Rolling To Recovery - A Colon Cancer Survivor Story

Click on the year to read comments: 2005, 2004, 2003, 2002, 2001, 2000.

From:
Email: ddmac@ev1.net
Date: Sunday, December 22, 2002
Time: 08:02:40 PM -0500

Comments

Thank you for doing all you have done. My 8 year old daughter found the latest issue of Voice,,with the picture of the colossal colon and said "That is so cool,,when can we go see this?"...I am a colon cancer survivor ,first diagnosed June 2001,,so far so good.....the reason for my email can you tell me where this colossal colon will be on display in Houston Texas...I want to take my daughters to see this since they want to see this... Thank you,thank you, thank you... I am sure Amanda is saying thank you too ....

God Bless You and your family.. Deb

From: Katie Spoerl
Email: snowboardchickey@yaho.com
Date: Thursday, December 19, 2002
Time: 04:04:11 PM -0500

Comments

MOll, I love this I came here last year to get some information. Mrs. Byrnes wasnt there today. But I will give you an e-mail when it is time to put the show on. We have been planning alot. We were thinking that I read my easy on colon cancer. Then you tell a little more information about this. THen some of the kids have some questions. You will answer them. Well that is what we are planing at lest. well see you later. I love the page. I am getting some more information right know. well bye! Katie Spoerl

From:
Email: francinelemke614@cs.com
Date: Wednesday, December 18, 2002
Time: 12:54:17 PM -0500

Comments

I too am a colonrectal cancer survivor. I just finished chemotherapy this past April. However, my cancer was Stage IV so it was very advanced and the diagnosis was quite grim. Here I was 40 years and diagnosed with this with a 10 year old daughter. Today, I am cancer-free but it has been a difficult 1+ year. I'm glad to hear about your story.

From:
Email: francinelemke614@cs.com
Date: Wednesday, December 18, 2002
Time: 12:54:10 PM -0500

Comments

From: Carol
Email: carol@briertonandjones.com
Date: Monday, December 16, 2002
Time: 08:20:32 PM -0500

Comments

Hi Molly,

Just found your website searching through Katie Couric's experience. I was diagnosed with colon cancer in mid Sept., had surgery Sept. 26 for removal of an orange size tumor and started chemo Nov. 1 because out of 19 lymph nodes removed, 14 were cancerous. Stage 3 here I was. I also just turned 50 in early Oct., no history of cancer in the family, am a non smoker, non drinker, in excellent health otherwise. Just one of those moments in life when reality sets in. But by the grace of God we are saved. I volunteer for the research program for colon cancer so that others can benefit from my experience.

The chemo treatment has taught me how to respect life more - things that I thought were important are now mere shadows and I have met so many wonderful people in the oncology department at Kaiser in San Diego. God has given me great compassion for others and have a wonderful outlook on my future. I missed two weeks of work after surgery, but I have scheduled chemo treatments on Fridays, so the weekend I can spend taking care of myself and then back to work on Monday - not a day missed since surgery. Thanks for the website and to share my experience with others. I am still on chemo with the last session the first week in April, then I plan on celebrating complete remission - BE GONE CANCER. Thanks Molly for the support.

From: Cathy
Email: cparsons12@aol.com
Date: Monday, December 09, 2002
Time: 11:39:27 AM -0500

Comments

Dear Molly, My husband is 47 and has starting having some strange symptoms with his bowel habits, etc. Since this past August he has had problems with alternating constipation and diaharrea and gas and bloating. He also has had some bleeding in his stools but contributes this to hemmorhoids. He has also been very fatigued since last summer and the tiredness is not going away. I cannot get him to go and be checked for a colon problem. He just had a physical in August and he says he is fine although they did not do a rectal examination. Did you start out having any of these symptoms before the blockage was found in your bowel? I am sorry you have had a battle with cancer. More and more of our friends these days are being diagnosed with it. My father passed away in July with lung cancer. It is a terrible disease, but like you said, can be cured if found in time. Thank you.

Cathy

From:
Email:
Date: Sunday, December 01, 2002
Time: 02:30:18 PM -0500

Comments

Hi Molly- How inspiring you are! I can't wait to meet you.... Deborah--CCA Newsletter Article Writer--The Colossal Colon

From: Dan Pellerin
Email: dpell123@yahoo.com
Date: Saturday, November 30, 2002
Time: 04:45:23 PM -0500

Comments

My son-in-Law has colen cancer stage 3 and I am just looking for hope for him..Thanks for your site and the telling of your story.

From: Marcella
Email: ocnautical@aol.com
Date: Saturday, November 30, 2002
Time: 08:29:20 AM -0500

Comments

I understand that the drug oxalyplatin has been FDA approved. Can you please tell me if Medicare has approved payments for this drug. Also, is this drug available in a pill form and how often is this drug administered.

Thank you for you communication and please answer me.

From: Eric J Poche' Sr
Email: ejpoche@hotmail.com
Date: Friday, November 29, 2002
Time: 09:03:07 PM -0500

Comments

Molly I was diagnosed with colon cancer on September 26 02 surgery was done on September 28 02. I was told that it was stage 3 in my lymph nodes. I will soon start my chemo treatments. I just hope that I can get into remission that is my biggest fear now. I am in good health other than my cancer my spirts are high and I feel great. It was a big shock to me when I was diagnosed it was the farest thing from my mind. I had no history of cancer in my family I am now 46 just made it Monday the 25th. I plan to see many more.

Eric

From: carlos marques
Email: cfmarq@terra.com.br
Date: Monday, November 25, 2002
Time: 08:32:34 PM -0500

Comments

CONGRATULATIONS!!!! I read your page with great interest, and I can say that beside beeing beatiful, very compreehensive and correct, it´s also full of emotion!! I´m a 32 year old colorectal surgeon in São Paluo, Brazil. I work in the biggest public hospital in Latinamerica, and now we are starting a colorectal prevention program for the brazilian population. I foud Your Colon Idea COLOSSAL!!! Again: congratulations and I hope you all the Best. Carlos Frederico S. Marques

From: Ashley
Email: ashleyb87@hotmail.com
Date: Monday, November 25, 2002
Time: 04:18:49 PM -0500

Comments

Hey Molly,

This is Ashley. I knew Amanda and I think this is a remarkable thing that you guys are doing. Like I said earlier, I'm willing to help with whatever you need.

Ashley

From: stephanie
Email: honey170723@aol.com
Date: Sunday, November 24, 2002
Time: 04:33:22 PM -0500

Comments

HI, MY NAME IS STEPHANIE. MY MOTHER DIED IN MARCH 29,1999 OF AADVANCED COLON & OVARIAN CANCER WITH MET TO THE LIVER. MY MOTHER WAS A HEAVY SMOKER. ONE DAY IN 1996 MY MOTHER HAD A STROKE AND FELL OUT OF A CHAIR . WE TOKE HER TO THE ER AND FOUND SHE DID HAVE A STROKE DUE TO HIGH BP. WHEN ADMITTED TO THE REHAB CENTER FOR REHAB A TEST CALL A 24 HOUR URINE WAS DONE ON HER. DX CAME BACK WITH MID TO HIGH BENCH-JONE PROTEIN..THIS MEAN SOME FORM OF BONE MET.. FINALLY AN CT-SCAN WAS PERFORMED THAT REVEAL A 13CM MASS ON HER RIGHT OVARY AND SEVERE LIVER MET. COLONSCOPE REVEAL ALARGE MASS THAT BLOCKED THE ENTIRE COLON .. GOD YOU SHOULD SEE WHAT CANCER LOOK LIKE .. MY MOTHER WAS 58 YRS YOUNG WHEN SHE DIED.PLEASE I ADVISE ALL PEOPLE WITH A FAMILY HX OF CANCER TO GET CHECKED ASAP.. I'M 38 YRS OLD NOW AND I JUST HAD MY SECOND COLON SCOPE DONE NOV 22,2002 THEY FOUND ONE SMALL POLY THAT LOOK GOOD THE DR. SAY. IT WAS REMOVED AND SEND TO PATH. I'M A SURVIVOR OF THYROID CANCER DX IN OCT 2000 AT AGE 36. YES I DO HAVE A FAMILY HX OF CANCER. MY MOTHER HAD A COUSIN A MALE DIED AT AGE 42 WITH ADVANCED COLON CANCER. HER MOTHER DIED WITH LEUKEMIA HER AUNTS ON FATHER SIDE WITH BREAST , COLON AND LEUKEMIA CANCERS.. CANCERS IS A TERRIBLE DISEASE TO HAVE BUT WITH THE RIGHT TREATMENT WE CAN FIGHT THIS HORRIBLE DISEASE.. MY MOTHER WAS SO ADVANCED SHE COULDN;T GET CHEMO IF SHE WANTED IT. THE DR. GAVE HER 3MONTHS TO LIVE AND SHE DIED RIGHT AT 4MONTHS AFTER SURGERY.. GOD BLES YOU ALL AND TAKE CARE..

From: Robert Danna
Email: res0byz3@verizon.net
Date: Friday, November 22, 2002
Time: 01:26:53 AM -0500

Comments

Molly,

Amanda's story and yours is very heart warming and a tribute to two wonderful people. My son Matthew has colon/liver cancer; he's 31. After reading your story we are encouraged to continue on with letting eveyone know Cancer in any form has NO BOUNDARY!! Matt was given 3-6 months to live (Stage 4 colon cancer), it has now been 15 months and counting. I wish he could meet you, you would laugh at his approach to such a horrible desease. He jokes and calls himself "Cancer Boy", it's his way of acknowledging what he has. Thanks for your wonderful website and may God Bless you always..

Bob Danna

From:
Email: bbluesunrise@aol.com
Date: Tuesday, November 19, 2002
Time: 08:56:38 AM -0500

Comments

Dear Molly,

I just found your website and was relieved to discover that I am not the only young female (I'm 30) to be diagnosed with this. I have a similiar story regarding obstruction, emergency room, hemicolectomy. I have Stage 4 and begin chemo next week. I'm hoping for best. Thank you for your website.

From: Erika Brown
Email: erika@netgoddess.com
Date: Thursday, November 14, 2002
Time: 03:14:26 AM -0500

Comments

I love the collossal colon....and would like to participate with your stop in Denver, July 2003. erika brwon founder: netgoddess connects, inc. owner of domain names: 'ironduchess' and "chemoqueen". Love to hear from you. Molly. 303.780.9111 erika brown

From: dave goldman - latham, new york
Email: mgoldma1@nycap.rr.com
Date: Monday, November 11, 2002
Time: 12:22:46 PM -0500

Comments

I am 38 years old and just had a proctocolectomy and ileostomy because of ulcerative colitis and cancer (Stage 1). I have been feeling sorry for myself because I will have to have the ileostomy for the rest of my life. In fact, I have been more upset about the ileostomy than the cancer diagnosis. According to the doctors, I will not need chemotherapy because the cancer is Stage 1. They said that I am lucky that the cancer was diagonsed at an early stage and that I should be able to resume hiking and biking and all of the other activities that participated in prior to the surgery. Although I do not feel very lucky, your stories on Amanda and Marie have made me appreciate my good fortune in having a diagnosis at such an early stage, despite having to have the ileostomy. Thank you.

From:
Email: joycetirro@aol.com
Date: Monday, November 11, 2002
Time: 07:27:02 AM -0500

Comments

Molly, you are terrific. Hope you are well. My husband is recovering from Colon Cancer. Although he is kind of glum and is not rolling colossal Colons all over town. We think he is going to be OK. Sure wish we could bottle your enthusiam Our prayers to out to you for your good work. Joyce

From: Ben Wing
Email: ben@666.com
Date: Friday, November 08, 2002
Time: 01:47:16 AM -0500

Comments

hello. my sister was diagnosed a year ago, on her 30th birthday, with stage 4 colon cancer, in a way somewhat similar to yours -- periodic stomach problems for a long time [years and years], then suddenly she got horrible abdominal pain and was unable to eat, and the tests showed total intestinal blockage by the tumor. unfortunately the cancer had already metastasized to her ovaries. they put in a stent, started chemotherapy and a few months later did surgery to take everything out and then started more intensive, more localized chemo. unfortunately a month or so later it was discovered again, this time in the lungs and brain. she is responding well to oxalyplatin, the drug they just approved, but it would really take quite a lot at this stage for her to beat the cancer.

i am very grateful that you are putting in the effort to spread the word about colon cancer, as what you say is totally true -- colon cancer is totally treatable if found early, but odds are not good if found late.

it's also good to see that you are expressing your experiences through art. i'm currently studying art at the univ of arizona, and trying also to put my feelings and experiences about this subject into my art work.

ben wing

From: Bob Welch
Email: wel5506@aol.com
Date: Monday, November 04, 2002
Time: 10:25:17 PM -0500

Comments

Marie and her husband were very dear friends of mine. I miss them too.

