisj@hotmail.com
Date: Wednesday, July 21, 2004
Time: 08:12:10 PM -0400

Comments

Hi all, Thanks for answering all my questions this past week, I had so many.

Here the bad news: My dad will not be going for his radiation treatment for a while yet, he's supposed to go soon, but he's really sick and has severe abdominal pain (god, it's hard to see him this way) I remember this time last year he was having the time of his life with my newborn daughter and today, he's fitting the biggest battle of his life. Does it make a big difference how long you wait to have your radiation. His surgery was at the end of March and they remove the tumor the size of a tangerine. 11 out of 20 lymph nodes came back positive (that's what scares me the most).

My dad also has really bad heart problems, he had a quadruple bypass in 1995 and got a defibrillater installed in 1998 and they say that chemo is really bad on your heart, does any of you know if this is true or not?

As always, your honnesty is appreciated, good or bad news, I rather know the truth.

My last question is do you know of anyone that survived this horrible disease without the chemo, I am asking this, as I might have a feeling he will stop his treatments soon as he just finds it too much, on top of all this he has a permanent colostomy.

There is nothing more in the world I would like to see then my dad beat this disease, but I am getting scared.

Do any of you know of anyone that had around the same amount of lymph nodes involded as my dad and survived this without the chemo or radiation, he had his operation in March, I am wondering if it is possible that it's already in his liver, that's would be why he has so much abdominal pain? When do they normally do a scan to see if it has spread?

I am sooooo sorry for all these questions, if one of you would be kind enough to answer some of them, I would be greatful.

Thanks a million, please feel free to email me at briseboisj@hotmail.com Julie

From: Julie
Email: briseboisj@hotmail.com
Date: Wednesday, July 21, 2004
Time: 08:11:01 PM -0400

Comments

Hi all,

Here the bad news: My dad will not be going for his radiation treatment for a while yet, he's supposed to go soon, but he's really sick and has severe abdominal pain (god, it's hard to see him this way) I remember this time last year he was having the time of his life with my newborn daughter and today, he's fitting the biggest battle of his life. Does it make a big difference how long you wait to have your radiation. His surgery was at the end of March and they remove the tumor the size of a tangerine. 11 out of 20 lymph nodes came back positive (that's what scares me the most).

My dad also has really bad heart problems, he had a quadruple bypass in 1995 and got a defibrillater installed in 1998 and they say that chemo is really bad on your heart, does any of you know if this is true or not?

As always, your honnesty is appreciated, good or bad news, I rather know the truth.

My last question is do you know of anyone that survived this horrible disease without the chemo, I am asking this, as I might have a feeling he will stop his treatments soon as he just finds it too much, on top of all this he has a permanent colostomy.

There is nothing more in the world I would like to see then my dad beat this disease, but I am getting scared.

Do any of you know of anyone that had around the same amount of lymph nodes involded as my dad and survived this without the chemo or radiation, he had his operation in March, I am wondering if it is possible that it's already in his liver, that's would be why he has so much abdominal pain? When do they normally do a scan to see if it has spread?

I am sooooo sorry for all these questions, if one of you would be kind enough to answer some of them, I would be greatful.

Please feel free to email me at briseboisj@hotmail.com

Thanks a million, Julie

From: Diane Whitten
Email: dwhitten@banknorth.com
Date: Sunday, July 18, 2004
Time: 08:46:38 PM -0400

Comments

in December of 2003 i went regular testing and found that i had colon cancer. my doctor was also shock that i had colon cancer as i am a health 51 year old women with no family history. i exercised daily, had a good healthy diet and no symptoms. i was lucky i had stage I cancer and should be cancer free but the thought of just the word cancer still shocks me everyday. six years ago a friend of mine died at 26 years old of colon cancer and for years she was going from doctor to doctor without answers, keep up your efforts becasue it seems that many people never get treatment early enough. i am surprise now to see how many people are dying from this type of cancer and to learn that it is in the top 3 causes of death.

good luck to you in the future.

From: Laura Papka
Email: LauraPapka@aol.com
Date: Thursday, July 15, 2004
Time: 09:08:03 PM -0400

Comments

Hi Molly and everyone reading this. Ive written a few times about my father 58 years old, who was diagnosed with Stage 2 colo-rectal cancer on October 10, 2003. It was the day my entire life changed. I think about you Molly often and pray for everyone who writes in with their fears because lets face it, its one of the scariest things in the world to be confronted with. Im compelled to write because so often when you look on-line for information and answers, alot of it is negative and awful and there is not enough positive out there with the exception of this website. I want everyone to know that my dad has undergone chemo and radiation, and it was tough, but so far everything looks great. He has an excellent prognosis ahead of him. He has gained back all the weight he lost initially and is in the best of spirits. I wish all of you peace in your hearts and the strength to get thru these days of fear and not knowing. I will never forget the feelings I had initally but it does get easier and there is nothing like prayer. Be strong and brave and never waste an opportunity to tell the person that you love them. In peace and Love, Laura Papka

From: Lori .
Email: stjohnl@andersonhospital.org
Date: Thursday, July 08, 2004
Time: 05:11:43 PM -0400

Comments

Molly - my husband was diagnosed with stage 3 colon cancer. Do you know the statistics of the longest someone has lived with this disease?

I think it will help see there is a light.

From: Mary Botz
Email: jmbotz@hotmail.com
Date: Wednesday, July 07, 2004
Time: 11:47:59 PM -0400

Comments

Hey Molly!

Just wanted to send the update that I couldn't have even IMAGINED a year ago...My dad, Cy Valerius (stage III, diagonsed March 2003), just had his second set of scans after surgeries, radiation, chemo, staph infections (blah, blah, blah...)and he is cancer free!!!! Yippppeeeee! This site, and you in particular, Molly, has been such an amazing source of strength for me and my family. For all of you out there fighting this disease, I pray that you will have the outcome my dad has had. Lots of positive thoughts sent out to all of you! God bless you on your road to recovery!

Mary Botz

From: Mike Phelan
Email: MJPhelan@aol.com
Date: Thursday, July 01, 2004
Time: 09:16:41 PM -0400

Comments

I am a chronic polyp grower who has a complete colonoscopy every three (3) years and having been doing so for 20+ years. I would not personally recommend the new "virtual colonoscopy" for the simple reason the only challenge to either exam is that you need to be fully "preped" the day before along with food abstinence and if they do discover any polyps with the "virtual" procedure, you must come back for a regular "colonosocpy" and be fully "preped" again! More times than not, I have polyps removed with some of them diagnosed as "pre-cancerous". I am 60 years old and my father was 58 when he died of colon cancer (never took the exam). All of my children get regular exams as well. A "ounce of prevention is worth a pound of cure". If you would like to contact me with any questions, feel free @ MJPhelan@aol.com

From: Jaime
Email: Jaime.Bickford@wwecorp.com
Date: Tuesday, June 29, 2004
Time: 09:47:30 AM -0400

Comments

Hi Molly, It's been a long time since GF High School. :) I just wanted to write you and let you know that I think what you're doing is pretty amazing. I was diagnosed with Crohn's disease at about the same time you were diagnosed with colon cancer. The symptoms I had were very severe and eventually I had to have my large intestine removed. Hearing about you rollerblading cross-country (was the bike trail getting to easy for you? haha) gave me some hope and inspiration during a dark time; I thought that if you could fight cancer and win, then I can make it through my disease too. I've been 100% healthy for almost 2 years now and I'm even going back to school for my master's. It's great, although I feel old compared to the others... Anyway, I wasn't sure how to contact you privately, but I hope you're doing well - and still kicking butt. Take care, Jaime

From: Susan Pettinato
Email: Susan.Pettinato@abc.com
Date: Monday, June 28, 2004
Time: 12:44:48 PM -0400

Comments

My mother is a colon cancer survivor. Her father had colon cancer and she was mis-dianosed. She kept having abdominal pain and the doctor kept telling her nothing was wrong! She insisted something was wrong and went back to the doctor. He rushed her to the hospital. She had a tumor the size of a "golf ball" and did emergency surgery. They removed a large amount of her large intestine. Since her intestine was so swollen from the tumor, she had to wear a colostomy bag for 6 months while going through chemotherapy. After 6 months, she had surgery to re-attach the large intestine. She is fine now. She gets a colonscopy every year and her doctor told her she is developing approximately 3 polyps per year. I am 40 years old and I have had 3 colonscopies already. My large intestine is "clean." This is genetic and I fear for what my future may hold. But, I get a colonscopy every 3 years and stay on top of it. I am also on "Zelnorm" for IBS constipation. What a relief this medicine is! I visited "Coco the Colon" Saturday, 6/26/04 at the Danbury Mall. I was pleased to hear about this and had to see it. It is great for the awareness of colon cancer. Molly...thank you! Great idea..I wish I thought of it! I just wish for the colonscopy prep. to be better. Colyte and Fleet phospho-soda are awful...no offense to these companies that make it. But please, will someone come out with something else we can drink to make this process better?! Thanks Molly and Coco! Sue

From: Matt St.Pierre
Email: m.stpierre@sbcglobal.net
Date: Saturday, June 26, 2004
Time: 07:30:31 PM -0400

Comments

Molly, Yours is a "feel good" story with a happy ending that is only the beginning. I visited your creation at the Danbury Fair Mall on Sat. June 26. I was intrigued and very interested. I have Crohn's disease and work as a volunteer for Camp K.I.W.I (Kids Interacting With Inflamatory Bowel Disease). I was wondering if it would be possible to have you bring the Colossal Colon to our camp for an interesting an informative view of what they are going through as youngsters with Crohn's Disease and Ulcerative Colitis. This is a great camp, put on by the Crohn's and Colitis Foundation of America (CCFA), in the NYC chapter. Please respond if anything can be done. Our camp is in August, the 18th to the 22nd. Regards, Matt

From: Maureen
Email: MoKeeffer@yahoo.com
Date: Thursday, June 24, 2004
Time: 11:33:50 PM -0400

Comments

Hi Molly,

I was walking through the Danbury Mall and saw Coco today. I too am a cancer survivor x2. I was diagnosed at age 7 with hodgkins disease and at 34 with a rectal tumor. I was misdiagnosed by a local doctor and told that the bleeding was from a fissure. I had been offered a new teaching position and was going for some routine tests. My sister made me go for a colonoscopy and that would be the reason I am here today. I truly felt like my life was coming to an end. I can still remember the doctor telling me I had cancer again. I was devestated giving up my new job and having to face chemo, radiation and surgeries again. I do believe things happen for a reason, but there are times when it is hard to accept. Your story inspired me today. I am happy to say I have been offered the same teaching position and accepted the job today:) As I look back on the past 3 years I am so thankful for the wonderful doctors at Memorial hospital and my wonderful, supportive family who traveled this journey with me again. My thoughts are with all of you who are encountering this horrible disease.

