Rolling To Recovery, A story of a 23 year old colon cancer survivor Molly Mc Master, who is now raising awareness for the disease among young people.  
Guest Book (Year 2003)

Click on the year to read comments: 2005, 2004, 2003, 2002, 2001, 2000.

From: moxin
Email: qzli@sse.org.cn
Date: Wednesday, December 24, 2003
Time: 10:42:34 PM -0500

Comments

Hi, Molly,I have a friend who has been diagnosed some half year ago with colon cancer, he just had a operation in Beijing,the People's Republic of China, but the operation was not so successful. He asked me to get some information in the Internet about the famous hospitals to cure colon cancer in the U.S. If possible, he will go to the U.S. to get treatment. Could you please give me some advice? My friend is very earnest to know the best hospital in the treatment of colon cancer. Sorry to disturb you!

From: Nicole
Email: cancerstuff@lovelymachine.com
Date: Sunday, December 21, 2003
Time: 02:01:23 PM -0500

Comments

Good to see I'm not the only one who doesn't fit the demographic. I was diagnosed two months ago with colon cancer, just shy of my 30th birthday. They removed a tennis ball sized tumor from my ascending colon in late October, and I'm doing adjuvant chemo now. I'd been having abdominal pain since July but they had trouble figuring out what the issue was until I had a colonoscopy in October. Various doctors suspected ovarian cysts, appendicitis, IBS, Krohn's, diverticulitis, etc. Thank goodness I had that followup colonoscopy, as the cancer had spread to one lymph node. I have insisted that all my family get colonoscopies, even though there is no family history of colon cancer (well, except me). Anyone who's going through chemo and wants to commiserate on 5-FU/Leucovorin's side effects, please email me.

From: lynn
Email: racebs27@hotmail.com
Date: Monday, December 15, 2003
Time: 12:12:13 PM -0500

Comments

Hi molly.. i just one wanted to tell you how great it was to meet at the cross check for colon cancer that you put on... it was great to play such a great game .. you are an awsome player..and two to tell you that you are a very brave stong woman... i have been having problems and after reading your story and seeing my doctor i am going to test for possible colon cancer. Well needless to say i have had to take some time off from hockey till i feel better and know what is going on.. Not easy with 2 kids very active in sports. i know most people only leave something if they have had or no some one that has this but i figured what the heck. keep up the good work molly.. most people dont know how much family history can affect them when it comes to this.

Lynn

From: Dirk Walls
Email: dirkwalls@yahoo.com
Date: Monday, December 15, 2003
Time: 07:25:53 AM -0500

Comments

Howdy. I was diagnosed with colorectal cancer about a year and a half ago, when I was 37. I had been having symptons for years, mainly blood in my stool and pain in my guts. I had been putting off going to the doctor. I thought it was an ulcer or some hemorrhoids. I think this is a problem with many males, not going to a doctor when they should. Too many John Wayne movies when I was younger :). I had read a bunch on the net and experimented with different foods and was pretty sure that I had developed a gluten intolerance, which was causing my problems. Luckily, I told a good friend about my symptoms and she (after calling me an idiot) convinced me to go see a doctor. Thanks M! I forget what stage it was, but I got one of those PIC lines and 4 weeks of constant chemo along with daily radiation shot up my butt for 4 weeks, then some recovery time and surgery. Cut out a the bad part of my colon, along with my gall bladder (turns out it was full of stones) and my appendix. Used an ice cream scoop on the lymph nodes and got some of those too. They found no cancer in the nodes but I got another 4 months of weekly chemo to make sure. I'm feeling pretty good now and urge any of you (especially you macho male types) to get checked if you have any symptoms. If you can get this stopped while still a polyp, that's much better than getting your gut cut upen. Thanks also to my two doctors, Dr Matthews and Dr Keech. They are awesome.

From:
Email:
Date: Monday, December 08, 2003
Time: 05:09:07 PM -0500

Comments

Hi Molly Hope things are still going good for you. My mother was diagnosed with colon cancer when she was in her late twenties. She is now 69 and is doing quite well. The doctors didn't expect her to survive the last time she went in a few years after her first surgery, but she has always been a tough, determined woman and proved them wrong-- luckily for my brother and I! Wanda

From: lynn
Email: clean2th32@aol.com
Date: Monday, December 01, 2003
Time: 08:00:06 PM -0500

Comments

Hi molly, I read your story, and first want to congratulate you on 4 yrs cancer free. I can really relate to your story, as my mother battled colon cancer for 21/2 yrs. She went through alot of what you did, but due to it being stage 4 when they found it, she died in feb. I would love to participate in a walk of some kind to raise money for colon cancer in the massachusetts or NH area. Do you know of anything? If you do I would appreciate any info you have.

From: Dave Bratz
Email: dbratz@qwics.com
Date: Monday, December 01, 2003
Time: 11:44:52 AM -0500

Comments

Hi Molly, my story is alot like yours, the only difference was that I had no symptoms. (I am 51) My colon cancer was discovered just by luck. I changed doctors and my new doctor asked where last colonoscopy report was. I told him I never had one, he insisted I have one the following week. I had the colonoscopy done on November 12th. 2003 and I was scheduled for surgery November 21st. I am still in recovery but am hoping for the best. God bless you and I hope you have a long and healthy life. DB. Kohler Wisconsin.

From: Sherry
Email: jmckee@sunflower.com
Date: Saturday, November 29, 2003
Time: 04:41:53 PM -0500

Comments

Your website is great! My husband is 39 years old and was diagnosed with Stage II colon cancer at the end of October. We have 4 young children ages 2 to 8! He had surgery the second week of November 2003, the cancer had grown through the large intestine, into the fatty tissue surrounding the colon. The good news is they took 60 lymph nodes and none of them were positive for cancer!! Basically his whole colon was removed (due to ulcerative cholitis and cancer), they hooked his small intestine to the rectum. The dilemma is wether to have chemo (FOLFOX) or not. We want him to be sure it doesn't come back, because the surgeon thinks he got it all. The first oncologist said he didn't know how he would tolerate the chemo without having a colon, that it could possibly cause severe diarrhea and GI distress. But he's leaving it up to us to decide. Has anyone been through this situation? Thanks

From: Shari
Email: sislonski@shaw.ca
Date: Friday, November 28, 2003
Time: 02:33:54 PM -0500

Comments

I was hoping that you would be willing to share my website link with others. I am a breast cancer survivor and make cancer awareness gifts that give and support.

Thank you for your time and consideration. shari http://www.BeadsForACure.com

From: Floyd Rider
Email: frider381@aol.com
Date: Thursday, November 27, 2003
Time: 09:24:35 PM -0500

Comments

Hello Molly, I saw the colossus colon the California PBS "California Gold" several months ago. I thought what a neat idea to let people know about colon cancer. Little did I know at the time that I would be one of the people diagnosed with the disease. I had surgery 12 days ago to remove stage 3 tumor, lymph nodes, and associated fat tissue after passing a large amount of blood one occasion. I now have the task of chemo starting in about 3 weeks to take care of the cancer cells in the lymph system that could not be detected during surgery. I know that the battle is still before me but am optimistic that I will beat this thing. With about 14 inches less large intestine to worry about, 35 less pounds, and tons of family support I am also going to be a survivor. Thanks for your hard work and the time you spend letting people know about colon cancer. Floyd Rider Exeter, CA

From: mark mcgrath
Email: markemark12887@yahoo.com
Date: Wednesday, November 26, 2003
Time: 12:30:26 AM -0500

Comments

HI MOLLY, I SPOTTED YOU IN THE PARADE IN GLENSFALLS. DIDNT WANT TO SCREAM AT YOU AND LOOK LIKE A FOOL! I WANT YOU TO KNOW THAT ON AUG.IST I TOOK MY HARLEY ON A TRIP ACROSS THE UNITED STATES TO THE WEST COAST AND BACK. ON THE WAY BACK TO N.Y. I WAS BLEEDING A LOT. ON THE 15TH I GOT HOME AND TWO DAYS LATER MY STOMACHE WAS AS BIG AS A BASKETBALL. I WENT TO THE DR. OFFICE IN BOLTON AND WAS TOLD TO GO TO GET X-RAYS. I DID AND WAS TOLD THAT NOTHING WAS WRONG AND TO GO ON A LITE DIET. TWO DAYS LATER I PASSED OUT UNDER A CAR,WHEN I CAME TOO I WAS SOAKED IN SWEAT. MY WIFE RUSHED ME TO THE HOSPITAL AND THEY THOUGHT MY APENDIX HAD BURST. IT DID!MY COLEN HAD RUPTURED (DIVERTICULITIS)cant spell AND WAS EATING ME UP INSIDE. WAS OPERATED ON AND HAD TO HAVE 16INCHES OF MY COLEN REMOVED, MY APENDIX,AND SOME SMALL INTESTIN. THANK GOD IT WAS ON THE RIGHT SIDE, OR I WOULD BE WAERING A BAG. IM STILL HEALING AND NO MORE CANCER HAS BEEN FOUND. KIND OF A SHITTY WAY TO SAY HI, BUT HI MOLLY HOPE YOUR DOING WELL, AND LET ME KNOW WHEN YOUR GOING TO BE AT THE RAIDO STATION AND I WILL STOP BY. THANX MARK MCGRATH

From: Theresa Nelson
Email: dtsenelson@yahoo.com
Date: Tuesday, November 25, 2003
Time: 09:14:06 AM -0500

Comments

Molly, It is great to hear that you were able to come so far! I hope you or someone reading this, can help me help my friend. She is 32 and 21/2 yrs ago was diagnoised with colon cancer. It didn't know her then, but have gotten to know her very well over the past 11/2yrs. She had radiation, then surgery to remove the cancer, and was put on a colostomi. After a few months they removed the colostomi and a few weeks later a fistula opened, allowing her to have diahriea pass through her virgina. They operated again, placing a "fat pack" to close the fistula, and put her back on a colostomi for 3 - 6 months. This past month they took the colostomi off and after only 2 weeks the fistula has re-opened again! I have never really heard or seen her cry before, but last night she was ready to just give up! She lost her mom at 13 to colon cancer and now she feels it is her turn. She has 2 young children, and has come so far, I refuse to let her give up now!! Is there anything else out thier we have missed that can help her? I will take any and all advice as well as prayer that we can get! Thank you, and good luck to the rest of you fighting, you are all in my prayers!

From: Jen
Email: jen_m_p@yahoo.com
Date: Wednesday, November 19, 2003
Time: 02:03:02 PM -0500

Comments

Last October, at age 58, my mom was diagnosed with colon cancer, had her surgery, where they found cancer in one of twelve lymph nodes removed. She started 5FU in November. When she finished that in May, they found that her cancer had spread to her liver. So then it was off to CPT11, which worked great on her liver tumors. Today was to be the day they resected her liver to remove any remaining tumors. But no such luck because they found a mass on her small intestine, so, because of that, they didn't operate on her liver. I'm not really sure what's going to happen next. Please wish my mom luck.

From: Mary Botz
Email: jmbotz@hotmail.com
Date: Tuesday, November 18, 2003
Time: 11:23:40 AM -0500

Comments

Hey Molly!

I have told our story in the guestbook a few times since this nightmare began in March. My dad is the one with colon cancer and had radiation and chemo prior to surgery #1 to remove the tumor and surgery #2 to do a "take-down." All has went pretty well, except that now he is in his follow up chemo and is having a very tough time with it. He has diarreah which is very inconsisent, but worrisome enough that when it does come, it is tough to get rid of. I don't know the name of any of the drugs he has taken to try to counter it, but he has gone from over the OTC stuff, to pills, to shots, and is now receiving a "long lasting shot" which was done yesterday. He had chills all day yesterday and now has a low grade fever...while he insists that he has a cold and that is the problem, I am wondering if it could be from the shots or from the chemo. Any ideas or suggestions from ANYONE would be appreciated. Thanks!!