From: Laura
Email: LPrincess22601@aol.com
Date: Sunday, November 03, 2002
Time: 05:58:49 PM -0500

Comments

I just recently found out my brother has colen cancer. I would like if there were someone that could give him the reasherance of someone else that can make it. He really doesn't want to go threw anything. And it would really help me and my family out if someone could talk to him about it.

From: Mark
Email: mssgb1050@aol.com
Date: Saturday, November 02, 2002
Time: 12:37:04 PM -0500

Comments

Faceing colon resection!! Have hurd they have taken mass out with the colonscope and they where cancerious!! Th people recover find! Any info please? Mark

From: Tim Schick
Email:
Date: Tuesday, October 29, 2002
Time: 04:41:15 PM -0500

Comments

I love the Colossal Colon. I've never had such the urge to crawl right up into a colon as I do right now. Good for everyone associated in bringing the subject out in such a big way.

From: tiffany
Email: opie225@fidnet.com
Date: Monday, October 28, 2002
Time: 12:32:46 PM -0500

Comments

Molly, Thankyou for getting back to me so quickly. The rectal surgeon that i have been referred to is Jose Dominguez he is out of the Duncan Ferrell Office which is affiliated with Cox South in Springfield, Missouri. I am going today for a pelvic exam the last two months i haven't felt right in that area and the gastrologist said the more information we know the better. I just hope it is good news!! I had a exam the end of june and it was okay. I am so glad i found you

From:
Email: opie225@fidnet.com
Date: Sunday, October 27, 2002
Time: 07:00:47 PM -0500

Comments

I am 30 and in april of this year somehow got e-coli well ever since then i had problems with my bowels and the doctors would say you are healthy you just have irritable bowel disease. I also have internal hemroids so that what i figured the blood was from. I asked for a colonoscopy since i have been miserable all summer and october15th they found a tumor right above my hemroids and the biopsy came back cancer i meet with a surgeon on the fifth of november. I just need to talk to someone who has been there.

From: Amarjit Anand
Email: anand_is_bliss@yahoo.com
Date: Monday, October 21, 2002
Time: 04:41:42 PM -0400

Comments

Dear Molly, please respond to this message urgently. I misplaced your phone number. Thanks, regards, prayers for your happiness and success, sincerely yours, Amarjit Anand

From: Cathy Bolton, RN, CGRN
Email: chbolton@hotmail.com
Date: Sunday, October 20, 2002
Time: 10:08:16 PM -0400

Comments

Molly, I am so proud of you and your accomplishments. You've gotten your Collosal Colon on a national tour in less than a year. You can be very proud that your message is out and the many lives that you have and will save. This is a great website. I went on the SGNA website to renew my membership tonight and what to my eyes did appear but the "Collosal Colon". WOW!!!! Cathy

From: LINDA SHAW
Email: GODANDME2GETHER3@AOL.COM
Date: Saturday, October 19, 2002
Time: 12:21:16 AM -0400

Comments

IF ANYONE READING THIS HAS FAMILIAL ADENOMATOUS POLYPOSIS WILL YOU PLEASE E-MAIL ME SOON. MY DAUGHTER, 20 YEARS OLD, HAS JUST TESTED POSITIVE FOR THIS MEAN MONSTER GENE! SHE WILL HAVE COLORECTAL SURGERY THIS DECEMBER 2002. I NEED TO TALK TO SOMEONE WHO HAS LIVED AND BEAT THIS UGLY THING. I NEED FEEDBACK...POSITIVE FEEDBACK. I'VE READ ALL THE NEGATIVE ON THE INTERNET NOW I'M READY FOR SOME REAL LIFE POSITIVE INFO FROM A REAL LIVE PERSON WHO HAS THIS AND KNOWS WHAT I'M TALKING ABOUT!! PLEASE E-MAIL ME SOON. THANK YOU...LINDA FROM CHARLOTTE, NORTH CAROLINA

From: LINDA SHAW
Email: GODANDME2GETHER3@AOL.COM
Date: Saturday, October 19, 2002
Time: 12:15:46 AM -0400

Comments

IF ANYONE READING THIS HAS FAP OR HAS BEEN TOUCHED BY THIS MONSTER GEN PLEASE E-MAIL ME. MY DAUGHTER 20 YEARS OLD RECENTLY TESTED POSITIVE FOR THIS GENE AND WE ARE HAVING SURGERY IN DECEMBER 2002.. I'M SIMPLY DESPERATE TO TALK TO SOMEONE THAT HAS BEAT THE ODDS WITH THIS GENE. I NEED ENCOURAGEMENT AND POSITIVE FEEDBACK.. LIFE IS HARD BUT GOD IS GOOD. HOPE SOMEONE CARES AND WILL LOOK FORWARD TO HEARING FROM YOU.. THANKS SO MUCH AND MOLLY THIS WEBSITE IS SIMPLY GREAT..LINDA FROM CHARLOTTE, NC

From:
Email:
Date: Saturday, October 19, 2002
Time: 12:11:07 AM -0400

Comments

IF ANYONE READING THIS HAS FAP OR HAS BEEN TOUCHED BY THIS MEAN MONSTER GENE, PLEASE E-MAIL ME. MY 20 YR OLD DAUGHTER RECENLY FOUND OUT THAT SHE HAS THIS GENE AND WILL BE HAVING SURGERY IN DECEMBER 2002. I NEED TO SHARE INFO WITH SOMEONE WHO KNOWS WHERE IAM IN ALL OF THIS.LIFE IS HARD BUT GOD IS GOOD. THANKS..LINDA FROM CHARLOTTE, NORTH CAROLINA

From: LINDA SHAW
Email: GODANDME2GETHER3@AOL.COM
Date: Saturday, October 19, 2002
Time: 12:08:10 AM -0400

Comments

IF ANYONE COMING READING THIS WEBSITE HAS FAMILIAL ADENOMATOUS POLYPOSIS OR SOME CALL IT FAO, PLEASE E-MAIL ME. MY DAUGHTER IS 20 YEARS OLD AND RECENLTY TESTED POSITIVE FOR THIS MONSTER GENE.

I'M QUITE DESPERATE TO TALK TO SOMEONE THAT HAS EXPERIENCED THIS FIRST HAND OR KNOWS SOMONE WHO HAS. I NEED POSITIVE FEEDBACK AND HOPEFULL INFORMATION THAT WILL HELP US LATER ON. SHE WILL HAVE COLORECTAL SURGERY THIS DECEMBER 18, 2002. ANYONE PLEASE E-MAIL IF YOU HAVE BEEN TOUCHED BY THIS. LIFE IS HARD BUT GOD IS GOOD. THANKS, LINDA FROM CHARLOTTE NORTH CAROLINA

From: LINDA SHAW
Email: GODANDME2GETHER3@AOL.COM
Date: Friday, October 18, 2002
Time: 08:20:27 PM -0400

Comments

THIS MESSAGE IS FOR MARYLYN....YOU WROTE INTO MOLLY'S MESSAGE A WHILE AGO AND SHARED YOUR STORY ABOUT YOUR FAMILIAL ADENONMATOUS POLYPOSIS..YOR'RE A NUSRSE. YOUR 2 CHILDREN TESTED POSITIVE FOR THE FAP GENE. THEY ARE 17 AND 20... WELL I WOULD LIKE TO TALK TOO YOU MARYLYN {SPELLING?}.. MY DAUGHTER WAS RECENTLY DIAGNOSED WITH FAP.. SHE IS 20 YEARS OLD. WE FOUND OUT IN AUGUST 2002.. WE TRAVELED 10 HOURS FROM NORTH CAROLINA TO THE FAMOUS CLEVELAND CLINIC IN OHIO.. THE BEST DOCTORS IN THE WORLD FOR TREATING FAP AND MANAGING A LIFETIME OF CARE FOR FAP PATIENTS AND THEIR FAMILIES...MY DAUGHTER WILL HAVE SURGERY IN DECEMBER.. SHE WILL GET TO KEEP HER RECTUM.. I WANT TO TALK TOO YOU.. I HAVE LOTS TO ASK AND MAYBE SOME TO SHARE. FAP IS RARE AND IT'S UNUSUAL TO COME ACROSS SOMEONE WHO HAS IT.. E-MAIL ME BACK AT THIS ADDRESS....GODANDME2GETHER3@AOL.COM..!! I HOPE TOO HEAR FROM YOU SOON!! THANKS, LINDA SHAW FROM CHARLOTTE NC

From: Kim
Email: Fruitloop5150@AOL
Date: Wednesday, October 16, 2002
Time: 02:23:48 PM -0400

Comments

HI, I am a 39 yr.old mother of 4.On Sept.27,2002 my family DR. told me that I have a Lymphnoma approximately 3 in. long,1 in. wide.It is on my left shoulder blade.I have had soreness and pain in this area for 3.5 yrs. now. I have been to several different DR.'S. Most always I was told I had a pulled ligament.I had physical therapy for this and electro shock was applied. Nothing worked. Now thwere is this big lump, the pain is worse. What kind of Lymphnoma might this be? Today is the first time I have visited your site. It's very hard to read about the chiildren who have passed, but very encouraging to know that you can go on. I have an appt. with a surgeon on Oct.23. I am scared that I might have cancer.Please any responses will be appericiated. Thanks, Kim

From: Walt Kendall, Sr.
Email: necs5221@capital.net
Date: Sunday, October 13, 2002
Time: 09:41:40 PM -0400

Comments

Molly, Please keep up the great work you are doing. I have watch you in action the past few years as I have been concerned with the possibility of colon cancer. I had my first polyp removed in 1983 at the age of 36. Last week I returned for my regular 5 year colonscopy and received the news that I had some issues. Then last a few days later it was confirmed that I do have colonrectal cancer. I am still awaiting to find out what stage it is. I am still trying to absorb it all as I thought I was doing all I can to prevent this from happening. I am now doing my homework and trying to get all the facts and to understand my solutions of treatment. I will be retuning to Glens Falls Hospital tomorrow and will be talking with two of my doctors. I have cancer in two locations and the worse of the two is in the rectal area and that scares me a lot.

I am looking to finding a good support group as I want to be focused and stay positive. If you have any suggestions for support in our hometown, I am listening. Thank you.

From: Walt Kendall, Sr.
Email: necs5221@capital.net
Date: Sunday, October 13, 2002
Time: 09:41:12 PM -0400

Comments

I am looking to finding a good support group as I want to be focused and stay positive. If you have any suggestions for support in our hometown, I am listening. Thank you.

From: Carol Ponsolle
Email: carolponsolle@hotmail.com
Date: Friday, October 11, 2002
Time: 11:47:41 AM -0400

Comments

As I am preparing to leave today for the Minnesota Society of Gastroenterology Nurses and Associates regional conference in Duluth,Mn, I am inspired to carry your story to the participants in the conference. I will look forward to being more involved with colon cancer awareness and to participating in the colossal colon tour stop at Minneapolis in August. Thankyou for enlightening people everywhere about colon cancer awareness!

From: Michelle Greene
Email: Greenemr@localnet.com
Date: Thursday, October 10, 2002
Time: 12:01:07 PM -0400

Comments

I was diagnosed with Cancer in March of 2002. I was having abdominal pain and ended up having a colonoscopy, where they discovered I had a softball size tumor in my colon. I was diagnosed with Lymphoma of the bowels. I want to thank you for all the work your doing to raise cancer awareness!!! Your an inspiration to me and many other people.