From: Heather
Email: hperes@verizon.net
Date: Thursday, June 17, 2004
Time: 08:22:53 PM -0400

Comments

I found your website and find it hopeful. My friend (age 41)has been diagnosed with colon (stage iv) and met liver. She recently had surgery on her colon; where they removed a part of her colon and pie ced it back together and added a radiation pack to reduce the size of the tumor (9mm) in her liver. Approx. a week after her colon surgery her colon leaked and she now is "ceptic". Which I believe is considered the same as "staph". And I now just heard she is in a coma. I hope and pray she makes it. I don't know how to comfort her sister and her sisters family. (we grew up together and have kept in contact on and off for years) I feel helpless! and I feel like I am intruding on the family by calling and asking how they are doing. Any comments would be helpful. Thanks

From: RAYMOND
Email: raysan@gte.net
Date: Thursday, June 17, 2004
Time: 11:23:25 AM -0400

Comments

hi, i just got home after a 6 day stay in the hospital where part of my colan was removed due to a malignit tumor. i have 2level cancer and am looking towards a tough but Winnable fight. first time on the net or any other thing clos to this. you page is already incouraging to me. i will keep reading.

thank you ray

From:
Email: huylo@yahoo.com
Date: Thursday, June 17, 2004
Time: 07:45:17 AM -0400

Comments

I found your website interesting, informative, and entertaining

From: Joel Deason
Email: joeldeason@joeldeason.com
Date: Thursday, June 17, 2004
Time: 02:12:15 AM -0400

Comments

Great website! I too am a colon cancer survivor undergoing treatment. I was diagnosed at the age of 28 and found that I have a hereditary form of colon cancer. I appreciate your website and testimony - it helps me to read other's experience with cancer. I too have created a website to document my experience: www.joeldeason.com

Joel

From: Lonnie
Email: pbfltp@comcast.net
Date: Saturday, June 12, 2004
Time: 12:43:25 AM -0400

Comments

I just completed an operation for colon cancer. successfully they tell me. I'm having a difficult time learning how to eat & what to eat without getting sick, etc.

From:
Email: msnell0910@aol.com
Date: Friday, June 11, 2004
Time: 09:59:17 PM -0400

Comments

Honey you should be praising the Lord everyday for life health and strength. It is so good to know that you servived. Live for Jesus. There are so many people who don't live through the experience. You truely have a testimony. I had a sister who died almost 2 yrs. ago from cancer, It took alot out of me. But I have my strength back and my faith is ever increased. I love the Lord the author and finisher of my faith. Take good care of u'rself and tell of the Lord's good work. One day (if hasn't already happened) you will be able to help someone else. You have so much to live for. Arnell

From: Rada
Email: madanat@sympatico.ca
Date: Tuesday, June 08, 2004
Time: 08:50:20 PM -0400

Comments

Hi, Thank you for this site you have such a great spirit and will, my dad has been diagnosed with colon cancer stage iv 3 weeks ago and your story is a living example for the power of ones spirit to defeat this illness, thanks again for all you efforts.

From:
Email: Benny143@netzero.net
Date: Tuesday, June 08, 2004
Time: 01:53:50 PM -0400

Comments

Imagine

A Place where People, do Not Waste the Precious Moments of their life, But Embraces the Few and Fleeting, Because it Will Not come Again !

Imagine all that “ Encompasses â€

Just Imagine

From: Kim Thompson
Email:
Date: Monday, June 07, 2004
Time: 08:44:14 PM -0400

Comments

Hi Molly I ran across your website and began reading all the stories about colon cancer. I wish everyone the best of luck. My father recently died on March 20 2004 of colon cancer. He was in stage III which means it started at his colon moved to his liver then to the cerebleum in his brain. He had the cancer removed from his colon and one year later he had another surgery to remove cancer the size of a golf ball from his liver. He went through chemo and radiation and was really doing great. Unfortunately my dad became very dizzy and off balance and the doctors said that he had vertigo. However, come to find out my dads cancer went to his brain. He had the cancer removed from his brain but he was unable to walk or regain his balance from months of therapy. He developed blood clots in his leg and because of the last surgery my father was unable to receive any blood thinner to dissolve the clot in his leg. The blood clot from his leg eventually moved through his body and settled in his lungs and this is where I finally lost my father after years of battling colon cancer. My father was a fighter and loved life and I hope all your other readers continue to fight and take every chance to survive and hope that they can succeed and stay and beat the fight to survive from cancer. My father was a great man and he is truly missed.

From: velda
Email: veldafriend@aol.com
Date: Friday, June 04, 2004
Time: 07:15:21 PM -0400

Comments

Hi Molly Just found your web site.AT AGE 44 I was diagnosed with Stage IIB aascending colon Ca in Mar of this year. Had been treated for "chronic back pain" for 3 years. Ca was found when doctor checked blood work because of fatique. Found blood count low. No other symptoms. I've had colon resection done & I'm on 6 mo of chemo. Some days the side effects are hard to deal with. But try to keep a positive attitude. The sad part is my dad had collon resection @ age 40 with reaccuring polyps over the years. All my pyscians new of his history but none ever recommending having a colonoscopy. Your absolutly right ,the public needs to be more aware but so do are physcians. Thank You .

From: jeff
Email: snag@cfl.rr.com
Date: Thursday, June 03, 2004
Time: 05:47:49 PM -0400

Comments

while i don't have colon cancer -- i found this site doing research on teachers with colostomy bags. i've got a temporary colostomy and the past few years i've been working in a teaching position that doesn't limit me to one classroom. this has given me the luxury to attend to my appliance as needed.

however, next year i return to the classroom. i just started thinking about how difficult this is going to be for me with a colostomy bag and was looking for other teachers that may have to face this.

anyone aware of what i'm about to go through? any advice?

please email me at snag@cfl.rr.com

From: Annette
Email: bigdog1020@sbcglobal.net
Date: Saturday, May 29, 2004
Time: 02:48:12 AM -0400

Comments

Thanks stu for your contact. Late Wednesday our vet told us our "BIGDOG" has colon cancer and her prognosis is very poor. it's raining buckets around here. I have always been a control freak - I'm learning differently.

From: Emma
Email: embrown89@aol.com
Date: Friday, May 28, 2004
Time: 03:15:21 AM -0400

Comments

for years several people in my community has developed lung and breast cancer. 90% of whom are non smokers, a wood mill is in our neighborhood. they are allowed to burn oil and other products to make fuel for their boiler. they also have logs that they keep a water sprinkler on 24 7. it smells like rotten eggs, I am very interested in doing a reserch on this company, the air,water and soil surrounding it and our neighborhood. if you have any ideas, please let me know asap. help me save the future of my neighbors.they are all dying. help me please. somewhere in south carolina.

From: Cindy
Email: cindydehart@hotmail.com
Date: Wednesday, May 26, 2004
Time: 02:20:09 PM -0400

Comments

Hi Molly...hey, loved reading about your CoCo. Wish I could see it. What can I do to get it to come for a visit to Houston? Any suggestions...who can I go to to sponsor it? I'm an artist just recently diagnosed with Stage III. Doctors had been putting me off for about a year, thinking it was IBS. I certainly did not suspect cancer because while I'm not young, I keep myself in shape. I've been a jogger for many years, don't eat junk food, mostly fruits and veggies, I'm thin, never smoked, etc., and basically take very good care of myself. I have thought about the fact that I've been an oil painter since I was about 8. When I was a kid we didn't take very many precautions when cleaning our brushes or handling solvents. And, I also lived fairly close to some refineries most of my life. Living in Houston now probably doesn't help (ha). But, for whatever reason, I've got it and I'm preparing myself for it. I start radiation treatments (chemo with Xeloda, thank goodness...a pill sounds much easier) this coming Tuesday. In the meantime while I've waited, I've been seeing a Chinese Herbalist. Basically, I feel great and have continued to jog. After the shock and distress of the diagnosis, I have done my homework, and know that I'm a huge part of this picture. I will heal myself, while the Doctors are doing their cure. I've got my life to live, and this will just be a part of the plan for a number of months...paintings to do, some musical instruments I want to play around with. The plan is to have this thing enrich my life. If I'm to go through this, it's my job to figure out what legacy it will have in my life in a positive way. I can already see how my thinking will affect this next series of paintings I've got planned (my Water Series). Anyway, back to CoCo and your story. I want to educate everyone about the importance of getting Colonoscopies...I've been bugging all my friends and relatives. I want to make up a small card to leave around wherever I go, just alittle education, that I wish I had had. If I had known what I know now, I would not have let the Doctors put me off. They really dropped the ball!!! I'm making up a T-shirt saying, "Colonoscopy" on the front and the back will read "you want to know". The one I'll be wearing to see my surgeon will read on the back, Save My Ass(hole). Sorry if this is too graphic for some folks...artists tend to be open minded, so there it is. That aside, I'd love to hear from anyone who has information about people who refuse colostomies. I would rather have a less evasive surgery, than the major one they have planned for me. My hopes are that the radiation/chemo will shrink it away, then if they could just watch it over time and see...I'd rather do that, then right away do this major surgery, when they can not really guarantee that my cancer will not come back anyway. Truthfully, the surgery is what scares me the most...my tumor is very low in the rectum. But, not to dwell, I've got my work cut out for me....first things first, shrink this tumor away...that's the plan. Good luck to all, Love and Peace...Life is good, no one knows how long they will live. It's up to us to be as happy as possible no matter what. Stuff happens to all of us, one can find joy and beauty in life no matter how long it is and even though we have to go through challenges. Have Faith, please, hope always. Love, Cindy

From: Annette
Email: bigdog1020@sbcglobal.net
Date: Wednesday, May 26, 2004
Time: 02:48:39 AM -0400

Comments

my 58 yr old husband was diagnosed, w/o any symptoms, stage 4 colon cancer; had surgery (even reconnection after removing 70% of colon). since Jan.04 till present is now half way through chemo. out of 52 lymph nodes tested, 31 were positive. it had broken through the wall and was in blood stream, but NO organ involvement. he is doing great in chemo and we have been told 100% curable but high reoccurance rate. He is still working and keeping a normal life - lighter schedule and lighter weight lifting/physical activities, though. I read Stuart's comments in April. We are wondering if each occurance is curable and what is "the long haul"? we are continuing a gallant fight. deep down my husband is having thoughts that his time will be short. comments please.