Sincerely, Mary Botz

From: Angela
Email: oakhaven1@earthlink.net
Date: Tuesday, November 11, 2003
Time: 08:10:08 AM -0500

Comments

There is a family history of colon cancer in my family. I finally decided to have a colonoscopy after being told by my father's doctor that children can get it 10 years prior to the age when their parent gets their first polyp. They found a flat adenomous polyp that is over 3 centimeters wide, which is pretty big for a "polyp". The doctor was not able to get the polpy out during the colonoscopy because it is flat along the wall of my colon and because of it's size. They have suggested surgery. I'm 35 years old and had always thought I was too young to have to worry about colon cancer. I've seen many friends and family die from different types of cancer and so I am terrified, but your story gives me much hope and courage. Now, I have to convince my 18 year old daughter that she needs to be tested in by the time she's 25 or sooner. Please let me know if you know of any events in North Carolina to raise awareness or money for colon cancer. I would love to take part in the events, help others and be around survivors that will help me to remember that I can be a survivor too. Thank you for sharing your story. I wish you the best always.

From: Ceu pimentel
Email: vieirapimentel@microsoft.com
Date: Monday, November 10, 2003
Time: 09:45:02 AM -0500

Comments

Hi, firstly I would like to congratulate you on your courage and succes story. I am a very worried Portuguese lady,living in Portugal, because my father who is sixty has just been operated on friday to his colon to remove a tumar. He had the same sort of symptoms as you had. I have family members that have polyps and others that have had breast, spinal and lung cancer. They are all still living and fighting cancer.I feel like I'm lossing every one that I love,I have lost my mother and now I have three close family members and my father with this terable sickness.I would apriciate more info. of what you go through after the removal of the tumar, what you can eat and if you did any changes in your diet. Also did other family members change there eating habits to avoid getting this type of cancer. Your testamonial has given me hope, thankyou.

From: Kim
Email: emersokc@jmu.edu
Date: Thursday, November 06, 2003
Time: 12:55:57 PM -0500

Comments

Dear Molly Thanks for your story which helps to inspire me. I also had emerg surgery to repair perforated bowel from what I learned later was stage 2 cancer. I was 42 years old. My case too was rare because of my age and had no background - but later learned that my grandmother died in 1979 of what must have been colan cancer. My dad only remembers that she used supposotories all the time and finaly went ill and into the hospital and so they did exploratory surgery and sewed her right back up cus her insides were all 'eaten up with cancer'. Horrible. But I need your inspiration to get healthy. You were stricken when your were young and physically fit - I am old and fat. I did smoke - just dont exercise anymore like I used to before the 2 kid. Am under tremendous stress in taking care of my 73 yr old Dad in a nursing home from strokes as well as work fulltime. I underwent 6 mos chemo, during which I had another major operation to reverse the colostomy. I weight more now then when I came out of the hospital the first time June 2002. The chemo really stopped my metabolism and I have been done with it for 10 mos. I am considered to be in remission or cancer free - whatever that means - but want to loose 100 pounds. I feel so worthless. Thanks for jsut listening.

Kim.

From: Cybil Bointy
Email: ckbointy@hotmail.com
Date: Monday, November 03, 2003
Time: 10:31:44 PM -0500

Comments

Hello I am so glad that you made it through your scary ordeal. I was just wondering if you know all the symptoms to this dreadful disease? I am worried about my insides and like I read about your story we all know when something is up and not right? so please let me know or send me some information about this?

cybil bointy p.o. box 341 carnegie, OK 73015

waiting patiently...

From: tina therrien
Email: ttherrien@mssnycph
Date: Thursday, October 30, 2003
Time: 10:24:10 AM -0500

Comments

Hi Molly, I'm ann dunbar's partner and we met once or twice while visiting Lisa. Ann and I are members of Lisa' Angels and will be attending the hockey tournament. I work for the Medical Society of NY which represents all NY physicians. This morning I sent out an announcement about the tournament and have already received inquiries as to where donations can be sent. Thanks for all that you do! Tina

From: Janelle Ahlvers, Lindsborg, Kansas
Email: ahlvers@bethanylb.edu
Date: Wednesday, October 29, 2003
Time: 09:36:04 PM -0500

Comments

Molly I met you at the hotel exercise room in St. Louis when your tour was there. I had a lot of fun talking to you and learned that you were with the Colon tour. Little did I know till I went the next day that you were the creater and survivor. I was truely amazed. I wish I would have been able to talk with you but you had to leave that day. I just wanted to let you know I wish you the best. Your an inspiration. Janelle

From: Ruby Laune
Email: rblaune@hotmail.com
Date: Wednesday, October 29, 2003
Time: 05:53:39 PM -0500

Comments

I just recently had colon surgery and not doing so well

From: Bonni Garvey, So. Glens Falls, NY
Email:
Date: Wednesday, October 29, 2003
Time: 05:09:28 AM -0500

Comments

Good Golly Miss Molly!!! Happy to have you back home after your long journey across the country w/ the Colossal Colon!!! You do such fantastic work to raise awareness of this preventable disease, can't wait to see what you'll cook up in the future! Thank you, Sergei, for the configuration of this easy-to-navigate website! This message is for all of you out there, who will be having colonoscopies. Some people mention the worst part of it is "DRINKING THE YUKKY STUFF". That is what I was told also, and I dreaded it! BUT, my doctor gave me a prescription for 2 small viles of STUFF, I took it home, the directions say to mix it w/ ginger-ale (can't remember the other choices--but they will be there on the directions the pharmacist will give you along w/ the stuff you have to drink). It did not taste YUKKY and the liquid (mostly the ginger ale) was fine. I had to drink about 32 oz. of my choice w/ each little bottle of "stuff" mixed in it, so that is a lot of drinking BUT IT IS NOT THAT CHALKY-TASTING STUFF OFTEN ASSOCIATED W/ GETTING X-RAYS OF YOUR UPPER OR LOWER GI TRACT!!! I know that "YUKKY STUFF" makes you gag, and you wonder if you will ever get it down, if it is worth all the agrevation, etc etc etc BUT YOU DO NOT HAVE TO DRINK THAT "YUKKY STUFF", THERE IS AN ALTERNATIVE--TELL YOUR DOCTOR YOU WANT THE 2 LITTLE BOTTLES OF STUFF YOU MIX W/ GINGER ALE THAT DO NOT TASTE BAD AT ALL!!! Another thing to know is that once the "STUFF" you drank kicks in, you will spend alot of time in the bathroom, I ran in and out of the bathroom so many times for several hours, I can't even count them, but I sat on my bed, w/ a warm blanket over me and a heating pad (cause w/just a nightgown on (didn't want to get "other clothes soiled" and didn't want to "not get my pants down in time") I got cold everytime I would get up to "GO"). Also, be sure to put vasoline on your bottom, around your rectum, so that you don't get sore from "going so many times" and from "wiping yourself". I mentioned that my bottom was sore when I went the next day for my colon-oscopy and the nurse said, "Oh you should have put vasoline on your bottom" and I said, "Now you tell me!!! Why not include that in your Pre-surgery notes that you give to all patients?" I made sure to watch a funny movie or something that was upbeat to pass the time away. I sincerely hope this helps those of you who will be having a colonoscopy in the near future. By the way, that was my first one, I was 57 and in good health but STRONGLY BELIEVE IN PREVENTIVE MEDICINE AND TAKING GOOD CARE OF YOURSELF. I also had one because Molly is my friend and after learning of her experience, IT WAS THE RIGHT THING TO DO at my age. Thank you GOD that mine was fine, no problems!

From: Larry
Email: jonathonlallo@excite.com
Date: Tuesday, October 28, 2003
Time: 03:11:40 PM -0500

Comments

This is quite the encouraging site. Would like to give encouragement to those diagnosed or survivors of rectal cancer. Be encouraged that the Lord if you know Him, can be your strngth and your peace in the storm. I resisted for even months having surgery, fearing death, but also maybe even more so, fearing having to have a bag. I was 49 years old. the tumor was about 10 centimeteres up the rectum. I did all the alternatives in advance begining with Prayer wherever and whenever I could have people pray to Jesus for me. I juiced organic carrots and broccoli - 3- 10 pounds per day - mostly carrots and apples. Must be organic. I utilized Cesium and Coral Calcium and vitamin D theraphy, and Coralagic vrom V4 Life. It was a difficult time. The surgery and recovery time took about 14 days inf the hopsital and a few months and then back to work and ministry I went with all Glory and Praises to God. They took out about 14 lymph nodes an no evidence of cancer was found in them. It was decided that I should not even have chemotheraphy. I do have to live with several bowel movements on some days, and sometimes it is difficult to control, and my stools remain shaped in funny humorous looking ways, yet I feel very good, and look to the next phase of my life. I still will need to endure blood tests every quarter and an annula colonoscopy of which the worst part is that crappy tasting liquid! So be encouraged my friends. God is Good, though we all have trouble seeing his goodness, especially in times like these. The eternal outcome is what he is after regardless of when or how long we live or die.

From: Kristine Zechman
Email: Kristine.Zechman@EDS.com
Date: Monday, October 27, 2003
Time: 05:27:05 PM -0500

Comments

I am 33 years old and have just had surgery for what the doctors assumed was a benign tumor. Unfortunately, they were wrong. I was lucky, in that in my story my doctors took my very first symptom seriously. I had blood in my stool one time and by the time I went to see my doctor two days later it was gone. Thank God the doctor took me seriously and decided to be sure it was hemoroids! I do not think I have a family history, am not overweight and do not fit any of the other risk factors so it is a bit of a surprise he did... They caught my cancer at stage I. Thank you for your website. It was a helpful site to visit.

From: Joan R. ONeil
Email: ncjoan2@alltel.net
Date: Monday, October 27, 2003
Time: 02:57:15 PM -0500

Comments

Dear Molly: I have been having some trouble with diahreha and I am scheduled to see a Dr. Colvin in Matthews, N.C. I have had this for 3 weeks and I would love to hear from you and about your story.

Thank you Joan R. O'Neil

From: Gex
Email: Gex@www.cancercarenetwork.com
Date: Sunday, October 26, 2003
Time: 07:30:34 PM -0500

Comments

This is a very Beautiful Site, Thank You for creating it. I also found it very informative and I am glad I have had the chance to view it.

If you have a moment please take a peek at our Cancer related website, we offer 24/7 Cancer support and information.

Please join us at http://www.cancercarenetwork.com.

We have several hundred chatters dealing with all types of cancer. All are welcome. Patients, loved ones and care givers. sometimes it helps to talk with others live and one on one. We have 2 seperate chat rooms, the first is open around the clock for cancer information or support and the second has cancer related scheduled topics the entire site is 100% free. Thank You and God Bless

From: Margaret McRorey
Email: Star_McRorey@hotmail.com
Date: Thursday, October 23, 2003
Time: 04:13:58 PM -0400

Comments

I to thought I know everything about disease's cause I was a (certifed nurses aide)and worked around alot of disease's;But I was wrong to thank I knew it all!Until I came face to face with it.I was 40yrs old before I thought about merrying anyone until I and my husband found each other over the Internet'in a chatroom and after a year/half of getting to know each other over the Internet and then we Finally met in person in April-2000 and many times we would hear other people (Talk) about how I would have my handsful knowing my husband has Epilepsy and what kind of life would that be for me to live around with knowing he has a (Disability). he didn't ask for;But He was born with it.We desided and surprised everyone when we got married in October-2000,without hearing their comments of:people with(Disability)should live a life without others around or if someone comes down with a(Disability)of some kind,should find another place to live.But my Husband is dealing great with his (Disability).But To me,Disability is in us all and even in the people who thank it will never happen to them cause their healthyer then others until its to late for them.But it was remarkable I found a good christain person and know our faith well be strong through lifes Journey and no matter if (he or she) has a Disability's of some kind.By the time January-2001,My husband Mother at the age 86yrs old passed away cause of a car accident,That could of been prevented if a Drunk Driver never got behind a weel of a car.Then By June-2002 we was all faced once again;That my Dad came down with Colon cancer and something new to us all.But my Dad had surgery in July and was doing great and the Doctor told the family members 'that Dad did good in surgery,but he still had one spot of cancer (Knocking at the Door)and not to worry and also Dad took the chemo and so we all thought it was over for a while Until May-2003 when My Dads wife Kellie (Our Step Mother)came down with Colon Cancer as well and now it has hit my Dad once again with the caner spot that was Knocking at the Door.Will,As My Dad told us once (This must be a Test from God!and to find the fear of faith in us all'that would of come someday,to us all.)My Dad-age 71 & his Wife-age 61 is now staying with my little now in slick,oklahoma and is still trying to fight back at the cancer so they can continue living their lives out....Star-(Star is my Internet nick name)..