Michelle Greene Glens Falls, NY

From: Gretchen Taylor
Email: taylorg@bsci.com
Date: Thursday, October 10, 2002
Time: 11:41:50 AM -0400

Comments

Hi Molly, Glad to see things are still rolling! Remember the co-worker I told you about who is going through Chemo for Colon Cancer? She(hopefully)has just finished her last treatment, and is awaitng test results, but her Dr. says she's in the clear so far! She's been so brave, coming to work as much as possible over the last 5 months, no wig, (keeping everyone wondering why she may have shaved her head!)She's been super with a very positive attitude!! A role model for us all here at work. She really wold love to meet you! Give me a shout! Take care, and ROLL ON!!! Gretchen

Give me a shout. I'll hook you guys up when your in the area. Her e-mail address is

From: angela
Email: foxetteang@aol.com
Date: Thursday, October 03, 2002
Time: 01:07:04 PM -0400

Comments

i believe i have colan poluyps and im just trying to get some information. thanks.

From: Keith Blankenship's Girl F
Email: dejeepgirl@yahoo.com
Date: Friday, September 20, 2002
Time: 03:58:32 AM -0400

Comments

my boyfriend is 34 an found out in july that he had colon cancer the day after he surgery an is now undergoing chmo...due to hs medical situation Keith is not able to wrk an is going on 9 weeks now with out a pay check...the house car ets are on the verg of reposession..medications are running us about $7- every 2 weeks resourse are so hard to find in our area can you please help us get trhough this thank you Angela

From: Bernadette
Date: Wednesday, September 04, 2002
Time: 05:03:44 PM -0700

Comments

I was able to experience your colossal colon at the NYS Fair. As a survivor of colon cancer, I was thrilled to have my picture taken next to the colon. I was very blessed. My tumor was found after several years of complaining to doctors that I had diarrhea and blood all too often. Finally, I was sent for a colonoscopy. Well, at the age of 43, they found a 2 inch tumor! The cancer was diagnosed in a couple of days and they sent me off to the surgeons. The cancer had slightly invaded the colon wall.They removed 18 inches of my colon. Biopsies of the lymph nodes and the liver were negative. THANK GOD! I did not need to undergo any further treatment. Because of the possiblity that this was hereditary, my sisters went for colonoscopies. The oldest was fine, but the next in line also had cancer. ( I am the youngest) Hers turned out as well as mine did. A double blessing! Now, if I could only convince my brother to go.....

From: linda
Date: Saturday, August 24, 2002
Time: 10:55:54 PM -0700

Comments

molly, please e-mail me asap. my 20 yr old daughter is child of fap father. please help me. i'm worried sick. please e-mail soon. i have questions!!! Linda From nc

From:
Date: Saturday, August 10, 2002
Time: 10:55:48 PM -0700

Comments

I surely wish you a long and healthy life.

best of luck to you!

From: Mary Stevens
Date: Sunday, August 04, 2002
Time: 05:03:46 PM -0700

Comments

Molly,

My mom was diagnosed 2 years ago with colon cancer, she was 51 years old. She had 18 inches of her intestines removed, but didn't have any treatment after that. I sometimes wonder if she would have had maybe she wouldn't have been diagnosed with stage 4 colon cancer of the Liver at 53 years old.

She was a candidate for resection of the right lobe of the Liver and had surgery on May 28 2002. She had a tough recovery as she developed pneumonia, and pulminary adema a few days after surgery. This is common after a major surgery but she was a smoker, although she quite 2 months before her surgery. I urge any one who smokes to quit well in advance of any surgery or better yet not to smoke at all!!

She finaly was able to come home 9 days after the surgery with oxygen and a nebulizer for her breathing. The road to recovery has been long for her and obviously still going, her doctor is very pleased with how she is getting around only a few months after the surgery.

She is now faced with having to go through Chemo and has been very close to backing out, is there anything that I can do to help her keep her spirits up and encourage her to not give up? Her first treatment is on Tuesday August 6th.

From:
Date: Friday, August 02, 2002
Time: 07:44:32 AM -0700

Comments

Just checking out the site. Need direction to a diagnostic center where I can get professional and reliable assessment of my condition.

From: stew225@earthlink.net
Date: Thursday, August 01, 2002
Time: 08:25:50 AM -0700

Comments

Hi Molly.

I was just searching for info on colon cancer, since I apparently have most of the classic symptoms, and found your site. I wish that I had seen you on the Today Show or read about you via other media.

At age 50 I, along with my then 17 year old son, earned our Black Belts in the Martial Art of Aikido. Shortly thereafter, while at a Martial Arts Seminar, I came down with a "fluke" virus and ended up in ICU for three days with sepsis, pneumonia, and multiple organ failure. After a total of 10 days in the hospital I was able to go home to recuperate, but then suffered some complications. Apparently some of the infection had gotten into my pelvic bone and caused Osteomyelitis resulting in great pain. While in the hospital I was on Morphine and then Vicodin. During my ensuing recuperation I continued my Vicodin use until I realized that I didn't need it anymore, but also realized that I couldn't stop taking it on my own.

This past June 28, I entered a treatment center and detoxed from the Vicodin. The withdrawal was no picnic, but it seemed to last so long that I finally figured that the two years of taking the pain medication might have been masking some other condition. That's why I'm scheduled to do a Colonoscopy in the near future. I go in to see the GI guy Monday.

Since my near death experience three years ago, I had to quit running (which I had been doing for 30 years) and also my beloved Aikido. My hope is that when I feel better I can get back to doing both again.

Sorry for the long missive here. I just wanted you to know that your story has served to inspire me.

Best of health, happiness, and joy to you!

Sincerely,

Stew

From: Alex
Date: Tuesday, July 30, 2002
Time: 03:54:22 PM -0700

Comments

I'm an average white male who was diagnosed with Stage 3 colon cancer in January 2002. I was 26. I thought this was an old man's disease, but now I'm not so nieve about anything. I guess symptoms really started becoming alarming in October of 2001 when every time I had a bowel movement, there were "sheets" of blood mixed in with the waste (the blood was from my ulcerated tumor).

I got a physical in late December 2001, colonoscopy in mid January 2002 and surgury in February. Chemo started in April. I'm currently going through chemotherapy (3-drug regimen of 5-Fluoruracil, Leucovorin and Irinoteccin, aka "IFL" or "Saltz regimen"). Being that this is a very toxic regimen, I received a number of anti-nausea drugs and have found Zofran to be the one that works best for me.

Upon doing research about colon cancer, I've found that the diet plays a tremendous role in the development of this cancer. I'm not going to say "you need to become vegetarian", but you really do need to eat more fruits, vegetables and nuts (legumes). I was a meat and potatoes kinda guy -- I never ate fruits, and since leaving my parents home, I realized I didn't eat as much vegetables as I had when I was a kid.

While I'm not a vegatarian (I enjoy a slab of beef every now and then), meat products are no longer the focus my of diet. I also stopped eating out (on average, I ate out about 4 times a week). I now control all the food that enters my body. I know exactly how my food is prepared, and I stopped buying foods with preservatives. Granted this means I actually have to cook, but if it minimizes my chances of reoccurance, I'm happy to do it.

I think the worst part of having cancer is the chemo. When I had the tumor, I didn't feel sick or like I was dying. I had normal energy, went out and did things. I didn't appear to be sick. I had a nice healthy tan, thick head of hair and no scars. Chemo... on the other hand -- I feel sick most of the time, I have pasty white skin, I have very little hair on my head (I look like my dad!!!) and I have an 8 inch scar right down the center of my abdomen. But you know what? This is only temporary. The scar will fade, my hair will grow back and I'll be able to enjoy the sunshine once again.

I know that in one year time, I'll be back to my pre-diagnosis days. I'm optomistic and haven't lost hope regardless how bad the nausea is. My diet is healthier than it ever was and now I'm starting an exercise program to get me back into shape.

Thank you, Molly, for this website. I thought I was the only "kid" with colon cancer, but you've shown me that I'm not alone. It makes the whole process easier.

Alex

From:
Date: Sunday, July 28, 2002
Time: 11:47:16 PM -0700

Comments

what are the signs to look for ir you think you might have colen cancer ?

From: Molly
Date: Monday, July 22, 2002
Time: 06:22:14 PM -0700

Comments

Jeanny- I'm so sorry about your Mom. Please have her speak with her doctor. I know there are drugs available to help reduce the nausea. The best thing she can do is be totally honest with her doctor about how she's feeling, and he or she should be able to help. You can e-mail me directly at rollingtorecovery@hotmail.com too, if you have any other questions.

Good luck!

From: Jeanny
Date: Friday, July 19, 2002
Time: 06:31:34 PM -0700

Comments

Best to you Molly. My Mom is now going through chemo and thinking of quiting because of the nausea. She has had only three treatments. I don't know what to say to her since I have never been down that road. Can you help? The tumor was totaly removed but I guess the doctors just want to make sure it won't come back somewhere else. This is the second time she has had cancer. The first was stage 1 breast cancer and this was stage 2 colon cancer. I just want her to be well. She is 66 years old. I am only 28. We lost my father to cancer five years ago and I can't have my Mom give up only three treatments in. Any positive words will be much appreciated. Thanks!!

From: Molly
Date: Tuesday, July 16, 2002
Time: 01:31:32 PM -0700

Comments

I've gotten a few questions here on the message board, but didn't get an e-mail address to respond, so I'll answer them right here, to the best of my ability. Please remember that I'm no doctor, so I'm only answering them based on my own experience, and if you'd like to talk some more, please feel free to e-mail me at rollingtorecovery@hotmail.com.

Sandy- I have only had part (26 inches) of my large intestine removed, but I still have some trouble 3 years after my surgery. I spoke with the dietician at my hospital, and found some help in that.

Joseph- Yes, Colon Cancer is one of the most treatable forms of cancer, but, like most cancers, the sooner you catch it, the better. Talk with your doctor, patients, and do some research on the internet to find ALL of your options.

From: Ellen
Date: Wednesday, July 10, 2002
Time: 11:13:52 AM -0700

Comments

Just found out my mom has colon cancer.

From: JOSEPH
Date: Saturday, July 06, 2002
Time: 10:49:02 AM -0700

Comments

I WAS TOLD THAT I HAVE A COLON CANCER. WHAT DOES THIS MEAN, CAN IT BE CURED

From: Sandy Cooper
Date: Thursday, July 04, 2002
Time: 05:58:56 AM -0700

Comments

I had my colon removed in January and still have not figured out what I shoulld be eating to prevent so much diarehea and stomach pain. Can you help?

From: Catherine marr
Date: Tuesday, June 11, 2002
Time: 05:05:50 AM -0700

Comments

Hi Molly,I've written you before Brien had his surgery he had to have a total colostomy and dealing with that as best he can and in albany med at this time not doing that good i guess it will be awhile in the hospital the ostomy is slugish and doesn't want to kick in he should have been released today but doesn't look like that is going to happen any time soon.It would be nice if you could call him he is in room 404 Thank you Cathy marr The good news is the cancer is totally gone

From: Yvonne Cantu
Date: Friday, June 07, 2002
Time: 05:59:02 PM -0700

Comments

I learned of this site through my cousin, Alondra Gallegos, who was a friend of Amanda (who knew Molly). While her passing was more than sad, after all of the trials and tribulations, I will always remember this picture of her on this website. I have an employee that has gone through nearly all of the same treatments and this site has helped me tremendously be more sensitive of her needs, supportive and understanding of how it has affected her personality. Thankfully, "Mary Lou" is healthy, happy and the picture of health. Please, pass along all the love, prayers and understanding and education you can to others - you never know who is suffering silently.

From: kace
Date: Thursday, May 30, 2002
Time: 12:36:56 PM -0700

Comments

MOLLY MCMASTER IS THE DEF. COOLEST!!!! stay healthy mol!!

From: Bernice Ermis
Date: Saturday, May 18, 2002
Time: 04:13:09 AM -0700

Comments

I did a search for insurance coverage for Chron's Disease and got your website.

The best to you!