From: Jennifer
Email: tablepadtucker@yahoo.com
Date: Tuesday, May 25, 2004
Time: 01:29:11 PM -0400

Comments

Molly,

You continue to inspire! I hadn't checked your page in nearly a year, and just found out yesterday that you'd reached the milestone that those of us in 'holding patterns' can only dream about. I am so thrilled to hear that you've crossed the greatest finish line of all: the five year mark! Congratulations!

I was also diagnosed young--but not as young as you!--two years ago. I was 36 with no family history at all, and bleeding/anemia led me to a delayed colonoscopy (because of my 'low-risk' status.) My worst fears were confirmed when a malignant tumor was found in my ascending colon. Like you, I instantly thought that impending death was certain, and sank into a state of complete disbelief and shock. I was actually relieved when the doctors announced, after doing post-surgical studies of my tumor, nodes and surrounding organs, that I was 'only' a Stage II with a good prognosis.

As far as everyone can tell, I am disease-free two years later, but I fantasize daily about hitting that five-year mark. I am so happy for you--and grateful to you for everything you've done to educate the public about this far-too-often ignored disease. I try hard to persuade everyone I know who is either symptomatic or over fifty to insist on getting a colonoscopy. I've actually talked a few people into it; luckily, none has been diagnosed with cancer, but a few have had polyps removed. So I figure that I may have contributed to the prevention of a few cases of colon cancer, which is very rewarding. You, however, have probably prevented THOUSANDS of cases through your determination and diligence. What a wonderful feeling that must be!

Congratulations, and thanks again!

Jennifer in Indianapolis

From: Sherri Wright
Email: swright@mail.dps.k12.va.us
Date: Wednesday, May 19, 2004
Time: 10:19:46 AM -0400

Comments

What a great teaching tool this is!! I am the School Health Facilitator for the Danville, Va. public schools, and we are really looking foreward to your visit to our community. We are encouraging all of the school nurses to help publicise the event so that we can get as many of our students and parents to visit as possible.

From:
Email:
Date: Friday, May 14, 2004
Time: 08:02:16 AM -0400

Comments

There are some wonderful Books out there that inform you on what YOU CAN DO during your fight with cancer.Some Books such as CANCERVIVE is a Good Book to read. And theres an interesting book on 4Blood Types,4Battle Plans,Eat right for your Blood type.Written by Dr.Peter J.D'Adamo. Also research Foods that fight Cancer. Knowledge is the Key. GOOD LUCK AND GOD BLESS

From: Julie Brisebois
Email: briseboisj@hotmail.com
Date: Sunday, May 09, 2004
Time: 08:05:40 PM -0400

Comments

It has already been over a month since we discovered that my dad has colon cancer. He was operated on March 24, 2004. They removed the tumor, but after the pathology test, the doctors were able to tell us, that the cancer spread to his lymph nodes. I was devastated when my mom and I got the results. After the initial shock, I realized that there is still hope, there is always that little chance of a miracle happening. I do believe that only god knows what will happen, and when and how this story will end, but I am not ready to close this book. I have learned from all this, that there is just one word you can count on in situations like this, and that word is HOPE because without it you have nothing. I pray to god every night that my dad will have a full recovery, because he means the world to me and my family. The thought of not having him around to celebrate special occasions or the simple fact of not hearing his voice on the phone brings tears to my eyes. I try to be strong for everyone, but I honestly do not know what I will do without my dad, life will not be the same, a part of me will always be missing. My daughter who is 1 ½ loves her grandfather so much; the joy he brings to her life is indescribable. I am trying to be strong for my family, I honestly do not know where I am I finding the strength to do so, but I do believe I have become a stronger person. Normally, I would not be able to deal with situations like this, but the fact that I have “hope†changes everything. I do know that “hope†might not be enough to save my dad’s life, but for now, it is all I have to go on.

May my dad find the strength and courage he needs to fight this horrible disease.

If anyone wants to email me I can be reached at briseboisj@hotmail.com I would love to hear from you.

Julie Brisebois

From:
Email: lindansemones3@aol.com
Date: Monday, May 03, 2004
Time: 01:27:00 PM -0400

Comments

hi molly; my husband who is 58 years old had colon cancer four years ago. The colon cancer was 10 cm in the rectal area. he had the cancer removed and was told last year the he was free and clear and he would not have to have a colonoscopy for two years. . . Ironically, on the one year anniversary of his last colonoscopy, he started seeing blood in his bowl movement. Called doctor; had colonoscopy; we are now going thru additional testing and preparing for another surgery for colon cancer! We are devistated! We are afraid that he will have to have his rectal area removed and rerouted. Not the end of the word but if there are other options, we want to have the opportunity to make that choice. I have read on the website of Sloan Kettering and Johns Hopkins that there are other options to a colostomy. Please give me any input you may have. Thanks for any input you may have. please respond asap. We are still running test and need to schedule a follow up visit. We are leaning toward Sloan-Kettering or Johns Hopkins.

From: Amy
Email: sgro@hemc.net
Date: Saturday, May 01, 2004
Time: 05:47:35 PM -0400

Comments

Hi, we were just informed yesterday that my dad has colon cancer. They say it is in his lymph nodes and liver. They did not do the CT scan on his chest, but we think it is in his lungs. He has a constant cough that is getting more frequent. Surgery is scheduled for Thursday, with chemo to follow. He is 57 with no family history that we know of. I think it is Stage 4. What are his options as well as what are the odds of beating it. Do you have any idea how long they generally give someone at this point? There is so much info out here and all different. Thanks. Amy

From: gary
Email: garys007@hotmail.com
Date: Friday, April 30, 2004
Time: 12:26:35 AM -0400

Comments

I am a fitness trainer, 53 years old and would like to do a bike ride across the country to increase awarness and raise funds for colon cancer, do you have any suggestions thanks gary Molly I appreciate any information or support you offer thanks again gary I live in LA

From: sandy
Email: steinerh@aug.com
Date: Monday, April 26, 2004
Time: 06:28:48 AM -0400

Comments

PLEASE WRITE BACK MOLLY...and others A retired 40 year old professional hockey player (Leafs, eh?!)has recently been diagnosed with Stage III colon cancer in north Florida. He needs emotional support and information regarding the treatment of his condition. (Even if you just send a link.) He'd like to hear from other athletic types who have taken brave steps in their aggresive treatment plan and beaten the odds. Thank you Molly for your work and all the inspiring stories in this site. I know that you will understand that hockey has been his whole life...please.

From: Cyril
Email: cyril@mywirelessnetwork.co.za
Date: Monday, April 26, 2004
Time: 04:04:29 AM -0400

Comments

Dear Molly,

very uplifting story, im inspired by your story, its very uplifting, and also inspiring, like i said your story uplifts and inspires me cause i know someone with CC, who i must uplift and inspire too.. So keep uplifting and keep in inspiring, cause your story has the ability to uplift and inspire people. So words of advice.. Lift UP and SPIRE in.. Cyril... your upliftment and inspirtation, inspires and uplifts me..

From: Dick
Email: Hakesd@iw.net
Date: Friday, April 23, 2004
Time: 12:02:05 PM -0400

Comments

Molly,

I am doing a story about the Colossal Colon in my national newsletter for Chamber execs and would like to use one of the photos from your website. Please contact me right away to arrange permission. Facing a deadline. Thank you and best wishes!

Dick Hakes, Editor Chamber Executive Network Newsletter Storm Lake, Iowa

From: Kary Wild
Email: wcmedia@mindspring.com
Date: Thursday, April 22, 2004
Time: 06:39:20 PM -0400

Comments

Molly,

Last year we corresponded and I asked if we could use your story for our community magazine. You gave us approval, but we never used it. We are using it in our May 2004 issue and want to send you a copy of the magazine, but I don't have a mailing address for you. Could you email it to me, so I can get a magazine to you?

Kary

From: STUART AMPEL
Email: SAMPEL@WEBTV.NET
Date: Thursday, April 22, 2004
Time: 01:39:30 PM -0400

Comments

MOLLY I NEED TO TALK,STU EMAIL ME PLEASE

From: stuart
Email: sampel@webtv.net
Date: Friday, April 16, 2004
Time: 09:11:58 PM -0400

Comments

i had colon cancer 2000 stage 3 ,after removing 2 feet of my colon,then chemo i was clear, not for long, then my cea went to 6 ,back to a pet scan it was a large node in my neck, that was removed chemo 9 months, cat scan jan 4 2004 all clear,3 months today now my CEA back from 1.8 to 5.4 back to the pet scan this monday,what can i say,iam sorry i can't have any good news to say may-b on wend i hope, love Stu

From: Cyndi
Email: cyndijunker@yahoo.com
Date: Thursday, April 15, 2004
Time: 12:11:37 PM -0400

Comments

Tomorrow would have been my son Michael's 23rd birthday.

Unfortunately, he died on August 28, 2002 of colorectal cancer after being diagnosed two months earlier. Since no one on either side of the family had died before the age of 65, the diagnosis of colon cancer was unbelievable. How could a 21-year old get this disease?? For almost two years now, our family has felt like they were alone in this situation. After finding this site and reading the guest book, I realize that although colon cancer at this young an age with no family history is rare, there are others who have suffered the fate of this horrific disease.