From: claudia
Email: paolo12@earthlink.net
Date: Wednesday, October 22, 2003
Time: 03:55:02 PM -0400

Comments

Please tell what you did to get rid of your cancer. Thank you so much you have geiven me hope.

From: Erika Brown
Email: theAdvisory@msn.com
Date: Monday, October 20, 2003
Time: 10:16:00 PM -0400

Comments

Molly--Went to see the Colossal Colon in Denver this past summer--and you had already left the area. It was a great "show", and I was so glad that I'd trekked across town to see it. Just sorry that I missed you! You and I talked about a year ago...on the phone. Since that time I have had many months of chemo, been divorced, and moved. My life is so much better! (Being done with chemo helps!) I read in one of the earlier comments something that I really do believe in too---if I talk and am open about my colon disease (now gone!), the so doing seems to keep it (the disease) 'out' of my system. And I want to keep it out!! (So I'll talk to just about anyone who'll listen about colon cancer--and the need for everyone to take early detection seriously!! This is a wonderful, wonderful project, Molly. What's next on your creative agenda?? Best wishes, Erika Brown Denver, CO

From: GB
Email: gbyron1946@aol.com
Date: Monday, October 20, 2003
Time: 12:21:26 PM -0400

Comments

First, I'm glad I found your web site. Thanks for providing some really good information. The most important, though, is PERSISTANCE! I had a colonoscopy as part of a routine check up and everything 'looked fine' according to my gastroenterologist. I kept insisting 'something was wrong' and he kept (pardon the pun) pooh-poohing me. The bottom line is that after months of misery, pain, discomfort, blood, etc, 2 years later I had a complete bowel blockage. I had emergency surgery to remove a malignent tumer (baseball size) and 12" of colon. I have Stage II metastatic carcinoma and take chemtherapy once a week for 6 weeks and 2 weeks off. This will continue for another 6 - 8 months, but the good news: I have a great chance of complete remission. Had I not kept 'pestering' the doctor, who knows how long I would have gone before it was too late. YOUR BODY KNOWS BEST...and you are not a hypochondriac for insisting! Best wishes to all of you. God Bless!!

From: Joanne
Email: jrt002@jefferson.edu
Date: Saturday, October 18, 2003
Time: 07:49:15 PM -0400

Comments

Molly, I just finished reading through your story and all that you have done. I wanted to say congratulations and thank you. Thank you for sharing your story with the world--colorectal cancer is important for everyone to know about and your work has helped bridge the gap. Furthermore, all of your fundraising is so important to research for future therapies and prevention. So, thank you.

I am a 25 year old, 4th year medical student. I am planning a career as a gastroenterologist, so clearly I will be dealing with issues of colorectal cancer everyday for the rest of my life. Your story will serve as a reminder to me that bad diseases do happen in young people and complete histories and physicals are pertinent.

I have not had a chance to see the Colossal Colon, but I am hoping to make it up to NYC next week. Congratulations again on being a survivor and an inspiration to all of us.

-Joanne

From: Joanne
Email: jrt002@jefferson.edu
Date: Saturday, October 18, 2003
Time: 07:49:02 PM -0400

Comments

Molly, I just finished reading through your story and all that you have done. I wanted to say congratulations and thank you. Thank you for sharing your story with the world--colorectal cancer is important for everyone to know about and your work has helped bridge the gap. Furthermore, all of your fundraising is so important to research for future therapies and prevention. So, thank you.

I am a 25 year old, 4th year medical student. I am planning a career as a gastroenterologist, so clearly I will be dealing with issues of colorectal cancer everyday for the rest of my life. Your story will serve as a reminder to me that bad diseases do happen in young people and complete histories and physicals are pertinent.

I have not had a chance to see the Colossal Colon, but I am hoping to make it up to NYC next week. Congratulations again on being a survivor and an inspiration to all of us.

-Joanne

From: Mackenzie
Email:
Date: Thursday, October 16, 2003
Time: 04:49:52 PM -0400

Comments

Hi Molly! I just read your story and wanted to say that I hope to meet you at the Tour. My mother and I are volunteering at the Boston Tour this week and would like to meet you. My mother has Stage IV colon cancer. She was diagnosed in December 2001 at the age of 52 and has battling it ever since. She has gone through many chemo treatments trying to find the right mix. She had her tumor in her colon taken out in April 2003 (I wish it had been sooner but she is doing fine) and is now on a pump that is in her stomach giving her chemo.

I am 25 years old and have often looked online to find support and educate myself on colon cancer. That's why we volunteered for the Tour. I feel that we need to educate people about colon cancer especially since it's a disease that no one wants to talk about. We are also walking in the breast cancer walk this Sunday and think that a walk needs to be organized locally/nationally for colon cancer to get the awareness out there.

I know that with my mother and other family history of colon cancer I need to be checked earlier than 50. However so many other people don’t know that they should be checked because family members don’t disclose the history of health issues (such in our case). That’s why I think you are doing a great service by having this website and promoting education about colon cancer.

Thank you, Mackenzie New Hampshire

I didn’t want my email address shown but I would love to hear from you. Hope to meet you at the Tour!

From: MH Boston, MA
Email:
Date: Wednesday, October 15, 2003
Time: 04:39:53 PM -0400

Comments

I saw a picture of the Colossal COlon on the Boston Globe - that lead me to your website. What a great source of support you provide! Kudos to you!!

I think you are fantastic for ONE: spreading the awareness, TWO: being a SURVIVOR! and THREE: Building a wonderful tool for the nation to see hands-on. Having 2 close (female) neighbors suffer from this...and possibly a third...it's an awful thing to see loved ones deteriorate before you.

Wishing you Health and Luck in your future endeavors! MH

From: Dawn
Email: mylittlechickens@juno.com
Date: Wednesday, October 15, 2003
Time: 03:38:18 PM -0400

Comments

i saw this on pbs (huell howser) last night. i was very impressed with the details that were covered with the model. what a wonderful way to get people to talk about it. my mother passed away with colon and pancretic cancer when she was 55. we are not sure if she was ever screened. i will be getting my screening done in 1 1/2 weeks at the age of 40. i am nervous but i am more nervous not to have it. keep up the great work! very proud of YOU!

From: Herbert Hoover
Email: hhoover1@cox.net
Date: Wednesday, October 15, 2003
Time: 01:45:10 PM -0400

Comments

Dear Molly; I saw Hugh Howser's program last night. I hope millions of people hear about your presentation. I have been having Colonoscopies every three years. In my regular test in April '03, a cancer about the size of a plum was found. I was operated on in May. Two weeks later I went to an Onocologist and was told that about 5 inches of my Colon was removed together with some tissue and ten Lymph Nodes. He then said "you are a very fortunate man, there is no sign of any cancer remaining and that no further treatments are necessary at this time". I am to have a Colonoscopy in a year which I will welcome. I feel truly Blessed.

From: Linda
Email: lindahyatt51@cox.net
Date: Wednesday, October 15, 2003
Time: 12:37:40 PM -0400

Comments

Hi Molly, Like several others, I also saw you on Huell Howser's show last night. I have missed work all week because of abdominal pain. After seeing your colossal colon, and listening to you describe the symptoms, I have made an appointment with my doctor this Friday. I plan to ask for my first ever colonoscopy. I am 50 years old, and have had some symptoms for about 18 months. Thanks for getting the word out. Linda

From: donna powell
Email: snezie1@aol.com
Date: Wednesday, October 15, 2003
Time: 09:26:57 AM -0400

Comments

If you dr.gives you a rectual exam and there is no evidence of blood, even though you have had blood in your bowel movement is that a good sign.

From: K Ha
Email: cafelame@yahoo.com
Date: Wednesday, October 15, 2003
Time: 01:12:01 AM -0400

Comments

I just saw "colossal colon" aired in LA. This bring great awareness to many people, thank you so much, the work you doing now will save thousand of people. Watching your show educate me alot thanks

From: Steven Ryan
Email: stevenryn@yahoo.com
Date: Wednesday, October 15, 2003
Time: 12:54:16 AM -0400

Comments

Molly,

Like several comments before mine I too had just seen Huell Houser’s show on PBS. My father had passed away from Colon Cancer two years ago, he was 72. He too went through the same experience as you did when we discovered he had Colon Cancer. Unfortunately it had metastasis to his lungs which inevitably took his life after a three year battle. My family never had a history of cancer till my father. Several of my older siblings, mother and relatives all had a Colonoscopy performed which 70% of them did have cancerous polyps.

I’m 32 now and I was told that I wouldn’t need to be concerned about a colonoscopy till my 40th birthday. After reading your story my wife and I are making appointments to get a Colonoscopy. I’m a firm believer that an ounce of prevention is worth a pound of cure. Keep up the great work of Colon Cancer awareness which you are saving lives.

Sincerely,

Steven Ryan

From: Oskar
Email: bluemarlin_nsa@hotmail.com
Date: Wednesday, October 15, 2003
Time: 12:54:10 AM -0400

Comments

Great site. I am certainly happy that I saw the television program featuring the "Colossal Colon" that aired in Los Angeles.

First I would like to start of by telling you that your story is very inspirational. I am 25 years young and like you, I LOVE Hockey! I actually started skating before I took my first steps (go figure, I'm from Southern California) and kept on playing until I was about 17 but forced out because of a knee injury. It was my life and I was having soooo much fun. I got to play for the Junior Kings traveling team and almost worked my way up to Junior hockey. I can understand how and why you fell in love with the sport.

My story starts in Las Vegas where I have been living for the past 6 years. I had been having a great life there working a great job and going out all the time having fun. About 3 1/2 years ago I decided to start my own small business and started looking forward to all the "Riches" that lay ahead. At such a young age to start my own business I felt that I was prepared for anything and that I was invincible. I felt healthy and was in my prime. Oh how I was wrong!! I was very ignorant and was very unprepared by the "STRESSES" of the day to day life of maintaining a business. Soon after things were going downhill. I started to lose not only money but also my focus. I started letting people down that relied heavily on my commitments that I was NOT following through with. I started flaking out on people not following through with what i said I was going to do. I lost alot because of that. The Stress was literally killing me only I did not know it.

I started to feel sick. I had abdominal pains and was going to the bathroom alot. I was vomiting bile in the mornings. The diarreha was more frequent and the abdominal cramping was off and on daily. Like most people my age, at the time I did not have insurance and felt that this would go away soon so I felt that there was no need to go to the doctor. "Besides, what if there is something wrong with me? I might have to pay alot of money! I have better things to spend my money on, like those new Oakley's!" Those where my thoughts at the time. Hey, I was young and stupid

I started to lose weight pretty fast and was eating less because of the cramping. I had mild diarreah and had a little blood in my stool but put that off for some reason, probably because I figured it would go away soon. The cramping would be relieved by having a bowel movement but would soon come back. I was hungry but the cramping would dampen my spirits to eat. Now I really started to worry, but not much!

My aunt (whom I was living with at the time) started telling my Mom and the rest of my family (who live in the Long Beach,CA area) that I was not eating well and she noticed that I had been losing weight significantly. At that time I had all but given up on my business because of bad money management and bad personal character at the time. I was very "Stressed Out" and depressed. My family suggested that it might be a good idea that I move back home to Long Beach,CA and start something new. I agreed, although I love Las Vegas!

I moved back with my Mom and was not feeling well and was going to the bathroom at least 15 times a day if even just to feel safe. I was staying in bed all day because I felt weak and my heart rate was very fast. I could not sleep at night because I was getting up what seemed to be every 30 minutes but still resisted the doctor even though my family was telling me every day, "You seriously need to go see a doctor". I said "I am an adult and can make my own decisions. I will decide when the right time is for me to go".

It was not until October 2002 that me and my uncle where going for breakfast. On our way I told him that I wanted to go back home because the cramping was hurting really bad. He said to me "I don't care what you say, I am going to tell your mom to take you to the emergency room NOW!"

By this time I had agreed and said "F@#K It" I'm going face my fears and go to the doctor. I went to the emergency room and did all the regular blood and urine tests. They tested my Lymph nodes, my thyroid,etc.. etc.. They thought I was dehydrated (which I was) and gave me the IV of life!! Ahhhh!!