From: Pramod Malik, MD
Date: Thursday, May 02, 2002
Time: 08:35:19 PM -0700

Comments

I am a Gastroenterologist practicing in Virginia. We, in GI community, have heard quite a bit about Katie Couric and her pivotal role in increasing the awareness of general public about colon cancer. Thanks to Late Senator Emily Couric (Sister of Katie Couric, and she died of pancreatic cancer in Oct 2001), Virginia is the first state in the US with a law requiring insurance providers to cover colon cancer screening. I hope more states enact laws that allow colon cancer screening for people at risk. I can't count how many times my patients (including those at high risk) have turned down colonoscopies because of the lack of coverage. Having moved recently from Michigan (where most insurance plan don't pay for screening colonoscopy) to Virginia, I see the difference in patient's acceptance of screening tests. I wish you, your colleagues, your sponsoring organizations, and the readers of this page can lobby the politicians into passing legislation favoring preventive examination.

When covered by insurance, health care providers get paid approx $700-$1000 for this procedure including the facility fees. However, if you are paying yourself or are uninsured, your bills for colonsocopy can be as high as $3000 or more. The laws in our country prevent willing medical providers from offering an exam at reduced rates to people who cannot afford the expensive colonoscopic exams.

I also want to inform your readers that the symptoms of colon cancer are mimicked by a variety of disorders and performing colonoscopy for all with those symptoms will probably be unaffordable to our system. Also it will expose a significant number of people to the rare risks of the procedure. Regardless of the advances, the practice of medicine still remains more an art and essentially "detective work" where common conditions are entertained first.

You have the rare genius, energy, committment and fortitude. I am sure you are aware of the impact you are having in several peoples lives. Please keep up the great work. Best wishes for you personal health.

From: Pramod Malik, MD
Date: Thursday, May 02, 2002
Time: 08:34:55 PM -0700

Comments

From: megs
Date: Monday, April 29, 2002
Time: 11:10:22 AM -0700

Comments

hi amanda! im glad that you have survived your cancer. im doin a project on colon cancer and have to do thisd project as if im the cancer patient. so your web site helped me alot! well if you have any more info i can get about your journey then email me megs_k69@hotmail.com

From: Diane
Date: Friday, April 26, 2002
Time: 07:23:40 PM -0700

Comments

In 1989 I had obstructions in my colon. I had to have 5 and one half feet of it removed, which caused diarhea. Thanks to Metamucil, that is under control. However, after a yearly exam and performing the hemicult tests for blood in stool, mine came back with a "Positive". I have to see a specialitst in a few days. A year ago, I fell on the ice and had to have an MRI of my lower back. I had a herniated disc. However, they also discovered a "mass" in my pelvis. After 3 more tests and comparing the x-rays with my previous operation, they said all appeared "normal" for someone who had this prior operation. I have had more sygmoidoscopies than I care to remember. The colon is gone so the "up side" is I don't have any colon to do a colonoscopy; rather only a stub of colon left. Now they've found blood and I am constantly tired and I ache all over. I feel like I have an orange on the right side of my abdomen and it is uncomfortable to walk. So now what next? Another sygmoid? What do you have to do to get the "camera" to swallow? I'm tired of being invaded and just plain tired.

From: Jay
Date: Thursday, April 25, 2002
Time: 06:30:28 PM -0700

Comments

I have been fighting ulcerative colitis for 17 years. It went into remission for 5 years and came back worse than ever, now my doctor thinks it's time to have it removed.He wants to take the colon out and attach the small Intestines to my rectum. I would like to know what you think of this situation. I'm only 29 years old and have a daughter 8 years old. The reason I told you that is because I want to know the risks, because I want to do the right thing for me but also my family. I also have Diverticulosis. Thanks

From: Roxane, Ivinson Memorial Hospital Mask Co-Chairperson
Date: Wednesday, April 17, 2002
Time: 02:57:46 PM -0700

Comments

I saw you on the Today show in March. The hospital/foundation that I volunteer for opened their oncology center 11 MAR 02. The project sends out masks to be signed and/or decorated by celebrities or people who have been touched by cancer. On June 8th they will be sold at the silent auction which is part of our annual fundraiser called "La Grande Fleur". Faces In The Crowd, the mask project, is about supporting The Meredith and Jean Ray Cancer Center and high quality health care. It's also about offering convenience and alleviating many of the added pressures that come with cancer. Faces In The Crowd is about the face behind the mask, as well as, the story behind the face. The money raised will purchase materials and supplies for cancer support groups, or go to ease the financial burden often placed on cancer patients and their families. I am writing to request a signature and/or a mask decorated by you. If you agree, I can have a mask sent out on the next day's mail! I can be reached at amyi@ivinsonhospital.org Sincerely, Roxane

From: Dick Molen
Date: Tuesday, April 16, 2002
Time: 01:13:57 PM -0700

Comments

I think you would find my web site interesting. You might want to to link yours to mine. My Best, Dick Molen

www.thefirstmarathononchinasgreatwall.com

From: JJ Brannon
Date: Friday, April 05, 2002
Time: 05:50:11 PM -0800

Comments

Your fortitude and inventiveness against this disease [as well as the rampant ignorance which persists, allowing unnecessary deaths], is laudable.

Have the AMA and HMOs yet adopted full, instead of partial, colonoscopies as the standard?

Thank you for your devotion.

From: Lisa
Date: Friday, April 05, 2002
Time: 03:05:34 PM -0800

Comments

MOlly, Thank - You as I wrote earlier my daughter arranged a fund raiser at her school. She had to do researsh before they would let her have a hat day she wrote about colon cancer and answered questions from kids and urged them to talk to there parents about there family history. All her hard work payed off she was granted the "Hat Day" and also a trip to the Colossal Colon for her class. The "Hat Day" raised 180.14 from students bringing in 50 cents or more to be donated to the Colossal Colon fund. So I thank-you again for listening to kids and helping them learn they can make a difference at any age.

From: Lisa
Date: Friday, April 05, 2002
Time: 03:05:29 PM -0800

Comments

From: Michael Smith
Date: Sunday, March 31, 2002
Time: 05:35:15 PM -0800

Comments

I think this is a powerful thing that you're doing. I found out recently that a fellow hockey player passed away from cancer. I am new to hockey myself, well sort of. I'm new as far as playing the sport. I've just started at age 43. I think that's pretty good since the last time I played an organized sports was 24 years ago. Like you, I have a love for the sport. Anyway, the fellow I mentioned was in his thirties. That is still very young. I found out about his bout with cancer after a mens league game, when our team captain mentioned it to us in the dressing room. Half the team remembered him because we were all part of an adult hockey novice program at the local ice rink. This also makes me think of Saku Koivu. I can't remember which form of cancer he had but my prayers went out to him, so please contiue your efforts.

--Michael

From: Merle Miel, age 76
Date: Friday, March 29, 2002
Time: 11:55:34 AM -0800

Comments

My father died of colon cancer at 71 so I have outlived him. The surgery left him with a colostomy which my mother cleaned. Why do they send people home from the hospital when they are not healed enough for their hands to do their own cleaning. It was no fun for my mother. The doctor didn't want to reverse it but my mother gestured to him that if he didn't my father would kill himself. He reversed it. I believe that near the end of his life, it damaged my parents marriage. I don't want the easier exam for c.c. (Kaiser had a form for the harder exam that said if they rupture the bowel or any other assortment of bad things they couldn't be held liable. What a h--- of an exam that is!!!) I believe that if I have any bleeding (as my father did) I won't tell anyone. One has to die of something and I have lived a long most interesting life. I have no fear of dying and I will be ready to meet my Savior, Jesus Christ.

From: Vicki Sassani
Date: Thursday, March 28, 2002
Time: 12:38:11 PM -0800

Comments

Dear Molly, You are truly dynamic!!! It is amazing what one person can do when they set their mind to it. It is NOT amazing to me that you have had colon cancer at such a young age. I have a 9 year old niece that is having her first colonoscopy this year to check for pre cancerous polyps. In Oct 1999, together with another woman from Florida we co-founded the Hereditary Colon Cancer Association. We represent 6 inherited disorders that if not properly diagnosed and treated will 100% of the time result in colon cancer. Our scientific advisory board is filled with the top specialists in the country on inherited cc disorders. Age is nothing to us! We have a member that became a colon cancer survivor at the age of 5, his cc was diagnosed and treated at four years old. How young is too young? Who knows? The 6 inherited disorders we represent probably do not include your cancer (at least I hope not because ALL of our syndromes produce a 50% chance in each child to carry the same disorder) but it is pretty apparent that all colon cancers generally run in families. You were correct in your bio that the doctors just don't ask the correct questions. It is a shame how many young to middle age adults are misdiagnosed and improperly treated. Our website for the Hereditary Colon Cancer Association (HCCA) is www.hereditarycc.org We had our 2nd Annual Conference May 15-16 in San Antonio, each March we send over 600 Colon Cancer Awareness kits to hospitals, cancer centers and physicians offices around the country and we are currently preparing for The Great Skate of Texas as a major fundraiser. It will be held in Plano (Dallas Area) on June 8th (Dinner with Bonnie Blair - Olymic skater as Honorary Chair and keynote speaker) and the race will be held on Sunday June 9th. Please check out the website www.greatskate.net. The event coordinator, David Darr, was diagnosed with the colon cancer disease Familial Adenamtous Polyposis (FAP) in May of 2000 and had to have his entire colon removed that summer to prevent cancer. Even though it was an "inherited" syndrom he was the first in his family to have it (approximately 30% of the people with this disorder are the first in their family - a sporadic mutation of the APC gene is the culprit and will continue in his family until their is a generation that it was not passed on to). Anyway, check out David's website for more information. Hopefully it will be a big success and lead the way for similar future fundraising events in additional states.

By the way, since you were diagnosed at the age of 23, does that mean your children will be checked 10 years earlier at 13?

Also, I would cordially like to invite you and Katie C. to attend our dinner and Race. From your bio I think you might really enjoy meeting Bonnie Blair AND participating in the 25K Inline race/skate. Katie and I can walk the 1K or "observe".

Take Care and God Bless. Thank you for all of the hard work you've done to promote awareness for this horrible cancer.

Vicki Sassani, President Hereditary Colon Cancer Association 3601 N. 4th Avenue, Suite 201 Sioux Falls, SD 57104 605 373-2067 800 264-6783 fax 605 336-6699 vicki.sassani@hereditarycc.org or vsassani@phoenixcrystals.com

From: Lisa Odom
Date: Thursday, March 28, 2002
Time: 10:31:54 AM -0800

Comments

Thanks for spreading the word on colon cancer. My Dad might still be alive if he was checked sooner

From: Ruth
Date: Thursday, March 28, 2002
Time: 07:21:57 AM -0800

Comments

Hi Molly! I applaud you for your efforts to raise awareness of colon cancer. I have a horrible family history. My father was diagnosed with colon cancer at age 57, when he began to have rectal bleeding. He had a colectomy, and had no further screening done until age 79, when he was having intermittent pain for several months, due to a partial blackage from a stage 2B tumor. He had another large chunk of colon removed. That was in 1991. He now gets regular screenings, and has remained cancer-free since then. My mother's brother died from colon cancer at age 78. My mother has had several polyps removed. I had my first colonoscopy last year, at age 39, because I knew that I was high risk. The procedure was simple, and I did not even need a sedative! (Trust me, after having 3 babies, a colonoscopy is a piece of cake.) They did find a small benign polyp, and I will need another scope in 2-3 years. I hope that, through your efforts, many people will become aware of this terrible disease and take steps to have themselves screened. G-d bless you!