Early detection is the key. You are so fortunate to have survived - and obviously with good reason. Thank you so much for making others aware that colon cancer is NOT just an "older-person" disease.

Michael had been to several doctors who treated him for college-related stress after complaining for several months of malaise, abdominal discomfort,and sleep problems. By the time he arrived at the emergency room, the aggressive cancer was already at stage IV. Doctors, too, have to be more aware of the fact that colon cancer is possible even in young patients with no family history.

My thoughts and prayers go out to all families who have and are continuing to battle this disease with loved ones - but especially to those with young members afflicted with this disease.

From: Shari Gioimo
Email: candlegirl1@juno.com
Date: Wednesday, April 14, 2004
Time: 12:51:27 AM -0400

Comments

You are absolutely amazing. It gave me chills reading your story. I am 32 and my mother who is 74 was just diagnose with colon cancer Stage IIa. She had a complete blockage in the transverse colon that has probably been growing in her for about 15-20 yrs. She had a polyp removed about 22 years ago and never went back for another colonoscopy because she was afraid to have it done. She is recovering from surgery now and will start chemo soon. I was told that I don't need to have a colonoscopy until the age of 50 due to the age of my mother now. After reading your story I have changed my mind. Colon cancer really dose affect people at any age. My husband had a coworker who had an inoperable tumor 1 1/2 yrs ago (age 38) who just passed away in December Christmas eve. Anyway thank you for sharing your story. Hopefully more people will start screening earlier.

Thanks again, Shari

From: gary
Email: garys007@hotmail.com
Date: Thursday, April 08, 2004
Time: 11:06:31 PM -0400

Comments

I am a fitness trainer and would like to do a run across the country to increase awarness and raise funds for colon cancer, do you have any suggestions thanks gary

From: Steve DeLuca
Email: cubfn13@comcast.net
Date: Thursday, April 08, 2004
Time: 09:37:49 AM -0400

Comments

Molly, I was just looking at your website. I actually took my 4 year old to see the traveling colon when it was here in Chicago. You did a great job. It hit a little home to me though.I am a 35 year old stage 3 colon cancer survivor. We have no history of cancer in my family.I am also a firefighter. I have run 2 marathons since my diagnosis even though I am not much of a runner.I am becoming more involved with the CCA as a buddy person and am in the process of possibly starting a voices group. I am also now on the board for STOP-a colon cancer group here in Chicago. I want to know what I can do to help your organizations. I already do public speaking for the American Cancer Society and anyone else who will listen to me and I run the Chicago Marathon to raise money for colon cancer groups. There is nothing I wont do for a laugh and I try to do things for a good cause now. I would love to talk to you more about this. Please contact me at your convenience. Steve DeLuca cubfn13@comcast.net

From: sherrie amende
Email: nwca@rushville.net
Date: Monday, April 05, 2004
Time: 03:10:03 PM -0400

Comments

I WAS TOLD THAT I HAD COLON CANCER ON APRIL 4TH 2000 I HAD SURGERY ON APRIL 19TH I HAD TO GO TO RAPID CITY S.D THAT WAS THE BEST HOSPITAL IN OUR AREA. THEY GAVE ME A CHOSE TO DO THE REGULAR CHEMO TREAMENT OR DO A CLINICAL TRIAL. I DID THE CLINICAL TRIAL I HAD CHEMO EVERY WEEK FOR SIX WEEKS AND THEN I HAD A WEEK OFF I DID THAT FOR SIX MONTHS. I WENT THROUGH THE CHEMO FINE. IF YOU DO HAVE COLON CANCER AND THEY OFFER YOU A CLINICAL TRIAL DO IT.I HAVE BEEN CANCER FREE FOR 4 YEARS. I GO SEE MY DOCTOR EVERY THREE MONTHS FOR BLOOD WORK. EVERY YEAR I HAVE A CHEST XRAY AND A COLONOSCOPY. I NEVER MISSIED A DAY AT WORK. I HAD GOOD FAMILY SUPPORT AND VERY GOOD NURSES AND DOCTORS.I WOULD LIKE TO HEAR FROM SOME OTHER FOLKS IT IS GOOD TO BE ABLE TO TALK TO OTHER PEOPLE THAT HAS GONE THREW SURGERY AND CHEMO TREATMENTS. I WAS IN SAGE THREE, THEY TOLD ME I HAD A 50/50 CHANCE OF GETTING CANCER BACK. I MAKE THE MOST OF EVERY DAY.

From: Gretchen
Email: taylorg@bsci.com
Date: Monday, April 05, 2004
Time: 11:10:20 AM -0400

Comments

Hi Ms.Molly!

Well..... I had my Colonoscopy on Friday. 2 pre-cancerous polyps, and 2 small tags. Hopefully results will be good. Wasn't half as bad as the Barrium Enema! I had them put me out! Woke up to seeing my Colon on T.V. and thought I was watching the learning Channel. I told the Doctor that I didn't want to know and didn't want to remember! That's the way to have it done! Just a bit groggy the rest of the day, but that's it! Anyone needing this test should not be afraid at all. It's nothing! The 'prep' cleaning of the bowel is worse thatn the actual procedure. My younger brother (Greg Taylor) on the other had has Ulcerative Colitis very bad, and it's been very dibilitating for him. Meds and steroids are not working any longer. He goes in this Thursday for J-Pouch surgery. I thought I would send this out for Prayers for him- that all goes well with no complications. Thanks for all you do to get the word out about Colon Cancer and all the other issues more and more people seem to be having these days. Keep up the good work! Thanks to all for the Prayers! God Bless, Gretchen

From: Wanda Beasley
Email: wandabwv@wmconnect.com
Date: Thursday, April 01, 2004
Time: 09:13:56 AM -0500

Comments

I am now 69 years ago. I had no pain or anything but had been having symptoms (bleeding in my stools) and kept putting off getting a colonoscopy. Finally I decided "it can't be that bad cause Katie Couric had one on live TV" so I finally talked myself into getting one after about 2 to 3 months of symptoms. The colonoscopy was nothing. No discomfort at all. The worst part was taking the bowel preparation. I then found out that I had colon cancer in August of 2002. The doctor told me there were 2 cancers and one was close to my rectum and I could possibly lose it and have to wear a colostomy bag. He recommended going to Cleveland Clinic (I live in WV)as he said they can work wonders. I had my surgery on Oct 5th to remove the section with the 2 cancers and he was able to save my rectum. He did have me wear a colostomy bag for 3 months to allow my colon to heal. At the time of my colon surgery they also removed my uterus and ovaries as there was a large cyst (as big as a soccer ball)on my uterus (which turned out to be benign). However, when they did a biopsy on my uterus later they found a tiny cancer just starting to grow, but it hadn't broken through the lining which saved my life. I would never have known that it was there if I hadn't had the colon surgery! I did have to go through chemotherapy for 6 months (1 treatment a week) because of the 9 lymph nodes they removed four of them had cancer. They said that chemo for colon cancer is not as hard on you as other cancer chemo treatments. I did have some thinning in my hair, but nothing too bad. I went to Cleveland Clinic then in January 2003 to have the colostomy reversed, but what made that bad was that my husband had been in the hospital while I was gone and he died 2 days after I got home. Hope this helps someone who is worried about having their colonoscopy. Please do so as soon as you have any symptoms. I thank the Lord that I finally did it before it was too late.

From: Terry
Email: tlmiller@ravenna.portage.k12.oh.us
Date: Wednesday, March 31, 2004
Time: 01:55:26 PM -0500

Comments

Hi again Molly, As I near my 5 year anniversary of being cancer-free, I recall vividly what a local baseball coach said to me the day after I was diagnosed with colon cancer. I am a high school baseball umpire (as well as football, softball, and basketball). In a private moment before the game began, I conveyed to Dan that I had been diagosed with colon cancer. Dan, too,was inflicted with a more serious stage 2 rectal cancer for which he was receiving chemo prior to surgery. Dan's words of wisdom have stuck with me since that day in April five years ago when things seemed so bleak. Dan said to me "Terry, there is one thing that is far worse than finding out that you have colon cancer....it's not finding out that you have colon cancer". I took those words with me to the hospital 2 weeks later. Surgery was no picnic, but it sure beats the alternative. Incidentally, Dan arrived at the same hospital for his surgery two days after I was discharged. His 5 years of survival will be celebrated on April 29th. His road was much rockier than mine but the important thing is that he is still here. Thank you for your efforts to promote colon cancer awareness and health. I am sure that you have saved countless lives.

From: april rabau
Email: aprilrabau1@aol.com
Date: Monday, March 29, 2004
Time: 11:54:47 PM -0500

Comments

i my name is april and i am here at woman and infants hospital. my mother has colon cancer we found out last friday and they already did surgrey today to take it out. they removed some of her colon but notice that there is much more in her. they even did a historectome but the doctors say she will die from colon cancel, it was just over whelming to here the dodctors day that, we are all in shock, i dont understand why her why anyone, to get such i disese that you just cant cure. they are going to start treatments as soon as possible but they say she will die from colon cancer, when we dont know but they say she has life to live. please help anyone!!!!!!!!!!

From: Mary Botz
Email: jmbotz@hotmail.com
Date: Monday, March 29, 2004
Time: 04:37:59 PM -0500

Comments

Hello, again!

I just wanted to update you on my dad...he JUST met with his oncologist to go over his scan results, and THEY ARE ALL CLEAR!!!! Of course, he has the whole colonoscopy thing coming up again, but the scans are clear, and we are so caught up in elation, that the colonoscopy seems irrelavent right now! I will keep you updated...thanks for the support!