Beacause of my lack of insurance I could not get properly diagnosed right away. I was going to see doctor after doctor at the county hospital and clinics.

One night in Feburary 2003 I was feeling dehydrated and had a high heart rate sitting still. I insisted that I go to the emergency room. They ran more tests and I insisted that I get a CT scan. They agreed and soon found that I had Inflammation in the Large Intestine. They said I had Gastroneteritis (not a very specific diagnosis) and gave me antibiotics which did not help.

I went on the internet and started searching for diseases that had my symptoms. I learned about Colon Cancer, Colitis and Crohn's. By this point I was persistent to get a referral for a Colonoscopy but because of my lack of insurance had to go the County Hospital route. Not an easy task. The doctor giving the referral said that it may take up to 6 months to get the exam. "6 Months!! I could be dying here" I said. His reply "I'll put in a request for a faster process, probably only 3 months" I had been down to 125 pounds from 165 (I'm about 5'10"). Anyways, 7 1/2 months later and about $1,200.00 later I finally got the Colonoscopy and the doctor has determined that I have Ulceritive Colitis,and an Iron deficiency which leads to Anemia. He had told me that he did not go all the way through the colon because it was inflammed so much that he was afraid to damage it even more. It has been a little over 1 month since the exam and I am still currently awaiting the biopsy results and my Iron blood work. I am on an inflammatory drug called "Sulfasalazine" and have been feeling much better. I eat like a horse, have far less if not any more cramping, go to the bathroom far less than before, and have almost eliminated the diarreah although it does come back occasionally. Still at 125 but that is Ok for now. I feel much better.

I am looking at life from a different perspective now. I appreciate the smaller things in life. I am currently fulfilling my dream of becoming a Chef and am looking forward to a great life.

I cannot express the gratitude I have for all those that care for me enough to get me to the doctor.

I have great respect for what you are doing. thanks for explaining to people about the importance of getting checked out. I tell evryone I know young and old, healthy and not so healthy to get checked out NOW! Yes, there are alot of things things to spend you hard earned money on but nothing is more important than YOUR LIFE. You can make the money back but cannot get your life back once you lose it. Life is a precious gift and we should treat it as such.

To everyone out there reading this, Remember to have fun and do something for a worthy cause (It'll make you feel better). Smile and "Don't sweat the small stuff".

Oh yeah, one more thing for all of you to do for yourselves and to tell others: GET INSURANCE!! Get coverage before that Cell phone, before that new car,before that new big screen TV, GET COVERED!!

Thanks, Oskar

From: Nicole W
Email: Winwintpc@juno.com
Date: Wednesday, October 15, 2003
Time: 12:14:25 AM -0400

Comments

Hi Molly, I just caught the last part of a show with Huel Howser (sp?) and the Colossal Colon. I wished I had seen the whole episode because I would love to see this thing. I had a pre-cancerous polyp removed last August and I am wanting more information regarding Colon Cancer. I'm 44 years young and I was shocked to hear that if I had not had this proceedure, I would have developed cancer. If you travel to the Los Angeles area again, I would like you to notify my so that I can go crawl through the Colossal Colon. I was asleep when I had the proceedure done and I didn't get to see what it looked like. Thanks Molly, keep up the great work! Nicole

From: Bob Gardner
Email: rendrag4@earthlink.net
Date: Tuesday, October 14, 2003
Time: 11:22:44 PM -0400

Comments

Just finished seeing you on PBS with Huel Houser. Keep it up!! I was diagnosed at 42 and went through Chemo and had my yearly screenings. I re-diagnosed my self 10 years later when I tried to lose some extra weight but had a trouble area on my ab area. Apparently some seeds of cancer were missed and I now had three large tumors. One was on my diaphram the size of a golf ball, outside the bladder one the size of a tennis ball and outside the origional incision, a large softball. Missed by the colon exams. I had a pill form of chemo this time after having a tumor scan and then was again diagnosed and operated on for more in the peratenial (sp) areas. I went through eavy duty Chemo last Sept. Now I have a tumor on the liver, some in the spleen and two spots on the lung. I am waiting to be part of a clinical study on vaccination with more surgery and Chemo. I want you to tell as many people as you can that the even though there is hope with the screening it isn't the only way to find it. I had a CT that was better at getting the image than the 4 full body scans and CEA scans. Having blood work done, if you are a survivor is also a must. We can't let cancer win. Take care and thank you for helping get the message out. Support Relay!

From: frank
Email: frini1 @as.net
Date: Tuesday, October 14, 2003
Time: 11:20:00 PM -0400

Comments

hello molly

i watched your show with huell houser and what a very interesting episode, my concern was just elevated due to the fact i am now 48 and i have a family history of colon cancer on my mothers side. i just wanted to thank you for all your work because i do not think alot of people are aware of how serious this can be, after watching the program i will talk to my doctor a.s.a.p.to get screened. thanks again and keep up the good work. sincerely

frank rini (:

From: Tom
Email:
Date: Tuesday, October 14, 2003
Time: 11:19:10 PM -0400

Comments

Saw you and the Colossal Colon PBS with Huel Howser's California Gold. Excellent! At age 45 during simple routine exam my doctor found I had some polyps which were removed. No more have been found and the early detection may well have prevented my developing the same cancer which has taken members of my Father's family in the past few years. Best of luck and thanks. Tom B.

From: TONY UNDERWOOD
Email: HUNTER5070@YAHOO.COM
Date: Tuesday, October 14, 2003
Time: 02:48:22 PM -0400

Comments

BEATING COLON CANCER!!!!KICKIN ITS A#$!!!!!!!!!!!!!!!!!

From: Laura
Email: MissNipper@aol.com
Date: Monday, October 13, 2003
Time: 08:48:11 PM -0400

Comments

Hello again... everyone. I wrote recently about my 58 year old dad... and he did have the CT scan which gave excellent results. The cancer is nowhere else and he will not need radiation or chemotherapy thank god! They will remove it this week. Part of me feels like it is too good to be true but the statistics say if caught early enough the chance for full recovery is 90% I am greatful and thankful and appreciate all of the letters I have read here at this site. Some made me cry and some really made me smile....but this is reality and there are too many people suffering from this awful disease. I will keep you posted on my dad... and my life has been forever changed. I will always keep all of you in my prayers....Be strong and never give up! In love and peace! Laura

From: Laura
Email: MissNipper@aol.com
Date: Saturday, October 11, 2003
Time: 03:49:30 PM -0400

Comments

Hi... I came across this site and think its wonderful. My father is 58 years old and goes regulary to the Dr. for blood work and so on. He complained of a slight difference in his bowel movements to the dr at his last visit and the doctor gave him a rectal exam that did reveal hemmoroids...the dr also found slight traces of blood in his stool and suggested a colonoscopy...which he had the very next day and they discoved a legion the size of a lemon and said it was cancer. The doctor feels very optomisitc and feels it is localized and in its 1st stage and says it is treatable. He will go on monday for a ct scan... but I am absolutely terrified. I haven't slept since hearing this news and just feel like I will wake up from this nightmare. I have a whole new perspective of cancer and feel like I need to do something about it. I know everything will be fine.... but when you love someone...its so hard not to be scared. I am praying for all cancer patients for a speedy recovery and pray a cure is created. Thank You for letting me share. Stay Strong everyone!!!! In love... Laura

From: sara
Email: sjkmtg@hotmail.com
Date: Friday, October 10, 2003
Time: 05:53:59 PM -0400

Comments

MY 85 YEAR OLD DAD WAS JUST DIAGNOSED WITH EARLY STAGES OF CANCER CELLS FOUND IN A LARGE POLYP. THEY ARE GIVING US TWO ALTERNATIVES-DO MAJOR SURGURY WHICH WE HAVE HEARD IS HORRIBLE OR JUST TAKE A SCOPE AND GET AS MUCH AND POSSIBLY ALL WITH A LASER. WE ARE COMPLETELY CONFUSED AS WHAT METHOD TO TAKE. AT HIS AGE WE ARE AFRAID THE SURGURY MIGHT DISABLE HIM TO BED CARE. ANY SUGGESTIONS FROM THOSE OF YOU THAT HAVE GONE THROUGH IT?

From: wendy brown
Email: wendybrown1@worldnet.att.net
Date: Wednesday, October 08, 2003
Time: 09:02:40 AM -0400

Comments

I have had a lot of problems with my bowels it started it was very hard for me to use the bathroom it would take me hours sometimes 4to6 hours everyday i have had bleeding from my bowels and a lot of blood I don't have enough white blood cells and know I have a very serious infection going through my body somewhere the doctors don't know where the infection is coming from I have lymp notes on my neck and my chess is starting to bother me I have lost a lot of weight like 35 pounds it feel like sometimes the infection goes to my head and I can feel it in my neck and trought.it looks like snoot like a mucus but they stuck a needle in my neck and drawed fluid from the lymp notes and they said it just showed that I had a high amount of infection I have had two colonoscopy's because i was exzamined by a doctor and he said I had polopys the size of grapes but when they did the colonoscopy they said I didn't have them nor did they see himmorriods and I know I have enter and outer hemmorrods. I am going to the emergency room this morning because by blood pressure lately has been very high like 185 over 124 but it really goes up right before I have to use the bathroom when I use the bathroom sometimes I have a bowel movement and then sometimes just the muscus looking stuff comes out but It feel like I have to have a bowel movement It feels like it is going into my chest because my chest is very tight and when I eat I can only eat a little bit or my chest starts to fell tight and all my food settles on my right side my right side is where all the mucus comes from and it feels like my bowels comes from my right side and right leg my right side of my body is so much bigger than the left side.

From: Rachel
Email: ralexis@earthlink.net
Date: Tuesday, October 07, 2003
Time: 10:28:52 PM -0400

Comments

Molly, You are inspiring! I am 24 and have Crohn's disease. Due to being high risk for colon cancer, I used to have a colonoscopy every year. I was able to catch pre-cancerous cells and had my colon and rectum removed and on July 30, 2001. I am so lucky and want you to know how wonderful and inspirational this website is. Thank you and others for telling your stories. Life is so precious. :) Rachel

From: Michele K
Email: mkasten@mngastro.com
Date: Monday, October 06, 2003
Time: 09:34:19 AM -0400

Comments

Just wanted to let you know what a great thing you are doing! I had the chance to be a volunteer when you were here in MN and it was alot of fun and glad you allowed us to be apart of such an important, educational program. Working for MN Gastroenterology we see colon cancer patients everyday. We are all striving to educate and treat people everyday. It's people like you Molly that make a difference in life!!! Keep doing what you do!

From: Susan
Email: susantmurray@aol.com
Date: Tuesday, September 30, 2003
Time: 04:35:54 PM -0400

Comments

I just want to say thank you for all the support that everyone has given me. I hope I can be there for others too.

From: Danielle
Email: kittyforlove20052003@yahoo.com
Date: Tuesday, September 30, 2003
Time: 11:24:44 AM -0400

Comments

Dear Molly,

My father was diagnosed with colon cancer September 25, 2003. They surgically removed about 80% of his colon on Saturday the 27th. The doctors are watching his liver now. He is only 55 years old. He seems so young to be going through this. What are his chance of recovery? I don't want to lose my father at such a young age.

From: eileen
Email: eileenem100@aol.com
Date: Friday, September 26, 2003
Time: 03:49:57 PM -0400

Comments

January,2003 I have 80% of my colon removed the remained was left so I would not need a bag. Two months after surgery I developed severe attacks of stomache pain vomiting bile and deficating bile making me very sick this has been happening every two months. In july I was in the hospital for three weeks I was put on TPN at home however my liver was not functiong properly so it was removed. I have just had another attack, I get so sick, the surgeon does not know my this is happening. Has any one had this type of experience and what should I do.