From: Dan Foster
Date: Wednesday, March 27, 2002
Time: 05:38:15 PM -0800

Comments

Hi Molly I to am a Colorectal Cancer Survivor. I was diagnosed with rectal cancer in 1996. I had a rare type of surgery called TME (Total Mesorectal Excision) which is only performed by aprrox 150 surgeons in the world. Yes I'm one of the lucky ones. I started a walk called the Walk Of Hope in 1997. I also mentioned something that was a little to far out. I originally said I was going to walk 150 from the Montauk Point Lighthouse at the very end of Long Island to St Patricks Cathedral. In 1997 I walked to the Cathedral but it was only 20 miles. The following year I did a return trip and yes by 1999 I did the 150 mile trek in seven days. Just after the walk I went for my regular checup and was told that my Cancer had spread to both Lungs so I had surgery and Chemotherapy and 6 months later did another walk which my co-workers did for me since I didn't have the stamina to complete the entire walk. I'm doing really well and just take one day at a time. I'm planning on a walk this year but just a different route and can you believe I've mentioned if I do well this year that next year I would like to walk from New York to Washington. The best medicine is trust (in your doctors) faith and Hope that is what keeps me going. I hope to meet you some day for you are truely an inspiration to all. God Bless

From: Nicole Fitzgerald
Date: Wednesday, March 27, 2002
Time: 05:29:19 PM -0800

Comments

Hey Molly! My name is Nicole. I am a really big fan of yours. I admire you for what you did to raise awareness about colon cancer. I have been through the colon once on a class trip! It is really neat. I will be comeing to the mall on Saturday. I have been wanting to meet you for so long! I just want to say that you are a very strong person for beating colon cancer, and I hope you continue to do well! My e-mail adress is nickchickca618@yahoo.com. I hope you e-mail me sometime! I am very interested in this whole colon thing. Nicole

From: Nicole Fitzgerald
Date: Wednesday, March 27, 2002
Time: 04:50:26 PM -0800

Comments

Molly I love what you did to raise awareness about colon cancer!

From: Kim Duell
Date: Wednesday, March 27, 2002
Time: 10:08:03 AM -0800

Comments

I just wanted to say that Im very glad I had the chance to meet you and be educated on the desease of colon cancer .

From: Sue
Date: Wednesday, March 27, 2002
Time: 06:07:37 AM -0800

Comments

I lost my sister to colon cancer in 1990 on my 40th birthday. she was 53 & was never tested although she had symptoms, our father survived colon cancer in the 80's at age 71 and his sister died of colon cancer in her 60's. After her death her daughter underwent surgery for colon cancer at age 35. I had polyps removed 3 years ago which were benign but am getting ready for another colonoscopy. I worry about my children, ages 20 & 24 & only hope they have the wisdom to have themselves checked. Even a "virtual colonoscopy " is better than none. Thanks for sharing your story. I think it will be an inspiration to other young people.

From: tasia
Date: Tuesday, March 26, 2002
Time: 08:51:49 PM -0800

Comments

hey molly! i just wanted to thank you for all the love that you showed amanda roberts. she is a very special person to me. her step-daughter and i have been best friends since the k-5's and i have known amanda for about 7 years. i still cant believe that it happened to her. she was so young and full of life. she is missed very much. anyways, i have some questions that i was wanting to ask you so if you read this, please email me at tasiap55@yahoo.com and i would appreciate it very much. thank you for all that you have done. you are an inspiration to me and i know to all of amandas family. thank you!!!

From: tasia
Date: Tuesday, March 26, 2002
Time: 08:51:21 PM -0800

Comments

From: ed Zepplin
Date: Tuesday, March 26, 2002
Time: 06:00:20 PM -0800

Comments

Dear Miss Curic; I am a 46 yr old Native/Hispanic mix male,father of 3 with epilepsy,no medical,job and colon concerns. I lost my wallet and ID. With no ID,I get no nothing as for assistance of any kind. I've had "piles",hemmoroids since I was young and frankly I'm concerned about them. I saw your"inners" on TV and was amazed at the clarity of the pictures producedby some fancy $600. nonintrussive exam there in Ny. Is there a foundation that you knowof that can assist me in getting somekind finacial assistance for an exam? I'm in San Diego,Ca. I'm from Woodstock,NY. I'm here in Ca. for the medical cannabis law proposition 215 as a med. cannabis refugee,visit my website ganja.com.tripod.com to hear a sond,sincerely, Ed Zepplin

From: Ryan Carrera
Date: Tuesday, March 26, 2002
Time: 01:21:19 PM -0800

Comments

Thank you for allowing Mrs. Signor's class. I will be at the Rellay For Life program this summer.My dad's aunt and grandmother died from Colon Cancer. Thanks for the day!!!

From: Sarah K
Date: Monday, March 25, 2002
Time: 09:02:14 AM -0800

Comments

Dear Molly, After reading through your guest book I am blown away by how many stories there are about women with similar experiences. I too was diagnosed with Stage 3 colon cancer at an early age (28 in 1996)and had surgery and chemo treatment.

But, what I want to know is WHY IS THIS HAPPENING?? Doesn't anyone out there wonder why women of our age group, who are active and healthy and relatively little family history are getting this??? Who is working to figure this out? Perhaps the predisposition to cancer and the gene is there but WHY does the cancer present itself at such an early age? It's good to recognize the symptoms and bring them to a Dr's attention...but how do we find ourselves at that point to begin with??!! By reading these stories, it seems more than coincidental.

Molly, I think what you are doing is fabulous and thank you for making the effort to create awareness!

From: Pat Mygroin
Date: Monday, March 25, 2002
Time: 07:14:18 AM -0800

Comments

Molly,

My daughter hac colon cancer and it has been hard 4 us. We haave had touuble w/$ and we allmost gave up. but we dident because of you! thank u very much.

From: Pat Mygroin
Date: Monday, March 25, 2002
Time: 07:14:14 AM -0800

Comments

Molly,

My daughter hac colon cancer and it has been hard 4 us. We haave had touuble w/$ and we allmost gave up. but we dident because of you! thank u very much.

From:
Date: Monday, March 25, 2002
Time: 07:08:26 AM -0800

Comments

i was at the mall.......it was kool and i saw what it would be like if i had cancer.

From: Don Lewis
Date: Saturday, March 23, 2002
Time: 06:59:41 PM -0800

Comments

At 46 I was diagnosed with stage T3 rectum cancer. What was so amazing is that I had a colonoscopy 3 1/2 years prior to this diagnosis. The doctors were so amazed how quickly the cancer spread. In June 2001, I began noticing symptoms of bleeding after running and just pushed it off as really nothing. As the days, weeks, months progressed, the bleeding continued to get worse, but again I just pushed it off. I started then to experience more pain about 3 months after the bleeding and it was to the point that I was very fatigued after my workouts. I finally got a new colonoscopy and that is when they found the tumor in my rectum. They thought it was just a t1 stage. However, after my first surgery and biopsy it was diagnosed as a T3 stage. Just two weeks ago, I just had my rectum removed and now I am on the road to recovery. Thank goodness they were able to reconstruct a new rectum and I only need to have a bag for 3 months. Prior to this recent surgery, I had to go through 7 weeks of radiation and chemo to protect other parts of my body. Now I only have 1 more surgery and 24 sittings of chemo. I pray each day that I will be soon clear of cancer.

My recommendation is keep your regular doctor examines and make sure that colonoscopies are part of your health program. I would also recommend that you place yourself on a healthy diet that fights colon rectal cancer.

It has been an incredible road to recovery over the last 5 months of recovery and it appears that the remainder of 2002 will be a challenge. I was such an active person, didn't smoke or drink alcohol and thought my diet was in fairly good. I look forward to the day that I will be able to get back doing my daily workouts and have an active life again.

Not only is this a physical challenge it is also very mentally challenging to get through the surgery and recovery process.

Keep the faith and keep on going!

Don Lewis Pittsburgh, PA

From: SONSEEAHRAY TONSALL KARK TV4
Date: Friday, March 22, 2002
Time: 08:19:43 AM -0800

Comments

HEY MOLLY........ ALL I HAVE TO SAY IS WOW! NOT THAT I DIDN'T THINK YOU WERE AMAZING WHEN I FIRST MET YOU...BUT NOW IT'S CONFIRMED. THIS IS AN AWESOME TRIBUTE TO AMANDA AND ALL THE PEOPLE STILL STRUGGLING WITH THIS DISEASE. THIS WILL BE SUCH AN IMPORTANT TOOL. DO GOOD WORK WITH IT AND GOOD LUCK - SONSEEAHRAY P.S. LET ME KNOW IF YOU DECIDE TO TOUR WITH IT AND PLAN A STOP IN ARKANSAS.

From: donna kessler
Date: Friday, March 22, 2002
Time: 04:18:02 AM -0800

Comments

hi molly....i followed your directions and found the today show segment from wednesday....IT WAS GREAT!!!! i didn't realize you brought the colon with you....i thought it was still in the mall...especially since the today show had asked for all my video from the story we did. i thought it went really well....you guys got a lot in during that segment and i think people got a really good sense of the project.

anyway....great job and keep up the good work! donna

From: Iris Wakeling
Date: Thursday, March 21, 2002
Time: 10:25:10 PM -0800

Comments

My husband died on valentine day this year of 2002 from colon cancer. He had surgery on Feb 22, 2002 for exploratory surgery to look for polys in his colon. They found a large one but removed it and was positive for cancer. He took chemotherpy for 6 months and did just fine. Graduated with a certificate of completion and felt really great, that he had beaten the odds. The surgery doctors had recommend chemotherpy only as a prevention and we didn't think too much about the seriousness of treatment. Then on December 8, 2001 he was unable to eat anything and by the time he could get into the doctor for an appointment it was the 20th of December. At that time he had blown up into the size of a nine month pregancy shape, so the doctor tested the fluid in his admonen and predicted it was full of cancer cells. It was Christmas time and the doctor would be out on vaction until Jan 2, 2002, the soonest we could get another appointment. At that appointment the doctor told me, after pressuring him about timing what all was happening here, my husband was a sick man and should not be working because he only has about 2 months left of life. My husband never was able to eat since early December, the doctor didn't know why....we had to insist on further tests. There just were no answers! Hospice service was called in after I panicked in the doctor's office on January 29th, cried for help with my husband's failing health didn't know where or who to turn to. So the doctor consented to send hospice out for one call, yes we had full insurance coverage, and they stayed until the end. Thank goodness, I had a wonderful nurse with loving and caring all the way from then on to Feb. 14, my sweetheart died in a coma and we, my son and I, prayed for his soul to depart his body. Yes, BE PERSISTANT!

From: Iris Wakeling
Date: Thursday, March 21, 2002
Time: 10:25:05 PM -0800

Comments

From: Lisa
Date: Thursday, March 21, 2002
Time: 05:31:56 PM -0800

Comments

Molly,

I would just like everyone to know that you inspired a 5th grade student to learn about Colon Cancer. As you know she has wriiten a report and has convinced her principal to let them have a crazy dress day for a buck to be donated to the Colossal Colon fund. Thank You and keep up the Good Work!

From: Lynnley
Date: Thursday, March 21, 2002
Time: 05:25:20 PM -0800

Comments

I was diagnosed Sept.of '99 with active Crohn's Disease. I found out 18 inches of my small intestine was diseased. I never would have thought someone at my age could have anything so severe wrong. I went through drug therapy, Prednisone, Asacol, Remicade infusion, and many others. Nothing helped. I was faced with surgery. My doctor had told me about a clinical trial with the University of Iowa College of Medicine. I am currently involved with the last 9 weeks of the 36 week trial. I have not felt this good in 5 years. I hope this is a start for finding a cure for my disease and hopefully one for cancer is even closer. I too try to inform as many young people about early detection as possible. Good luck with your fight.

From: Patricia Messner
Date: Thursday, March 21, 2002
Time: 04:57:57 PM -0800

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Hi Molly!! I just saw you on the Today Show with your Colossal Colon!! This is so wonderful what you are doing to raise awareness of this disease. You and everyone on the Today Show gave me enough courage to make that call to the doctor and set up an appointment. I have not had any problems that I know of, but I see it is never to early to get the tests done. I am 36 years old and in fairly good health. I guess I never thought about this until you made me aware of how common this is. Thank You!! I wish you all the best of luck and continued good health. God Bless!! Your an angel.

From: john maccracken
Date: Thursday, March 21, 2002
Time: 02:26:00 PM -0800

Comments

MONEY is the only to pay for that test IT cost to much why?

From: john maccracken
Date: Thursday, March 21, 2002
Time: 02:25:57 PM -0800

Comments

MONEY is the only to pay for that test IT cost to much why?

From: john maccracken
Date: Thursday, March 21, 2002
Time: 02:25:54 PM -0800

Comments

MONEY is the only to pay for that test IT cost to much why?