Mary Botz

From: TA
Email: tafc1@yahoo.com
Date: Monday, March 29, 2004
Time: 06:22:58 AM -0500

Comments

HI Molly and Everyone Else I would like to share what I am going through right now. 2 weeks before Christmas I started getting pains in my abdomen, unfortunately I was unable to get to the doctors until February as I had no vehicle (I am a 48 year old widow who lives with her 90 year old father). I went to the doctors on Feb 4, she immediately wanted a colonoscopy done. Had the colonoscopy done on Feb 9 and on Feb 13 it was confirmed that I had a 2 inch tumor that was cancerous right above the colon and in the intestines. On March 3rd they removed 18 inches of the intestine and the tumor. Everything came back that the cancer was removed, but it had hit 8 of the 12 lymph nodes. So with this next Monday I start my 48 hour chemo treatments that will last for the next 6 months. I am positive that I will survive all this but I think it is a shame that insurance companies will not approve a colonoscopy unless there is history of colon cancer in the family and also since CEA blood work will show the levels of cancer, why can't doctors request the CEA blood work on a person when they know that an immediate member of the family had cancer. I really believe this would help a lot of people as when cancer is found it won't be in late stages

Sincerely TA

From: Mary Botz
Email: jmbotz@hotmail.com
Date: Thursday, March 25, 2004
Time: 11:19:36 PM -0500

Comments

Hi, Molly!

It has been just about a year since I discovered this wonderful site...with the frantic search for hope and help upon my dad's diagnosis of colon cancer. It has been one heck of a rollercoaster ride for our family, but things are looking pretty good right now. He has undergone chemo and radiation to shrink the tumor, endured a horrible staph infection because of the "port" that was placed for chemo, 2 surgeries (one to remove the tumor and one to reverse the temp. colostomy), and has recently finished his follow-up chemo. He is now 65 years old, and has really sailed through this whole thing with flying colors. He felt kinda "blah" on the day that he received the chemo, but continued to do his regular activities throughout the past 6 months. We are so thrilled that he is done with this chapter, and just this past Wednesday he had his scans done. He will not know the results until Monday (which seems like forever away), but we are praying that all will be clear. Thank you for all of your advice and support during this time. You are truly a gem and a gift to countless people. I hope you realize that. I will let you know how things turn out...hopefully a note filled with joy and lots of exclaimation points!!!! God bless you, Molly, and God bless all of you out there dealing with this disease.

Mary Botz

From: Mark Stanton
Email: stantonm71@comcast.net
Date: Thursday, March 25, 2004
Time: 11:14:06 AM -0500

Comments

Hi Molly, Glad to see you are still working on the site and the fight against this disease. My mom was diagnosed in July 2003 with stage 4 colon cancer. The treatments so far havent been very effective. She looks and feels great and you would never know she is sick. I was reading a book about it last night and they mention your story in it. I decided to check the site this morning and was excited to see that you are still making a point to keep people educated. I hope things are going well for you in Colorado, hopefully we will see you at the lake sometime. It has been a while. Thanks for the time and effort you are putting into this.

Mark

From: BILL BAREFOOT
Email: WGBAREFOOT@YAHOO.COM
Date: Monday, March 22, 2004
Time: 12:51:47 PM -0500

Comments

CONGRATULATIONS!! I TOO AM A COLON CANCER SURVIVOR. ON CHRISTMAS EVE 1995 I BEGAN TO HEMORRHAGE. EMERGENCY SURGERY REMOVED 14 INCHES OF SMALL COLON-REATTACHED INTERNALLY AND CLOSED. SIX MONTHS OF CHEMO AND CONSISTANT ATTENTION-I'M STILL FREE.(GOING FOR BLOOD CHECK TOMORROW).

From: mary sinacore
Email: mary@qccservices.com
Date: Thursday, March 18, 2004
Time: 12:09:19 PM -0500

Comments

I hae been having some odd symptoms the past 1.5 months and am worreid I have colon cancer-i had a bowel movement and it created a pain in my lower left back this did not occur again, once in a while I still have pain in my lower back sometimes left, sometimes right. Shortly thereafter lots of belching and gas but this has subsided some. Got constipated but am very stressed at this time in my life and have a lot of anxieties. I am connvinced I have colon cancer, had a fecal occult test done and CBC and Metabolic blood work up showing all organ functions as I was convinced it is in my liver. Started going to the bathroom again, they were thinner while I was constipated and now have gotten somewhat larger with the help of eating a couple of prunes each day. Have lost a litte bit of weight but was told I had to change my thyroid medicine as I was hyperthyroid at the present time. They changed be from .1 and .088 to 1.75 I am very jitty and shaky and I know this is probably from the condition of my thyroid and hoping this is why I have lost a couple of pounds. I am scared and hope I have not waited to long, I have not lost my appetite at all and feel good. Have trouble sleeping at night so get tired by the end of the day. Any thoughts, would I be having worse symptoms if its progressed really far?

From: Angela
Email: oakhaven1@earthlink.net
Date: Tuesday, March 16, 2004
Time: 10:20:32 PM -0500

Comments

Hi Molly! It's great to have this website for everyone to share their comments, feelings, concerns and information. As you know there is a strong family history of colon cancer in my family and now my father has been diagnosed with stomach cancer. I have been doing lots of research and am finding so much information on new cancer treatments via the internet. I wanted to know if anyone reading this has tried SHARK CARTILAGE, CELEBREX, or a procedure using a HIGH-INTENSITY ULTRASOUND to kill cancer? I found the information very interesting and hopeful. I have spoken to a couple of different people that say they had success with shark cartilage either taking it alone or with chemo. If anyone has a testimonial regarding any new or different successful treatment I hope they will share it. Good luck and God bless to everyone!

From: Inger Nolan
Email: ingernolan@yahoo.com
Date: Tuesday, March 16, 2004
Time: 11:35:53 AM -0500

Comments

Hi, Molly I read you story and it so closey resembles mine that is is scary. I to at 39 was diagnosed with stage 3 colon cancer. I had no symptoms of this and was originally said to have an internal hemorrhoid and let it go for an additional 3 months. By the time it was diagnosed it was a stage 3, in the hospital on Tuesday for a colonoscopy, back on Friday to have all the pre-op blood work and headed to surgery the following Tuesday. I also had the re-section of the bowel followed by 6 months of Chemo and I was not given the option of the port, it was a new stick every week for six months and boy have my veins not held up very well. Even though I have been off of chemo for 15 months I still feel the effect of it,fatigue and moodiness along with other side effects. I have had the same thoughts on life as yourself "Take each day as it comes". Most of all Thank God for a surgeron by the name of Peter Volpe, San Francisco, Ca. for his great advice and most of all Saving My Life. He is the best im my book. Best of Luck to everyone and lets keep up the fight against this horrible disease.............

From: Molly Savoie
Email: amalia@nycap.rr.com
Date: Monday, March 15, 2004
Time: 10:28:37 PM -0500

Comments

Molly,

My name is also Molly and I am also a survivor of colon cancer. I was diagnosed with Colon Cancer (Stage 3) at the age of 39. I had no symptoms and had my first colonoscopy when I was 39 years old. Then I had two more colonoscopies within a three week period when they found the tumor. It had spread to my lymph nodes. I had surgery (re-section of the bowel) two weeks after my last colonoscopy in October. Prior to starting my treatments, I had a port inserted and that is also something I highly recommend to people that are going to start chemo therapy. My veins were so messed up that once I got the port inserted (a simple outpatient procedure), the nurses only had to access my port for blood draws and getting the IVs. I started Chemo therapy in November and shortly after that started with chemo therapy and radiation at the same time. After 10 long months of treatments, now I am happy to say I am a survivor. I have four daughters ages 19, 17, 9, 7 and it scares me that if I didn't have my colonoscopy that I wouldn't be here for my daughters. My daughters could have been without a mother a very young age. I strongly believe in early screening. The colonoscopy is not a difficult test...the prep work the day before is a little difficult but it is all worth it. I think people are scared of the word "colonoscopy" and therefore don't get tested. I am the first one in my family to have cancer so I am the one that now has to push my other family members to be screened. I think what you are doing is great and if I can be of any help, please let me know. I go to a cancer center (NYOH in Amsterdam) that is located in what use to be the city mall and there is a lot of room to set up a display there if you were interested (Amsterdam, NY). At this location they also have an open MRI center, dialysis and of course the cancer clinic. The more people get the message out the better. Keep up the good work. Thanks for getting the word out. I have to thank my doctors for helping me make the right decision. I am also always sharing my story so I can hopefully help others.

From: LRalph
Email: LRALPH0804@aol.com
Date: Monday, March 15, 2004
Time: 04:56:13 PM -0500

Comments

Hello,

I am a 46 year old female and was diagonosed with rectal cancer (between stage 2-3). They are also questioning 2 lymph nodes. My treatment has been 5-FU and radiation. I will see my surgeon this week to determine if the tumor has shrunk. He will schedule surgery for sometime early April. I am a patient of the Ireland Cancer Ctr. in Cleveland, OH. My chemo oncologist has suggested that my second round of chemo maybe 5-FU with oxiplatin. Not sure what those side effects are. Has anyone taken this combination? Would be interested in knowing anything you can tell me about it.

Thank you

From: seth
Email: arnoldseth@hotmail.com
Date: Friday, March 12, 2004
Time: 02:12:52 PM -0500

Comments

i an doing a reserch on colon cancer if u could find some pics of it and send them to arnoldseth@hotmail.com

From: Margaret
Email: gramms97@aol.com
Date: Thursday, March 11, 2004
Time: 03:09:12 PM -0500

Comments

Molly,

My mother was diagnosed with colon cancer that had spread to her liver in July 2002. At that time she was given a prognosis of 6 months to live without treatment. My mother who was 80 years of age at the time declined any type of treatment. We were not in agreement with her decision but accepted her position. Her strong will and faith in God have kept her with us this far. However, daily her body grows weaker and my family and I are trying to accept the inevitable. But it is hard. When we ask questions about any changes in her condition the answer we receive is "It all part of the process and she she has the best quality care to make her life better". I do not see how that may be true as she is easily fatigued, constipated, restless, has fits of anxiety and sleeps constantly. She has some good days but not they are getting few and far in between. I have read more articles and still am at a loss of what to expect or maybe I am still in denial.

Any comments or suggestions?