From: Barbara Taylor
Email: BATT2@msn.com
Date: Thursday, September 25, 2003
Time: 09:48:08 AM -0400

Comments

Hi Molley

comment and question

My husband has colan cancer that spread to his lung and prostat. We was told that the lung was call colon cancer and at stage 4. I would like to know about stage 4. I do not understand and Iam just at a lost and seeking help.Where can we go for information and support? George is receiveing chemo treatement at our HMO. No one in George's family has had caner. Thank you Molley

From: Mary Lee McCune
Email: mlm@lmi.net
Date: Monday, September 22, 2003
Time: 08:18:48 PM -0400

Comments

I had stage 2(A?) colon cancer 4 years ago. So far I'm OK. At the time, I couldn't find a colon cancer support group, only breast cancer, so I didn't go to any during chemo, when I most needed it. Later, I went to a support group for people with all kinds and stages of cancer and found it very helpful. From the beginning, I have found it irritating and incomprehensible that people don't like to talk about it! I am very glad that you are doing what you can to change that attitude. I wonder if there is anything that I can do to help??

From: Steve Mann
Email: Shaftermann@ev1.net
Date: Sunday, September 21, 2003
Time: 06:11:09 PM -0400

Comments

Molly; A friend recently saw California Gold and suggested that I look up your web site. Thank you for the time and effort you are spending to help educate people about the problems and solutions with Colon Cancer. I am 52 I had my colon removed August 7, 2003 at UCLA. They removed the colon because I had indicators of a genetic mutation in the HNPCC group. This was first determined by my dermatologist who removed two pimple like spots on my skin (sebaceous adenomas). Then we did a check of my family history. He then sent me to UCLA. Genetic testing (the results of which did not come in until after the surgery) proved that the removal of the colon was the right course of action. If they just removed some of the colon there was an 80% chance that I would have cancer in the colon again, as my father did. I beleive that if I had not gone to a major medical center that I may not have received the same treatment path. People with known family history of colon cancer would do well to run a web query on HNPCC and FAP. It could help the doctor, perhap direct a different path, or like in my case, the doctor may send you to major medical center. My cancer was stage I, I give thanks for that. I am returning to full time work soon. My best wishes and prayers go out to you who hear the words, "You have cancer." Look to him who works all things for good to those who love him.

From: Heather
Email: heather_walsh@alum.shu.edu
Date: Sunday, September 21, 2003
Time: 01:56:14 PM -0400

Comments

Molly -- I am forever proud of you!!

Bring the colon to Chile!!

Heather

From: Camille Salha
Email: camillers@camillers.com
Date: Wednesday, September 17, 2003
Time: 05:18:22 PM -0400

Comments

Water Distribution Systems were and many still are using Asbestos Gaskets at flange connections. Water from these systems causes’ Colon Cancer. They should be upgraded or retrofitted. Also; more information should be made available to the public, so that they can check with their water supplier if they are using Asbestos Gaskets. Thank you. Camille Salha

From: Wendy Stigge
Email: wendy.stigge@starwoodhotels.com
Date: Wednesday, September 17, 2003
Time: 03:34:00 PM -0400

Comments

I saw the Huel Houser show and was very impressed with the education you are providing to so many people.

My mother died of colon cancer at the age of 72 on 9/3/2000. My 57 year old brother has ulcertive colitas and my other 50 year old brother has had polps removed and just 2 weeks ago had a black section removed from the outsside his colon (orginally thought it was appendisistus, hernal or diverticulitus (sp)). I am 48 and have had 2 colonoscopys, one prior to my mother's death and one after.

I am forwarding this website to both of my brothers for them to share white others as well.

From: John Proulx
Email: john.proulx@gm.com
Date: Tuesday, September 16, 2003
Time: 04:36:51 PM -0400

Comments

I just saw your interview with Huel Howser last night. What a great effort, God bless you. My brother Don, (46 years old), passed away on September 4, 2003 from Rectal Cancer, (he ignored it too long). For two and 1/2 years he had 5 chemos, rectal op, kidney op, liver op and then some. I'm telling you this in hopes that others read this and get their colons checked. Soon after my brother was diagnosed, he started a website; Blueflamers.com. Bluflamers for all the ostomy bags people have to wear. The site is still up. It's worth checking out.

Thanks for the great work you are doing.

From: Jim Hein
Email: jhein@gte.net
Date: Tuesday, September 16, 2003
Time: 09:52:45 AM -0400

Comments

Hi Molly

Great show last nigth on Hugh Houser Show. My husband had rectual/colon cancer last year. Had two surgeries and then Radiation and Chemo. Likly it did not spread outside the colon we hope. He is 57 years olds. He complain of bleeding a 1 1/2 year before they did the colonscopy. They found it and did surgery found cance the rest is history. As of this day he has talked all of his friends that are his age to have a colonscopy. He loves to tell people about why they should have a check-up at 50. Would like to know when you are going to be back in CA. Hope people will hear your voice and have a screen done. Margaret Hein

From: Lynn
Email: luv2photo@aol.com
Date: Tuesday, September 16, 2003
Time: 01:25:38 AM -0400

Comments

Oh my. I just saw your story on Huell Howser's "California's Gold". My phone rang the whole time, friends and family members asking me to watch. My story is identical to yours. I had been having symptoms of diarhea, abdominal pain and fevers for months. I was diagnosed with Epstien Bar Virus,until July 17 I was rushed to hospital for an apendectomy. Much to my docs surprise I not only had colon cancer but also same cancer on apendix. If apendix cancer had not have flarred up I could have went undiagnosed for years. My HMO will only pay for colon checks after the age of 50 and I had 4 more years to go . I am currently having chemo treatments once a week to continue for 6 months. PLease Molly what type of chemo did you have and for how long? I'm trapped in my HMO and second opinions are from the same standards Im afraid. I am in debt about $8000.00 for going outside my HMO for answers to illness wich was also misdiagnosed.. What a wonderful story and a very pleasant person you are. The Huell Howser program led me to this site. Keep up the wonderfull work and how can I help sponser your efforts? My prayers for you Molly and all of us who are effected by this disease!

From: Marsha McTigue
Email: M1CAL@aol.com
Date: Monday, September 15, 2003
Time: 11:28:52 PM -0400

Comments

This is a wonderful idea. People will feel more comfortable if they can actually see what goes on, and how things look in the colon. I have been putting off having my colonoscopy, but I know it is a worthwhile test to have, and if caught early has a 90% recovery rate. I will make my appointment tomorrow. I saw this on TV with Huell Hauser on 9/15/03.

From:
Email:
Date: Monday, September 15, 2003
Time: 11:23:17 PM -0400

Comments

Your awareness program is fantastic. It is unfortunate that you gave money to the American Cancer Society though. An unsubstantiated amount of the money they receive goes towards non research and non advocacy issues like new picture frames and art for their regional directors offices!!

From: Ken Davis
Email: kendavis01@adelphia.net
Date: Monday, September 15, 2003
Time: 11:19:53 PM -0400

Comments

After viewing your display on thr Huell Howser program I was left a little confused about what symptons you might expect pryor to a doctors visit.It appeared that by the time you felt anything you might have a fatal growthin your colon.I am 75 years old and have had the internal examination twice in the last 10 years and am scheduled for another before the end of 2003. Enjoyed your educational effotrs very much.Good lock in the future.

From: Julie
Email: healthygal7@aol.com
Date: Monday, September 15, 2003
Time: 11:09:33 PM -0400

Comments

HI Molly, just saw you on Huell Howser,and I just want to commend you, and Thank you for increasing my own personal awareness, I am 45 1/2, and that gives me time to know that I will need to get the colonoscopy or the flexible sigmoidoscopy, when I turn 50, and even tho it won't be fun, drinking the yucky drink, and not eating for 12 hours, and the discomfort involved, it will be worth the piece of mind! Thank you so much, I will share your website with all my friends and family! God Bless! Julie ;)

From: Scott  Winn
Email: gastrosupport@aol.com
Date: Monday, September 15, 2003
Time: 11:01:41 PM -0400

Comments

Great work. I am the Pentax Representative for the flexible scopes and really stand behind your efforts here in Southern CA ( Orange County ).

From: STU
Email: SAMPEL@WEBTV.NET
Date: Sunday, September 14, 2003
Time: 10:43:30 PM -0400

Comments

IAM ON MY 2ND CEHMO , THEY FOUND A NODE IN MY LEFT SIDE OF MY NECK , IT WAS CUT OUT , IAM STAGE 4 MY CEA IS 1.8 THAT IS GOOD BUT IAM A 5% CHANCE OF IT NOT COMEING BACK , IN ALL 8 NODES , ANY ONE LIKE THIS? STU

From: Marilyn Sperka
Email: msperka@aol.com
Date: Monday, September 08, 2003
Time: 12:46:17 PM -0400

Comments

I drove 100 miles to see the Colossal Colon in San Francisco. It was awesome! It was well organized, and easily taught anyone all they needed to know about prevention, detection, and what happens if you have colon cancer. The only thing I did not like was how few people were in attendance. Like you, I want to do something to let others - every single person in the whole world - know what to do to prevent colon cancer, or detect it before it spreads. I salute you for your efforts at doing just this! Let me know if I can help you with anything. I was diagnosed with colon cancer on Dec. 27, 2002, and have had surgery and chemo since then. I had a liver met that was surgically removed. I am doing relatively well with the chemo, but it is still awful. I don't want anyone else to go through this. Love and Prayers to all colon cancer patients.

From: Don King
Email: ATrueFriend2All@aol.com
Date: Sunday, September 07, 2003
Time: 06:21:44 PM -0400

Comments

Thank you for sharing this story. I wish that there was some way to get everyong in this nation to read this but I know that untill they are affected in some way this will never happen. My heart and prayers are with you.

From: Mary Botz
Email: jmbotz@hotmail.com
Date: Saturday, September 06, 2003
Time: 10:54:02 PM -0400

Comments

Hey everyone...

I posted on this site awhile ago, when my dad was first diagnosed with colon cancer. Lots has happened since then, and I am looking for people who have had similar experiences. My dad had a biopsy of one lymph node taken while at an appointment for a "second (or was it thrid or fourth???) opinion." He was told that biopsy came back positive. He opted to do chemo and radiation before surgery in hopes of having a temporary bag instead of a permanent one. Well, it worked!! When he went in for surgery on Aug. 12th, they could barely find the tumor anymore...it was just a fraction of the original size. It was into the colon wall, so a chunk of the colon was removed. They took out 7 lymph nodes...including the one they used for the biopsy. They checked the liver and felt that it "felt" healthy. Because of the fact that the tumor shrunk so much, they were able to create a "j-pouch" and a temp. illeostomy. The lymph nodes all came back clear, probably because of the chemo and radiation zapped it outta there. What a surprise that was...we were prepared for it to be in there still! Anyway, he was told they would go in for the reversal, or the "take down" which reroutes waste back out of the body in the "tradiational manner" in 4-6 weeks, depending on healing. That surgery is scheduled for this Monday...Sept. 8th-just one day short of 4 weeks from his orignial surgery. They say this is a simple 45 minute procedure that pales in comparison to the first one. He was told to expect some "trouble" getting things working again, but I wondered if anyone else has any advice or suggestions having experienced this. We are so thankful for how everything has turned out thus far...way better than we could have hoped for, but it all just sounds too simple. I am waiting for some surprise to come along to slap us all back into this new reality that we live in. My dad will also undergo 6 months of chemo after healing from this 2nd surgery to ensure that all of those little cancer cells are killed. Anyway, we would love to hear from anyone who has gone through a similar situation. Thanks and keep up the great work on this site, Molly! You are truly making a difference in the world!

From: Susan
Email: Susantmurray@aol.com
Date: Friday, September 05, 2003
Time: 02:57:56 AM -0400

Comments

I have just been told I have colan cancer in July 2003 I am looking for a good support group to help me though this. I am 40yrs old and my mother died of this. Can anyone help?

From:
Email: karenrgr@yahoo com
Date: Wednesday, September 03, 2003
Time: 10:56:16 PM -0400

Comments

what is an aniversary date regarding breast cancer? Is it when you first get diagnosed or after you completed all your surgeries and treatments? I would quess it to be when you first got diagnosed but I remember my Dr. saying it was after I finish all my treatments?

From: Kristina Alger
Email:
Date: Wednesday, September 03, 2003
Time: 08:25:00 PM -0400

Comments

I'm proud of you Moe....and of all of your accomplishments. If I had half the ambition you do I'd be happy! I love you!