From: john maccracken
Date: Thursday, March 21, 2002
Time: 02:25:47 PM -0800

Comments

MONEY is the only to pay for that test IT cost to much why?

From: Vanessa Robles
Date: Thursday, March 21, 2002
Time: 01:07:39 PM -0800

Comments

Thank you for your series on colon cancer. I am a 50 year old Native American female and at my last check-up the doctor found blood in my feces. Unfortunately the hospital (an Indian Health Service Facility) will be unable to perform a colonoscopy until sometime the last of May. Should I see about have the proceedure performed elsewhere? Is 3 months too long to wait and worry. I am especially concerned because my father died of colon cancer and my mother had four different types of cancer. The only symptoms I have are occasional irregularity. Please respond to vanessa.dodge@att.net

From: Cathy Rogers
Date: Thursday, March 21, 2002
Time: 12:02:02 PM -0800

Comments

Congratulations on beating Colon Cancer. Thanks so much for all you do to generate awareness. My Mom passed away 5.5 years ago from Colon Cancer which had spread and invaded her entire body. She was only 65 years young.

God Bless You!

From: Dianne McCaughey
Date: Thursday, March 21, 2002
Time: 11:37:50 AM -0800

Comments

I saw you on the Today show on 3/20 and admire your courage and efforts to eliminate this disease.

My sister was diagnosed with rectal cancer and passed away nine months later at the age of 62. Her diagnosis came too late. I spent five weeks in California helping with her care the last five weeks of her life. Nobody should have to do that. Since then my other sisters, there were five of us, have had colonoscopies in hopes of discovering any abnormalties before they become cancerous. I have irritable bowel syndrome so keep a close watch on changes. Two benign polyps were discovered in my examination and removed. I will continue having the exam on a regular basis.

Madison, WI

From: sheri
Date: Thursday, March 21, 2002
Time: 10:20:22 AM -0800

Comments

I finally found a page that I can relate too. How beautiful and sad. Ihave a mother with stage foiur missed digonsed also. very mading and not sue what to do next thank you

From: jen
Date: Thursday, March 21, 2002
Time: 09:31:51 AM -0800

Comments

Way to go girl! Keep raising that awareness. I lost my 58-year-old mom to colon cancer last year. Two of my grandparents also had it. You can bet that I'm paying attention to what my body is telling me.

Like you, I'm a hockey player and I love it. I started playing when I was 25 (5 years ago). My mom was one of my biggest fans and the stands at my games now seem emptier because she's not there to cheer me on.

Take care and keep up the great work. Maybe I'll see you on the ice someday.

-Jen

From: Sheri Sanderlin
Date: Thursday, March 21, 2002
Time: 09:05:47 AM -0800

Comments

Molly,

You are my new inspiration!!! I saw you on the Today show with the Colossal Colon. I am 35yr old female from Atlanta, GA. I was diagnosed on 03/08/02 with colon cancer and had resection surgery on 03/14/02. I am resting at home now and trying to come to terms with this major change in my life. Cancer was found in 2 out of 28 lymph nodes. I am currently in the process of trying to set up my oncology appt and find out how the whole chemo process works.

Of course everyone is freaked out about how a 35yr old athletic female who has never had any health problems could have colon cancer. I am another example of how lack of communication with family members and doctors about "family polyp history" can lead to this. My symptoms were very vague, but I knew something was wrong with my body. I was diagnosed in Fall 2001 as anemic. My fecal blood test came back negative. I felt bloated no matter how well I ate, how much I worked out (which was difficult due to the fatigue). On Jan 1, 2002 I noticed a small palpable painful area in my right lower quadrant--I went back to the doctor and insisted on a colonoscopy, and that's what started the events of this month. Atleast I picked Colorectal Cancer Awareness month to be diagnosed and treated!!! Again, thanks for your work and inspiration. If you have any words of advice, information, resources, etc. I would appreciate your help. My email address is ssande5@emory.edu

Thanks!!! Sheri Sanderlin

From: Terry Elaine Earhart
Date: Thursday, March 21, 2002
Time: 07:38:10 AM -0800

Comments

I had a colonoscopy screening on March 15, 2002. It was an after 50 screening. I'm 53. I have the beginnings of Diverticulosis. I'm to take Citrecal b.i.d. I'm also going to increase my fiber. Currently I am exercising. I have a follow up appt on Good Friday.

In January my mother had emergency surgery for diverticulosis. The year before, she had a barium enema that showed she had diverticulosis but she wasn't told to do anything regarding diet, etc. Evidently the dr. didn't think it was serious enough. She had a perforated bowl. The surgeon took out 40% of her colon. He would have taken out the rest however my mother is 86, in good health and the dr. didn't want to take a chance of losing her on the table if it took another 2 hours of surgery. She is on a diet for this condition of not eating nuts, etc. She could still bleed again however the dr. said she looks good for now and if she stays on her diet she should be okay.

Should folic acid be taken separately even though I take a vitamin with folic acid?

Thanks for any additional info you can give me.

Terry

From: Laura Mahoney
Date: Thursday, March 21, 2002
Time: 07:37:36 AM -0800

Comments

I lost my 21 year old cousin to colon cancer on May 19th 2001. I saw the TODAY show yesterday, and I would like to know what I can do to help fight colon cancer, and make people more aware. If anyone has anything for me to do, please e-mail me at SuperStarLaura@yahoo.com I want to help in anyway I can!

Thank you for all your hardwork!

From: Tim Miller
Date: Thursday, March 21, 2002
Time: 07:32:44 AM -0800

Comments

Molly - Tim Miller again (age 33) colon cancer twice in my life...

I would like to join you on your next in-lin across country. I was an avid hockey player as a youth and in-lined every day in 1993-95. I am in excellent physcical condition and NEED to help the cause. Please contact me Tim Miller 860-989-0711 cell 860-767-3540 Home Essex, CT

From: Michael J Phelan
Date: Thursday, March 21, 2002
Time: 07:27:13 AM -0800

Comments

I am 58 years old and have been having a colonoscopy done ever three years since I was 40 due to family history. At least half of the time I had polyps removed, some of which were pre-cancerous. I have told many friends that I have had a more difficult time in the dental chair than having a colonoscopy.The only part I don't care for is the preparation by ingesting "Go-Lytely". I hope they develop something more palatable. Everyone who has insurance and/or the income to afford it, should have a perodic colonoscopy. My father passed away at age 58 due to advanced colon cancer and it could have been avoided with proper medical examination.

Michael J Phelan 1006 Amanda Drive Mansfield,Texas 76063 817.477.1733 MJPhelan@aol.com

From: Michael J Phelan
Date: Thursday, March 21, 2002
Time: 07:26:23 AM -0800

Comments

Michael J Phelan 1006 Amanda Drive Mansfield,Texas 76063 817.477.1733 MJPhelan@aol.com

From: Tim Miller
Date: Thursday, March 21, 2002
Time: 07:21:31 AM -0800

Comments

Molly - Way to go!! Nice job raising awareness. Below is my story, though not exactly similar, it is equally as BIZARRE!!! Please read this email I just sent to the TODAY SHOW today, 3/21/02.

There is a lot of discussion about polyp’s and colon cancer. I am 33 YEAR OLD (On Sunday 3/24) and have had Colon Cancer TWICE in my life.

The first time was in 1983, the Aug. prior to my Freshman year of high school. AGE 14 The second time was in Feb.1999 on a random tri-annual colonoscopy. AGE 29

If it were not for the friendship of Dr Thomas Banever at Hartford Hospital in Hartford, CT, I would have left this earth 19 years ago. I have survived it twice and it was purely GENETIC. Both times, Dr. Banever did the operation.

My type of colon cancer is called LYNCH SYNDROME (Still proving this name..??)– or H.N.P.C.C. – Hereditary NonPolyposis Colorectal Cancer

This is a hereditary passing down of a gene that predisposes people to colon cancer. If you have this gene, which I do, then the % of getting colon cancer is 85%+ by age 70 approx.

Why I had it at age 14 and then again at age 29 is beyond most Drs. and is just considered bad luck. I had surgery both times, and today have a colon under 6” ‘s long. Neither time did I have to undergo chemo or radiation. Today, I am very active and have an extrovert personality which has led me to a successful career in sales.

I have 3 younger siblings, 2 of which have been tested for the GENE.

My 30 yr old brother has the gene and now needs lower and upper GI’s annually. (Since there is a slight chance for stomach cancer as well). My 23 yr old sister does not have the gene thankfully!

I was on the Local NBC30 in Connecticut last February 01’ for an interview b/c of my unique circumstances. The interview was done by Carol Pennington.

I would be delighted to discuss my history and assist in anyway possible. Having just been laid off from my job (for the first time in my life!!! - Again - I'm very energetic and I NEED TO stay BUSY!!), I find myself wanting to help in anyway I can.

Please let me know if I can assist in anyway.

Warmest regards,

Tim Miller 860-767-3540 860-989-0711 Cell Essex, CT

From: nancy m wilson
Date: Thursday, March 21, 2002
Time: 07:18:05 AM -0800

Comments

I had surgery for colon ca. in nov.2001.I had 7 inches of my colon removed. Thank God I didn't have to have any treatment(chemo or radiation) I was also faced with a probable hysterectomy and/or colostomy. Thank God I didn't have to have either. For years, I would have nagging pains on both sides. All my drs. (primary care and gyn) would tell me it was just my ovaries. So I believed them. My mom passed away last May. We were both in hospital at same time with pneumonia. I had no bleeding. When my mom died, I started having rectal bleeding. I have been in medical profession for 15+ years but I was scared, assumed it was stress due to my mom's death and that nothing bad could happen to me.Finally told my neighbor who told my husband. Went to dr. and he said I had hemmhroids. Referred me to surgeon who did not 1 but 2 colonoscopies and found 2 tumors. 2 days later ,I was in hospital, spent 4 days in ICU and 5 on the floor. I am so Thankful for the sunshine everyday as I was given a second chance. Don't ever say "this won't happen to me" cause it can!! Now my biggest problem is that I smoke and my cancer dr. that I have to go to every 3 mths. for bloodwork says I am really at higher risk now for any type of cancer. I am 48 years old and have smoked since I was 14. But I want to live. Just lost my mother in law in feb. and we thought this year was going to be better.Please keep me in your prayers!!

From: Maggie Calabretta
Date: Thursday, March 21, 2002
Time: 06:15:29 AM -0800

Comments

Hi Molly I too am a colon cancer survivor. I was diagnosed with signet ring carcenoma (a very RARE and aggressive cancer) in October of 2000. I was 21 years old. I would have NEVER thought that I had cancer, never the less colon cancer. When I was having rectal bleeding, my doctors were amazing in believing me and not just diagnosing me with hemroids thinking it impossible for a 21 year old to have colon cancer. I am forever in debt to them! Luckily, my cancer was caught VERY early. However, because it was a very aggressive cancer, they insisted that I have the bowel surgery and I had a foot and a half of colon removed. I never had to have chemotherapy or radiation. I have been put on a close watch and probably will be forever. But a year and a half later I am feeling wonderful and healthy. I agree that it is so important to be checked for colon cancer. Really...it isn't that bad!!! Anyways, I just wanted to say that I understand what you went through. It is not easy at any age...but as a girl in her 20s, it is hard to find someone who understands your situation and the pain you went through. Good luck in the future!!! Maggie Calabretta

From: Mary
Date: Thursday, March 21, 2002
Time: 05:45:51 AM -0800

Comments

I was a very lucky lady as my doctor said. I put off my colonoscopy last year thinking it didn't seem like a test I would want to go through, then this year my own physician said it was time because of age(53) I should have one done. Found were 3 polyps, one pre-cancerous. Keep advising all people to listen to their bodies and doctors and have this test done. It could save your life, it did mine.