From: Tom
Email: LIBiker@aol.com
Date: Wednesday, March 10, 2004
Time: 04:47:19 PM -0500

Comments

Hi Molly, I read your story and your initial reaction when your doctor told you had cancer was very similar to what went through my mind as well. It is also interesting that after the shock that you decided to live the new life you were given and to help others. I was diagnosed when I was 31 and with the help of some good doctors, my family and friends and I am sure some intervention from above, I too survived. That will be 24 years on 6/1 and it gave me a new found appreciation for the many things that we sometimes take for granted. My motto for the last 23 years is "That every day is a Gift". I took up bike riding and have ridden in more fund raisers for more different groups than I can remember. I am glad to see that you are trying to make people aware of this disease and that early detection is the key to survival. Good luck, Tom

From: Anne Brady Moore
Email: amoore@radford.edu
Date: Wednesday, March 10, 2004
Time: 04:41:42 PM -0500

Comments

My name is Anne Brady Moore. Jo Ellen DeLuca told me to contact you. I lost my mother Dec 21, 2002 to colon cancer and ever since then ive been trying to raise awareness of colon cancer. i talk to anyone who will listen. I share my story with others in hopes that they will get tested. I would love to join you in the fight to raise colon cancer please contact me! Anne Brady Moore in memory of Betty Ann Moore

From: Laura
Email: MissNipper@aol.com
Date: Wednesday, March 10, 2004
Time: 01:35:46 PM -0500

Comments

Hi everyone: I wrote back in October about my father who is 58 and was diagnosed with stage 2 colon rectal cancer. I got caught up in all the happenings and never wrote to tell you what actually happened and how he is doing. My father had surgery and it was removed. The truth and reality is, No one knows the gravity of the tumor until the surgeon actually goes in to remove it. They estimated it was the size of a lemon, but after surgery the surgeon said it was the size of a soft ball. 16 lymph nodes were removed and tested and it showed no cancer in any nodes which we were very thank ful for. My dad was termed a stage 2 cancer. He has undergone chemo and radiation and will be completely finished with his treatment in 2 weeks. It has been the hardest time of my entire life, but I have changed and so had my entire family. Waiting to find out the results of the lymph nodes was very scary and I never experienced such fear in my life. I just want everyone to know that they have to be strong for someone with cancer. You can't break down as hard as it is, but be there for them because the fear they are dealing with is enormous. My dad has an excellent prognosis ahead of him. I will write again soon

From: Nancy
Email: nancywynnern@aol.com
Date: Wednesday, March 10, 2004
Time: 11:41:20 AM -0500

Comments

Dear Molly- Thank you for being inspirational and a go-getter! I'm disappointed I missed the Tour when it came to Boston last Fall. I am now working with a wonderful group of people in my town to bring it here as part of our Relay for Life overnight. Colon cancer has touched my life too. My sister's husband was diagnosed 4 years ago in April at the age of 42. I only wish his symptoms were something he shared with me sooner. As an Endoscopy nurse I would have urged him to have a colonoscopy so much sooner! Interestingly enough and unbeknownst to me, his father was diagnosed 25 years earlier and did well after a colon resection. On that alone I would have badgered him to screen. Now 4 surgeries, 2 rounds of chemo and 1 round of radiation later the battle goes on for him and his family. Education is so important! Thank you for this perfect tool to get people talking!! Nancy Wynne RN

From: Allan
Email:
Date: Wednesday, March 10, 2004
Time: 10:47:27 AM -0500

Comments

I was diagnosed with stage 2 colon cancer last year on my 24th birthday, i had radical chemo/radiotherapy and a temporary colostomy after my tumour was removed.

I just want anyone reading this who may have a loved one or may themselves have colon cancer that it can and does get better.

From: MGBADA JOE ABA NAIJA
Email: MGBADAJOE@ABA.COM
Date: Monday, March 08, 2004
Time: 02:34:42 PM -0500

Comments

I LOVE THIS PAGE. PLEASE, KEEP UP THE GOOD WORK.

From: Lori Samson
Email: samson4@pcpartner.net
Date: Sunday, March 07, 2004
Time: 11:38:47 PM -0500

Comments

Molly - Thanks so much for all that you do! People need to know that this cancer can happen to anyone. I was 26 when I was diagnosed with colorectal cancer. It was a tumor in the rectum. Luckily, the cancer was removed and it was isolated. Due to the location, a permanent colostomy was done. Life goes on. I had a baby girl four years later (already had a one year old son at the time I was diagnosed). My wonderful husband has been very supportive. I had hoped to get to Des Moines to see the Colossal Colon but was unable to at the time. I did read about it and saw the picture in the newspaper. I think that it is great to get that out and make people aware. A giant colon will definitely make people talk!

From: Patsy
Email: Patsy1006@aol.com
Date: Sunday, March 07, 2004
Time: 08:41:32 AM -0500

Comments

Molly, You are an inspiration. Thank you for your story. My husband was diagnosed with colon cancer six years ago at age 50. His cancer recurred two years ago and he passed away on December 5, 2003 at the age of 57. Our oldest son, twenty-nine years old, decided to get a colonoscopy in April of 2003 and to our surprise, he also had colon cancer. Please continue to spread the word that this awful disease is not an old person's disease. If you have a family history and one of your parents' is young when diagnosed - get tested. It will save your life. Our middle son was tested at age 27 and he had two polyps removed. Our youngest son, 23, had no polpys. The all are going for genetic testing to see if they carry the gene. HNPCC, Hereditary Nonpolyposis Colon Cancer or Lynch Syndrome, is something that should be looked at if you have a strong family history of colon cancer. Keep spreading the word!

From: Sherry
Email: gin1012000@yahoo.com
Date: Saturday, March 06, 2004
Time: 07:01:46 PM -0500

Comments

My ex husband had colon cancer stage 3. He just had his last treatment March 1.He seems to be doing ok but I worry it will come back. He still works too much and does not eat healthy.He is only 39.

From: Veronica
Email: Live4Him152@aol.com
Date: Saturday, March 06, 2004
Time: 02:03:50 AM -0500

Comments

My dad just recently foud out he has colon cancer so he underwent surgery about 2 days ago. The bad thing about it is that it has spread to his liver, bladder and the prostate area. I came here to look for some insight and hope Thanks Veronica

From: will
Email: williamk233@yahoo.com
Date: Saturday, March 06, 2004
Time: 01:34:56 AM -0500

Comments

Molly your story has helped me alot tonight about 30 minnutes ago i found out my dad has colon cancer, but thats not all he also has emphazima, and i know he is dieing from these i dont know what to do but i have 27,000$ when i turn 18 and that is in 7 months im willing to spend it all on him if it means he going to live....you dont know how much your story has helped me just the thought of losing my dad is hurting so bad...how much did all your oporations cost....i need to find out all this because im willing to do anything for him i love him so much...please help me :(

From:
Email: factsnow@yahoo.com
Date: Tuesday, March 02, 2004
Time: 04:55:34 PM -0500

Comments

In 1980's i had a Brain tumor removed (size of a fist), then later developed sensitivity to radiation. Now in 2004 looks like i may have the same as you did. I thought it might be an appendix, but nope, looks like something more serious. The thing is, there were warning signs for 13 months but doctors said it was something else and didnt even do tests to make sure, thats surprising to me that you also had the same problem. Someone i know had his entire intestine removed so i know there can be a good ending. I wanted to thankyou for the website, its handy for people in the first few days of being in this position. I hope its something less serious, but if its not ill be back to join up with all of you.

ps, Did you use computers or Cell phones alot? Ive seen radiation metres show that there is alot of radiation coming out of the computer monitors, specifically at the side or the bottom of the screen. considering we are siting right in that direction its a big concern. flat LCD monitor, the new ones in the last few years have considerably Less radiation output on the bottom and the sides. And also, carrying cell phones (turned on) on the belt or in the pants pocket is also a very serious risk. Im suspecting for me, that it was the computer monitor exposure since 1985.

From: Richard A.Snyder sr
Email: rsnyder65@hotmail.com
Date: Sunday, February 22, 2004
Time: 12:18:59 PM -0500

Comments

i read your letter on your recovery from cancer and let me tell you it brought tears to my eyes. my wife had surgery on jan. 13 for colon cancer and starts her chemo on march 1. god bless you and thank you for your lovely letter and inspiration to other people that are going through these times.

From: Ashley Turner
Email: distraughtlyhappy@yahoo.com
Date: Friday, February 20, 2004
Time: 10:30:35 AM -0500

Comments

Hey... I'm from Bryant, Arkansas and I live 2 houses down from Jeff Roberts, Amanda's husband. Amanda and I were close and I think about her everyday. I see her son William on a regular basis... and Carolyn will come down occasionally. I miss Amanda so much. I just wanted to tell you that you and her both have made such an impact on my life.

From: Fran Chesnoff
Email: gcpretzel@aol.com
Date: Thursday, February 19, 2004
Time: 01:21:15 AM -0500

Comments

My husband was diagnosised with colan cancer June 2003. He had colan surgery, 12 out of 19 lymph nodes had cancer & he had 4 tumors in his liver. For 6 mts. he had chemo, oxiplatin (don't know how to spell it) with 5Fu. In Dec. he had a cat scan, only 2 tumors were left & the pet scan was clear. He then had a liver resection. They are now going to give him another round of chemo, irinotecan for 3 months. Are there people out there that have lived with these same types of symptoms? I'm scared to death of losing him.

From: chaz
Email: chaz2k@mac.com
Date: Wednesday, February 18, 2004
Time: 09:59:26 AM -0500

Comments

Molly, I enjoyed your site and what you're doing for colon cancer awareness. Your story is truly inspirational.

Thank you

From: David Brusiee
Email: dbrusiee@comcast.net
Date: Saturday, February 14, 2004
Time: 11:20:59 PM -0500

Comments

Molly,

I feel that what you did with the colossal colon is just "great".

I am in a stage of my life where I want to help educate everyone on a lot of things and Health seems to need the most help.

Most people are not taking the proper medical prevention activities such as not smoking, not overeating, exercise etc. and learn the best through use of graphics such as what the colossal colon provides.

I would be very interested in your thoughts regarding a colosal heart, lung, stomach etc.