Kristina

From:
Email: sower@me.umn.edu
Date: Tuesday, September 02, 2003
Time: 03:38:11 PM -0400

Comments

My husband was diagnosed with colon cancer [stage 3] a year ago today. After months of chemo he is now in remission. He claims he is cancer free. I worry, I guess that is natural as it was difficult to watch him going through the surgery and treatment. He has a "nodule" on his lung and is scheduled for a CAT scan to rule out any further metastases. (Colon cancer likes lung and brain tissue.) For the present he is doing fine and has a wonderful upbeat attitude. Thank you for your website. It helped me to celebrate this one year milestone.

From: Erick J. Owens Sr.
Email: sparkplug103@charter.net
Date: Tuesday, September 02, 2003
Time: 02:52:14 AM -0400

Comments

I underwent a Sigmoid Resection in May of 2003 for Colon Cancer; I am 38 YOA. I had symptoms (If there is such a thing) for three to four years before I decided it was more than constipation and severe cramping from the medication I was taking for asthma. I had a foot and a half of my intestine removed as well as a tumor about the same size as yours. I have two brothers and a sister who have had polyps removed after my surgery (thank goodness they caught it early) but we are not eligible (according to my insurance company) for Genetic testing for HNPCC. By the way, I saw the write up in the Detroit Free Press concerning your "large" intestine that is on display. I live 40 miles to the south of Detroit, in a town called Monroe. So, good luck and its nice to see that I am not the only person wanting to educate the public concering Colon Cancer, only you have decided to do it on a grander scale.

From: Gretchen
Email:
Date: Thursday, August 28, 2003
Time: 08:38:56 AM -0400

Comments

Hi Molly! I hope all is well with you. I just wanted to let you know the world lost another beautiful person to Colin Cancer Tuesday. Lisa (Derway) Dunbar went to be with the Lord after a courageous 2 1/2 year battle with this awful disease. She was 38 years young. I did not know her personally, but had gone to grade school with her husband, and had heard from others about her wonderful personality and giving spirit. I wish I had known her! My heart goes out to her family and friends who were blessed to have had her in their lives. I'm told she was an avid fighter for the battle on Colin Cancer awareness (as you are), knowing full well that this disease does not discriminate in age. She is survived by her loving husband and two young children and very supportive family & friends.

I just want you to be reminded that you are doing a great job, and want to extend my love and support for your cause. Keep up the good work! It is more than worth it if even one person's awareness is raised and they survive this terrible disease because of the work your doing!

Lisa's wish was for all to go hug your loved ones....TODAY....because you never know if tomorrow will be there!!

God Bless, and keep up the fight! Gretchen So. Glens Falls, NY

From: BILL MC
Email: unit14prez@comcast.net
Date: Tuesday, August 26, 2003
Time: 01:46:52 PM -0400

Comments

GREAT TO READ YOUR STORY, I WAS DIAGNOSED WITH RECTAL CANCER AT 38 YEARS OLD,..... THE DOCTORS WERE SHOCKED! I FOUND MY SELF ALMOST APOLOGIZING FOR BEING SO YOUNG! lol THAT WAS 10 YEARS AGO,MY LIFE HAS NEVER BEEN THE SAME BUT I ADJUSTED.TILL RECENTLY- CAME DOWN WITH RECTAL PROCTITUS,BAD RECTAL BLEEDING......IF ANYBODY OUT THERE HAS ANY INFO.ON WHAT I MIGHT TRY I WOULD LOVE IT.DOCTORS ARE OF LITTLE HELP, FORMALIN IS MY NEXT STEP.ANYBODY OUT THERE GOING THROUGH SAME THING,,I AM 51YEARS OLD

From: courtney hamilton
Email: cmemeow24@cox.net
Date: Tuesday, August 26, 2003
Time: 02:44:26 AM -0400

Comments

molly- hey! i hope this note finds you still doing great! i hope you remember me. i wrote you about a month ago, and we corresponded a bit, then my e-mail got messed up. Last time i wrote i asked you to please have your stage 3 friends e-mail me. Could you please still pass that message on? I would e-mail you personally, but my address book was deleted. I think it was puck gitl @ something. anyhow, please write back and let me know how your doing, i'm doing well and i'd love to talk to you. keep on smiling, courtney in scottsdale, az

From: Peter  K
Email: flagspk@aol.com
Date: Saturday, August 23, 2003
Time: 08:32:41 PM -0400

Comments

I had a colooscopy performed March 2001. Have not had agood day since. I would like to connect with any person that has had post colonoscopy problems.

Will respond.Thanks

From: Doris
Email: dwilliamson9@triad.rr.com
Date: Monday, August 18, 2003
Time: 11:20:31 AM -0400

Comments

Molly,

Hi my mother has stage 4 colon cancer and is truly aliving testmony to anyone who is fighting colon cancer. She has had stage 4 cancer since 10/1/01. She had being seeing blood in her stool and waited a while before she said anything. Finally it had gotten so bad she went to the doctor they did a colon screening. The doctor kept her because she had serveral polyps and one big turmor that had to be remove. Well we thought that the doctor had gotten it all OH but, we was wrong. My mother has being on every chemo since 1/2002 and finally that the doctor said there is nothing else to help. But let me tell you about a man name JESUS he has kept my mother from being sick and she stills drive. My mother is starting to feel pain now and her stomach has sollowen to but she is still going. So for whoever is fighting this battle you can overcome this cancer. TRUST IN THE LORD AND BELIEVE WHEN THE DOCTOR SAYS THAT'S ALL YOU THEY CAN DO LOOK TO THE HILL FOR WHICH COMETH YOUR HELP...

From: RKB
Email: rbeck@mtwhc.com
Date: Sunday, August 17, 2003
Time: 10:59:44 PM -0400

Comments

Molly: I just happened upon this web site. But after reading it, I feel better. My daughter in law was 23 last year when she was diagnosed with Stage 4 colon cancer. I have gone through all kinds of emotions from anger, to hate, to love and compassion. She has tons of energy and people love her so much. I believe now that she has this cancer for a reason. We can already see amazing things that have happened to our families and friends because of her diagnosis, but now I just want her to survive, have a family, and a future. I can hardly stand thinking about her not surviving. My son would be devastated and I am worried sick about him. (He is my only child and I have a real close relationship with him)

If only she would have been diagnosed sooner..... If only she would have recognized any symptoms she was having...... If only she and my son were married sooner so they could have had a child before her diagnosis..... If only,,, If only,,,, If only,,,,, So many emotions.

I believe you must be a wonderful person to turn your cancer into something so positive by helping others. Good luck to you. I hope my daughter in law will also have the opportunity of educating others about colon cancer. Sincerely, RKB

From: sue
Email: srelja@uochospitals.edu
Date: Friday, August 15, 2003
Time: 01:11:19 PM -0400

Comments

molly-how did you make your decision about your treatment regime?

From: Helen
Email: bluedukem@msn.com
Date: Sunday, August 10, 2003
Time: 10:38:26 PM -0400

Comments

Molly! You are spectacular! I am 52 and trying to get up the courage to have a colonoscopy. After reading your story, I am ready to go for it. Just to show you how utterly stupid I am, Molly, I am a nurse (30 years) and am fully aware that I have the symptoms of colon cancer. I accidently found your site, looking for something - anything - that might tell me I do not have cancer. But after reading your story, I am going for it. And I am going to my doctor tomorrow and get a colonoscopy scheduled. Thank you, Molly, Helen

From: Tom
Email: tomflagler@sympatico.ca
Date: Saturday, August 09, 2003
Time: 08:58:38 PM -0400

Comments

It's comforting to read the experiences of others with regards to Colon Cancer.I too am a survivor of this terrable disease.The location of my cancer was only 6 centimeters from the rectum therefore I ended up with reconstructive Colon surgery.I had what they call a J pouch made with my large colon.I've had a temporary Colostomy which will be reversed in 2 weeks.What I have found out while I was in Hospital is that the age of getting Colon Cancer is dropping.Not uncommon to have it in your thirties especially if there is a family history.Insist on a Colonoscopy if there is a family history even when you don't have symptoms.Better safe than sorry!

From: Manuel
Email: Mirandam3@aol.com
Date: Saturday, August 09, 2003
Time: 06:28:01 PM -0400

Comments

I was found to have lower intestine polops. First we heard that they could be fully treated with antibiotics for full recovery. Later the doctor said they needed to be surgerically removed inorder to prevent cancer. I'm trying to find out some more information. I realize that a lot of conditions would have avarying, however, I would like to be inform if there is a slight possibllity that they could be cured with the antibiotic he prescribed. I am biatectic and have a lot of other commplicatuons. I am also on cummident. I would be for ever gratefull for any comments. May God Bless You.

From: Michele Schromofsky
Email: MSchromofsky@AOL.Com
Date: Saturday, August 09, 2003
Time: 01:19:01 AM -0400

Comments

I am a stage 3 colorectal cancer survivor, 6 years. Hearing the words March 18,1997 at age 47, was the end of my life as I had known and the start of a journey. This journey has taught me many things, and made a focus in my life I could have never dreamed. How can a disease that claims so many people be so unheard of? How can our medical community fail to question, or follow up on risk factors. My Mom had a polyp removed in her 40's, our PCP ( who saw me since 10yrs old ) never mentioned the children being checked. Today I speak to community groups, etc. to get the information out. Our three county area has 60% of the new cases in Ohio. This is a true crime when prevention and early detection gives a 90% cure rate. You see we also have a mortality rate 20% higher then the national average. We have alot of work ahead to correct this wrong! I'm proud to say we now have a support group for colon cancer patients and their families. They are able to receive emotional and educational support from other colorectal survivors. We will look foward to meeting you in September at Cleveland , Ohio. Together, we can make a difference. Thank You! Michele

From: Summer
Email:
Date: Friday, August 08, 2003
Time: 12:05:12 PM -0400

Comments

I do not have an email address to send you at the moment. I just wanted to say I think what you (and all others involved) are doing is amazing. It is just awesome that you have come up with these ideas that will not only alert adults that are over 50 but educates in such a way that even the very young want to get more information. I recently began working for a gastroenterology specialist company, so you are basically infamous here! Take care.

From: Marian Payant
Email: rommar52@hotmail.com
Date: Friday, August 08, 2003
Time: 10:36:57 AM -0400

Comments

Hi Molly! What a great idea the Colossal Colon is. There is no better service to bring to light the importance of colon health. I am a Colon Hydrotherapist and I am alway thinking of new and innovative ideas to get the message across to all my clients about colon health. I will surely be in boston in October seeing this wonder for myself. I will take lots of photos if that is allowed. I think I will hang the pictures of this up in my office for all to see. E-mail me if you want Molly. Maybe you could come here to New Bedford MASSACHUSETTS and I will give a free colonic if you want.

Marian Payant, CCT Body Basics Colon Hydrotherapy 945 Phillips Road New Bedford, MA 02745 508 985-9970

From: Allan Gazza
Email: agazza2@cox.net
Date: Friday, August 08, 2003
Time: 12:49:20 AM -0400

Comments

Molly, First, I want to congradulate you recovering from cancer. I also want to say that you have a wonderful web-site that provides a lot of helpful information and shows that it can happen to anyone. I lost my dad to cancer on May 15, 2003. After much mis-diagnosis in August 2002, he found out in late September he had Colon Cancer. I guess we never really knew how short he really had left. I surprised him and visited him one day before easter 2003. That night he went into the emergency room for rectal bleeding, they gave him blood, and stabalized him. The Wednesday after easter they told my mom he had 2 -3 weeks left to live. It was hard to beleive, I went to San Diego from Phoenix every weekend to be with him. One thing my mom and myself learned during this was that being there just next to his bed for when he wanted to talk or just see a smile was important. He commented that he didn't need to be entertained, just having someone by his side was so nice. I have to thank my mom and brother for being by his side and providing 24 hr care at home for him throughout this, it meant so much to him. My brother had created a room that was one of comfort to him. Your story is so touching, and I really important for everyone to understand to get checked, and ask alot of questions. I came across your site while researching for a nutrition class for the University of Phoenix, in which our group is doing a presentation on Colon Cancer. I have bookmarked this site as I feel you have a site which I would like everyone to visit. Thank you for being an inspiration.