From: Jean
Date: Thursday, March 21, 2002
Time: 05:14:06 AM -0800

Comments

I too am a colon cancer SURVIVOR...Praise the Lord. Thank you for your work. I was diagnosed with colon cancer at age 43. I was having gall blader problems and scheduled to have surgery when it was discovered that I was anemic. My GP asked me "why was I anemic?" I told her "I don't know you tell me!" Between her and my surgeon they decided to have me see a gastronologist. He thought it was probably a bleeding ulcer, and scheduled an upper GI. It was negative, everything looked great. Thankfully they kept looking. A lower GI was scheduled and sure enough there was a cancerous tumor in the ascending colon (no symptoms other than the gall bladder pain). I wanted time to think about things but he said no. He was sure it was cancerous. He was right. I was diagnosed at stage IV because the cancer had perforated the colon wall and spread to several lymphnodes. I had my surgery, thankfully they were able to resect the small and large intestine, I underwent 6 months of chemo, 5FU and Lucovorine. During my second 6 weeks I started having severe abdominal cramping and thought the cancer was back. I was only dehydrated. I spent the next day in the hospital getting fluids and then was given a two week rest period. When I start my chemo for the last 6 week round my doctor reduced my treatment by 30%. I was thankful and apprehensive. I am now in my recovery period. I have had 2 colonoscopies (not a big deal and live saving) and they looked great. I see my oncologist every 3 months and so far all my levels are great. I'm back to work and enjoying every minute of it. My family is also doing great. I have a husband and 4 kids so the kids will be tested early. My husband had his colonoscopy and they removed a very small polyp. The return of cancer will always be in the back of my thoughts...but I don't dwell on it. Thank you for your work. You will touch many lives. You and your efforts are in my prayers.

From: Linda Lowery
Date: Wednesday, March 20, 2002
Time: 10:23:27 PM -0800

Comments

This is a great site that will help educate people about colon cancer. Keep up the good work! My Dad died from colon cancer in Sept.,2001. By the time he found out he had colon cancer,it was to late. Colon cancer is the silent killer.

From: Lindsay
Date: Wednesday, March 20, 2002
Time: 06:48:19 PM -0800

Comments

This web site is awesome. Im 15 and I was doing a report on Colon cancer and saw this on The Today Show. You have an amazing story and I admire you. I really loved reading about you, not only did this site provide tons of information that helped me, I really enjoyed reading about how strong you have been. Thanks! -Lindsay

From: Theresa Ward
Date: Wednesday, March 20, 2002
Time: 02:20:01 PM -0800

Comments

Molly:

It is wonderful to hear of the awareness you are bringing to this disease. It needs the pr(?) that breast cancer gets. How can I help?

My story: DX Stage IV Colon cancer at the age of 35. Mother of 3 (girl 5, boys 4 and 2), I am adopted and have no health info. in my family history. DX in July after talking to a neighbor about my 5.4 hemoglobin count which my GP dx as chronic severe anemia. My neighbor happened to be a GI and suggested I get a colonoscopy and upper GI. I thank God every day for having her for a neighbor!! She found what she thought was chron's disease and turned out to be colon cancer. I have received IP (inter peritineal) chemo, 5FU and CPT 11 chemo. I am currently in remission as of 3/18/02!!!! My CEA is creeping up it went as low as 2.4 and is now 3.3. They tell me this is normal. Of course I'm sceptical!! But I plan on fighting my scepticism and remaining cancer free for 5 years and then cured.

Bottom line, I've been there and am ready to help!! Let me know what you need! I'd think of things myself, but am distracted by my offsprint!!!

From: Kathy Tanksley
Date: Wednesday, March 20, 2002
Time: 12:55:21 PM -0800

Comments

I am so proud to hear what you are doing. I too had colon cancer when I was 37. I was being treated for an ulcer. No one ever took blood which would have showed me to be terribly anemic. They say I had my cancer for 3 to 5 years. I had massive amounts of chemo. The drs told me that my children should be tested at age 27. I had them both tested early and they found nothing. My Mother was dianosed with stage 4 colon cancer in November of last year. She died Feb. 16 of this year. My 21 year old son who is a sr. at Vanderbilt University in Nashville was having minor stomach discomfort when he was home for the Christmas holidays. He had a colonoscomy and had stage 3 colon cancer. Needless to say, my life has not been real easy for a while. He is going through chemo and will begin his second round of 4 week treatment this coming Friday. There were microscopic cells in some nodes. The dr was shocked that they were there...but they were. I wish you the very best in your efforts to educated people of this disease that is more prevalent than most people. It does not have the support of breast cancer, or lung cancer yet, but those of us who have endured must continue to bring this cancer to the forefront. It's terribly important. Good luck and God Bless you.

From: Jan McDaniel
Date: Wednesday, March 20, 2002
Time: 10:31:13 AM -0800

Comments

My mother was a colon cancer survivor. She first detected symptoms in 1969, and she underwent colostomy surgery in December of that year. At the time, she was in her mid-5os, and she died in 1998 at age 84. In fact, she survived by two decades the surgeon who performed her colostomy!

But living with a colostomy took a great deal of adjustment. Although she continued to live an active life--even traveling to Europe to visit me while I was living there--she was always faced with the necessity of dragging around supplies for her irrigation process.

When I turned 40 a couple of years ago, I underwent a colonoscopy, and it was totally clear. How grateful I am that medical science has now made it possible for people to catch this viscious and elusive disease before irreparable damage is done.

From: Jan McDaniel
Date: Wednesday, March 20, 2002
Time: 10:30:58 AM -0800

Comments

From: Melissa Bolyard
Date: Wednesday, March 20, 2002
Time: 10:14:44 AM -0800

Comments

My father was 55 when he was diagnosed with colon cancer... he ignored the signs and left me and my family 9 months later. If you don't get checked for yourself, do it for the people who love you. Go home tonight and look into the eyes of those people, image the hurt they will feel after your gone, don't leave them with the burden of "if he (she) only had been screened."

I am 30 and have already had my first of many colonoscopies, I did it for me, my husband and some day my children.

From: Carla S Mosley
Date: Wednesday, March 20, 2002
Time: 09:42:20 AM -0800

Comments

I am going to be 40 years May 16th. After reading the information you have provided, I am going to see about having a test done. I remember my father having a growth removed from his intestents when I was about 8 years old. I believe he was about 30 years old. Thankyou for the information.

From: Melissa Cullison
Date: Wednesday, March 20, 2002
Time: 09:35:28 AM -0800

Comments

Hi Molly THANK YOU for your skating trek to raise awareness. I am a stage 3 colon cancer survivor - 3 YEARS THIS MONTH. I was a 40-year old vegetarian female with no colon cancer family history. My classic symptoms were brushed off by THREE doctors - my GYN said it was lactose intolerance after a negative hemocult, a nutritionist tried multiple s of digestive enzymes, and 7 months later, a gastroenterologist assured me "Oh, YOU don't have colon cancer!" For months I had thought, "Wouldn't it just be typical if this horrible gas and constipation was from colon cancer!" I asked each doctor about colon cancer but they were not alarmed. In March of 1999 a diagnostic colonoscopy showed an 8 cm tumor in the lower sigmoid almost completely blocking the colon. My surgeon said "You were poopin' through a straw!". Surgery and 6 month adjuvant chemo were my treatments. I am so fortunate to have had no lymph node involvement -- but I am afraid for other people. Not everyone will be as adamant as I was in insisting on seeing a specialist and asking for a colonoscopy. Like me, they may find some relief at the doctor's reassurances and hope that papaya extract will work. How could 3 different doctors ignore these symptoms? Just because I was not a statistical risk was no reason to "Try this therapy (no lactose, digestive enzymes) for a few months." My tumor was very large and advanced and I am incredibly lucky NOT to have lymph nodes involved. We can't be satisfied with raising the awareness of the general public, we must raise the awareness of DOCTORS, TOO! THANK YOU

From: Wendy
Date: Wednesday, March 20, 2002
Time: 09:19:38 AM -0800

Comments

Hey Molly, You are making the best of every second you are blessed with in this life! I work for the American Cancer Society in Atlanta, GA and want to know when the Colossal Colon is coming down south!!!??

From: Scott Klanke
Date: Wednesday, March 20, 2002
Time: 09:12:21 AM -0800

Comments

Hey Molly, I saw the colossal colon on Today and read about your story and trip. You seem like a really cool chick with a lot of desire and tenacity. You're pretty darn cute too!;) I wish you all the best in life and make sure that you tell Sergei what a lucky guy he is to have a hot girl who skates! Best Wishes from Luddington MI, Scott :)

From: Vicki Jo Hensley
Date: Wednesday, March 20, 2002
Time: 09:06:00 AM -0800

Comments

I am about to go my gastrointerologist as they have found blood in my stool. My mother had colon cancer at the age of 66. I am 45 and I know that I have to have this test done. I know my mom came through with flying colors, after surgery and chemo, but I am still scared of what they am going to find. Just wrote to let people know that when you hear "colon cancer" that it is not a death sentence. My mom is 77 now and doing fine. I just hope that I can be as strong as her. Thank you for this site, it is very informative. Hope you continue to do well..

From: Marilyn
Date: Wednesday, March 20, 2002
Time: 08:56:53 AM -0800

Comments

Dear Molly. THANK YOU for all you are doing to raise awareness of this silent killer, which is very curable if caught early. I am one of the truly lucky ones. At age 32 I was diagnosed with adenomatous familial polyposis. Translated I had multiple polyps, at least a hundred, too mant to count, none of which thank god had become cancerous, but I was told I would have cancer by the time I was 40. My messages to anyone is 1. DON'T ignore symptoms however insignificant. I only had a small amount of bleeding when I passed gas,of all things, thats all. I did ignore it the first time, but perhaps because i'm a nurse I knew it it wasn't right the second time it happened. The bleeding polyp was found during a sigmoidoscopy in the doctor's office. I have since had a colectomy, all my large bowel was removed. What I am reading in these accounts is, that people were not asked about their family history of polps. SO important. Message #2. Survivors with children. HAVE YOUR CHILDREN CHECKED.Both my children have my disease,and were diagnosed over seven years ago, and they are only 17 and 20 now. They both have multiple polps and will both have colectomies in the near future, they are currently being screened every year. My heart goes out to you all that are fighting this battle, and for those of you who love people who lost the fight.I thank all of you for raising awareness of this often silent killer. Marilyn

From: Adam Vogler
Date: Wednesday, March 20, 2002
Time: 08:51:22 AM -0800

Comments

Glad Hannah included this andress in her E-mail regarding ya'lls appearence on the TODAY show. By the way you two did great.

From: Adam Vogler
Date: Wednesday, March 20, 2002
Time: 08:51:06 AM -0800

Comments

Glad Hannah included this andress in her E-mail regarding ya'lls appearence on the TODAY show. By the way you two did great.

From: barbara youngs
Date: Wednesday, March 20, 2002
Time: 08:46:08 AM -0800

Comments

great site very informative i hope it will save many lives. we are fighing hor my brohers at this time he has stage iv

From: Lynda Edmonds, Fillmore. Ca.
Date: Wednesday, March 20, 2002
Time: 08:38:05 AM -0800

Comments

Molly, I share your thoughts, 1999 was the year I too was diagnosed with colon cancer. Not the usual symptoms but an abdominal pain I couldn't explain. I had surgery, part of my colon removed and 6 months of chemo. My CEA's have been low or undetectable since treatment and I feel great and thank God every day for early detection. I am now 55 so was at the prime age when this happened to me. Thanks for your work on awareness of this disease. Lynda Edmonds

From: MARTHA MANN BAKER
Date: Wednesday, March 20, 2002
Time: 08:27:20 AM -0800

Comments

THIS IS A WONDERFUL IDEA. MY MOM GOT COLON CANCER IN 1979 AT AGE 57 AND IS STILL ALIVE EVEN AFTER IT CAME BACK TO HER LIVER THREE YEARS LATER. I KNOW I SHOULD BE SCREENED BUT INSURANCE WON'T PAY. I AM 48 YEARS OLD AND AM AT HIGH RISK. WHY WON'T CONGRESS MAKE INSURANCE COMPANIES PAY FOR SCREENINGS??? THANKS FOR YOUR INFORMATION-MARTHA MANN BAKER

From: Chase Magnuson
Date: Wednesday, March 20, 2002
Time: 08:20:33 AM -0800

Comments

I'm working with your Mom on real estate donation to one of my charity clients. I'd like to see if there is some way the National Colon organization could use some of my programs to increase donations. Check www.aboutcaps.com and www.realestateforcharities.com for general information.