Thanks /DaveB

From: Peggy
Email: plc@lonehorse.com
Date: Friday, February 13, 2004
Time: 01:53:40 AM -0500

Comments

My husband is 52 and just had a 5cm (ascending colon) tumor removed along with 24 inches of colon. The tumor had just barely perforated the colon wall into some fatty tissue, but liver and lymph nodes were clean. His doctor recommends the FOLFOX chemo regimen and I was just wondering if more patients opt to undergo the chemo in his situation, or do they decide to skip the chemo since the cancer is Stage II? The statistics I've seen say the there is a 60-75percent survival rate with no chemo and a 77.8 percent 3 year survival rate with the chemo. That doesn't seem like enough of a difference to miss 6 months of income and have to deal with a financial disaster in addition to the cancer. Do you have any stats to show how many people are opting to take the chemo vs. opting out and getting back to their lives as quickly as possible? Any comments or suggestions on this would be greatly appreciated.

From:
Email:
Date: Wednesday, February 11, 2004
Time: 07:25:51 PM -0500

Comments

Molly I am very happy you are well I have the same problem I always have very bad gas and problems with my bowel and and lot of swelling in my abamdom I am going to push my doctor for further testing

From: Robert Danna
Email: robert_danna@direcway.com
Date: Tuesday, February 10, 2004
Time: 08:07:27 PM -0500

Comments

Hi Molly,

It's been a while since Matthew our son died, about (6) months. The torment and anger has not let us as of yet... At 33, Matt was a fun loving, gracious son. He devoted his entire life to making people laugh and dance (D.J. Marshas Music). In the end, the doctors with all the different drugs they have to destory Colon Cancer, could only stand by and watch him die... My wife and I will be holding a second memorial for Matt on March 27th of this year. It's for those who could not make the frist one, when we were living in Washington state. Again, we want the world to Know "Don't let the Doctors make you beleive, because you are not 45 that Colon Cancer is Not going to take your life.... They are WRONG!!!! Please continue to do the wonderful work you are doing... Matt's memory will live on forever in our hearts... His last wish to ensure the word gets out ot all, Lives on thanks to you..

God Bless you always

Love

Bob and Marsha Danna

From: Kathleen
Email: kell3036@aol.com
Date: Monday, February 09, 2004
Time: 05:40:09 PM -0500

Comments

Husband has stage 4 colon cancer. Diagnosed 4/2003 at 35 years of age. Salt Lake City's first marathon/5 k run is being sponsered by The Huntsman Cancer Institute. (April 24th) FYI Thank you for your site.

From: Bea
Email: pmagnuson@juno.com
Date: Friday, February 06, 2004
Time: 05:02:32 PM -0500

Comments

My mother died of coloncancer 10 years ago in her native Germany.When I was 55, I experienced bloating and irregular bowel movements. The results of a scheduled colonoscopy were negative. However, I did have a bout of Diverticulitis which subsided after a few weeks and a course of pills. I did follow the recommendations of my physician and had a second colonoscopy done 5 years later (Spring of 2003) During the procedure, 2 polys were removed. I was told that they were not precancerous and not to worry but to come back in 3 years. In the interim we have retired to North Carolina and I was forced to look for an other Health insurance.I opted for American Republic. American Republic refuses to cover my Colon!! No preventative procedures or care R/G my colon are covered. After I complained in writing, I was told that their company's policy exempts all people from being covered who had 2 or more polys removed. I am puzzled! I doesn't make sense to me to NOT want to cover me for preventative purposes alone. Please comment.

From: Terry Miller
Email: tlmiller@ravenna.portage.k12.oh.us
Date: Friday, February 06, 2004
Time: 08:26:45 AM -0500

Comments

My story is similar to your's except for my age. I was approaching my 50th birthday and I had resigned myself to the fact that the colonoscopy was inevitable (family history of polyps). On the morning of 2/23/99 I was stricken with extreme abdomenal cramping and gross blood in my stool. A trip to the ER resulted in a scheduled colonoscopy. Meanwhile the symptoms subsided and I felt much better. On 4/6/99 I had the test which result in the discovery of a mass the size of a golf ball in my ascending colon. Surgery was scheduled for 4/20 at University Hospital in Cleveland, Ohio. I had 18 inches of colon removed along with my gall bladder. The pathology report confirmed what I knew. Fortunately the 25 lymph nodes that were removed yield zero cancer cells. I was spared the hell of chemo. I am an advocate of preventative screening and colonoscopy. My five year anniversary is approaching and aside from the 8 inch scar (which had to be repaired for a double hernia--which was a lot worse than the original operation from a pain stand point), I'm none the worse for wear. The biggest change in my life has been my willingness to go to the doctor when I don't feel well. I ignored several symptoms for almost a year which almost cost me everything. Life just seems a little better now than it did before. I've been able to see my oldest daughter get married and two have graduated from college. Oh yes, I love hockey, too. The Stanley Cup Playoffs and the Olympics are two of my favorite sporting events. Molly, take care and enjoy living as I do. Incidentally, my three daughters all know that they well have to have a colonscopy when they hit 39.

From: Brian Waldes
Email: Bwaldes@yahoo.com
Date: Wednesday, February 04, 2004
Time: 06:48:39 PM -0500

Comments

Miggedy Miggs!

Whats the word? Just writing to check up on you. Its been a while. Things here are good. MArried life has been good to me. We have a dog now, little big pup, we call her. Her name is Maddie. She's an 85 pound Bernese mountain dog. she loves it up here. She may be the only being that likes snow more than I do. Besides that, the beat goes on. Still skating, skiing etc. Actually, Jared and a few of my other NY boys will be out here this weekend. So what's up with you? Tied the knot yet? Finished the book? Been on tour with the collosal? Running for president? Anyway, just want you to know I don't forget about you! Talk to you later.

Brian

From: Nimal
Email: nimjas01@msn.com
Date: Sunday, February 01, 2004
Time: 02:47:41 AM -0500

Comments

You are a great inspiration to all. I am 54 yr old male who agreed with the family doctor to get a colonoscopy done. I had absolutely no simptoms. NONE. During the exam on the 7th of January, the doctor discovered a 3cm tumor on the decending colon. He even called my wife, who is medical assistant into the examination room and asked again if there were any simptoms at all. The doctor sent me to a surgeon for consultations and he decided to remove it. Surgery was performed on the 23rd. The tumor and the surroundings were tested for cancer. It was free of cancer. I came home on the 30th after a seven day stay in the hospital. It is SO IMPORTANT that people go for their routine checkups, specially if there is any kind of cancer in the family. Keep up the good work. Our prayers are with you

Nimal Perera

From: Christina Doyle
Email: gerry.doyle5@sympatico.ca
Date: Saturday, January 31, 2004
Time: 07:19:54 PM -0500

Comments

Hi Molly,

It was approximately 3 years ago when I responded to your site. I am now 10 bone cancer free. there are approx 7 of us in all of Canada who have survived. I became a motivational speaker , a country music recording artist and raised over 20 thous for bone cancer research. I like you feel so blessed to talk to others and give them hope. Check out my site at www.christinadoyle.com In sept 2003 I was on CTV news on a segment called success stories. My story has been documented by wtn on a show called family dance. You know this cancer thing never wants to go away, and I die each time I enter the hospital and think well maybe this time they will find something on my lungs. then I get a grip and say it damm it I have been so blessed, I have had 10 incredible years of joy, and trying to help others see a brighter side of life. That has been my mandate, if there is a cause I am there. I wish all your readers complete peace in their hearts . If your an organization I would be delighted to speak to them. Thank you Molly for your site and a chance to vent my worries that I carry with me. I too strive for peace and have let go.

Bless all your readers and may they find comfort and hope in our comments christina doyle www.christinadoyle.com

From: Angela Teague
Email: thepurplecake@aol.com
Date: Saturday, January 31, 2004
Time: 03:19:28 AM -0500

Comments

Hello Molly from. I live in Mississippi and am 44 years old. Two years ago I went in for a colonoscopy, (I think thats how its spelled). Anyways, I had it at the center in Ocean Springs Ms., The doctor puts you in a light sleep so you are not aware of what they are doing. When I came to, Dr. Lafontaine came to me with a picture. She said you have a tumor in your colon and I've seen enough to know it is cancer. The she preceded to tell me that she was going to admit me to the hospital because I was very anemic. Needless to say the very next morning I had surgery. The cancer was in one of my lymph nodes, out of 11. I went thru the 6 months of chemo. I was going to the doctor every 3 months. When I went in Oct. I was told to come every 4 months now. By the Grace of God I am still alive. I am so thankful for my life. You always here of doctors saying that you need to start have scopes done at age 50, but every time I turn around someone younger is getting colon cancer. At the time when I found out I had just had a hysterectomy. When I think back a few months before that I had started getting real bad gas pains when I would eat beans. I had started buying beano. My stomach was getting bloated also. I attributed that to my female problems. At church I was telling one of my sistern that I was wearing pants because with stocking, slip, underwear it would bother my stomach. I was scheduled for my surgery for the hysterectomy on Feb 18. 2001. About a week before that my husband and I were in Texas visting our brother-in law. He was going to have a bone marrow trasnplant. He has multiple myleoma cancer. For there days I couldnt go to the bathroom. I thought It was because of all of the food we were eating out at restaurants each night. When I got back to do my pre op I told my gyno about my constipation. Common sense should have told both of us to go see about it right then. Well he told me to take laxatives and if I was still having problems after my hysterectomy then to go have it checked. I had the surgery. In the hospital they had to give me stuff to make me go. When I did it was such a strain that I'm surprised that I didnt pop my staples..So I called my reg. doctor. With my insurance at the time you had to go and get a referral. By the time I went and saw him, and they set it up for me to go get the colonoscopy done 7 weeks had passed. I was back at work 1 week when I had it done. It was on April 11.

I go back to the oncologist on Feb. 16th for my next checkup. I go and get the bloodwork first for the tumor test.

I get a little nervous around the time for my appointments. I shouldnt doubt that the Good Lord has healed me. The old devil just wants me to have worries and doubts. I hadnt look up stuff about colon cancer in a while. I just happened to come to this site tonight.