From: Ernestine
Email: EHcrsone@aol.com
Date: Wednesday, August 06, 2003
Time: 08:24:57 AM -0400

Comments

Hi, Molly. How are you doing with road wearout? Hang tough. Should you ever need an ear or just a safe, quite space to retreat to for a bit, remember I have an extra room on the lake front just north of the Drake Hotel. It can be yours anytime. ((-:}

From: Sally West
Email: swest50@hotmail.com
Date: Tuesday, August 05, 2003
Time: 10:26:03 PM -0400

Comments

I am trying to locate where the collasolcolon will be in Mpls later this week. The web site says I should click on the city where the tour will be, but I can't get a location from that. Will you please tell me where in Mpls MN the display will be? Thanks, Sally West

From: Bonni Garvey, South Glens Falls, NY
Email: bpgarvey@earthlink.net
Date: Saturday, August 02, 2003
Time: 08:19:44 AM -0400

Comments

Good Golly Miss Molly!!! Its been a while since I've seen you but that's OK cause you are out there traversing this great country of ours, spreading the word that colon cancer et.al. is not an "Old Man's Disease". It CAN and DOES attack people of ALL AGES. I have been studying Fitness and Nutrition for 28 yrs now - informally - and the only thing I want to add, at this time, is that DIET (what we eat on a daily basis) is SO IMPORTANT!!! What we put in our mouths must be processed by our bodies before it comes out the other end. Sadly, much of the food and drinks we comsume, have been processed and have chemicals in them. Think about it folks, the next time you are out shopping and look at the info. panel for calorie or fat counts, ALSO check out the actual ingredients. You will find a lot of words we cannot even pronouce, much less know what they are. I know many of us live fast-paced lives and rely on packaged (processed) foods for a quick dinner on the table OR are out all day, living our lives and relying on stops at fast-food places to satify our nutritional needs. But just think about it, some of these places we can drive-thru, enhance their product (with chemicals) so they will taste good to us. Perhaps we need to think about that statement we've all heard, YOU ARE WHAT YOU EAT!!! Take a giant step backwards and think about this. This could go a long way in understanding why sometimes, we develop health problems, regardless of where they occur in our bodies. It could be related to our DIETS (daily food/drink intake). Oh, and before I sign off on this message, EVERYONE, DID YOU KNOW THAT THE BODY IS MADE UP OF APPROX. 70% WATER??? SO....PLEASE BE SURE TO DRINK AT LEAST 8, 8OZ. GLASSES OF WATER A DAY (MORE ON WARM/HUMID DAYS AND BEFORE/DURING/AFTER EXERCISING). ONCE YOU ARE EXPERIENCING THIRST, YOU ARE ALREADY DEHYDRATED!!! SO DRINK UP FOLKS!!! Miss you Molly, maybe I'll see you Downtown SS. Love, Bonni

From:
Email:
Date: Saturday, August 02, 2003
Time: 01:31:43 AM -0400

Comments

From: Robert Danna Email: res0byz3@verizon.net Date: Friday, November 22, 2002 Time: 01:26:53 AM -0500

Comments Molly,

Amanda's story and yours is very heart warming and a tribute to two wonderful people. My son Matthew has colon/liver cancer; he's 31. After reading your story we are encouraged to continue on with letting eveyone know Cancer in any form has NO BOUNDARY!! Matt was given 3-6 months to live (Stage 4 colon cancer), it has now been 15 months and counting. I wish he could meet you, you would laugh at his approach to such a horrible desease. He jokes and calls himself "Cancer Boy", it's his way of acknowledging what he has. Thanks for your wonderful website and may God Bless you always..

Bob Danna

Molly,

Just this past July 14th at 8:15pm Matthew my son, passed away at age 33. I wanted to thank you again for sending him an e-mail, inviting him to write to you however, even at 15 months it was hard for him to sit and use the computer at all. He died at 23 months 23 days still fighting, never giving up hope. My son once said this about Colon Cancer " The medical community does not believe people under the age of (50) can contact this disease; it's to bad no one has told the diease itself". The medical community still thinks that check-ups shold begin at (45) now; that still is well short of what the disease thinks and does. My wife Marsha and I will miss our son dearly for the rest of our lives. God love you for your website and the work you have done to make young people aware of this dreaded diease.

Bob Danna

From: Trent
Email: gjjones@uiuc.edu
Date: Friday, August 01, 2003
Time: 02:56:38 PM -0400

Comments

I became ill back in September, I had been loosing weight, couldn't sleep eat, go to bathroom, etc. I went to the doctor and for 6 months of doctored for Proctitus of the colen. Then I was referred to University of Indiana medical center for second opinion. The doctor there did only a sigmodostomy and agreed with first doctor. She increase my dosage of medication and gave me more of a different kind. She told me I was improving. I went to Florida with my mom. The second day I was there I became very ill and was taken to the emergency room. My colen had burst, I almost died and was diagnoised with stage 4 hodgkins colen cancer. Iam presently taking Chemo. I was in between jobs so I had no insurance. The hospital in florida was surprised that they had let me get down to 120 pound (6' 4" ) and that they had not even done a CAT scan on me. The two hospitals now are threatening me for payment and I have no money and have written them letter of the situation. Do you think they under treated my medical situation due to no insurance? I have a decending colonostomy and am managing well with it even though I have cancer I actually feel much better than I had during the 6 months of being treated for Proctitus of the colen. WELL I GUESS THIS MESSAGE IS FOR EVERYONE OUT THERE NOT TO LET THE TAKE DOCTORS MAKE ALL THE DECISIONS, ASK A LOT OF QUESTIONS, STAY ON TOP OF THINGS, AND READ A LOT ABOUT YOUR SITUATION AND MAKE THEM DO EXTENSIVE MEDICAL TESTS.

From: Martina
Email: mwolter10878@rogers.com
Date: Tuesday, July 29, 2003
Time: 08:30:39 PM -0400

Comments

My mother has had cancer in the past and there haven't been active support groups either in her community nor the surrounding ones. I find it a relief knowing that there are others out there willing to share their experiences and that in itself is a support group. Thanks for sharing your views. My mother, I'm certain, will be a survivor once again. Her will and intentions are there, too bad medical technology isn't always used to its advantages. Stay strong my friend, and God bless you!

From: Brian Spearman
Email: spbr0203@stcloudstate.edu
Date: Thursday, July 24, 2003
Time: 07:25:51 PM -0400

Comments

My sister was just recently diagnosed with ulcerative colitis so I am extremely excited to see the Colossal Colon when it gets to Minnesota. It should be really interesting for people who don't really understand these kinds of things.

From:
Email: info@ncsdf.org
Date: Thursday, July 24, 2003
Time: 03:13:25 PM -0400

Comments

I would like to send an invitation to Molly McMaster to become a member of the National Cancer Survivor's Day Speaker Bureau Roster. It is free of charge. We send planning guides to over 3,500 cancer related organizations in January along with a Speaker Bureau Roster. The Speakers Bureau Roster is for information purposes only. The cancer related organizations look forward to haveing speakers at their National Cancer Survivors Day Event. I would require a postal address to send this invitation. My Phone 615-794-3006. Thank You....Lauri, Volunteer

From: Jennifer
Email: exedens@aol.com
Date: Thursday, July 24, 2003
Time: 01:58:52 AM -0400

Comments

It's late, and I'm the world's worst typist. I know it's a 'COLONOSCOPY,' and that really clean things are 'SQUEAKY.' I apologize for my sloppy mistakes.

And sorry for being so anal...no pun intended!

From: Jennifer
Email: exedens@aol.com
Date: Thursday, July 24, 2003
Time: 01:54:31 AM -0400

Comments

Just wondering...why did the Midwest leg of your tour bypass Indianapolis? We have the largest Med School in the country, and one of the best oncology programs in the U.S. (Lance Armstrong was treated here..and so was I.) I was diagnosed last summer at age 36 with T3N0M0 adenocarcinoma of my now-long-gone ascending colon. Went through 8 months of optional chemo; it was by far the hardest year of my life, physically as well as mentally. As a youngish mother of two boys (12 and 14)with a sqeaky-clean family history, I thought I was impervious to ANY cancer--let alone one that hardly ever struck before fifty, based on my readings. My symptoms convinced me that something must have been awry, but I would not allow myself to intellectually acknowledge the possibilty of anything serious going on inside me, bombarding myself instead with articles reassuring me that it HAD to be a benign condition of some sort. Fissures, high hemorrhoids, atypical Crohn's...you name it, I had it! A long-overdue coloscopy proved otherwise, unfortunately. I questioned the nature of the universe, pondered the possibility of a punitive god, shared your garage fantasies--mostly, though, I wanted to be heavily sedated every moment leading up to my sure-to-be-imminent death. But I somehow made it through the year intact, permanently terrified on the inside but sporting a 'Hakuna Matata' face for the sake of the kids and all my friends. I think it was pretty convincing--I'm a good actress when forced. I will go in for my first follow-up scope next week, during which I plan to be as drugged as humanly possible.

Anyway, I would have loved the opportunity to demystify this little-mentioned/explained illness to my kids--so very devastated by my experience-- in a uniquely tangible way. I've described everything to them in great detail (even going so far as to write a Halloween play for them starring different types of polyps!), but there's no substitute for a real-life, interactive colossal colon to deliver such powerful messages.

I also work at the Med Center as a bioethical researcher--left teaching for it as a result of my experience, so I know just about all there is to know about Colon CA (You have no idea how happy for you--but admittedly envious!-- I am that you're 'almost there'--four years away from the luxury of reassuring certitude sounds like a hell of a long journey to me right now. I still wake up scared most mornings.)

So back to my original question: why was Indianapolis omitted? I'm not a native Hoosier, but this IS the 'Crossroads of America,' after all, with over a million metro-area inhabitants--and Roche has a huge facility here to boot (have friends who work there.) Any possibility this may pass through next time around, if there is one? I really feel that we get the 'short end of the stick' as a city in so many contexts--and this one is so crucial, it makes me sad that we're not included. I spent months next to many very frightened colon cancer patients in infusion rooms--believe me, they're here, they come from all over the state, and they need a 'lift' badly.

Anyway, thanks for all your hard work. Wish there was something I could do to further contribute. Is there?

Heartfelt congratulations on your now-almost-home-free status...I hope millions of others--including me--will be able to share the same joy someday.

Best regards,

Jennifer S.

From: RM
Email: bq408@yahoo.com
Date: Wednesday, July 23, 2003
Time: 11:54:50 PM -0400

Comments

Hi Molly, Your story almost sounds like mine. Like you I have survived it, and am on my 3rd year cancer free. Thank G-d. I can't answer why some of us make it, and why some of us don't - only G-d really knows. We shouldn't blame anyone when it does happen. All we can do is be vigilant about it, and do the best we can every single day. To me, the objective is to bring as much light in this world, and dispel the darkness inside people. We can do that by being a shining example. At least that will have made our lives worth it - regardless how long we live. Congratulations on your acheivements, good luck, and always see the best in everything ...RM

From: katherine
Email: flowers_buddy@hotmail.com
Date: Friday, July 18, 2003
Time: 07:13:27 PM -0400

Comments

Dear Molly, I went to the Dr. today (July 18 2003)to get a pap smear....havent had one in several years to which the dr. was not pleased........my own fault I know but there has been several difficult events that have caused me to be so busy that I really havent given it another though. Well the dr. found some polups and was told that it could be cancer so she wants me to have an ultrasound on my pelvic and vagina area on July 21st. My sister had colon cancer which they found in time. I have never had anything like this done before and I am very nervous and I wondered if you could maybe find time and email me back so I can understand a little bout all of this....................... thank you so much katherine

From: Joy Carmichael
Email: LilyPBJ@aol.com
Date: Thursday, July 17, 2003
Time: 05:42:41 PM -0400

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Hi Molly, Congratulations on being cancer free for over 4 years now! The attention you are bringing to colon cancer is absolutely terrific. A mutual friend from our former Flame's Hockey Team brought my attention to your website, and Pete, the girls and I hope to see you when you visit CO next week. You are awesome girl! Love, Joy & Pete Carmichael

From: Barb Hill
Email: hillb@summacare.com
Date: Thursday, July 17, 2003
Time: 09:15:35 AM -0400

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Molly, I am new at this and scared, I am 50 years old and on July 14,2003 was diagnosed with colon cancer. Going to the surgeon today july 17th. Your story is an inspiration and hopfully I will be on here soon with an update.