From: A.D. Kriemelmeyer
Date: Wednesday, March 20, 2002
Time: 08:02:02 AM -0800

Comments

Very Good story.Sorry it hit you at your young age.I had two polyups removed 1998 at 61.I guess I'll tell my son at 35 yrs.He has diabetes that was found in 1996 one month after my triple bypass.We never went to Dr's because we never even got colds. Thanks

From: Sandy
Date: Wednesday, March 20, 2002
Time: 07:50:54 AM -0800

Comments

Molly, I HAD colon cancer also. It was confirmed on February 15th, 2002 and I had surgery Feb 18th to remove it. My symptom was unexplained severe anemia. I did have an ache in my lower right abdomen so the Dr ordered a cat scan that showed a mass in the ascending colon. I had a colonoscopy that revealed it was cancer. THe surgeon removed about 2 ft of colon that contained the tumor. He also did a biopsy on 21 lymph nodes to check if it had spread. It hadnt spread at all and so I didnt need any further treatment, but I will be on a regular follow-up schedule. I am 48 years old - still under the suggested age to have it checked as a routine precaution! I am also committed to raising the awareness of this disease! Thanks for all you're doing - I saw your segment on the Today show this morning.

From: Lyn
Date: Wednesday, March 20, 2002
Time: 07:27:03 AM -0800

Comments

I am a colon cancer survivor....one year after a divorce after 27 years and the loss of my only daughter (18) in a car accident I was told I had colon cancer. I am a five year survivor.....

Thank you for all you do

From: Felicia Murphy
Date: Wednesday, March 20, 2002
Time: 06:48:07 AM -0800

Comments

Dear Molly, You are an inspiration to everyone. I admire all that you have done for yourself and others. Thank you for raising awareness of colon cancer. I learned a lot from your website. Keep your spirit up & good luck with everything. You go girl! -Felicia Murphy

From: Robert from York, PA
Date: Wednesday, March 20, 2002
Time: 06:03:21 AM -0800

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I am 71 years young and never had much sickness. The last week of July 2001 I had bleeding and wondered why. I went to my Doctor and was sent for tests and a colonoscope. They found a small tumor, reccomended a surgeon and on August 8 I was operated on and about 1 1/2 foot of colon removed. It was cancer. I was confused and scared. Why me? I ask this many times. For the past 2 years my family Doctor had recomended I get a colen test but I was afraid and kept putting it off. I'm sorry now that I did. I just finished chemo and radiation the beginning of March 2002 and on my way to live happely many more years. I just wish I would have gone sooner when the tumor was only a polop. I have been reccomeding to all my friends to get tested especially the ones over 50. Keep up the good work you are doing.

From: David Toback
Date: Tuesday, March 19, 2002
Time: 11:27:54 AM -0800

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Very nicely done......

Your Aunt Lois posted a link to this site in her newsgroup.

Cancer runs in my family,so I'm glad to see someone as young as you involved in the search for a cure.

From: Lynne Poublon
Date: Monday, March 18, 2002
Time: 07:27:05 AM -0800

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Thank you for your website and awareness of this silent killer. We visited the Aviation Mall recently and enjoyed seeing the colosal colon.

God Bless you Molly

Lynne Poublon

From: Erik Nanstiel
Date: Saturday, March 16, 2002
Time: 07:32:51 PM -0800

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Molly, The Colossal Colon looks incredible! I hope MINE never looks like that! Whose colon was that modeled after? That is one sick puppy! Get him/her to the emergency room right away! :-)

Nancy and I think what you're doing is GREAT. Where is the colon's home going to be after the display is up? It looks worthy of the Museum of Science and Industry...or some such place! Do NOT let them dismantle that. It should have a permanent home in a public institution for higher learning!

Take care, and God Bless.

Love, Cousin Erik & family

From: possum
Date: Saturday, March 16, 2002
Time: 07:12:09 AM -0800

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would like to know about why the arm on the side of the lymphnoma can not be used for blood pressure orneedle punctures

From: JACK WERNER
Date: Friday, March 08, 2002
Time: 07:19:19 AM -0800

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FIRST OFF, I'M FROM YOUR AREA.....GLENS FAllS.. I'M A YOUNG 65 YEAR OLD WHO IS A "SURVIVOR" OVERALL...BYPASS SURGERY IN '95; PROSTATE CANCER IN '99 (I HAD A SEED IMPLANT AND RADIATION FOLLOW UP WITH HORMONE TREATMENTS) TODAY I AM CLEAR OF MY CANCER.OVER- ALL, THOUGH, I HAVE DEVELOPED OVER THE YEARS A SLIGHT CASE OF DIVERTICULITIS, WHICH GIVES OFF ALL THE SYMPTOMS OF POSSIBLE COLON CANCER. THIS WAS DETECTED IN THE SAME SERIES OF TESTS THAT YOU WENT THROUGH. GOD BLESS AND BY THE WAY, I SAW YOU CARRY THE FLAG UP HERE PRIOR TO THE OLYMPICS. IT WAS COLD THAT DAY, BUT CERTAINLY WORTH IT.

From: jen
Date: Thursday, March 07, 2002
Time: 03:11:56 PM -0800

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You really show that woman can do just as much as men can do!

From: Brian Pincheon
Date: Thursday, March 07, 2002
Time: 11:23:40 AM -0800

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Hi Molly, Just wanted to say "HI" and I think you are one Fantastic lady!!! My Mother and GrandParents all died from Cancer. My Mother and GrandMother both from Colon Cancer. I do get checked myself and do believe in everything your doing!!!!...You keep up the GREAT work and If there is anything I can ever do for you...PLEASE let me know...Sincerely!!! I work 3 jobs.(Police Officer/Security Officer/Disc Jockey) Dave Covey and I have been Friends Forever!!! Take care and Good health to you!!! Brian Pincheon

From: Maureen McMillan
Date: Thursday, March 07, 2002
Time: 06:28:50 AM -0800

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Molly, I wrote to you on you cool@radiowins.com email but don't know for sure if you got it. When I just read your account of first learning about your cancer I relived my "moment". My doctor didn't have the courage to use the word cancer. He talked alot about how I had three tumors that had to be removed and made an appt with a surgeon. On my way home, I READ at the bottom of my colon "photos" that I had a diagnosis of colon carcinoma - CANCER???? - since then I have had multiple surgeries, chemotherapy and "thought" I was cured. Then on one particular visit to Dr Koh he told me my cancer had again invaded my liver - like you, the next 20 minutes (or 5) I didn't hear anything - this is why I always bring my friend Kevin with me - whenever I get news that I am not happy about time seems to stop - then you DO go through those thoughts about what is "best" for everyone else - are you going to be a burden to them? - should you just "check out?" - No, I am stubborn and refuse to let this "thing" get me! One other very important issue that you mentioned that I can relate to - I was being seen on a yearly basis here by a local doctor - he NEVER asked that all important question about family members having polyps - they only ask "Do you have a family history of colon cancer?" - No, I don't, but that is ONLY because my father was having yearly colonoscopys to remove all the polyps he had - now my father feels responsible for my dilemma - I have been very angry about being let down by my doctor! I want to be a part of your "colossal colon" - please let me know what role I can play - I am an RN (passed my boards 2 months before being diagnosed in Jan 2000) - I was only diagnosed because I was tired, put on 30 pounds and went to a DIFFERENT doctor to ask for help with weight loss - I was so severely anemic that he did additional testing and found a blockage in MY colon - another similarity - the difference was that my tumors had eaten through my colon and were in my lymph system - I should have had my colonoscopy at 40 instead of 50. I still look quite well despite my diagnosis and can talk to anyone so please let me know when you need people to work at the "colon"! Sincerely, Maureen McMillan 518-623-3745 I will be out of the house 11A - 4P today (3/7/02) if you leave a message I will get back to you or just show up! Thanks for listening! I so admire what you are doing to help others NOT go through what we have gone through.

From: Karen
Date: Tuesday, February 26, 2002
Time: 06:44:46 PM -0800

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At age 30 I have had three pre-cancerous polyps removed with no family history of colon cancer or polyps. Had it not been for the gastroenterologist that I went to who diagnosed me as having irratable bowel syndrome but deciding to do a scope just to be sure there was nothing else going on who knows what my have happened. I have been told I now have to have a colonoscopy done ever 3 years. But what I am most afraid of is that they still tell me that when my children are older they do not require testing until age 50 or unless they are having problems. Unless doctors and insurance companies change there policies I have already decided to tell my children to lie and tell the doctor they are having problems just so they can get a baseline screening done at an early age. If I had not been having problems to begin with I would have never known they were there.

From: catherine marr
Date: Wednesday, February 20, 2002
Time: 07:30:16 PM -0800

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I read your article and oh how apprpriate for me my husband was diagnosed with rectal cancer and today we went to see his surgeon and surgury was schedualed for march 5th in glens falls hosp.I am so scared for him and the depression that is already settin in.He has to have a colostomy,permanent.I have been an aide for over thirty years and it doesn't bother me,but i am not a man.I am so worried about his attitude he has to feel better about this.I wish I could convince him he will be ok but i can't overwelm him too soon.I wish it was me not him.Sincerely Catherine Marr

From: Bonni Garvey, Saratoga Springs, NY
Date: Tuesday, February 19, 2002
Time: 09:02:58 AM -0800

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FIRST, I WOULD LIKE TO WISH MOLLY A HAPPY 26TH BIRTHDAY!!! MOLLYIS SUCH A WONDERFUL HUMAN BEING, AND A COURAGEOUS ONE AT THAT. I MET HER BY FOLLOWING HER JOURNAL WHILE SHE ROLLERBLADED TO COLORADO. I WAS SO INSPPIRED, I MADE A DONATION AND KEPT FOLLOWING HER PROGRESS. AFTER HER RETURN HOME, WE CONTINUED TO E-MAIL. WE FINALLY MET HERE IN SARATOGA SPRINGS (WHERE WE BOTH LIVE) LAST MARCH AT A COLOON/RECTAL CANCER INFORMATIONAL SEMINAR. BECAUSE OF MOLLY AND THE DR. THAT PRESENTED THE INFO, I HAVE SCHEDULED A COLONOSCOPY FOR LATER THIS MONTH. WE ALL SHOULD HAVE A BASE-LINE SCREENING COLONOSCOPY BY THE AGE OF 50, OR EARLIER IF THERE HAVE BEEN ANY MEDICAL PROBLEMS IN THIS AREA OF THE BODY IN ANY MEMBERS OF YOUR FAMILY. I HAVE BEEN TOLD BY MANY, THE WORST PART OF THE PROCEDURE IS DRINKING THE STUFF YOU NEED TO DRINK IN ORDER TO PREP YOUR BODY FOR THE COLOONOSCOPY. THIS IS DONE THE DAY BEFORE THE ACTUAL PROCEDURE. ITS YOUR LIFE YOU WILL BE SAVING AND IF THE SCREENING SHOWS NO PROBLEMS, AS A MAJORITY DO, YOU, YOUR FAMILY, AND FRIENDS WILL HAVE PEACE OF MIND. ITS TREATABLE, CURABLE AND MOST IMPORTANT, ITS "PREVENTABLE".....IF WE ALL GET W/ THE PROGRAM AND HAVE A SCREENING!!!! WE GOT OVER THE STIGMA AND CAN FINALLY TALK ABOUT BREAST CANCER OPENLY, LET'S GET OVER THE STIGMA, TALK ABOUT COLON CANCER OPENLY, PREVENT IT THRU SCREENING, EATING HEALTHLY FOODS, EXERCISING ON A REGULAR BASIS, AND DRINKING LOTS OF WATER!!! WE, AS AMERICANS, VALUE LIFE, FAMILY AND FRIENDS, MORE SO THAN EVER SINCE SEPTEMBER 11. YOU OWE IT TO YOURSELF TO TAKE GOOD CARE OF YOU BY, AMONG OTHER THINGS, GETTING A COLON CANCER SCREENING TEST. JUST DO IT!!! THANK YOU, MOLLY, FOR I