I know when I first found out I had the cancer, I felt like I was the only one in the world with it. Boy, that sure changes when you start going for Chemo and see all those other people there. When we were in Texas seeing my brother in law at MD Anderson, I thought wow all of these people have cancer. But it really doesnt sink in until you have it yourself.

By the way Ed had his bone marrow done. It has been tough for him.He had to go out on disability from work. He has his ups and down days. I don't know if you are familar with multiple myleoma. It affects you bones. Ed used to be taller than me. Now he's almost my same height. He is constanly on pain medicine. It has been 2 years since his transplant.

I guess I have wrote enough. It is 2:30 in the morning. I really need to get some sleep. God Bless.

Your new friend Angela

From: Bob
Email: rlwjr9@bellsouth.net
Date: Friday, January 30, 2004
Time: 06:17:55 PM -0500

Comments

Hi Molly,January 03 went for tests for colon cancer and same time had heart cath.Was told I needed by pass surgery first then colon cancer surgery.Also had 5 units of blood.Feb o3 went in for second heart bypass surgery.March 03 went in for colon surgery.They removed 18 in of colon and told me it had worked its way through my bowls.I need kemo but cant because of heart.April 03 lost only sister to same heart diease she was 33.Dec 03 was told I have blockage in renal artery and need a bypass as it causes unstable blood pressure.I have run out of hope.Any comments

From: Rose
Email: Roev123@aol.com
Date: Thursday, January 29, 2004
Time: 11:11:45 PM -0500

Comments

Molly,

God Bless You! What an inspiration you are. My mom was diagnosed two weeks ago with rectal cancer. We live in NY and went to Sloan Kettering. She will start with chemo (continuous with a port) and radiation for 28 days and then they are scheduling surgery. Thank you for your site. It has given me hope and a positive boost so I can continue my role of "cheerleader" while I go through the treatments with her. Thank you once again and best of luck

From:
Email: hap428@msn.com
Date: Monday, January 26, 2004
Time: 03:21:57 PM -0500

Comments

Hi Molly, I read your courageous story. I wish you a long and prosperous life. I am a prostate cancer survivor, 53 years of age, diagnosed last Jan., operated on in Mar of '03. I got it early and confined, and although I will never be 100% as I was before, and the embarassment of incontinence on ocassion and being unable to ejaculate, at least I am alive and can enjoy my 22 year old son, with a very optimistic outlook for the future. The key to life is to keep going forward, because you never know what's around the corner. Good luck and good health. I'm looking forward to playing golf this spring...

From: Allie
Email: hyper_pryor@yahoo.com
Date: Sunday, January 25, 2004
Time: 06:31:14 PM -0500

Comments

One of my best friends was just diagnosed with Stage 3 Colon Cancer this past week. She turned 16 Friday. We don't understand why this is happening. They just lost their father about a year and a half ago to cancer (not colon). Everything's just crazy right now. Treatment will start this week. She has so much courage, support, and faith. I know she's going to be fine, but we do have a long road ahead of us. Keep her in your prayers. Thank you. Feel free to e-mail me.

From: MGBADA JOE,ABA NAIJA
Email: MGBADAJOE@ABA.COM
Date: Saturday, January 24, 2004
Time: 04:08:33 PM -0500

Comments

I LOVE THIS PAGE. PLEASE, KEEP UP THE GOOD WORK. IT IS VERY EDUCATING.

From: Diane Hawco
Email: dihawco@nf.sympatico.ca
Date: Saturday, January 24, 2004
Time: 01:22:59 AM -0500

Comments

I am a person with colon cancer who lives in Stephenville, Newfoundland, Canada. I just discovered your web site and I'm so excited already, only after reading a few of the emails from others with such super success stories. As it is now 2:50 am I am a little too tired to read any more, but I will be back a.s.a.p. with my story and many questions. Thanks so much for being there.

Diane

From: Rick
Email: ricksl1@msn.com
Date: Sunday, January 18, 2004
Time: 06:10:06 AM -0500

Comments

Hi Thanks Molly for this Group !! It's so nice to hear from other people that have the same thing thing as me. And to hear that so many have a positive attitude in dealing with this unfortunate situation. I am 44. About the end of last year(Dec02), I began having having irrigular bowl movements. Stool began looking like it was pressed out of a play school play dough press. Now let me say , I don't go to doctors, don't get sick ...tough as a nail kinda guy.And had a BM every morning of my life , like clock work ! Kept thinking this thing would pass and constapation would go away. By the end of Jan 03 and a couple of blood sitings later, I decided maybe I need to get checked out. Got with gastrolagist (which took 6 mos to get in !!!) on June 28th. His initial diog. was because I looked so healthy, that I probably had IBS and was easily treated. But I pointed out to him the odd shape stool made me think there was a blockage ...and because I am 44 he suggested a colonostomy. So that happened 2 wks later. As a result they found 3 polyops. 2 were removed negative , the 3rd was about the size of your little finger wrapped nicely in the rectum 6cm's in and ulcerated and has probably been growing in me sence my later 30's !! As well came back pos for cancer.. 2 wks later did an ultra-sound colonostomy..and found this tumer to be a T3 , had entered the rectal wall ,yet was not through it. But was going to require surgery..went to John Hopkins in Balt. and got all this confirmed. Then started me on Kemo(5fu w/pump&portal)/Radaition Oct,1st through Nov 9th. Operated on Dec 17th 03. They say OR was a sucess, removed 18"of colan, rebuilt the rectum, resectioned, and installed ileostomy bag(small intestion) as a temporary means of waste disposal, will do a reversal in a few mos.when things heah up down there.. out of 12 lymphnodes tested 2 came back positive for mas which they say is very good !! Now Jan 18 04 and recovering, have a ways to go.. some difficulty adjusting to new way of life (as temporary as it is or is not) ,will get a few more mos. of Kemo (insurance) .. but thank GOD I have a new chance at life all over again. My point is this, I believe and it is the opinion of others I have met, GET THAT COLONOSTOMY @ 40 !!! They put you out , you don't feel a thing. My partner in biz got one done ...they found 3 polyops in him ,lucky they were all neg. and found in time. If you think you are Mr or Mrs. Atlas (like me) Think again. this disease is #2 killer in the nation, yet if detected early CAN BE CURED !! Thanks for this site!! and please e-mail me ,I'd like to hear how other people are dealing with thier lives. Rick Rick

From: Allan
Email: welditright@comcast.net
Date: Thursday, January 15, 2004
Time: 09:03:21 PM -0500

Comments

Hello Molly, I was diag. and treated for stage 3 colon cancer in 2001. I found out today that I have two leisons on my liver. I have been reading survival stories to help me remain positive. I just thought I would say hello. Sincerely, Allan

From: BEVERLY SANCHEZ
Email: BEVESAN46@AOL.COM
Date: Wednesday, January 14, 2004
Time: 06:33:35 PM -0500

Comments

HI MOLLY, JUST BEEN DOING SOME RESEARCH BECAUSE I'M GETTING READY TO HAVE MY FIRST COLONOSCOPY. I'M A 57 YR. OLD WIFE, MOM AND "MIMI".LOL FOR ABOUT 2 WEEKS I HAVE BEEN HAVING CONSTIPATION, AND MY STOOLS WERE THIN, BUT SOFT. MY DR. EXAMINED ME TODAY, NO BLOOD IN MY STOOLS, AND SAID THINGS LOOKED GOOD IN THAT AREA...BUT I DID NEED A COLONOSCOPY..MY MOMS SISTER DIED FROM COLON CANCER SEVERAL YEARS AGO...NOW I'M A NERVOUS WRECK. WOULD YOU PLEASE DROP ME A LINE WHEN YOU HAVE TIME. CONGRATS. TO YOU....GOD HAS BLESSED YOU AND YOU ARE DOING A GREAT AND NOBLE THING TO MAKE PEOPLE AWARE OF THIS NASTY OLD CRITTER. THANXS MUCH, BEVERLY

From:
Email: pjays@telus.net
Date: Monday, January 12, 2004
Time: 05:03:04 PM -0500

Comments

I had my colon removed after a large tumour was found. I had been blocked for weeks before the tumour was found so my colon had ruptured nesseciating the removal. I have since been reconnected and at this point (2 years later) I am cancer free. I would like to know if you have any info on diet following a complete colon removal I don't know to to eat and I'm gaining weight Thanks for your help and good luck to you

From: lisa ruth-sahd
Email: lsahd961@earthlink.net
Date: Wednesday, January 07, 2004
Time: 01:22:32 PM -0500

Comments

thanks so much for providing such an educatioal and preventative idea.

From: Ted schetzel
Email: schetkt@cox.net
Date: Sunday, January 04, 2004
Time: 08:07:08 PM -0500

Comments

Just wanted to say hi.....was given a colonoscopy on dec 30....Doctor woke me and said he felt it was definitely cancer....nice thing to say to someone who was assured it was probably nothing and was just looking forward to feeling better over the next couple of days...I am scheduled to talk with a suregeon tomorrow afternoon...you know what...it doesn't matter, just another little setback, hopefully to recover shortly....was wondering how long it took to finally feel like your life was yours again? and congratulations on your recovery

From:
Email:
Date: Friday, January 02, 2004
Time: 02:24:46 PM -0500

Comments

Hi Molly

I was diagnosed with Stage II B Colon Cancer in November 2003. I had a surgery and fortunately there were no lymph nodes affected. I also had a PET scan and it showed no presence of tumor cells in my body. Still, my oncologist insists on me having chemotherapy (5-fluorouracil). I was supposed to start today, but called and canceled my first treatment, because I am not convinced that I need to have chemotherapy. Also, I am afraid that the side effects might be more harmful than the lack of treatment. I made an appointment with my doctor to discuss my concerns. Could you please give me some advice as to whether I need to get a second opinion and where? I know that there is no Cancer Research Institute in Nevada, but I am willing to travel to California or Utah and discuss my options with specialists. Thank you


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Disclaimer: This website is not intended for medical advice. Molly McMaster is not a medical professional and can only tell about her own experience as a colon cancer patient.
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