From:
Email: daniella.rullo@verizon.net
Date: Wednesday, July 16, 2003
Time: 07:51:15 PM -0400

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Dear molly, I am very happyto hear you are doing well. My name is Daniella and I live in New York. A year ago my mom was diagnosed with stage 4 colon cancer, which has spread to the liver and bones. She now is so weak she is unable to walk. She is still taking chemo (the 3rd type she has tried). We aren't sure if this treatment is working. Although she is going through a horrible ordeal, she is still fighting and trying to be strong. I, on the other hand am not as strong and I am losing faith. If it is possible I would greatly appreciate any information you could offer me, such as the treatments you were on and how I can dealwith this ordeal.

Thank you for your time Sincverely, Daniella Rullo

From: Paula
Email: rkangel_2001@yahoo.com
Date: Tuesday, July 15, 2003
Time: 10:14:12 PM -0400

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In April I had my second colonoscopy. This time they found adenamatous polops. I am concerned, cancer runs in my family. My sister (age 54) died from it ... I am now 54.

My grandmother had vaginal cancer.....

From: Chris
Email: braves19822002@yahoo.com
Date: Sunday, July 13, 2003
Time: 12:00:08 PM -0400

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Molly I think what you are doing with the Cancer awarenees is wonderful. Just wished it had came closer to my home so I could have seen it. I have a family histoty of FAP in my family. It all started with my grandfather on my mothers side. He died at the age of 45 with cancer. My mother has had a Ileostomy for 20 plus years. I just had my colon removed this year and have a J-Pouch. Just found out that my 14 year old has polpys in her stomach and colon. Keep up the work you doing. May God bless you with continued good health.

From: Brent Snider
Email: lbsnider@sbcglobal.net
Date: Friday, July 11, 2003
Time: 02:46:00 AM -0400

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Molly:

Your story is extremely uplifting to me. I was called back to Army Active Duty shortly after the 9-11-01 tragedy. I was on Active Duty for a year, serving at Ft. Benning, GA as a Drill Sgt.

In late July of 2002, I began having lower left abdominal pain. After seeing the Army Dr's. a number of times, being diagnosed with kidney stones, a GI virus, a UT infection, and finally hospitalized in August of the same year for a week with what at the time was thought to be diverticulitis, I finished my tour and returned home to my wife and son.

I sought a second opinion from a civilian Dr., who immediately scheduled me for a colonoscopy on November 4, 2002, and told me I could not be diagnosed until then. I went in for the colonoscopy, only to have them stop 3 inches in because there was immense infection in my colon. The next morning I woke up with fecal matter in my urine. I went immediately to the ER, and was admitted with a colovesical fissula.

After 10 days of bickering between the Urologist, the Surgeon, the Infectious Disease Specialist, and the GI Dr., they finally decided to perform surgery because the infection was not improving. Immediately after the surgery, the surgeon came to my family and told them he was "99% sure" the problem was not cancer, colitis, Chrone's Disease, or Diverticulitis....it was just a "one-time" infection probably caused by stress.

Much to my dismay, a total stranger (a surgeon I'd never met) came to my room 3 days later and said, "Gee Mr. Snider, we were really shocked to see that your pathology showed you have colon cancer". My heart almost stopped. At that time I had Stage B2 colon cancer (9 of 9 lymph nodes clear) following removal of 9 inches of lg. intestine, 5 inches of small intestine, and 4 inches of my bladder.

I am now Stage D colon cancer, following metastases to my liver and bladder. I survived urosepsis in December, 2002; a biopsy removal of a tangerine-sized tumor from my bladder that grew in two weeks in April, 2003; and most recently a pulmonary embolism over the Memorial Day weekend. I am on chemotherapy every other week (Oxyplatin and 5 FU w/Lukovorin) for 72 hours at a shot (take a pump home). On my off weeks I feel pretty normal, but the chemo days plus 2 after make me pretty ill. I've maintained my weight, and recent CT results show the liver lesion (only 2 mm x 1 mm x 1mm to begin with) in the lower left lobe is shrinking! I'm going to survive this thing, but I know without a doubt that Jesus Christ has seen me through the worst of my battle. What lies ahead, I do not know, but He does, and I won't take a step without Him.

Keep doing what you are doing. My life has changed forever FOR THE BETTER as a result of my diagnosis. I have new purpose and continue to look forward to the day I become cancer-free and able to help others who face this horrible disease.

God Bless You!

Brent Snider

From: Lesley
Email: lesley_casey@hotmail.com
Date: Thursday, July 10, 2003
Time: 08:15:19 AM -0400

Comments

Is bowel cancer the same thing as colon cancer? My brother has just has a tumour removed from his bowel and my mum has just had a cancerous polyp removed. The rest of the family are about to be checked out because of the increased risk. How often should you be checked for polyps, there should be more publicity about it. Glad to hear you have been clear for so long.

From: Kari Bayse
Email: bayse@stolaf.edu
Date: Wednesday, July 09, 2003
Time: 12:32:53 PM -0400

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Hi! My friend and I are 22 and both have ulcerative colitis and are incredibly excited about the colossal colon tour! We will both be there when it makes its visit to Minneapolis, MN!! Thanks for your fabulous idea and hard work.

From: Kathie Hilgenberg
Email: khil4u@bytehead.com
Date: Sunday, July 06, 2003
Time: 06:30:03 PM -0400

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I was diagnosed with Crohn's Disease in 1982. In 1997 They found cancerous polyps in my colon and I had my rectrum, colon, and 17 inches of my small intestines removed leaving me with a ileostomy. i would do it all over again if I had to because I have gotten my lfe back. I total enjoy this sight and find it "MORE" than interesting. Maybe someday I will be able to walk through the Colossal Colon.

Thanks for all the information..............Kathie

From: robert Leary
Email: Queencrow2
Date: Friday, July 04, 2003
Time: 03:04:57 PM -0400

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My wife has been fighting colon cancer for 2 years it now has metastasized in both lungs the outlook is bleek she is receving intense chemo theropy if anyone has any alternate advice could they please contact me at the following e mail adress i am desperate an i feel like there is nothing i can do thak you! Queencrow2@aol.com

From: Zdzislawa (Trish) Bullock
Email: pegasus715.1@juno.com
Date: Tuesday, July 01, 2003
Time: 12:15:38 AM -0400

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I'm glad to see a site like yours. My sister went through colo-rectal cancer surgery in 2000. She was diagnosed with it 2 years before-hand, but wished to try alternative theraphies. She waited till she found she really wasn't living a life anymore. Her goal for every day was to be as close to a bathroom as possible, but even then found herself constantly cleaning up. Gone were the days when she could be care-free and play with her grandchildren, take a walk, see a movie, anything that we all take for granted. She went through the operation well, they were able to get all of it, she now uses a colostomy bag. She's gone through Chemotheraphy, Radiation. She now has her energy back, and barely remembers the exhaustion, and pain both before and after surgery. The only lingering effect is that after many complaints to the doctors about her lack of lung capacity, she was finally diagnosed with a frozen frenic nerve. They say they don't know when it happened, or if it well recover. All they can suggest is an oxygen tank. Which is quite a hindrance to her busy life-style. Molly, do you know anything about this nerve (diaphragm or lung). I am so sorry that your first attempts with the doctors, were such a mistake and disappointment. Bless you, for not giving up, and finding the right combination of medical help. And thank you for speaking out about it, not only to let others become aware of the danger of colon cancer, but also to let other survivors know it is ok to talk about this, and not have shame about what they've gone through. I believe that everything happens for a reason. Our lives are a series of lessons not only for us but for others around us. We might never know what effect our problems, and the way we handle them, might have on those around us. It might be just what is needed to open wide the door of understanding, reflection, forgiveness, love, that someone has been struggling with. Thank you so much, and God bless.

From: georgia petty
Email: pettysells@aol.com
Date: Friday, June 27, 2003
Time: 06:32:24 AM -0400

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my sister has colitits and suffers unbelievably.

From: michelle
Email: micki112173@hotmail.com
Date: Thursday, June 26, 2003
Time: 10:51:06 AM -0400

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i have had bits of food in my bm and alot of gas. could i have polyups.

From: Kevin Shaw
Email: coach_k@alltel.net
Date: Tuesday, June 24, 2003
Time: 11:26:47 PM -0400

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I just wanted to say hello to Amanda, because I know she is surfing the internet in heaven and seeing what great things are happening with the research on colon cancer...........

Luv you and Hope and I miss you BUNCHES!!!!!!!!!!!

From: angie
Email: woodsracinfan@aol.com
Date: Monday, June 23, 2003
Time: 03:05:53 PM -0400

Comments

i jus lost my mother in law on may9th 2003 of colon cancer she faught so hard but she went to the doctor to late to have some test ran .. her doctor told her to go have it done an she waited 1 year before she did an it was to late ..she faught it for 2 years before she past away..with chemo an all kinds of drugs..

From: Sherri
Email: sherri_renee@hotmail.com
Date: Sunday, June 22, 2003
Time: 06:07:15 PM -0400

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Hi. I just stumbled onto this website in hopes to get some sound information and options for my mother. I am very concerned because it has been suggested to her that she have her colon removed entirely in order to prevent colon cancer. A little background...her father died at 62 from colon cancer (he never had gotten screened). My mother has had ulcerated colotis since she was in her early 40's and has been "maintaining" on steriods and other medicine when symptoms arise. Seems stress in her life causes more flare-ups. Over the past 2 or so years, she has gone in for regular colonoscopies. It used to be annually, but my mother feels that every 6 months is better for her. She has experienced quite a bit of polyups but does have them removed once detected. Recently, her regular colon doctor and also a specialist with this disease recommended that she remove her colon entirely. Wear a "bag" for 3 months or so until she heals, then get an operation where they take part of your intenstines and created a "J" like sac to replace her colon. Needlesstosay, my mother and I are horrified at the prospect. The attitude of the doctor is one of "to take the colon out is to relieve the patient of worrifying of getting the cancer". I feel this attitude is quite harsh. I want to help my mother but I don't know how to advise her as to where else or what other options she may have before getting this surgery done. At this point, she does not have cancer. Also, my brother who is 37 now has had ulcerated colotis since he was 32. Please help us. I'm so confused. Are there any alternatives to this surgery?

From: Marilyn Taylor
Email: marilyn_taylor186@hotmail.com
Date: Sunday, June 22, 2003
Time: 07:55:45 AM -0400

Comments

Thank you Molly for your inspiring story. I have just been in a whirlwird over the last six weeks having been diagnosed with cancer and had an anterior resection only last week. I am now out of hospital and looking forward to getting my life back and learning how to live with an illeostomy. I am still awaiting the path results to let me know of my further treatment programme. Like you nobody particularly asked about family history when I developed IBS about two years ago, even though a cousin had died of bowel cancer, they werent particularly interested.

Well done you for bringing this disease to the fore and getting people to realise that any of us are at risk!

From: Chaer Robert
Email: chaerrobert@hotmail.com
Date: Friday, June 20, 2003
Time: 01:39:50 AM -0400

Comments

I look forward to meeting you when you are out here in Colorado with the tour (??!!) I have just signed up to volunteer a shift.

I am also a 4 1/2 year colon cancer survivor (stage II B-- with two feet of intestine removed and 6 months of chemotherapy). Diagnosed at age 45, (with no risk factors or family history), it was the first time in many years I heard people say "you're so young"...because most people are diagnosed after 50. My younger brother died of Hodgkin's (cancer of the lymphatic system) when he was 26. Not until I was diagnosed did I feel how much more difficult it must have been for him to face cancer with fewer years of life experience.

I do think survivors uniquely are able to speak bluntly and use humor in ways others cannot, because the experience trumps the taboo. Thanks for your creative work.

From: Laura Sherwood
Email: Sherwood1021@hotmail.com
Date: Thursday, June 19, 2003
Time: 10:31:01 PM -0400

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Hello, my name is Laura Sherwood, I am 16 years old, I live in Little Rock Arkansas. I am Amanda's first cousin. I just finished reading your story, it's amazing. I just wanted to say that I admire you and what you are doing so much. You are a true inspiration!! Unfortunately, I was not as close to my cousin as I wish I could have been. My sister was closer to her, and recently she has been telling me that there are th